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Barney in phase 3
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BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Sun Apr 29th, 2007 23:46

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DAY 847, 4/29/30, PHASE 3, DAY 4, CYCLE 1/B/D/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE

Thank you Janet and Dody for your sweet comments. Janet, having family members ill/hospital is rough....I had forgotten how tiring it is to just sit in the hospital and help when needed. Both boys are home and doing a lot better...as a matter of fact Chris is already back out on the tugboat (where he works). Matt is waiting for the next spot on his tugboat.

I have had a lot of mucus and some of it yellow so I think the pollen has contributed to it but some days it feels like asthma (oh how I hate that) again. Is going away. I know yellow/green means infection but I figure I am on enough antibiotics already to take care of it. I did nothing but continue my MP treatment and it is getting better. Some people probably think I should have gone to the doc or ER but I am just stubborn I guess....I just take a little more Benicar and wait it out....so far...a great plan.

I am sorry I have let my faithful readers down so much lately but it has been a rough couple of weeks....had to replumb my well house, my water line to my master bath toilet and set the toilet on a wax ring (oh how I hate plumbing....the constant fear of leaks) and all of this after a 1300 + miles of travel back to NM from Tennessee. All this time, my dog is sick and I am having to give her extra care plus make all her food as the dog food industry is scaring me to death and she is 12. (plus she is on antibiotics) If I were not as far along on MP as I am....I do not believe I would have been able to do all of this. I still get tired, easily but not as easily as I used to, and some days I take a nap and some days I don't.

The sun has not been a problem to me. I do still cover up including hat and noirs but not quite as much as I used to and I am now able to allow more light into my home.

I was out in the sun a lot driving home and doing the plumbing. Thank God for Trevor finding the treatment to help us all. It is very true that the MP works. When I passed that 2 yr mark....it was like someone gave me my life back and doing the MP is just an easy thing to do just like getting out of bed every morning....sometimes 6 am and sometimes 9am. Depends on what time I went to bed the night before.

If you are new to MP, don't give up....it works and I am the living proof of that. I always say that I do not have much strength anymore....but I must have because all of the plumbing fittings I turned with my own 2 hands and nothing leaked (I hope that continues to be true, no leaks I mean. I never even had to use pliers or a wrench. Does that give you an idea of how well MP works. (it won't make you a muscle man/woman but it will give you your life back).

to all of you MPers.....

HANG IN THERE, WE WILL MAKE IT!!!!!!!!! BARNEY:D

 



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Tue May 1st, 2007 01:36

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DAY 848, 4/30/07, PHASE 3, DAY 5, CYCLE 1/B/D/Z, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE

After re-reading my post from yesterday, I think I should re-read them all. I put the date as 4/29/30, the months are going by fast enough without rushing it. Some days my brain does not function....at least that is the way it must appear.

I am still tired from the travels and repairs and I have not been sleeping thru the night. Dreaming weird dreams that I do not remember except that they are weird. Don't know if the combo I am on is allowing this or if it is from the stress of getting much needed work done around here that I have let go the last 2 yrs while I have been doing MP. I am just getting enough strength to get some of the badly needed repairs done. I fear the outside yard work will still have to wait. I wear out before I can get it all done. I am sure my age is not any help at all.

Amanda is not totally back to herself and that is a stress to me. She is really hanging on me and I don't know if she is feeling that bad or is worried about me.

Still have the cough (gets irritating when trying to carry on a conversation as then I need to keep clearing my throat). Still am producing some mucus altho it is getting better, not quite as yellow nor as much.

My knees hurt last night and that kept me in an 'awake but asleep' stage. Think I will take some pain meds tonight and see if I can get some sleep or maybe just tylenol.

Guess that ends my 'complaints' for the night.

HANG IN THERE, WE WILL MAKE IT!!!! BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Wed May 9th, 2007 05:40

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DAY 856, 5/8/07, PHASE 3, DAY 5, CYCLE 2/Z/B/D, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, 1 PAIN PILL + 3 TYLENOL, ALL TOLERABLE

This abx combo has been a 'trip'...a real hard one so far....so very different from any other one, but my friend reminded me that every time I start a new combo....I complain of numerous problems and by the time I reach the end of the combo...I have stopped (or almost stopped) complaining. So with that thought in mind, I am trying to ease thru the first parts of this combo...but it has been rough.

Upset at stomach quite a bit.....very sleepy. Legs...I don't feel like I have legs...not numb... they just do not feel like they are there.....lightheaded, more so than I have had any time....muscle ache like never before...

shoulders tonight...feel like they are on fire just from hanging/folding clothes.

I have had a lot of bruises on the inside of each knee and one slightly above...this was the beginning week of this combo. Most are gone now.

Been so weak and tired (not fatigue like before)...but so tired that I felt like, if I closed my eyes, I would fall to the ground in a sound sleep (and not even be awakened by the fall). After a few days...I came to the conclusion that the reason I was so tired...was that I was in so much pain and I had tried to push that to the back of my brain without realizing it and if I would just take some pain meds...I would feel different. I am starting to feel a lot better with the pain meds in place.

After eating, if I sit down, I would immediately go to sleep, if I kept on the move I was able to stay awake with no problem altho some days I felt like I could go to sleep despite not being in my own home (even at stores).

I had a 'need' to cough for some reason (herx...lungs healing) and produced a lot of mucus. Used inhaler/nebulizer and it did not seem to affect either the cough or the mucus, so did not persue using it. Increased Benicar instead, gargled with salt water and used some cough drops. Benicar seemed to do the best along with the other MP meds I am on and I just waited it out like it was a herx (and IMO, it was/is a herx cause most of it is now gone).

The last 2 nights, I have had great difficulty getting sleepy enough at night to go to bed as you can see the time I am posting this....but in a few winks, I am going to go to bed. I am in a position that I can sleep in so this little problem is not all that important (as long as no one calls early in the morning).

I think I will pull thru all this just fine...but will try to deal with it in the meantime.

Hope all MPers are doing good and

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D 

 



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
VEZ R.N.
Board Staff
 

Joined: Fri May 19th, 2006
Location:  Ohio, USA
Posts: 2089
Status:  Offline
 Posted: Wed May 9th, 2007 18:46

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Barney,  It sounds like your body is in need of more rest.  It is so easy to get carried away when you get some energy and the more energy we get from our healing the more we do cause we can't remember feeling this well in a long time.  The difficulty comes when we forget we are still in the healing mode, still taking drugs and still killing the bacteria that caused our disease.

As the antibiotics hone in on even more unresolved areas of disease, the body will still have reactions and side effects.  I follow your thread and can see you have had some wonderful improvements and a lot of physical activity.  Your body is trying to tell you something by your intense desire to fall asleep at places other than at home and while standing up.  Please listen to your body and rest yourself.  You said in your post, "Been so weak and tired (not fatigue like before)...but so tired that I felt like, if I closed my eyes, I would fall to the ground in a sound sleep (and not even be awakened by the fall)."   It takes an enormous amount of actual energy (which has to be created within the cells of the body) to heal.  When most of that energy is expended externally by doing tasks etc. there is little left to assist the healing process.  Take care you are really coming along well and patience is a difficult thing for all of us as we all want to be well yesterday! 


Warm Regards,  VEZ:D  PS you probably already read this but maybe it can't hurt. I have insomnia and fatigue. What should I do? 
  

 

 

Last edited on Wed May 9th, 2007 22:14 by VEZ R.N.



____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Thu May 10th, 2007 01:39

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DAY 857, 5/9/07, PHASE 3, DAY 6, CYCLE 2/Z/B/D, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, NO PAIN PILLS, ALL TOLERABLE

Thank you VEZ for your medical wisdom. I got up this morning at 9am (after being up until 3am cleaning house and not accomplishing much) so I ate breakfast and sat down in the recliner and decided to go back to sleep. So I finally got up at 130pm. I did not even get on the internet until late this afternoon. I thought what a coinsodence that I had the feeling you talked about. Guess my body won that battle. I was supposed to go pick asparagus but I slept instead.

Sleepy again...so I think I will go to bed.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Mon May 14th, 2007 00:19

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DAY 861, 5/13/07, PHASE 3, DAY 2, CYCLE 3/Z/B/D, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, 1 ACIDOP, 1 PAIN PILL + 1 TYLENOL, ALL TOLERABLE

HAPPY MOTHER'S DAY TO ALL THE MPing MOTHERS.

Had a great Mother's Day. Went to lunch with a very nice gentlemen who looked after Granny while I was in Tennessee. That was his treat for being so faithful to take her trash and bring her mail. I really enjoyed the lunch and he is about my age and has very good manners. (okay...no remarks).

Spent the rest of the day with Granny. It was a treat to be out and about especially since I spent 3 days sleeping almost around the clock...not even getting up to eat (me?) and not even going to the bathroom for many many hours. I did this in the 80's when the sarc was running so rampid so I am sure this was a herx. So glad that is over...but if I would have watched my calendar better...I would not have raised my meds until I should have. Making bad mistakes is not good. I am okay now tho...so all is well but will not try that mistake again.

Also, had achey muscles and a productive cough.

It is very hot here today...up in the nineties. I would much rather have winter and it is definitely easier to do MP then since you need covered up for the cold anyway.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
VEZ R.N.
Board Staff
 

Joined: Fri May 19th, 2006
Location:  Ohio, USA
Posts: 2089
Status:  Offline
 Posted: Mon May 14th, 2007 02:25

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Hello Barney, Glad to hear you had such a great day...sounds like you did not fall asleep at this lunch;). It is good to know you are feeling better and also that you let your body rest and regroup from all of your activities.  A little R+R is good for everyone and can be so rejuvenating as well as aids in healing!

Nice to see you moving along well again...remember to be kind to you and rest frequently.  Sounds like you have lots of fun times ahead of you.:D

Take care and Warm regards, VEZ:D



____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Mon May 14th, 2007 17:46

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DAY 862, 5/14/07, PHASE 3, DAY 3, CYCLE 3/Z/B/D, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, 2 ABX COMBO, 1 ACIDOP, 2 PAIN PILLS + 2 TYLENOL, ALL TOLERABLE BARELY

Today is what I call "Hell Day"....day 3 of a cycle....if there is going to be a herx for me...it is usually day 3.

I got up feeling fine....then all of a sudden it hit me....the old pluracy (sp?) feeling in my lungs and I do mean both of them...altho a little worse on the right side. Pain pill + Tylenol is keeping it barely bearable and I am planning to go take an extra Benicar as soon as I finish with my post.

Wow...this combo has been a night mare....just when I got that arogrant feeling that "I am in Phase 3, it can't be as difficult a herx as previous". Boy,  what an awakening and a humility checkup. So I am here to tell you that I have had this a lot in the past (the pluracy feeling in lungs) and I am sure this is a herx I will have more than once.

It is hot here....up in the 90's and I am trying to work with 1 AC and several fans...I definitely need a second winow unit...this is not the time to be doing MP and going out in this heat (weeds or no yard work, it has waited 2 yrs and it can wait a while longer).

Thank you VEZ...you are always encouraging and help me stay in line with needing to rest despite my hyper attitude.

I will be better tomorrow (I believe and hope) and maybe tonite with some extra Benicar....that is what brought me out of the "coma" type feeling.

This combo...is also affecting my intestinal tract.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
VEZ R.N.
Board Staff
 

Joined: Fri May 19th, 2006
Location:  Ohio, USA
Posts: 2089
Status:  Offline
 Posted: Mon May 14th, 2007 23:40

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Barney,  I guess we need the rough ones to really appreciate the good ones. You just hang in there and know there are more good ones down the road.

You are an inspiration to all of us!!!!  {{hugs}} VEZ:D



____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Thu May 17th, 2007 21:01

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DAY 864, 5/16/07, PHASE 3, DAY 5, CYCLE 3/Z/D/B, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX, 1 ACIDOP, NO PAIN PILLS, NOT TOLERABLE

This will shock all of you.....but I have stopped all ABXs and am taking a 2 week vacation. I could not handle any more of the herx I was having and felt this was the wise thing to do.

I have never taken a break....2 1/2 yrs.

I will restart MP abx in 2 weeks unless I cannot handle being off them. I WILL REMAIN ON MY REGULAR DOSES OF BENICAR.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D

 

 



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
VEZ R.N.
Board Staff
 

Joined: Fri May 19th, 2006
Location:  Ohio, USA
Posts: 2089
Status:  Offline
 Posted: Thu May 17th, 2007 21:11

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Barney,  enjoy your much deserved rest and do let us all know how you are getting along.  Take care, VEZ:D



____________________
lung gran x13 yrs neuro cardiac smp chronic cough joint pain TMJ pain tinnitus Factor V Leiden| armour probiotic|lowlux home NoIRs 6/30 Beni q4+prn 8/28 mino| 6/30 1,25D-58.3 25D-33.6| TSH-10.6 12/16/06 25D-9.6 TSH-8.63 8/06-25D=7|
Debbie D.
inactive member
 

Joined: Mon Sep 27th, 2004
Location: Cleveland, Ohio USA
Posts: 278
Status:  Offline
 Posted: Thu May 17th, 2007 21:21

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Hi Barney:  I too needed a rest and just started back. The combo of C/Z made me feel like I was "going crazy".... just can't seem to handle the C.

It's funny because I too feel like I've come such a long way that sometimes I feel cured and then WAMMMMMMM:shock:

Taking Benicar, every 6 hours and will begin Mino tomorrow.  Took a small walk at school today and the muscle spasms begin.  Dr. said she thought that was part of the Fibro? and said I have to walk, spasms or not. do they really know?:?

All I know is if I take it easy I don't feel that bad but do things like I use too and just can't handle it. I guess we've learned to slow down or else we have to pay!

Will have to take antivert to stop spasms.  Good luck, Debbie



____________________
Sarcoidosis/lungs, Menniers, FM, hypthyroid, GERD, IBS, depression, anxiety, diabetic,heart disease MP 1/05, Ph2 3/06, Cymbalta, Wellbutrin, ativan, Levoxyl, Antivert, Nexium, Detrol, Noir's, limited outings covered up, low lux home, 25D19
scooker48
Member in Phase 3


Joined: Tue Jan 4th, 2005
Location: Sunnyvale, California USA
Posts: 804
Status:  Offline
 Posted: Fri May 18th, 2007 15:51

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Barney,

As is always the case, I love reading your posts.

I often remind myself we're dealing with a dangerous disease, and to borrow a phrase, it is "cunning ,baffling and powerful".  I too have foods that I crave, but I'm not indulging.  I understand the compulsion to be part of the biochemical power these darned bacteria have over my body.  And I'm given a "daily reprieve" if I can stay away from what the bacteria need to grow: sugar, folic acid, and D25. 

I use more borrowed words:  "without help it is too much for us."  But we have each other, helping us along.  I will never forget your help way back in 2005 when you told me, "Sherry, ICE CREAM is carbohydrate.  That's what "low carb" means--NO ICE CREAM."  Thank you Barney.

Sherry



____________________
Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 04/07/08 D25 <7.0 L, Liver function normal 4/08; Wear NoIRs outside & for computer screen time. No K creme used.
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Sun May 20th, 2007 21:57

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DAY 868, 5/20/07, PHASE 3, DAY 5 OF MY VACATION, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX AT ALL DURING VACATION, PAIN PILL FOR HEADACHE (MILD NOT MIGRAINE), ALL TOLERABLE SO FAR.

The vacation is going okay, but I do notice little reminders of the life before MP, mild neck pain I have not had since MP.

If the neck pain gets tooo bad I will have to start back on the abx. Won't ever suffer that pain out anymore since I know it goes away with MP. It used to be so bad (before MP) that I would take pain meds and cry for hours cause it hurt so bad.

I hope I have made the right decision for this break...I am only into it for 5 days now. It is a wait/see situation.

Thank you Sherry/Debbie D for sharing your experience. It is a very big help to talk with each other about every situation we encounter.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aunt Diana
Advocate


Joined: Fri Sep 30th, 2005
Location: Vero Beach, Florida USA
Posts: 900
Status:  Offline
 Posted: Sun May 20th, 2007 22:48

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Hi Barney,

I have tried taking breaks several times and each time my immune system just kept chugging along and I actually felt worse because there was no let up to the herxing. (I guess that's good and bad news)

This time I'm doing frequent mino dosing and it has been working much better for me. If I start to herx I take 25mg mino and keep that up til I feel better. Perhaps that will help you, too.

I think waiting for the Z to clear the system is the hardest part because as it wanes it really causes immune responses. I'm on the thirtieth day and still feel it. But I have had some really good days so I'm sticking with it for a while longer...somewhere I have read that it can take 40 days for the Z to clear.

Best of luck.



____________________
Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Mon May 21st, 2007 12:20

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Diana,

Mino has not been a part of my combo for quite some time (more than 1 yr), so therefore I cannot use it or that would be 4 abx (never more than 3 at a time).

I never found extra mino to really help that much, however, I did find that extra Benicar really did help a lot.

My problem that lead me into a break was one of the current abx combo, it's the one I did not get along with before MP, but wanted to try to get thru it and still will try, maybe even after this break. Time will tell.

I am noticing more and more pre MP things as the days of the breaks go by, but they are not as severe as they used to be....we sometimes forget these as we improve on MP. Reminders are important to make us thankful as we recover.

HANG IN THERE, WE WILL MAKE IT!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
Research Team


Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19241
Status:  Offline
 Posted: Mon May 21st, 2007 12:24

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Barney
For those who require frequent mino dosing to slow the immune response... Mino may be interleaved with your other abx and the Minocycline used as per instructions in the FAQ.
Thanks, Barb ...



____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Mon May 21st, 2007 21:28

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Barb,

Thanks for info....but as I explained to Diana....extra mino has never helped to any degree.

Extra Benicar is a lot of help however.

Enjoying vacation and actually seeing how much MP has helped so far.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
scooker48
Member in Phase 3


Joined: Tue Jan 4th, 2005
Location: Sunnyvale, California USA
Posts: 804
Status:  Offline
 Posted: Tue May 22nd, 2007 16:21

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Barney,

I'm keen to read your progress on the abx vacation. 

I took one from about the middle part of April 2007 until May 1st, and it took about 10 days or so to notice I felt good.  So...patience is the solution.  Of course, mileage may vary.

I found myself thinking how good I'd feel once I stop the abx and let 80 days pass, which I believe is the amount of time to get the abx totally out of the system.  That is something to contemplate...

Sherry



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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 04/07/08 D25 <7.0 L, Liver function normal 4/08; Wear NoIRs outside & for computer screen time. No K creme used.
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
Posts: 1273
Status:  Offline
 Posted: Thu May 24th, 2007 22:02

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DAY 872, 5/24/07, PHASE 3, BENICAR 20MG/Q3HRS, BENICAR 40MG/MIDNIGHT, NO ABX COMBO, VACATION FROM MP FOR 2 WEEKS, WILL RETURN TO MP THIS SATURDAY 5/26/07

It has not been the great time off MP I thought it would be....some say they have a wonderful time.

I have had neck pain, head pain, shoulder pain, upset, nasty stomach and energy level decreases the longer I am away from abx. I am looking forward to returning to MP.

Nothing is near as bad as before MP, but it is a good thing to be reminded where you came from.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D



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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07

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