 |
| Author | Post |
|---|
BARNEY
Member in Phase 3
|
Posted: Mon Jul 24th, 2006 02:25 |
|
DAY 568, 7/23/06, PHASE 3, DAY 7, CYCLE 5/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE
Well, I'm at Granny's after dark again....had to get out for a little while...going a little stir crazy at home.
My leg has calmed down (that was day 5 of this cycle)....I got a headache (funny type) just about the time a storm hit our area...took pain pill...and all was okay until I hit my head on my car door (I hate that door...it tries to get me every time).
My TMJ is on a roll tonight....really bothering me but I do not want to take my abx till about midnight (usual time). Have been extremely tired yesterday/today...did fix some food and pushed myself to vacuum and clean bathroom/kitchen since I was having a girlfriend over for movies/meal.
Got to watch 8 below and Second hand lions.....2 very good movies.
Don't think I will be ramping the next cycle....just letting these herxes calm down. I am not into any more pain than I absolutely have to endure. Slow is the way.
Still have plumbing to do outside but waiting for the misquitoes to go away first and it cools down even more. It was about 98 today...getting better. Got a few drops of rain at my house...but it looks like it really poured down here in town.
Will be glad to see fall/winter...I like the cool better and besides it gets dark earlier.
Well, guess I will sign off until next time I am at Granny's.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
BARNEY
Member in Phase 3
|
Posted: Thu Jul 27th, 2006 01:35 |
|
DAY 571, 7/26/06, PHASE 3, DAY 10, CYCLE 5/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, NO PAIN PILLS, 1 ACIDOP, ALL TOLERABLE
Been a crazy 3 days since I last posted.................have not had any restful sleep.....keep waking about every hour or two....what a pain...your whole body feels like it is completely worn out for life. Hopefully this hot sticky weather will change and my body will change with it.
No real pain to speak of....just itchy eyes and ears....legs have been pretty good....no bad pain in them for a few days.
Left arm hurt like a toothache yesterday all day like it was 40 below in the room (which it was not).
Canned pinto beans last night (13 pints) even tho I did not feel like doing it. Sat my alarm and slept in the recliner while they pressure cooked. Toooo hot to do it in the day time.
Just totally resting today except I had to come to Granny's to bring her beans and apples.
Made apple butter in crock pot 2 nights ago....pretty good.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
PS I should have my computer up and running soon.
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
BARNEY
Member in Phase 3
|
Posted: Tue Aug 1st, 2006 02:57 |
|
DAY 576, 7/31/06, PHASE 3, DAY 4, CYCLE 6/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 PAIN PILL, 2 ACIDOP, ALL TOLERABLE
This will be quick post, as I am totally exhausted....it was raining and cloudy most of day...so I took a chance to come out (had cabin fever) and help Granny with some business.
Of course, got the same effects I usually get when I go out so took pain pill and extra Benicar....
Had eyes that looked like I was squinting most of day....bug crawling has let up most of day except for a little itchy scalp.
Hope to have computer up and running by this weekend....at least I hope so...miss being able to communicate with everyone.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
BARNEY
Member in Phase 3
|
Posted: Fri Aug 4th, 2006 02:34 |
|
DAY 579, 8/3/06, PHASE 3, DAY 7, CYCLE 6/Z/M/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, 2 PAIN PILLS, ALL TOLERABLE
What a wild time since I last posted...inducted labor started on Saturday with (me) great grandma worrying until yesterday morning when.......
Nathaniel Vincent Kielpinski, 8 lbs, 20 1/2 in long was born into this crazy world of ours with his little 4 yr old brother and 3yr old sister their to cheer him on (along with a lot of other family). Of course, great grandma is bursting at the seams and I got to hear him cry (over the phone). Can't wait for September when I drive up after dark to see him.
I am in my 20th month of MP and in the 6th cycle of the hardest combo and for once in my MP life....my legs are not killing me....I am so excited. I am still extremely tired and require a lot of rest which I did not get last night due to shopping tooooooooooooooo late and going home to off and on all night phone calls from grandson who is really stressed by a wife I feel is losing her mind (definitely from Th1 disease)....married less than 3 months and already having to get a divorce....I am sure she would not realize her rage if from Th1 and would never do MP.
Eyes are itchy....I think more from needing sleep than from anything else. I have been sleeping a lot and having a few herxes, not all that bad.
UPDATE: roommate with th1........heard from his sister he is back in hospital (VA Albq) where they discovered 3 cysts on his pancreas filled with posions....needing to surgically remove them....but appears he caught a contagious bacteria while in the last hosptial and I am dearly hoping I have not contracted it....but wondering if that is possible with all the MP meds I am on. Any comments?
I am on granny's computer tonight and am now going home...my brother is going to send his laptop back up here for me to use...hope he hurries cause by the time it gets dark and I get thru talking with Granny, I am almost to tired to put my post on.
Luv to all and miss you all.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
Dr Trevor Marshall
Research Team
|
Posted: Fri Aug 4th, 2006 02:42 |
|
Congratulations!
The pulsed antibiotics are not as effective on acute infections as higher doses would be. But you would know if you had caught an active acute infection.
One option then would be just to adjust your dosages, as the abx you are taking kill just about everything known to man - even leprosy
http://tinyurl.com/nnz9k
http://tinyurl.com/nkrxn
..trevor..
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Fri Aug 4th, 2006 02:47 |
|
Congratulations Grandma Barney 
see this FAQ Will re-infection occur if my boarder or family members are not treated? Dr. Marshall wrote: When you are on the Marshall Protocol, you will be killing the bacteria faster than they can multiply. Once the immune system is functioning properly, one should be able to maintain homeostasis with regards to environmental pathogens without disease.
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
BARNEY
Member in Phase 3
|
Posted: Mon Aug 7th, 2006 22:12 |
|
DAY 582, 8/6/06, PHASE 3, DAY 10, CYCLE 6/C/M/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
Boy...I sure miss you all....ordered part for computer....hope it gets here soon and that I am able to now be a computer repairperson and install it, my kids said I should be able (daughter-in-law....went to school for it).
Herxes other than bugs crawling are light if even existant....but those darn bugs just about drive me crazy. Not only do they crawl but they feel like they 'bite' also.
Am at Granny's today after having to go pick up pills (which were not in) and to mail packages, eat out (rarely do this), go by health food store to pick up probotics, etc. Shoulders/neck hurting as is the seeminly constant problem now when I go out in the sunlight. I will survive with extra Benicar and pain pills..............(good old pain pills) what would we do without them....probably slug someone since the pain is only doable for so long before we feel like we could lose it.
Well, I better go, thanks Trevor for the links and for yours also Barb...will email you when my computer is back up and running.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
scooker48
Member in Phase 3
|
Posted: Tue Aug 8th, 2006 00:18 |
|
Barney,
I am overdue to write my words of CONGRATULATIONS. I'm very happy you have a new member of your family.
I know I'm not alone when I write that your postings are missed, and I look forward to you getting back up and running. Yes, you can repair computers: you're multi-talented. You can do anything you set your mind to.
Take care, stay cool, and Thanks for stopping by your friend Granny to post.
Sherry
____________________
Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 04/07/08 D25 <7.0 L, Liver function normal 4/08; Wear NoIRs outside & for computer screen time. No K creme used.
|
BARNEY
Member in Phase 3
|
Posted: Fri Aug 11th, 2006 01:26 |
|
H A L E L U J A H!!!!!
MY COMPUTER IS FIXED AND I AM BACK ON LINE!!!!!!!!!!!!!!!!
DAY 586, 8/10/06, PHASE 3, DAY 4, CYCLE 7/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE
What a trial and tribulation to have to learn all the insides of a computer and which plug goes where. I spent 4 hours Tuesday night trying to figure out where each one went. Of course...there were a lot more plugs than were needed so I got to pick and choose and hope. Lots of lamps on to see plus a flashlight to look in the dark spots. The mother board kept flashing the flashlight back into my face.....so since then....my left eye feels like someone took their thumb and pushed in on my eyeball...hasn't stopped that feeling since Tuesday night. Did not get it fixed that night because the plug on the power supply had 4 extra pins that I did not know could be snapped off until I called the company I ordered it from and they explained it to me.....and....WHOOPIE.....it snapped into place and I was in business except for the fact I had loaned Granny my mouse....so had to wait for dark and go to Kmart and buy one.
I am still have the bugs crawling and biting me almost everyday. The index finger on my left hand along with the vein in my left hand is jumping like a bug is trying to get out. Am sleeping very little due to the 'muggy hot' weather and the fact that the cooler does not work well with this kind of weather. We prayed for rain because we were in a bad drought, now we are praying for it to stop.
Top of head is sore and itching quite a bit like bugs are on the move. Have not been good to remember probotics and have had occassional diareah and nausea. As long as I remember.....all is cool.
I know my computer has been down for about a month... and I am behind times now....but what is a Member Advocate and what is their function?
HANG IN THERE, WE WILL MAKE IT!!!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
Meg Mangin R.N.
Research Team (on leave)
|
Posted: Fri Aug 11th, 2006 02:07 |
|
Hi Barney,
I'm glad you are back online. I know I feel bereft when I 'm not in contact with my online community.
I see you've noticed that Janet Foutin is now referred to as our 'Member Advocate'. This is a position she accepted a few months ago. She has been our representive for contacts with the FDA and the National Organization of Rare Disorders. Janet spends many hours researching the issues before writing or calling the contacts in these government organizations. You can see some of the results of her efforts in this thread:
http://www.marshallprotocol.com/forum39/5942-3.html
Feel free to contact her if you have any ideas or suggestions to promote our efforts to obtain recognition and funds for research.
Best,
Meg
____________________
Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
|
ShrnHml
Guest
|
Posted: Fri Aug 11th, 2006 17:53 |
|
Welcome back, Barney.........we have missed you. .........Sharon
____________________
Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
|
Carole
Board Staff
| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 631 |
| Status: |
Offline
|
|
Posted: Sat Aug 12th, 2006 16:11 |
|
I "second" Sharon's sentiment in welcoming you back, Barney! Also, congratulations on being bestowed a new baby boy! I'm sure you are counting down the days until your September visit!
Take care, Barney! . . . Carole
Last edited on Sat Aug 12th, 2006 16:12 by Carole
____________________
PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| ACE=68,43|
|
BARNEY
Member in Phase 3
|
Posted: Sat Aug 12th, 2006 21:13 |
|
DAY 587, 8/11/06, PHASE 3, DAY 5, CYCLE 7/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, NO ACIDOP, 2 PAIN PILLS, ALL TOLERABLE
Started to post last night but could not hold my eyes open long enough to type anything. That seems to be my big herx....is being sleepy...except that I am not sleeping more than 5 or 6 hours a night at most....get so tired I have to take a nap....to much on again off again sleep to get any real rest.
Also, it is so stormy (which it hardly ever is in the desert) that the high humidity is not helping the coolers do their job...thus...making the day time quite warm and miserable.
My eye is still hurting a little from the computer repair...a little better...which goes to show that too much light even in Phase 3 is not good.
Still itching all over......those darn crawling and biting bugs....seems they are getting more often and more intense...they even are interrupting my sleep...waking me out of a sound sleep with the biting feeling.
My left hip never bothered me while my computer was down but since I have been sitting on my office chair....the pain has returned....gives me the idea it is the chair causing it.
Eyes were extremely itchy last night but had to drive thru the fumes of the chile plant. They make all of Taco Bell's sauces and lots of others and can green chile....this is the season and the smell is almost enough to make you vomit. They roast them with fire and then blow the skins off with steam and then those skins sit in the hot sun until they are hauled away and fed to cattle (doesn't that sound delicious). The fumes are like being sprayed with pepper spray constantly. Sometimes I even have to shut my cooler off because of it if the wind is blowing in my direction.
But....the chile does taste good.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
| Status: |
Offline
|
|
Posted: Sat Aug 12th, 2006 22:37 |
|
what is a Member Advocate and what is their function
Barney, I'm glad you are back and finally have your computer up!
Thank you so much for asking. For now, it seems like being a Member Advocate means hitting the hyperspeed button on learning about the MP, this site, the medical world, and politics in general a whole lot more than before. Between that and work challenges the last little while has been a blurr.
I value what others, like you, on the MP teach me.
I am also progressing fairly well with the MP medications and lifestyle so it seems I am physically ready to do more for the MP with off-board efforts (online and off), where needed, too.
I owe a lot of cognitive improvement to the MP. Now that there is room for more info in my noggin and some flexibility with using it again, it seems only fair to do what I can for the MP (smile).
____________________
Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
|
BARNEY
Member in Phase 3
|
Posted: Sun Aug 13th, 2006 03:15 |
|
THANKS FOR THE WELCOME BACK GUYS AND GALS....IT IS GOOD TO BE BACK.
DAY 588, 8/12/06, PHASE 3, DAY 6, CYCLE 7/Z/M/C, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, ALL TOLERABLE
Went out to get pills (generic Fiorinal).....did not get them....misplaced my insurance card and it was Kmart pharmacy this time who I had not done business with but went there cause Walmart kept putting me off...saying there was a shortage of raw materials...they claimed to have ordered them from 3 different companies. Found my member no and will get them Monday morning.
Went to health food store to pick up my order...stopped by grocery to get lemons etc.....stopped by granny's to pay her phone bill online for her...came home and felt pretty good.
Before I left this am....I told myself....self-no clinching your teeth....no stressing out over being in the sun....no neck aches or shoulder aches...no problems of stress involved. Well, self listened fairly well and I had a pretty good afternoon...fell asleep in recliner after my 6pm pill and did not wake at all until 9pm....still so sleepy and eyes so heavy that I wanted to go back to sleep and I will as soon as I post all this while it is in my mind.
I have come to 2 conclusions about going out:
1. I get to hot so devised better clothing ideas....bulkier but lighter weight clothing (long sleeve of course)...5" brim hat....gloves....levis...and socks with leather shoes.
2. Do not hurry like you are in a panic...like I have always done it...I just kept telling myself to pretend it was dark so that I did not race and get even hotter.......oh how I yearn for winter when it is easier to wear the clothing of MPers.
My mind absolutely goes crazy wanting me to get out of the sun....don't go out often but when I do I just hate the feelings I get from it. I took an extra 40mg Benicar and 1 pain pill + 1 tylenol. I am glad to report....it went much better this time. Thinking I should go out more often with the same techniques and maybe it will get even easier for me. It has been like I am almost in panicsville in the past every time I have to go out.
Bugs still crawling and biting....eyes still itchy and heavy...still want to sleep for a week...but otherwise progressing quite well (I believe).
Well...this is long enough....cheers to all and thanks for the warm welcomes back.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
BARNEY
Member in Phase 3
|
Posted: Mon Aug 14th, 2006 11:26 |
|
DAY 589, 8/13/06, PHASE 3, DAY 7, CYCLE 7/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE
45 yrs ago today (8/13)....I gave birth to my first child (a son)....before that I had never been to a doctor (I am not saying I did not have some illness like a sun stroke and not ever being able to stand being directly in sunlight, but nothing that seemed serious enough at the time to see a doctor. My mother was warned when I was born that she had something wrong that she needed to beware of possible cancer....which she eventually died from when I was 32). That's why MP makes so much sense to me....more than likely my mom passed problems on to me when she carried me.
It seemed like such a lonely day....called my son to wish him a Happy Birthday....but felt so 'down in the dumps' and 'alone' for most of the day. The one thing that soothed me was PBS TV when Yanni came on with his wonderful music...just makes you feel you are floating. I slept off and on all day...maybe from the depression of the day...being alone....irritated with the weather...I feel like I live in the wetest part of the country (I hate the muggy feeling...that's why I live in the desert).
Gee, I sound grumpy toooo, don't I? When I feel 'clamy' from the weather or toooo hot....I seem to feel real grumpy. Whoever is praying for rain...I wish they would quit and change their prayer to dry weather only as our wells are now replenished by a long shot.
Sleepiness, some irritatibility, itchy eyes, ongoing 'bug' crawling/bites, otherwise feeling pretty good.
Between bouts of sleeping, got dishes into dishwasher, made a taco salad for dinner, 2 loads of clothes washed, dried, and hung up, other than that not much else done.
Arms don't feel quite as tired as they did 2 cycles ago (when doing laundry)....sure miss my strength.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
BARNEY
Member in Phase 3
|
Posted: Wed Aug 16th, 2006 01:36 |
|
DAY 591, 8/15/06, PHASE 3, DAY 9, CYCLE 7/Z/C/M, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 25MG EXTRA MINO, 1 ACIDOP, 1 PAIN PILL, ALL TOLERABLE
This has been the weirdest herx I have had during the entire MP....I got so angry today....I was not fit to be around anyone for fear of desire to punch someone out. I have had all kinds of feelings in the last 3 or 4 days....such sadness I could hardly cope, such anger that it scared me, such hyperness that I would go from one thing to another and could find no satisfaction in any of it. Even the computer made me angry, trying to think and not being able to bring things back to my memory.
A lot of the brain fog has really bothered me all thru the MP....when I can't think....it really drives me nuts. I have misplaced my insurance card, I put it up and can't remember what good place (I would remember) I put it in and this makes me angry....because of the lack of remembering.
I took 25mg Mino extra this evening and after about an hour I started to feel a little calmer. Still aggravated with the brain fog but not angry. I was not able to talk with myself and calm me down. This disease is trying to go out with a bang.
The weather is still getting worse for all of New Mexico....towns are flooding out like crazy. Mosquitoes are abundant and they are mentioning an onslaught of West Nile Virus...which I am sure I am protected from with the MP meds.
I have not felt like doing much on the computer since I got it up and running. I had 259 emails when I got it back online and just a few minutes ago...got all of them taken care of. Still got a few I want to take a closer look at but my mind is not in an attentive state and it is like it is going right over my head...so I saved them for when I could get them to soak into my brain.
All my bones still hurt to the touch....but the bugs have been a lot better about not crawling or biting today.
I have been meaning to tell you all that I can stretch when I wake up now and my muscles do not go into lockdown. It has been more years than I can remember since I was able to do that.
Sugar levels are starting to come down just a little..that I am very thankful for.
Talked to my greatgrandbabies in Albq today and they call me the grandma with the big dog.They are really starting to talk real plain....don't have to have their mom interpert.
Well, I guess this is about all I can find to 'complain' about....sorry folks I don't mean to be so grumpy...hopefully this is a herx I can control with extra mino as it seemed to help so far but wanted you all to know this could possibly be a herx in your future.
My eyes feel like I have been crying all day (even tho I have not). I am so worn out from all the anger I have felt today that I am ready to go to bed and maybe tonight I will get some rest tonight.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
| Status: |
Offline
|
|
Posted: Wed Aug 16th, 2006 01:45 |
|
Barney, even when you have a bad day your posts are so fun to read! I guess that doesn't make it any better for you (sigh).
When you mentioned it, I thought about how often I am stretching now without lockdown or cramps. I don't think I ever noted it as a Herx, but you are right, that is a really good feeling to wake up and stretch and not worry something might cramp up.
The aggression Herx is probably the worst. It is wearing. (Storms don't help when I feel that way either.) Glad you mentioned this tough Herx though (smile).
____________________
Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
|
LeAnne
Member in Phase 3
|
Posted: Wed Aug 16th, 2006 10:08 |
|
Hello Barney. I sure do miss you.  You were so sweet to talk to in LA. I couldn't imagine you acting mean. Like Janet said, It is kinda of funny. (Sorry, no offense) we are just laughing with you. Well, I hope it passes soon. I had no idea that stretching and cramping could have been part of this disease. It has happened to me for years, but since reading the post, I just realized that it hasn't happened to me in a very long time!
LeAnne
____________________
Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
|
BARNEY
Member in Phase 3
|
Posted: Wed Aug 16th, 2006 10:28 |
|
Thank you Janet and LeAnne,
I have not felt this angry since preMP when I felt I could have just as soon 'shot you as you look at you' as the saying goes. That is a horrible feeling.
Thank God, I realized it as a herx and took 25mg mino to calm it and it did calm me down within the hour.
I am so glad it did, as the aggitation that I felt was worse than stress itsself.
I don't know about anyone else, but when I do not post....I am coping with some kind of herx I am not yet realizing....or my computer is down. Had to have this herx calmed before I felt I could do much on the computer. Took me days just to get thru the emails....just didn't have a great desire to be on the computer....part of that unsettling from one thing to the next.
The stretching......is like any other 'tic' we have.....so easily forgotten when we don't have it anymore. I am sure there are a lot of others that I have forgotten that MP has healed. I guess we should have had all this written down.
Rain is still coming in droves....prayers for them to stop would be appreciated. We have double the amount we usually get in a year and it has all come since the end of July. Thought it would end Thursday and be done...but they are calling for it to start up again Saturday. Wow.....those rain dances and prayers must have really been strong ones.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
|
|
|
|
|
