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| Author | Post |
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garyv
Member in Phase 3
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Posted: Mon Mar 9th, 2009 19:33 |
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MP Progress: Ph1:Mar08, Ph2:Aug08, Ph3:Jan09.
Celebrating my 1-year anniversary on the MP!
Palliative Meds: none
Light exposure:- Mostly indoors, covered if out.
- Wearing 10x NoIRs in direct sunlight only, no indoor light restrictions.
- Vision can become “garish” if outdoors in direct sunlight without NoIRs.
- No other symptoms when exposed to sunlight or bright lights indoors.
Symptoms, ongoing:
- grey-outs (orthostatic hypotension)
- lack of muscle stamina
- general fatigue, esp. mid-late afternoon
- leg/foot cramps during night, occasionally severe
- occasional hand cramps in evening (after slicing meat, etc.)
- Raynaud’s if fingers exposed to cold
- dry, flaking scalp
- tinnitus
Lab reports (out of range values only):
Oct08 Jan09
Hemoglobin: 11.9 11.5 LOW (ref. 13.2-17.1)
Hematocrit: 32.8 32.7 LOW (ref. 38.5-50.0)
RBCs: 3.7 3.7 LOW (ref. 4.2-5.8)
BUN 27 39 HIGH (ref. 7-25)
Creatinine: 1.70 2.05 HIGH (ref. 0.5-1.3)
eGFR: 42 41 LOW (ref >60)
24-hr urine creatinine 85mg/dL 102mg/dL (ref. 20-370)
25(OH)D3 33ng/mL 36ng/mL
25(OH)D2 <4 <4
DEXA (bone densitometry) report:
Dec07 Feb09
Left forearm Radium 92% -0.8 88% -1.2 (% Young Adult and Young Adult T-Score)
AP Spine L1-L3 71% -2.9 70% -3.0
Dual Femur Total Mean 84% -1.2 81% -1.5
Test interpretations:
- Kidney metabolites remain high (since Jul08) showing ongoing immunopathology. However, 24-hr creatinine clearance remains normal, demonstrating no chronic kidney disease. Kidney function is also returning to normal (see below).
- Red blood counts remain depressed (since Jul08), revealing chronic infectious anemia previously hidden before starting the MP. Fatigue, especially muscle fatigue during exertion, is my primary IP symptom.
- DEXA scan shows continued downward trend for bone density (since at least Sep99). Too soon yet to look for improvement in these markers.
Indicators pointing to recovery:
- Starting 2 months ago (10 months into MP), I am now able to sleep 6+ hours w/out getting up to urinate. Other nights when awakened by leg/foot cramps, there’s often no feeling of needing to urinate or volume is much reduced. I’ve not experienced this since my 20’s (now 56), and it indicates that my kidneys are healing and regaining the capability to concentrate urine during sleep.
- Also 2 months ago feces began to sink, indicating less fat content and better fat digestion. They are also smaller and more frequent (often 3x/day). Digestion continues to be very smooth, no issues, no gut IP. I take antibiotics with water only, in morning on an empty stomach.
Comments:
- Diet adjustments made Dec08 to reduce 25(OH)D, which remains higher than desired, although I’m getting plenty of IP even with these relatively high values.
- Info I have received in recent months indicates that highly cooked animal fat, such as tallow used in the “survival” food pemmican, can be highly immuno-suppressive for some, in a similar fashion to secosteroid D. I’m speculating here, but my total lack of gut IP (which I had plenty of before adopting a Paleolithic diet) and ongoing systemic IP despite high 25(OH)D may be at least partly attributable to my use of raw, grassfed beef fat as my primary calorie source.
- I did not expect to see signs of recovery at only 10 months into the therapy. Truly, a cause for celebration at this one-year mark!
- Thanks to all nurse/moderators for their exceptional help and devotion, and, of course, to Dr. Marshall and team as they continue to create a new paradigm in the treatment of chronic disease!
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DxOsteoporosis/osteoarthritis/Raynauds/paresthesia/tinnitus 1,25D69 Ph1Mar08 Ph3Jan09 25D44(Apr09) no meds or light avoidance, covered in direct sunlight only
"Fear not the path of truth for the lack of people walking on it.” –Arabic proverb
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BARNEY
Moderator
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Posted: Tue Mar 10th, 2009 23:38 |
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Hi Gary,
When I saw your name, I thought my brother had started MP without telling me.
Your post looks like you have it all down pat. So glad you are doing so well.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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lhebel
Member in Phase 2
| Joined: | Mon Sep 3rd, 2007 |
| Location: | Oxford, Georgia USA |
| Posts: | 19 |
| Status: |
Offline
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Posted: Fri Mar 20th, 2009 02:20 |
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Gary,
Have you considered getting your magnesium and potassium levels tested? Your muscle cramping may be a result of low levels of either or both. As I am sure you are aware, not all suffering is healing.
http://www.merck.com/mmhe/sec05/ch074/ch074b.html
Regards,
Lee
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CFS, 5/08 d25 28, d 1,25 42, began self directed MP 6/26/08, 11/08 d 11.8, Phase 3 12/08. 11/08 CFS is gone, resolving other issues. Not avoiding light.
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BARNEY
Moderator
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Posted: Wed Mar 25th, 2009 19:21 |
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Gary,
Lee could be right. Probably best to have it checked.
I had continued muscle problems until just last month (into 3rd mo of 4th yr MP) and it has almost entirely left. I had muscle spasms pain, hip and leg pain all my life and was in therapy a lot. My magnesium and potassium were never low. I believe it was the bacteria 'eating' away at the muscle. As MP kills off the bacteria, the muscles can then begin to heal. I could also be wrong in your situation.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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garyv
Member in Phase 3
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Posted: Sun Mar 29th, 2009 15:36 |
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Thanks Lee and Barney!
My CBC blood tests have never shown a deficiency of either Mg or K, but I'm also aware that a tissue deficiency may yet exist since the body will draw minerals from elsewhere to keep the blood balanced.
I had a "SpectraCell" analysis done 4 years ago, which tests nutrient levels supposedly available to body tissues (through analysis of lymphocytes), and it also did not reveal any Mg, K or other mineral deficiencies.
However, a hair mineral test done at the same time did show that I had about half the Mg value of "normal" even though I was supplementing at the time.
Pre-MP, I used Mg "Oil" topically for a number of months and found it effective (palliative?) for muscle cramps. It's also rather messy, and when I quit sunbathing after discovering the MP last year, I discontinued it. Mg Oil can also be taken internally, but it has frequently caused loose stools, so I have previously avoided that method.
However, a few weeks ago, I had such a severe cramp in my calf that I actually cried out in the middle of the night when my feet hit the floor with no relief. 
It eventually subsided, but this motivated me to try the Mg Oil again internally. I suppose I overdid it, since I had loose stools for 2 days, but I had NO cramping to speak of for almost 2 weeks afterwards!
So now I'm trying just a few drops of Mg Oil each day to see if I can avoid both loose stools and cramping with a more frequent but smaller dose. Perhaps it's possible that the L-forms in my muscles are somehow inducing a need for additional Mg, although I'm aware that the Marshall Pathogenesis takes a dim view of "deficiencies/repletion" therapy.
As long as other IP symptoms are unaffected, however, it would seem to me that the Mg Oil would not be contra-indicated as an immune "disruptor."
Thanks again to you both for your helpful insights! 
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DxOsteoporosis/osteoarthritis/Raynauds/paresthesia/tinnitus 1,25D69 Ph1Mar08 Ph3Jan09 25D44(Apr09) no meds or light avoidance, covered in direct sunlight only
"Fear not the path of truth for the lack of people walking on it.” –Arabic proverb
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