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| Author | Post |
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jillian
Member in Phase 2
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Posted: Fri Mar 4th, 2005 20:12 |
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Congratulations BARNEY on the scholarship to the Conference.
I'm not well enough to go, so represent all of us well!!!
'til later,
Jillian from North Dakota
____________________
PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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BARNEY
Member in Phase 3
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Posted: Sat Mar 5th, 2005 01:21 |
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JILLIAN,
I WILL DO MY VERY BEST TO MAKE EVERYONE PROUD FOR MY SCHOLARSHIP.
I WILL HAVE TO LEAVE HOME ABOUT 2AM TO GET TO THE AIRPORT IN TIME (IT IS 109 MILES TO THE AIRPORT). BUT THE GOOD PART IS THAT I WILL BE DARK. (NO SUN). I WILL MAKE IT, I KNOW HOW TO MAKE MY NERVOUS ENERGY KICK IN, THEN WHEN I GET HOME I WILL COLLAPSE IN BED FOR AS LONG AS I NEED.
WILL BE PRAYING THAT YOU FIND A DOCTOR WHO WILL GET YOU ON MP PROPERLY AND GET YOU ON 'THE ROAD TO RECOVERY'. HANG IN THERE JILLIAN, YOU WILL MAKE IT!!!! LOVE TO ALL BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sat Mar 5th, 2005 01:30 |
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DAY 63, MAR 4, '05 BP 119/80 P 88, BENICAR 20MG Q3HRS, 40MG BENICAR AT BEDTIME, 1 ACIDOP, NO PAIN PILLS
HANDS WERE EXTREMELY COLD MOST OF DAY, I'VE NOTICED THIS ON OTHER TIMES WHEN IT WAS THE DAY AFTER THE MINO. FEET WERE ALSO COLD THIS TIME, SHOULDERS HAVE FELT LIKE SOMEONE IS SQUEZZING THEM REAL TIGHT (THE MUSCLES). I ALSO NOTICED SOME STRONG FEELINGS IN MY LEG MUSCLES TODAY. EYES HAVE BEEN ITCHING TODAY BUT HAVE NOT HAD ANY EYE PRESSURE LIKE I USED TO HAVE BEFORE MP. I LOVE MP, IT IS THE BEST THING THAT HAS EVER COME ALONG IN MY LIFE. EVEN WHEN THE HERXING IS HERE, IT IS BETTER THAN ALL THE THINGS SARC HAS DONE TO ME.
HANG IN THERE, WE WILL MAKE!!!!!!!!!!! GOOD NIGHT ALL. BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sun Mar 6th, 2005 00:12 |
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DAY 64, MAR 5, '05 BP 116/74 P 84 BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 1 ACIDOP, 50 MG MINO DAILY FOR MAINTENANCE TO BE ABLE TO GO TO CONFERENCE AND NOT LOSE ALL PROGRESS I HAVE GAINED.
NOT AN EVENTFUL DAY AS FAR AS HERX. HAVE BEEN GETTING THINGS READY TO GO TO THE CONFERENCE IN CHICAGO.
GOOD NIGHT TO ALL!! HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sun Mar 6th, 2005 23:34 |
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DAY 65, MAR 6, '05, BP 103/67 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 50 MG MINO TO MAINTAIN FOR TRAVEL TO CHICAGO, 1 ACIDOP.
DESPITE MY AGE, I DO NOT BELIEVE I WILL EVER LEARN A LESSON. DECIDED I NEEDED TO WALK TO GEAR UP FOR THE TRIP SO AMANDA (MY DOG) AND I WALKED A MILE (AFTER DUSK) AND THEN (THAT WASN'T ENOUGH) STUPID ME, DECIDED TO GO OUT BACK AND RAKE THE YARD IN THE DARK. WE HAVE THESE NASTY WEEDS HERE THAT HAVE STICKERS ON THEM AND WHEN THEY DRY THEY REALLY STICK IN YOUR FEET/LEGS. NEEDLESS TO SAY, EVERY BONE IN MY BODY WAS KILLING ME INCLUDING MY WRISTS, SHOULDERS, NECK, AND BACK. TO TOP MATTERS OFF, I DIDN'T EVEN THINK TO TAKE A PAIN PILL, I GUESS I HURT TO BAD TO THINK.
SO I WENT TO BED AND COULD NOT STAY ASLEEP FOR THE PAIN, SO I GOT UP AND REMEMBERED A PAIN PILL WHICH FELT LIKE IT STUCK IN MY THROAT, NO SLEEP TO SPEAK OF. THEN A REALLY BAD THUNDERSTORM HIT, THOUGHT MY MOBILE WAS TAKING OFF INTO ORBIT. MY DOG GOT IN BED WITH ME AND KEPT ME AWAKE EVEN LONGER, BECAUSE SHE IS DEATHLY AFRAID OF THUNDER. THEN MY NEIGHBOR BROUGHT THE PAPER INTO ME SO I DON'T HAVE TO GO OUT TO GET IT, THEN MY DAD CALLED WHO JUST HAD A STROKE A COUPLE OF NIGHTS AGO. EVER HEARD THAT SAYING "WHEN IT RAINS, IT POURS". SO..... I SPENT THE DAY RESTING, JUST STAYING IN MY BEDCLOTHES AND GOING TO SLEEP EVERY CHANCE I GOT. GOING TO BED EARLY TONITE TOO.
NO HERX. JUST NEED SLEEP. HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19260 |
| Status: |
Online
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Posted: Sun Mar 6th, 2005 23:48 |
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Barney
you said you were going to rest up for the trip.. please take care.. Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Mon Mar 7th, 2005 15:20 |
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Barb,
I only spent about 20 minutes raking, my muscles just don't like any work. I felt I needed to get used to walking again cause there is always a long way between flights in those airports. Otherwise,I am collapsed in the bed or recliner trying to get all kinds of rest for the trip. Had some bad news this morning, the gentleman who usually feed my dog when I go away, had a stroke. He is not back from the ER visit so I don't know how he is doing yet. He said he had some stiffness in his right side but doesn't seem to be paralyzed. Made other arrangements for my dog but am waiting to hear about my dear friend. I will behave myself. Thanks for reminding me. Love ya, xoxoxoxo Barney
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Tue Mar 8th, 2005 01:37 |
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DAY 66, MAR 7, 05, BP 114/76 P 84 BENICAR 20MG Q3HRS, BENICAR 40MG AT BEDTIME, 50MG MINO, 1 ACIDOP.
ON MAINTENANCE MINO TO BE ABLE TO TRAVEL AND NO LOSE ANY PROGRESS I'VE MADE TO DATE. JUST A FEW MORE DAYS UNTIL I LEAVE FOR THE CONVENTION. I CAN HARDLY WAIT.
I AM SO PROUD OF MY PROGRESS ON MP. NO MORE NEBULIZER, NO MORE MIGRAINES, NO NECK ACHES, NO MORE CHEST PAINS, AND NO PROBLEMS WITH SMELLS. MY FRIENDS AND FAMILY ARE JUST BLOWN AWAY AT MY IMPROVEMENTS. TO BE MY FRIEND, YOU HAD TO WEAR FRAGRANCE FREE EVERYTHING, OTHERWISE I WAS ON THE NEBULIZER. I HAVE SOME GREAT FRIENDS WHO ACTUALLY WENT TO ALL THE PROBLEMS OF SEEKING OUT FRAGANCE FREE LAUNDRY SOAPS, DEODORANTS, SHAMPOOS, ETC. NOW THEY DO NOT HAVE TO DO THAT. I AM VERY GRATEFUL FOR THEIR FRIENDSHIP.
I GUESS I SHOULD STOP BRAGGING ABOUT ALL MY IMPROVEMENTS, BUT I AM SO THANKFUL FOR MP, I COULD JUST EXPLODE. THANKS TREVOR!!!!!!!!!!!
TO ALL OF YOU WHO ARE FAITHFUL TO MODERATE OVER US, THANK YOU, I KNOW IT MUST BE REALLY HARD TO LOOK AFTER ALL OF US, WHEN IN REALITY YOU DO NOT FEEL WELL EITHER....SO.....THHHHAAAAANNNNNKKKKKSSSSS!!!!!
HANG IN THERE, WE WILL MAKE IT!!!!!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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jillian
Member in Phase 2
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Posted: Tue Mar 8th, 2005 23:04 |
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Barney,
When you travel to the Conference, you may want to consider calling the airlines in advance and arrange wheelchair assistance. If you need it they'll meet you when you get to the airport and push you all around, to the ticket counter, to the plane, on the plane, off the plane, to connecting flight(s), etc. It's a wonderful service that has always been GLADLY performed for me or my room-mate.
'til later,
Jillian
Last edited on Tue Mar 8th, 2005 23:05 by jillian
____________________
PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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BARNEY
Member in Phase 3
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Posted: Wed Mar 9th, 2005 01:52 |
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DAY 67 MAR 8,05 BP 112/92 P 87 BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP
HAD A REACTION (AGAIN) TO CINNAMON, SUGAR WENT UP TO 316. ALSO CHEWED CINNAMON GUM AND MY TONGUE FEELS LIKE SOMEONE SCRAPPED IT WITH A SHARP KNIFE.
AM TIRED, HAD TO GO OUT IN SUN TODAY (COVERED) AND HELP MY FRIEND WITH HIS TWO DOGS, SINCE HE IS IN THE HOSPITAL WITH A STROKE. OTHERWISE, FEELING FINE.
LOOKING FORWARD TO THE CONFERENCE.
HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Wed Mar 9th, 2005 01:59 |
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JILLIAN,
THANK YOU FOR THE INFO ON THE WHEELCHAIR, BUT I PREFER TO WALK, IF POSSIBLE, BECAUSE SITTING ON THE PLANE SO MUCH MAKES MY LEGS NEED THE EXERCISE. IF I DO FIND I NEED ASSISTANCE, I WILL APPROACH SOMEONE FOR HELP.
I WILL WRITE YOU WHEN I GET BACK AND LET YOU KNOW HOW THE CONFERENCE WENT AND WHAT THE TRIP WAS LIKE.
TAKE GOOD CARE OF YOURSELF AND I WILL TTYL LOVE BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Thu Mar 10th, 2005 00:28 |
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DAY 68 MAR 9, 05 BP 107/74 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP
REACTION TO CINNAMON IS BETTER TODAY. ALMOST GONE
BEEN A GOOD DAY, HAD TO GO DROP OFF SOME PAPERS AT DOCTOR'S OFFICE BUT WAS WELL COVERED AND WORE NOIRS.
MY FRIEND IS HOME FROM HOSPITAL STAY DUE TO STROKE. HE IS UP AND AROUND AGAIN AND WILL FEED AMANDA (MY DOG) WHILE I AM AT THE CONFERENCE. I THOUGHT HE SHOULD REST MORE, BUT, HE SAYS HE FEELS GREAT. NO PARALAZIS (SP?) FROM IT. ALMOST PACKED.
HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Thu Mar 10th, 2005 23:08 |
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DAY 69, MAR 10, '05, BP 126/76 P92, BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, 50MG MINO, 1 ACIDOP
GREAT DAY...RESTED ALL DAY FOR TRIP TO CHICAGO. SEE YOU ALL IN A FEW DAYS. TAKE CARE OF YOURSELVES. HANG IN THERE, WE WILL MAKE IT!!!
BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Tue Mar 15th, 2005 00:11 |
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HELLO ALL, I MADE IT HOME WITHOUT COLLAPSING. BUT, LOOK OUT, YOU MAY NOT HEAR FROM ME FOR A DAY OR TWO. WE WILL SEE WHAT ALL THAT SUN AND LIGHT EXPOSURE DID TO TAKE A TOLL AND I'M SURE IT DID SOME DAMAGE.
MY EYES FEEL SWOLLEN, ESPECIALLY MY RIGHT. MY ARM MUSCLES FEEL LIKE THEY ARE THE SIZE OF 'THE INCREIBLE HULK' FROM DRAGGING SUITCASES, BACKPACKS ETC THRU AIRPORT AFTER AIRPORT. BIG TOE HURTS A LITTLE. NECK HURTS A LOT, HEAD FEELS LIKE IT IS TO HEAVY FOR BODY AND I COULD GO ON AND ON BUT I'M SURE YOU WOULD RATHER HEAR ABOUT THE CONFERENCE.
I DID NOT TAKE MY BLOOD PRESSURE THE WHOLE TIME I WAS GONE AND I DEFINITELY WAS NOT GOOD ABOUT BEING ON TIME AND EVEN REMEMBERING MY PILLS, BUT I DID DO THE BEST I COULD.
YOU TALK ABOUT A GREAT CONFERENCE, MANY DOCTORS ATTENDED, THE FDA AND NIH SHOWED TOO. LOTS OF PEOPLE WHO ARE TEETERING ON THE FENCE AS TO WHETHER THEY WANT TO START MP. WE ENCOURAGED EVERYONE WE COULD. WE EVEN HAD A LADY FROM IRELAND ATTEND. DR M ...HE IS WONDERFUL. SO SWEET, SO KIND AND SO UNDERSTANDING OF HOW WE ALL FEEL. HE TALKED WITH ANYONE AND EVERYONE WHO NEEDED TO TALK WITH HIM AND HE REASSURED THE LADY FROM IRELAND SO THAT SHE DID NOT GO HOME WITHOUT HOPE. AND YOU KNOW ME AND MY BIG MOUTH....NO ONE ON THE PLANES, THE AIRPORTS OR THE CONFERENCE WAS SAFE FROM HEARING ABOUT MARSHALL PROTOCOL. I WAS ALL COVERED UP WITH CLOTHING AND THE NOIRS AND EVERYONE WAS ASKED WHY I WAS DRESSED LIKE THAT AND BELIEVE ME I TOLD EVERYONE WHO WOULD LISTEN. SOME PEOPLE EVEN HAD FRIENDS WHO HAD SARCOIDOSIS. I MADE THEM PROMISE THEY WOULD AT LEAST READ SOME OF OUR POSTS ON MP.
AND JASON, DID YOU TURN YOUR COMPUTER OFF LAST NIGHT LIKE YOU PROMISED YOU WOULD? (HAHA) HOPE YOUR ARE DOING WELL AND GOT YOUR SCRIPS OR WILL GET THEM VERY SOON. ENJOYED YOU AND YOUR WIFE VERY MUCH. HOPE WE ALL MADE THE DIFFERENCE FOR YOU.
BARB, YOU DOLL, THANKS FOR TOTALLY BEING THERE FOR EVERYONE WHILE WE ALL ATTENDED THE CONFERENCE, WISH YOU COULD HAVE BEEN THERE.
WELL, I AM REALLY TIRED, JUST GOT HOME ABOUT 2 HOURS AGO AND MY EYE IS TRYING TO HAVE 'A RING AROUND IT' LIKE THE SOLAR ECLIPSE.
HEY, MIKIE, HOPE YOU FEELING OKAY AND HEADING TOWARD YOUR SCRIPS TOO. KEEP US INFORMED SWEETIE. (HE IS OUR NEWFOUND FRIEND, 15 YEARS OLD AND WITH A HORRIBLE CASE OF SARCOIDOSIS. HANG IN THERE BABE, WE WILL MAKE IT!!!!!!
GOOD NIGHT TO ALL. Barney
ps SURE AM GLAD TO BE HOME. THANKS MUCHO GRACIAS DR M. YOU ARE THE GREATEST (YOUR WIFE AND DAUGHTER ALSO).
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19260 |
| Status: |
Online
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Posted: Tue Mar 15th, 2005 00:19 |
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| Welcome *Home* Barney xox take care... thank you for your huge effort, Barb...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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jsandman001
Member in Phase 2
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Posted: Tue Mar 15th, 2005 00:36 |
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Jason huh ..........hmmmm you must not have enjoyed us that much  . Just playing with you. Its great that you got home ok. I hope you dont herx to bad from the light exposure and all the excitement. I want to thank you very much for the time you spent with me and my wife it really meant a lot to us.
Yes i turned the computer off but it was late. My mind has been buzzing with things i heard at the conference and it has given me a bit of hope that i can get my life back. I just hope i have as much determination as you have when i start because i know YOU WILL MAKE IT !!!
Thanks for everything,
James Sanders
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CFS, Lyme, Colitis,25D=12,6/30/2008, MP1/07, MPh2 10/07, restart Ph1 01/08, klonipin, Zyrtec, Asacol, NoIRs, cover up, low lux home
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
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Posted: Tue Mar 15th, 2005 01:48 |
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Barney, (James and all)
Thanks so much for being at the conference for me too. I've had such an emotional day today, eyes welling up, trying to catch up on the board and reading all of your posts.
Barney, get serious on that diet. We ALL want you to make it, as much as we all want to make it too.
Hugs to you. 
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BARNEY
Member in Phase 3
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Posted: Tue Mar 15th, 2005 09:05 |
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REENIE,
TODAY IS THE FIRST DAY OF MY NEW DIET, GETTING REAL SERIOUS AFTER TALKING WITH DR M AND DR N (I AM NOT GOOD WITH EVERYONE'S NAME AND I AM REALLY PAYING THE PRICE FOR THE TRIP), THEY ALSO TAUGHT ME A LOT TOO. THANK YOU REENIE FOR EVERYTHING YOU TAUGHT ME. ALL WILL HELP ME. YOU HAVE GOT TO KNOW THAT HEARING 'WATCH WHAT YOU EAT' FROM A BEAUTIFUL THIN WOMAN LIKE YOU IS HARD FOR SHORT, OVERWEIGHT ME TO EVEN BEGIN TO WANT TO LISTEN, AS I HAVE NOT BEEN THIN FOR MANY YEARS, BUT I SURE WANT TO TAKE OFF AT LEAST 50 LBS. AFTER THE TWO DOCTORS SAID THAT GLUCOSE WAS NOT GOOD FOR US TO HAVE, I BELIEVE THEY WERE SAYING IT IMPAIRED OUR HEALING PROCESS. I DO NOT WANT TO MISLEAD ANYONE, SO PLEASE CORRECT ME IF I AM WRONG. SOOOO .... AS MUCH AS I LOVE CERTAIN THINGS, I WILL TRY TO MAKE A BIGGGGGG SWING INTO BEING AND DOING AS MUCH AS I CAN TOWARD MY HEALING.
I AM VERY GOOD ABOUT THE SUNLIGHT (WHEN I AM NOT TRAVELING, WON'T DO THAT FOR A WHILE). NOW, NEXT IS WORKING ON THE DIET. MY MIND (RIGHT NOW) IS GOING ARE YOU 'NUTS'. (HAHA)
LOVE YA FOR ALL YOUR HELP, GOING TO REST AND WILL LEAVE YOU ALONE SO YOU CAN REST. MY DARN COUGH HAS RETURNED AND THAT MAKES IT REAL HARD TO REST. XOXOX BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Wed Mar 16th, 2005 01:44 |
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DAY 74 MARCH 15, '05, BP 109/69 P 79 BENICAR 20MG Q3HRS, BENICAR 40MG BEDTIME, NO MINO, 1 ACIDOP, NO PAIN PILLS
OTHER THAN BEING VERY TIRED, I AM DOING QUITE WELL.
STRESS LEVEL IS A LITTLE ELEVATED. THEY HAVE MOVED MY DAD TO THE NURSING HOME FROM THE HOSPITAL SO HE IS NOW MORE CONTENTED WITH THE FACT HE AND WIFE ARE IN SAME NURSING FACILITY. THEY ARE RECEIVING VERY GOOD CARE AND ARE BEING REHABILITATED IN ORDER TO RETURN TO THEIR OWN HOME, HOPEFULLY SOON.
THE NEXT NEW STRESS IS MY SON'S BP IS OUT OF THIS WORLD HIGH AND WILL BE GOING TO THE DOCTOR IN THE MORNING, UNLESS THEY DECIDE THEY SHOULD HAVE GONE TO THE ER TONITE. WHEN IT RAINS, IT POURS. TRYING TO STAY CALM, COOL AND COLLECTED THRU ALL THIS.
DID BETTER WITH MY DIET TODAY. ALL SUGAR READINGS BELOW 180 UNTIL I GOT THE CALL ABOUT MY SON. TONITE IT WAS 218. I GOT A DOCTORS APPT TOMORROW MORNING AT 930AM, WILL SEE WHAT SHE THINKS. URNINATION IS FINE, WATER INPUT IS GOOD BUT NOT DYING OF THIRST, LEGS ARE NOT SWOLLEN, SO DO NOT BELIEVE I AM RETAINING FLUIDS. OTHERWISE EVERYTHING IS PEACHY DORY.
COUGH I GOT UP WITH IS GONE AND HAS BEEN SINCE ABOUT 10AM. REMINDED ME OF THE 'GOOD OLD DAYS' WHEN I COUGHED CONTINUALLY. THE TRIP GAVE ME A MASSIVE OVERDOSE OF PERFUME, WHICH I BELIEVE TO BE TOO SOON AFTER THE RELIEF OF THE SMELL SENSITIVITIES. JUST WASN'T A LONG ENOUGH PERIOD OF TIME BETWEEN RELIEF AND MASSIVE OVERDOSE. AM DOING FINE IN THAT DEPARTMENT SINCE I AM BACK IN MY CAVE, NO ODORS, AND NO LIIIIGGGHHHTTT!! WE SURE HAD MORE THAN OUR FAIR SHARE OF LIGHT THIS WEEKEND, BUT IT WAS ALL WORTH EVERY MINUTE OF IT.
GOOD NIGHT. HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Fri Mar 18th, 2005 00:59 |
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DAY 76 MAR 17, '05 BP 103/67, P 81, BENICAR 20MG Q3H, BENICAR 40MG BEDTIME, MINO 50MG AT 9PM, 1 ACIDOP, 1 PAIN PILL
Sorry I did not post last night, but about 545pm I fell asleep in the recliner, thinking it was only a catnap and I would go outside about 630pm and get my mail. Well, somewhere around 9pm, I awoke in a 'stupor' turned off almost everything and fell into bed not even remembering when my head hit the pillow. I was out like a light. Thru all this, I somehow took all my meds I needed to take.
Had a lot of trouble with my eyes today. Have had my NOIRs on almost all day. Been on the computer several times today answering emails. I think I am now caught up with those. There are a few people I intend to write again.
My shoulders hurt, which is par for the course. Still tired, but have not done anything but rest. The trip out yesterday to the doctor was hard, to much light exposure after the trip to Chicago.
A lot of people are emailing me wanting to know my improvements so here goes:
All eye pressure is gone. Have not had to use nebulizer or inhalers since I started MP 1/1/05. No longer 'tripping' over my tongue to talk. No steriod nose sprays or Zyrtec. Hearing is better in right ear, can hear on phone now. No more pain in large toe. No vertigo problems, no more 'bouncing off walls' or 'falling into walls'. No more night sweats. No more chest pain or irregular heart beats. No more obnoxious urine odor. No more Migraines. No more restless leg syndrome. and BEST of all no more smell sensitivities, able to be around perfume without having a breathing (asthma) problem.
Had I not have achieved the last improvement, I would not have been able to attend the conference, it would have been impossible.
I handed out a list of these improvements to anyone who would take one at the conference. I even gave one to the lady from the FDA, not knowing who she was.
Everyday on Marshall Protocol is such a blessing to me. Yes, it is hard to stay in the house out of the sun and not eat some of my favorite foods, but, it is worth every minute of it. Nothing in the herxheimer reactions in Marshall Protocol is as bad to deal with as a lifetime of sarcoidosis is.
Thank you to everyone who made it possible for me to attend the Conference. Loved meeting other MPers. They are all sweethearts.
Good night to all. HANG IN THERE, WE WILL MAKE IT!!!!! Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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