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DianeC
Member in Phase 3
| Joined: | Sat Aug 20th, 2005 |
| Location: | New York, USA |
| Posts: | 632 |
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Posted: Sat Jun 20th, 2009 02:16 |
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Barney,
YES, I second that! That is such Wonderful News!! Now take good care of yourself!
Hugs and Luv,
Diane
Last edited on Sat Jun 20th, 2009 02:18 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Restville, Again |
| Posts: | 1708 |
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Posted: Sat Jun 20th, 2009 02:46 |
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Thanks for the update Carole. 
We are all thinking of you Barney and those you "luv." 
p.s., the ER instructions for the MP suggest saline (salt) IVs for low blood volume... not a bad idea if you know it works for you... it really did work for me the one time I went in 'dehydrated'.
Last edited on Sat Jun 20th, 2009 02:50 by Joyful
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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BARNEY
Moderator
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Posted: Sun Jun 21st, 2009 14:22 |
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UPDATE:
Still in Tennessee and still at the hospital on the cardiac floor.
Last night, I stayed with my son, so that my d-i-l could go home and get some needed rest and relaxation. We were up and down all night, but did get some quality sleep.
I have learned on this trip how VERY IMPORTANT WATER IS. One day, I did not drink hardly any water, only diet soda and I paid dearly for that...when I get a lot of water down me, I do much better and can cope thru the whole day, doing almost anything. SO REMEMBER YOUR WATER!!!!
Eddie is still on oxygen, he will be on cumodin the rest of his life (he is 47), he has a new metal aorta valvue (mechanical) in his heart and new leads from his leg veins to keep the blood flowing right (his other veins were 90/100% clogged. He is very unhappy that they (as he says) carved him up. I have explain to him that a year from now he will feel better. I will need to convince him to do MP. He is still on IV heprin and is insulin dependent for a while since the surgery even tho he is not diabetic. He is sleeping a lot more than they would like for him to, they can't hardly get him stay awake and is not eating hardly anything, he did eat his fresh fruit (some of it) this am. He is drinking some water. He is urinating okay.
They give him very little pain meds because they want him to wake up a little more. If he can get some more things up and running....he can go home in about 4 days.
On my way home, we will not do it in 24hrs this time, we will stop and sleep at a motel. I have no idea how much money we have spent on this trip, the shock sticker will be when I get home and add it up....right now I don't care, as long as my son lives and gets better.
THANK YOU ALL FOR YOUR PRAYERS AND BEST WISHES.
Luv, Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Freddie Ash
Member in Phase 3
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Posted: Sun Jun 21st, 2009 14:53 |
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HI BARNEY
This is Fred in WV. I am glad to see things are going well for your son and you. My valve was not bad enough to replace, so they never replaced it and I am sure glad of that now.
On the water thing, I have 4 to 6 16.9oz bottles of water on most days, but I have had to be out lately (grandkids) and I have found out that I need to drink more water while out side. It makes me able to stand the light and heat better.
Hope you have a good and safe trip home and get back into your normal things again.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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DianeC
Member in Phase 3
| Joined: | Sat Aug 20th, 2005 |
| Location: | New York, USA |
| Posts: | 632 |
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Posted: Sun Jun 21st, 2009 20:59 |
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Hi Barney,
That is wonderful news that your son had a Successful surgery and is on his way to recovery! What a relief that must be for you!
Yes, water is so very important! I drink a ton of it as well and find that in the warmer weather the body needs it so much more.
Wishing you a very safe trip home and be sure to take it slow and always have plenty of water on hand.
Hugs and Luv
Diane
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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marion villa
Member in Phase 3
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Posted: Mon Jun 22nd, 2009 01:07 |
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Dear Bonita.
Your son will feel well in much less than a year.even his hair will grow better with the vein replacement, my mom´s hair did.Tell him that he can always put on the scar a beautiful ivy tatoo!!!! i don´t know him but send him a big hug and my thoughts of health.
have yourself a hig and love from me also.
marion
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol , ,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 /20 april 2008, 25D<4ng, ph 3/ 22 oct 2008.
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LH1953
Member in Phase 3
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Posted: Sat Jul 4th, 2009 08:14 |
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I really miss reading on this site, but happened to stumble upon your posting. Wishing you and your family much HEALTH, and a speedy recovery.
My Grandmother used to say, you have to make a Mom to be a Mommy. What she meant was I needed to eat and rest to be strong for my children. You are running on needed energy, brace yourself for the after effects.
You are a VERY strong person and I know all of you will get through this. Time is a wonderful healer. How lucky we are to have the MP. To be able to endure situations that we had no strength for in the past.
Barney, THANK YOU for all you do, for all of us. Remember to take some time for you too!
Wellness to All, OX, Lori
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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BARNEY
Moderator
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Posted: Sat Jul 4th, 2009 13:18 |
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Thank you Lori for your kind words!!!
Eddie is doing good, wanting to go do some work somewhere, tired of being home sitting/sleeping...........but at least he is knowledgeable as to the fact that he needs to rest and does.
When I am posting to all the MPers.......I am resting. I have a laptop, sit in front of the tv in my recliner.....sometimes you will actually see me fully asleep in the middle of a post. Posting/answering is easy for me.
I do usually crash when I get back from a trip.....but the trips are getting easier and I am not down as long as I used to be. I did have to rest 2 days while I was in Tennessee.
Drink plenty of water, xtra (sea) salt (regular salt is mostly chemicals) as needed, lots of rest while avoiding the sun and avoiding Vit D in your foods!!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Dr Trevor Marshall
Research Team
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Posted: Sun Jul 5th, 2009 05:32 |
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I just had a phone call from Barney. She is on her way to her grandkids in Albuquerque. They were hit by lightning on the way home from a fireworks show. One is dead, another very ill. Barney has not taken her computer, and will check-in once she gets a better handle on exactly what happened.
I am sure you will all join me in helping Barney any way we can as she copes with this tragedy.
..Trevor..
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DianeC
Member in Phase 3
| Joined: | Sat Aug 20th, 2005 |
| Location: | New York, USA |
| Posts: | 632 |
| Status: |
Offline
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Posted: Sun Jul 5th, 2009 06:29 |
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How very sad it is to hear this tragic news. My deepest thoughts and prayers are with Barney and her family.
Diane
Last edited on Sun Jul 5th, 2009 06:32 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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JanEE
Member in Phase 3
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Posted: Sun Jul 5th, 2009 06:34 |
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Dear, dear Barney, my heart is aching for you. There just are no words.... You have my prayers dear lady, and my wishes for God's blessings on you and your family.
Hugs,
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armour thyroid B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D-5-4/09
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dizzyblonde
Health Professional
| Joined: | Wed Feb 25th, 2009 |
| Location: | Australia |
| Posts: | 68 |
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Posted: Sun Jul 5th, 2009 06:51 |
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Hi Barney
I am so sorry for you loss. All of us here are thinking of you and sending as many email hugs, cuddles and thoughts that you need. Please let us al support you as we are able. You are such a support for so many others on this board.
Leanne ((((((xxxxoooo)))))
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phase 1 30/12/08. Phase 2 lost start date ? mid feb 2009! FM, 5 x MVAs, beginning CFS, peripheral neuropathy, ticks, depression, endocrine issues, irritability, anxiety, currently on phase 2, level 3, 100mg mino cycle 2.
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terrylmcc
Member in Phase 3
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Posted: Sun Jul 5th, 2009 07:05 |
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| Barney, My thoughts and prayers are with you and your family in this tragic time. I am so sorry for your loss. Many hugs.. --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4.
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Carole
Board Staff
| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 667 |
| Status: |
Online
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Posted: Sun Jul 5th, 2009 07:18 |
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Oh, my heavens, Barney! We are so very sorry and saddened to hear of this tragedy! Please know that we are here for you at any time of the day or night.
Heartfelt hugs from your friends! . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| AC
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Limburg
Member in Phase 2
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Posted: Sun Jul 5th, 2009 11:05 |
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| Shocked to read this very sad news...........I have no words.......
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MS,DX 1997,Auto-immune hepatitis,DX 2008, MP start jan.2009. 25D: 20.4 (october 7,2009)
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Aunt Diana
Moderator
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Posted: Sun Jul 5th, 2009 11:14 |
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| My deepest sympathy and heartfelt condolences, dear Barney.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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Pipistrelle
Member in Phase 2
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Posted: Sun Jul 5th, 2009 12:01 |
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Dear Barney, heartfelt sorrow for the tragedy that has beset you and your family and sending love and prayers to all
Love Morag xxx
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp commute 90 mins/day Mon, Tues, Wed
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Sheila-Fl
Member in Phase 2
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Posted: Sun Jul 5th, 2009 12:10 |
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Dear Barney,
I am so sorry and so sad to hear this shocking news. My prayers are with you and your family.
Sheila
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CFS,CFIDS,Fibromyalgia,MCS,IBS,IC,Thyroid Nodule Osteoarthritis,Malaise, start MP 11/05/08, 25D-39 11/15/08, 25D-30 01/09/09, 1,25D-47 01/09/09, Armour Thyroid, Ambien, Dry Eye Drops, Excedrin, Bio-Freeze, Affrin, Klonopin, Indoors most of time, NOIRS
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Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 343 |
| Status: |
Offline
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Posted: Sun Jul 5th, 2009 13:08 |
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Dear Barney,
My thoughts are with you and your family at such a time, I am so sad for you all.
I know the strength and calmness you show will be a comfort to your family,
Lynn.
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
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Frans
Member in Phase 2
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Posted: Sun Jul 5th, 2009 16:02 |
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Dear Barney,
Words cannot express what we feel for you. You wil be in our thoughts.
Love, Frans and Ellen
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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