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KFaucher
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Posted: Fri Dec 10th, 2004 20:17 |
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Start Benicar 12/2/04; Start mino 12/8/04
Continued from http://www.marshallprotocol.com/forum19/1471.html
Stabilized on Benicar, starting mino at 25mg. Looking forward to herxing! Well, not really, but you know what I mean.
"They are a sign, these first thunderheads, that a new world of rich harvests, lush meadows and billowing groves is on its way to replace the barren fields, bleak outlines and devouring chills that have so long oppressed us."
From Arundel by Kenneth Roberts
Ken
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KFaucher
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Posted: Sun Dec 12th, 2004 09:24 |
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Start Benicar 12/2/04; Start mino 12/10/04
Research team please note corrected start date for mino. Brain fog had already started in when I posted, those kind of mistakes are going to make it difficult to contunue working.
Mark me up for first day herx. Joint/muscle pain (sharp), muscle twitching, headache, fatigue, weakness, and heavy brain fog. It's like deja vu all over again! This is the worst fog since I started wearing NoIRs.
Day two: feeling almost pre-mino except for lingering brain fog, so I'm confident it was herx and not reaction to mino or symtom flare.
This could be a very long year.
Ken
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Dr Trevor Marshall
Research Team
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Posted: Sun Dec 12th, 2004 11:18 |
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No Ken, probably not a year.
Although the herx will gradually fade over about 18-36 months, it changes its character, so you should find that after about 6 months you will start experiencing benefits as well, and one of those benefits is a reduction in mind-fog, and an increase in cognition along with an improvement in memory.
No promises, mind you, just a "heads-up" 
..Trevor..
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KFaucher
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Posted: Sun Dec 12th, 2004 11:36 |
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Thanks Trevor. It's something to hold on to on days when the IQ drops to single digits!
Ken
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Tami
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Posted: Wed Dec 15th, 2004 22:18 |
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Hi Ken, Thanks for your posts, I appreciate you describing your symptoms and your progress. I liked the quote, so nice. Hopefully, I'll not be too far behind you with adding the Mino.
Best Wishes for Health, Tami
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FMS CMP CFS MCS Dementia TBI OA RSD MI MVPS C.Pneum thyroidectomy Pos ANA ParvoVirus| Avoid D/light NoIRs| Lexapro Trazadone Synthroid Aspirin other meds on file| Ben Q8H Minocin 25mg every other day
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KFaucher
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Posted: Thu Dec 16th, 2004 18:09 |
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Thanks Tami and others who pm'd. That quote has stuck with me since first reading it almost 30 years ago. It recurs to me whenever I face unavoidable difficulties.
Update: Second herx same as the first, maybe not quite as intense. Second day I felt very good. The problem with feeling good is that is likely to be downhill from there.
I took my third dose of 25mg mino on tuesday evening. Wednesday was one of the rare days when I have to spend the day out in the field surveying (I am usually in the office on the computer). Spent about 5 hours in the woods, in and out of the sun. I covered up very well. Hey, it was 20 degrees out! Several layers of clothing, hood, wide brim hat, goggle like glacier glasses, full ice-coverd beard. All that was exposed was my nose and cheeks. This was a weak winter sun which the "studies" show will not produce vitamin D. Bah-humbug! If I could get a mild sunburn (which I did ), I suppose I could generate plenty of vit D.
Ended up with severe headache, brain fog (pea soup thick), vertigo, and various pains. I did not have the itchy numbness around the eyes that I have come to view as symptoms of too much light in the eyes. I guess the very dark lenses worked pretty well.
Thursday I felt better but still with a few symptoms. Decided to skip this evenings mino dose as I need to be out tomoro for doctor and a funeral. Also I understand that a 1,25D spike will last 2 or 3 days, so I'll give it a chance to stabilize and take the mino a day later.
Oh, well. Live and learn. There are always new mistakes waiting to be made.
Ken
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Aussie Barb
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Posted: Thu Dec 16th, 2004 18:48 |
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Dear Ken
did you know or remember that taking Benicar Q4H for the day when having sun exposure can lessen symptoms?
Barb...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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KFaucher
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Posted: Thu Dec 16th, 2004 22:31 |
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Hi Barb,
I had planned to increase to 6 hours but got stuck in the woods and did not get back to the car until 1:30. Hmmm, wait the extra half hour to take the regular 8hr dose or take the pill now? I popped the pill. Took another 20mg at 7:00 and 40mg at 10:00. It did seem to help. Next time I will carry a pill with me.
Fortunately I only had a small amount of exposed skin and the effects are disappearing.
Ken
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KFaucher
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Posted: Mon Dec 27th, 2004 19:01 |
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Benicar 8hrs (6hrs when needed), Quercetin 500mg 8hrs, mino 25 mg
Friday December 17, 2004 – MP day 9
Skipped last evenings mino because I had doc’s appointment and a funeral today. Felt very good despite the funeral. Brain fog disappeared and my mind was clear, but it seems to be a bit rusty. Brain is trying to function normally but just can’t quite seem to get going. I can almost hear a small voice saying "oil can". Then I took another 25mg mino and the fog started to roll back in.
Took mino on Friday, Sunday, and Tuesday evenings and settled into a pattern. The herx starts 1-2 hours after mino, next day is rough with peak herx at about 24-30 hours. It then starts to reduce and mostly ends at about 46 hours. This gives me about 4 hours of feeling pretty good and then it all starts again. Symptoms have been brain fog, fatigue, and ephemeral sharp pains. The pains have been mostly in my legs and tend to shoot up the nerves, sometimes including the hips.
I skipped Thursday’s mino in order to avoid xmas herxing. Felt very good Friday, and did my christmas shopping. Saturday felt very good. Took mino Saturday evening. So much for feeling good. Herx again until Monday afternoon.
Monday December 27, 2004 – MP day 19
Just took my next mino (25mg). I have decided that as long as my current herx routine lasts I will take the mino on Saturday, Monday and Wednesday evenings. Allowing 72 hours at the end of the week. That way I will only have two bad herx days at work, and for one weekend day (Saturday) I should be feeling good.
Ken
p.s. Talked to a pharmaceutical rep for Forrest, turns out that they and sankyo are related and Forrest sells Benicar. He was very interested in the MP, took down the websites and I pointed him toward Dr. Marshall's papers. He can't promote this until he gets the word from above, but he will try to push it up the ladder.
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Reenie
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Posted: Tue Dec 28th, 2004 22:56 |
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Ken,
Please let us know how it goes, with the pharmacy rep. That sounds very promising! Is this a co-worker or someone you come in contact due to your work?
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KFaucher
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Posted: Wed Dec 29th, 2004 19:22 |
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LOL - I just looked at my previous posts and noticed that I keep changing my start date. For the record, I began mino on december 10, 2004 and this is day 19 (december 29). I put it into an exel spreadsheet so I won't lose track in the future.
Funny how herxes go. One time its a nasty sinus herx (just like a sinus infection but goes away in 6 hours), and next time almost no herx at all.
Reenie - don't get too excited. Reps may have undo influence with too many doctors, but I don't think they have a lot of pull in the company. This particular rep is a relative. I did not realize that Forrest carried Benicar or I would have called him months ago. He will do what he can, but time will tell. The good news is that he really knows his stuff. He was more knowledgeable about arb's and how they work than most doctors. One of the things they promote is that Benicar forms a more complete AT1 blockade than other ARB's. He was pleased to hear that Trevor's research agreed with this. He was surprised that I knew it provides kidney protection. Hopefully he can alert the right person and make a difference, but.......?
Had a strange dream last night. I was fishing on a large river, and had a very large atlantic salmon on the line. Except it wasn't really a salmon, it was sickness (cfs). In the manner of dreams I knew that if that fish got away, I was dead. As the fish ran out line, my health deteriorated. When I could reel in line, my health improved. Several times it ran me far into the backing. Sometimes I had most of the line on the reel and could see the leader coming clear of the water. I woke with the outcome still in question
I don't often dream in allegory, but I kinda like this one. For the last couple of years that fish has had a lot of line out, and has been shaking his head and rubbing on the rocks. This past summer he went on another run, reel singing and backing disappearing. Now that I have started the MP I have managed to stop the run and regain a little line. I can feel the fish tiring. Instead of spectacular leaps he only thrashes on the surface. Now I just need to be patient, don't try to horse it in. Just take it slow and easy. When this one is landed, I'm buying the drinks!
Well I am off to take another 25mg mino, wonder what the next herx will bring? I must admit, I enjoy the few hours of clarity between herxes.
Tight lines,
Ken
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Reenie
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Posted: Thu Dec 30th, 2004 19:51 |
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Ken,
I've had some really "odd" dreams since on the MP. They all seem to have something to do with my illness and healing. I think it may be that my mind is working/thinking more about this stuff and my sleep is better so I dream more.
As for the Pharmacy Rep being a relative, that can't be a bad thing. In fact, that usually means you'll be seeing more of him. 
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KFaucher
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Posted: Wed Jan 5th, 2005 21:22 |
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On Saturday I accidentally took 50mg mino instead of 25mg.
Sunday was mild herx, mostly joint pain.
Monday was a "cold". Sinus congestion, runny nose, coughing, sneezing - cleared up by noon! In the afternoon I had no energy and low blood pressure do I skipped the mino dose.
Tuesday I felt awful. Weak, fatiged, brainfog etc. Left work at noon, took a nap, started feeling better. Did not take any mino.
Wednesday felt fine. Limited brainfog, reasonable energy, normal BP. What I think of now as "Benicar normal". Took 25mg mino. Will stick to 25mg for a while,
Ken
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Reenie
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Posted: Wed Jan 5th, 2005 21:58 |
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Ken,
It sounds like your short duration "cold" was prob a herx. You did the right thing by holding off until you could assess your situation.
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KFaucher
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Posted: Mon Jan 17th, 2005 19:44 |
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Full Protocol Day 38, Mino 50mg, Benicar 40mg Q8 (sometimes Q6, occasionally Q4), Quercetin 500mg 3/day
Started 50mg mino on Jan 10. Herx has been minor until about 40 hours after mino, then have about 6 hours of fairly strong herx. Feel fine in time for next dose.
I have been playing with the Quercetin to see if it really has any effect. Stopped for a few days, the took it for a few days, the repeated. For me it seems to help in a slightly different way than I have seen mentioned. It doesn't seem to affect the intensity or duration of the herx, but at times of low or no herx it gives me a little bit more energy, a little less cognitive difficulty. I have decided that it is enough of a plus that I will continue to take it.
One other thing I noticed about the Quercetin. A single dose had no noticable effect. It was only after 2-3 doses that the benefits became noticable.
Had to work outside today, survey work at a construction site. Upped the Benicar to 4 hours. Wore my extra dark glasses (15% glass Rx glacier glasses with 2% Amber NoIR clip-ons). Very little exposed skin. In the little bit of skin that was exposed, the keratinocytes were probably too busy freezing their little keratino-butts off to worry about 1,25D production. I have not noticed any negative affects yet.
Ken
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KFaucher
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Posted: Wed Jan 26th, 2005 22:06 |
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Wednesday January 26, 2005 Full Protocol Day 47, Mino 50mg, Benicar 40mg Q8 (sometimes Q6, occasionally Q4), Quercetin 500mg 3Xday
I have been having mild herx on day one, with stronger herx on day 2, clearing up about 2 hours before the next dose. Just like clockwork. Untill Tuesday the 25th.
I have found that snow and sun create a very bright world! The reflection off the snow caused a few unforseen problems and I got a little too much light. Then to top it off I made a poor decision to take the dogs for a walk after work. It was the first time the temps had hit double digits in a week, the dogs were restless, so I strapped on my skis and headed out around the field. It's only a half mile loop but I had to cut that in half. The dogs are getting old and soft and were complaining about cold feet. I discovered that herx and exertion don't mix. I have rarely felt that physically drained. The three of us looked pretty pathetic limping back home.
Skipped the mino. Increased the Benicar. Still felt horrible. Left work at noon today and crashed for a couple of hours. Then managed to snowblow the drive without passing out. At least when it's snowing the sun is not shining, Feeling better now but will hold off on the mino until I have fully recovered. Will hold off on physical exertion for a while as well. Damn! these are the best skiing conditions we have had in years.
Ken
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Meg Mangin R.N.
Research Team
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Posted: Thu Jan 27th, 2005 00:56 |
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Ken,
I'm sorry to have to remind you that the protocol requires that you diligently avoid daylight as well as sunlight. Clouds do not obscure the rays that trigger the production of 1,25-D. I hope you will find someone to snowblow for you and confine your skiing to the hours of dawn and dusk. You can apply 2% Ketoconazole cream to those areas of your face that you can't cover. And please wear the darkest 2% NoIRs whenever you are forced to go out during the day. The snow is dazzling too here in Wisconsin when the sun shines.
Best,
Meg
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KFaucher
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Posted: Thu Jan 27th, 2005 18:25 |
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Meg,
Sooooo.... would this be a bad time to ask about phase 2? (just kidding)
I know the all the warnings, so you don't need to waste your time on trying help me. I've been told many times that I am beyond help. They may be right.
There is a gap between the amount of light that will cause problems and total darkness. Many stay very close to the dark side. I will always dancing along the line on the light side. Sometimes I will fall over. Mostly I will be fine. I will be flexible, adapt, adjust and change channels as necessary. As long as I am herxing, I am healing. I have been herxing along very nicely. It may take me a little longer to heal on this path, but if I lock myself in a cave for several months I do not believe I would emerge with any sanity. (Sadly, few would notice the difference)
This is now the fourth day since my last mino. Feel absolutely great! But we can't have that now, can we? I am now off to pop another little herxmaker (aka mino).
Ken
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Reenie
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Posted: Fri Jan 28th, 2005 01:52 |
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Meg says, "The snow is dazzling too here in Wisconsin when the sun shines."
Let me just say... we've had soooo much rain for Phoenix that now, the sun is dazzling here too, when it shines. 
No really, I have a point to this post.
Ken, let me say... you (and other MPers) may find, as I did this week, that as you progress thru the MP, you'll have days that your sun/light sensitivity controls YOU, not the other way around, I'm afraid.
I've just recently had to start using my 2% NoIRs outdoors and it's not even THAT bright out yet. We've got a long way to go before summer.
Reenie says, "I had a feeling of nausea and severe, intense eye pain come over me this afternoon while driving to get Rx filled, even wearing 2% NoIRs. I was afraid I wasn’t going to be able to stand it much longer in the store, so I dropped off the Rx and went back to pick it up an hr later. I was fine by then. When the sun dropped below the horizon, although still light out, I was fine."
http://www.marshallprotocol.com/forum30/679-6.html
The herxing can cause you all sorts of 'surprises.' I now have to be extra careful and respectful of the light, on certain days.
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KFaucher
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Posted: Fri Jan 28th, 2005 19:50 |
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Reenie says "Ken, let me say... you (and other MPers) may find, as I did this week, that as you progress thru the MP, you'll have days that your sun/light sensitivity controls YOU, not the other way around, I'm afraid. "
Funny you should mention that. I took 50mg mino last evening and woke up this morning with my eyes burning and uncomfortable, very light sensitive. Seems that part of my problem earlier was an eye herx that I didn't recognize. This is going to be a problem. I can't work and protect my eyes. I can't protect my eyes and work. The only option I can see at the moment is to retreat to the cave and play mushroom. Hopefully the eye herx won't happen too often.
Reenie says "I've just recently had to start using my 2% NoIRs outdoors and it's not even THAT bright out yet. "
I have been wearing less than 2% outdoors for weeks now!
Well, I have to turn this computer off before I burn my eyes out. This is not my favorite herx.
Ken
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