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BARNEY
Member in Phase 3
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Posted: Fri Mar 17th, 2006 07:53 |
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DAY 439, 3/16/06, PHASE 3, DAY 3, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, NO PAIN PILLS OR ACIDOP (FORGOT), ALL TOLERABLE
Spent almost all day on phone between family and friends. Hardly got out of the recliner.
Intended 2 days ago to move my bedroom around which required me tearing my computer and desk down to move.....haven't got there yet but plan to tomorrow. Was going to do it tonight and started checking the car out (fluids)....roommate came home and the rest of the evening was a competion (discussion) of brains. Needless to say...mine could use more power. Even my roommate notices a lapses in memory/brainfog.
Still having hands trying to make a fist, but only a little. Neck still a little sore and my head actually started to ache as roommate and I got into a deeper and deeper discussion. It felt like my brain was rebelling from trying to comprehend the discussion even tho I understood it completely.
Put my electric blanket back on my bed on 1 as I have not rested well the last 3 nights....waking and feeling cold often....and not smart enough to get up and do something about it. Tonight I am starting out right.
Eyes dry and itchy again. Otherwise, ok.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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Memoking
inactive member
| Joined: | Wed Apr 6th, 2005 |
| Location: | Illinois USA |
| Posts: | 314 |
| Status: |
Offline
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Posted: Fri Mar 17th, 2006 09:04 |
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| Barney.. You may think you are not helping people, but you are. Just reading about your experiences with the Marshall Protocol is a great help, and you are an inspiration. I believe that you help more people than you know. and I know your children and grand-children are inspired by you too.. Just the joy of reading your posts is amazing..I enjoy reading them, and I know everyone else does too....Its a miracle that you can even keep up with writing the daily posts ...that in itself is an inspiration, and in such detail. Not only is it enjoyable to read, but very much appreciated, the calmness with which you write, and the hope and joy that you exude ,,,It's very much appreciated, and you are a good writer.. I do enjoy reading about your life, and knowing that the MP has helped you. Take care.>>Mary
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Mary..Sarcoidosis. 1,25D=56..25D=6..Began Benicar 20mg q3hrs..9/4/05. Granulomas in arms, hips,legs. Painful lymph nodes hips, armpits. Pain in chest,back,head. Avoiding sun/bright lights/Vit D. Using NoIRs
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BARNEY
Member in Phase 3
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Posted: Sat Mar 18th, 2006 01:41 |
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Thank you Mary for your very kind remarks. It is great to see you in Phase 2, it seems like yesterday that you started Phase 1. Congratulations on sticking with MP. You will not live to regret it, IMO.
DAY 440, 3/17/06, PHASE 3, DAY 4, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 25MG EXTRA MINO, 20MG EXTRA BENICAR, 2 PAIN PILLS, 1 ACIDOP, TOLERABLE BUT CLOSE TO NOT
Seems like the more mino and benicar I take the more intense this herx is getting. It is tolerable but if it increases anymore, it will not be.
My jaw from my eye tooth (right side) to my ear has hurt for 3 days, it is bearable but letting me know it is there. My arms from elbows up thru shoulders and neck hurt like h..... but bearable. Have taken extra everything but nothing is calming it down. Hopefully time will take care of this. I have not ramped up for a while, so that could not be to blame.
Still don't have my bedroom done....bugs me I can't get the 'gumpshon' to do it when I am sure it would make me a very happy camper. I would actually be elated. Can't decide if I get going at it if the herx would be off my mind or if it would make it worse and I would not have a bed to sleep in tonight because I could not get it finished. Guess the recliner is always an alternative to sleep in.
Need to go to the store....I am out of lemons and cannot live without them. Put them in my tea and make lemonade plus all the water I drink since I am unable to enjoy fruit juices (too much sugar) and no soda (can't drink diet with the aspartame). Sounds like a good excuse to go out huh? After dark, of course....besides I need a tv guide and it is in the Friday paper.
Well, enuf....I am going to close off.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Sun Mar 19th, 2006 04:18 |
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DAY 441, 3/18/06, PHASE 3, DAY 5, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
No herx today like yesterday was the worst in a long time. No neck arm or shoulder ache, no naps.......this is so weird. Did not have an experience quite the same since on MP.
Still have not gotten my bedroom done...fighting with my mind whether to start it or not. It has to get done sometime.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Mon Mar 20th, 2006 07:58 |
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DAY 442, 3/19/06, PHASE 3, DAY 6, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, PLUS 20MG EXTRA BENICAR, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL + 1 TYLENOL, ALL TOLERABLE
No more notice of me making a fist, hopefully that herx is over....started that darn aching from elbows up across shoulders and up neck. I am taking a sulfa based diabetes pill and I think it is adding tooo much to my combo....so decided that I would only take it every other day instead and see if that helps and the sugar still stays down. Has been pretty good lately.
I have never been able to take sulfa based meds....made me really sick and bad bad headaches. Since MP...I seem to be handling it better.
I got a call tonight which really stressed me out and am asking the MPers who believe to pray for my youngest daughter Denise (midwife)...she was hospitalized for severe headaches. The migraine she had Friday was bad and she took her meds and went to bed....got up and seemed to be okay then .... Sunday she got another 'migraine', took meds & nap and when she got up she did not know where she was. Her husband took her to the hospital and they have given her 2 shots of morphine and an anxiety shot to take away the pain and calm her down so they could do a cat scan. She is a very quiet, cooperative person, so this behavior surprises me, except that I am sure she was in lots of pain. They said they saw nothing by scan, but that does not surprise me. She is the one that has a spot on her arm and I was pregnat for when I had active sarcoidosis raging. I am sure she has sarc but hard to convince her to get the help she will need. (MP, of course). We will see what is next. Another sarc patient felt the headache that she did not know where she was, was a sarc headache.
Going to bed, do not know if I will have to go to Albuquerque soon...need to keep up my strength.
Tried to change my room around but desk will not fit, went to Walmart to get a different one and they are out till Friday. Bummer....all that work and had to put it all back so I could got to bed.
HANG IN THERE, WE WILL MAKE IT!!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Tue Mar 21st, 2006 01:35 |
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DAY 443, 3/20/06, PHASE 3, DAY 7, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, 1 PAIN PILL, 1 TYLENOL, ALL TOLERABLE
Upset stomach all day, too much stress. Daughter home from hospital, sounds terrible on phone, not herself at all. Still has pain in head...was given Percoset and phenegran. Cat scan showed nothing. Don't know what they will do next. Will suggest 1,25D test.
Had a stress headache which came and went as I was able to keep myself calm from time to time.
Well, I need to pick up my meds.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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supersarcboy
Member in Phase 2/3
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Posted: Wed Mar 22nd, 2006 05:16 |
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Hi Barney,
I am so sorry to hear about your daughter. You're both in my prayers. Keep your faith and know that God is with you always. Please take care of yourself.
We all love you dearly!
Peace and Blessings,
Dawn
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BARNEY
Member in Phase 3
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Posted: Wed Mar 22nd, 2006 05:26 |
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Thank you Dawn, She is not much better. She does know everyone now but still has the head pain. Hoping they will investigate farther to find the cause. Of course you know I feel it is Th1 involved.
DAY 444, 3/21/06, PHASE 3, DAY 8, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
Could not get myself out of the recliner. Just did not want to do anything. Finally got up and cooked dinner and filled the dishwasher, but by then I had a neck ache.
I do not get what you would call hungry (stomach wise). The next thing I know my head or neck is hurting and sometimes I miss what is going on and take a pain pill. If I think about it right, it is because I am hungry and all I have to do is eat and it goes away immediately.
Herx has been just the tiredness (laziness). Been on the internet a lot today but no 'hard' work.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
Last edited on Wed Mar 22nd, 2006 05:32 by BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Thu Mar 23rd, 2006 06:35 |
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DAY 445, 3/22/06, PHASE 3, DAY 8, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, NO ACIDOP (FORGOT), NO PAIN PILLS, ALL TOLERABLE
Spent most of today on phone and emails, checking on friends and family to see their improvements.
Went to Granny's for errands, covered w/noirs. Spent half a day there with her blinds closed and my cover up and dark glasses.
Went to dinner with roommate, for some reason I am wanting steak a lot (which I cannot afford often). Splurged and had one tonight.
Sugar level is good today, am happy about that.
When reading Barb's post, I realized 2 herxes I did not even think about...I too woke a few times last week with hands numb, just thought I had slept wrong. For about 3 weeks now, just the thought of food almost makes me gag, I have been having to 'tread lightly' when thinking of eating. Never had a problem with eating food before....my body was always willing to eat (thus the weight).
Otherwise herx level is good IMO.
Daughter is still having head pain (not as severe but enough), headed back to chiropractor again tomorrow. Thanks for all the prayers.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Fri Mar 24th, 2006 04:58 |
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DAY 446, 3/23/06, PHASE 3, DAY 9, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
I have slept almost all day and done absolutely nothing in the way of housework or any kind of work.
I had to go out 2 days in a row and that is not good for me, altho I cover completely and wear my Noirs even in my friends houses with their blinds closed.
When we ate dinner out at the steak house last night, I smelled an odor that smell like hot electrical wiring, it was even stronger outside. Today I got up with a cough and mucus (like I used to have with my asthma and mcs), I caught my hands making the fists again (like muscles pulling), muscles above knees and below hips were trying to cramp, and I have had a terrible time trying to keep my eyes open.
As soon as I finish this I will go back to sleep in the recliner....fell like I have sleeping sickness. Maybe I just need the rest. I know all of this is a herx, but it is not intolerable.
Talked with my daughter about getting an MRI, she is going to go to a neurologist in April. I am going to push her to do the 1,25 D and the 25D test. She said she sat down to play a card game with her daughter and she just felt like she wanted to throw the cards in the air. This is not like her either, she will play board games by the hours. She does not even remember the pain or what all happened. Has anyone on MP had this type of problem?
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Sat Mar 25th, 2006 22:57 |
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DAY 447, 3/24/06, PHASE 3, DAY 10, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMB, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
I did not post on time again, that is because I am so sleepy during the day and then when sundown comes, I want to go outside. It has been pretty chilly here the last few nites so I got all lazy and did not go out until last night. WOW ......what a mistake...I fixed my window that would not shut and put the top panel back on my skirting in two places, moved the steps (mobile home ones), just skooted them, raked that area, put the boards back and skooted the steps back, put 'biscuits' in my dog's outside feeder. And........man did I crash, I felt like at least 10 semis ran over me and came back again.
Now, am I sitting toooooo much and my muscles need a little more housework or is this the way I will be for a while. I am not getting anything done around here, and here comes spring......but my muscles absolutely hate me.
I went to sleep and stayed asleep. I have not been sleeping well in my bed so last night I slept in the recliner, was still sleepy so I slept half of today away toooo.
Neck has also been hurting today and I slept thru lunch, so I will go eat to see if it is the hunger pain that is affecting me.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Sun Mar 26th, 2006 07:37 |
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DAY 448, 3/25/06, PHASE 3, DAY 11, CYCLE 4/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE
Slept right thru lunch again. I think I am going to stop taking the glynase and see if that is what is making me feel so sleepy or if it is a herx. The glynase has not really kept the sugar readings low like it should anyway. Will report on the conclusion.
I am having what I consider to be a herx that I have not mentioned much, but tonight it is still evident.....I do not have the strength in my legs I feel I should have. After dark, I went out for dinner with a friend and was planning to go to Walmart, just did not feel I had the strength in my legs to walk in the store, so I came straight home. Had the hard time with the strength in my legs to get a little but done last night. I noticed in someone else's post that is in Phase 3, they mentioned weakness in legs.
Neck hurt pretty bad before dinner so I took a pain pill along with a tylenol and either that worked or because I ate it stopped or the combination of the two. Don't know which (since I skipped lunch).
Otherwise, slept day away, but it was okay. Did have to rewind my tape in the VCR 4 times before I finally stayed awake long enough to see it.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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DNStog
Advocate
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Posted: Sun Mar 26th, 2006 08:13 |
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Hi Barney,
I've had weakness in my legs on and off during all three phases. From Phase I to midway of Phase II, my legs were weak most days...felt like someone had tied weights to them. Now, the weakness comes and goes with no regularity. I've had to stop in the middle of shopping or performing a household task on many occasions and return home or rest. The good news is that it's it's duration is getting shorter with each dose of abx. 
Donna still cruising
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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scooker48
Member in Phase 3
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Posted: Sun Mar 26th, 2006 18:45 |
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Barney,
Keep reminding yourself you are healing. With all the sleep your body is requesting, its mending. Give your body all the time it needs.
When you return to health it will spring back.
Sherry
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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 11/18/08 D25 <4.0 L, Liver function normal 4/08; Wear NoIRs outside & for computer screen time. No K creme used.
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BARNEY
Member in Phase 3
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Posted: Mon Mar 27th, 2006 06:09 |
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Donna, it seems like my legs have been worse in Phase 3 than any other phase. I have walked around the grocery but usually wish I had used the motorized cart before I am done.
Sherry, I know I need to sleep but not 22.5 hrs a day. I have even been sleeping thru lunch (not good on the diabetes). I have hardly been out of the recliner except to find something to eat and go to bed and the bathroom. Wow, house is a wreck....before long we may need a shovel (haha)
DAY 449, 3/26/06, PHASE 3, DAY 1, CYCLE 5/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 3 ABX COMBO, 1 ACIDOP, NO PAIN PILL, ALL TOLERABLE
Did not take the glynase today, sugar level was not to bad, but I did not sleep most of the day (and night) away. I do not believe this to be a herx but will continue with no glynase again tomorrow to be sure.
Got 3 loads of laundry washed, dried and on hangers (just not put away yet), got one load of dishes in the dishwasher, completed and put away. Made dinner and sat down with roommate to eat. Since he is so rarely home before 9 or 10 (sometimes midnight) it was nice to have someone to talk with. It is also good to be awake.
My eye has a funny 'jerk' in the lower part that felt like a small cool 'stream' was open to the tear duct. Put some liquid tears in and it calmed down until just now. Not the typical eye jerk sorta like it could make a letter you are looking at 'jump around'. Sort of strange. Must have gotten something in it, feels like something is in there. Similiar to getting a poppy seed under your denture (for those who wear dentures, you know what I mean). Will see how that goes tomorrow. Might be a herx.
Going up on B tonight, it is past time according to the schedule I have been following. I believe all is well so far. We will see what tomorrow brings, as that is when the herx usually comes (the day after). It is also time for Z.
It is 66 degrees here tonight and I have the doors open to cool the house off, don't have cooler hooked up yet and cannot open doors and windows, during the daytime because of the sunlight.
Have to go out tomorrow, car is still leaking antifreeze. Will go to healthfood store for more acidoplilus. Hope nothing is major wrong, can't afford car repairs right now. Will cover up with all gear including Noirs.
HANG IN THERE, WE WILL MAKE IT!!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Tue Mar 28th, 2006 15:32 |
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DAY 450, 3/27/06, PHASE 3, DAY 2, CYCLE 5/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLEABLE
It has been nice to be able to stay awake more than an hour or 2 in a 24hr period. I know we need lots of sleep....but this is a little excessive. Need to eat lunch (diabetic) and have been sleeping thru it. I quit taking the glynase because I reached the limit of taking it.....reason....it has always made me sick to my stomach after less than 2 weeks of taking it (vomiting sick). I lasted a little longer this time.
It is sulfa based and I have never been able to take any sulfa based product for toooo long because I get giant headaches, sick to my stomach, etc. I had gotten to the point of eating maybe 4 bites of a meal and then just wanting to gag....it was very difficult to swallow the food. It was probably good in that I did not eat as much that way....which I do not have the will power to do most of the time.
I had stayed off it for 2 days.....it never did keep the sugar levels down all day to the level it should be...but....it did somewhat of a job....it had started back up all day yesterday, so late afternoon I took one....that was a huge mistake......all the symptoms of it came right back.
I would have been sound asleep in my recliner if it had not been for my neighbor (my mechanic) calling me saying it was dark out, to bring my car over so he could take a look at it. He fixed my right front car door so it would lock because I usually only go out after dark and don't feel quite as safe since it won't lock...it does now. The main reason I had him look at it is that I have to now have a new radiator (plastic one deteroriated) and I have to find the best price since the fixed income is a deciding factor and I must be able to purchase my MP meds, but I also need a car.
My legs have also calmed down since I quit the Glynase and let me walk in Walmart after car repair to go get my Tylenol (Walmart brand). Before I stopped it for the 2 days, the Glynase was making my legs so weak....must not have been enough in my system to have made my legs so weak again that quickly (within 3 hrs). I had to know if it was that or a herx. It was Glynase. I am hoping for the MP to take care of this diabetes soon the way it took a major part of my problems away.
Did not put my post on last night, was too late by the time I got all my after dark stuff taken care of. I had gone out yesterday to the radiator repair shop...but he was too expensive and only open daylight hours, and had to go to the health food store and pick up my acidoplilus. Cannot run out of that.
No new herx with the increase in B, really thought there would be. I went a little longer on last cycle than any others....maybe that helped. Don't know.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Wed Mar 29th, 2006 07:44 |
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DAY 451, 3/28/06, PHASE 3, DAY 3, CYCLE 5/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
Was able to stay awake most of day except for about 1/2 hr nap in early afternoon.
Got dishes loaded, unloaded, dinner prepared and dishwasher loaded again (not finished).
Rested and watched tv most of day, on computer part of day.
Nothing exciting and no real herxes to speak of.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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BARNEY
Member in Phase 3
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Posted: Thu Mar 30th, 2006 05:37 |
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DAY 452, 3/29/06, PHASE 3, DAY 4, CYCLE 5/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
No noticeable herx since moving up on the B, have been better since I stopped the Glynase for diabetes. Was able to walk around store with no leg problems.
Was extremely tired when I got home, but I walked thru 2 stores tonight and went to the post office (all after dark). A little tooo much inactivity, got to get out of that recliner a little more often.
I have had a funny 'habit' that has started for about 2 months now, I sleep on my side (either) and the ear that is not on the pillow has to be covered up and the air to my nose not blocked before I can go to sleep. Herx or not.
I got the news today that the Prescription Drug Plan will no longer pay for my Benicar or Mino unless my doctor will make known my need of it by a letter from her stating that they are a 'necessity'. Let the battle begin...which is what I am sure this will be.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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Toni D
Advocate
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Posted: Thu Mar 30th, 2006 11:17 |
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Hi Barney. It's great to hear that you were able to accomplish so much after dark It's always good to get out once in a while. As far as the insurance dilemma, they won't win the battle or the war!! It's just real aggravating and time-consuming. Don't let it wear you down though. Have a blessed day.
ps--your daughter sounds like mine in respect to the MP. They will get tired of suffering sooner or later and come to their senses.
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DX sarcoid-1970 glaucoma high BP asthma allergies| Meds-Lasix Xopenex Nevanac Cardizem Nizoral Cream| NoIRs No D/sun | 08/05 1,25D=38 07/07 25D=4| BeniQ6H 09/27/05| ModPh2 07/06; Ph2 09/07|Ph3 04/08|12/08 25D=4|
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BARNEY
Member in Phase 3
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Posted: Fri Mar 31st, 2006 05:49 |
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Toni D,
I will try not to let them wear me down, just the thoughts of having to do battle wears me down. Sarcoidosis has been nothing but a battle all my life with the medical society and it's coharts...the insurance companies. I think I was happier doing it on my own, 'broker' is there is such a word....but happier.
My daughter's 'new' neuro has her convinced not to eat chocolate and to take an asprin every day. Wow...after seeing me sick for years and with her medical knowledge (being a midwife), you would think she would look toward MP. I will keep praying.
DAY 453, 3/30/06, PHASE 3, DAY 5, CYCLE 5/Z/B/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
Had some neck pain today, but believe it was because I was hungry....went away as soon as I ate dinner. Otherwise, the only herx I noticed was...I caught myself making a fist with both hands again this morning and I would straighten them and they would make a fist again. This went on for about an hour, then quit.
Sugar readings are going back up somewhat since I had to stop the Glynase. Still holding out that I will take the right combo for getting the diabetes under control.
Still need to take some pounds/fat off especially around the belly area...maybe this is a herx.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed.
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