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BARNEY
Member in Phase 3
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Posted: Wed Apr 13th, 2005 01:55 |
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DAY 102, 4/12/05, PHASE 2, DAY 7, CYCLE 1, BP108/70 P 87, BENICAR 40MG MIDNIGHT, BENICAR 20MG Q3HRS, 1 ACIDOP, 100 MINO, NO PAIN PILLS
HIPS AND KNEES CONTINUE TO FEEL AS THO THEY ARE 150 YEARS OLD, BUT ARE STILL WORKING IF I GO SLOWER GETTING UP.
GOT A LITTLE HOUSEWORK AND COOKING DONE TODAY. BRAIN FEELS A LITTLE LESS FOGGY THE LAST COUPLE DAYS, A LITTLE MORE HUMAN FEELING.
GOT A SHOWER, SHAVED MY LEGS, CUT AND WASHED MY HAIR AND GOT DRESSED ALL IN ONE DAY. HOOOORAY!!
HAD TO LEAVE THE HOUSE ONE HOUR BEFORE SUN WENT DONE BECAUSE THE PHARMACY HAD MY PILLS ALL MESSED UP. I EVEN HAD SOMEONE GO PICK THEM UP ORIGINALLY SO I DID NOT GET ANY LIGHT EXPOSURE. NEVER AS YOU PLAN NO MATTER HOW HARD YOU TRY. WILL SEE HOW MUCH DAMAGE THE SUN EXPOSURE DID TOMORROW. TONITE EYES ARE EXTREMELY DRY AND ITCHY, SAME AS ALWAYS WHEN I HAVE SUN EXPOSURE.
I USED AN UMBRELLA IN ADDITION TO MY COVERUP HOPING THAT WOULD ADD PROTECTION. WE WILL SEE.
LAID DOWN TO REST FROM 3-6PM. I AM GETTING TO BE QUITE A CLOCK WATCHER, SO THAT I CAN GO OUT AFTER THE SUN GOES DOWN. I HAVE THIS CHART I PULLED UP OFF THE INTERNET TELLING ME WHEN THE SUN GOES DOWN IN MY AREA. HELPS A LOT, SO I DON'T LOOK OUT THE DOOR TOO SOON.
HANG IN THERE, WE WILL MAKE IT!!!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Wed Apr 13th, 2005 15:57 |
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4/13/05
JUST TALKED WITH DOC'S OFFICE.
ONE WEEK AFTER LIGHT EXPOSURE GOING TO CONFERENCE MY:
1,25D 52
25D 22
PREVIOUS READINGS
1,25D 53
25D 25
NOT TOO MUCH OF A DECREASE, BUT AT LEAST IT IS A DECREASE. I AM VERY GOOD WHEN I AM HOME TO AVOID GOING OUT BEFORE DARK UNLESS IT IS ABSOLUTELY NECESSARY. I AVOID VIT D IN FOODS LIKE THE PLAGUE. I COOK FROM SCRATCH TO AVOID VIT D.
I HAD TO GO OUT LAST NIGHT BEFORE THE SUN WENT DOWN (FULLY COVERED WITH NOIRS AND CLIPONS TOGETHER) AND TODAY MY FACE IS PUFFY AND MY EYES HURT SO BAD IT IS HARD TO EVEN KEEP THEM OPEN. I WISH I COULD SLEEP BUT I CAN'T. GOING TO TAKE PAIN PILL AND SEE IF THAT HELPS. WILL ALSO INCREASE MY BENICAR TO Q2HRS FOR THE NEXT 12 HRS. I AM OKAY, IT IS NOT THE WORST I HAVE EVER FELT.
BEFORE STARTING MP MY EYES HURT THIS BAD EVERY DAY AND MY EYE DOC TOLD ME IT WAS BECAUSE OF DRY EYES. I AM FINDING I DO NOT AGREE WITH THAT ASSESSMENT. I HAVE PUT DROPS IN, WHICH MOST TIMES, DO NOT HELP. ABOUT 2 YRS AGO, MY EYES WERE BLEEDING AND MY EYE DOC SAID HE DID NOT KNOW WHAT WAS CAUSING IT, BUT THAT HE WAS SURE IT WAS NOT DIABETES. IT IS MORE LIKE PRESSURE THAN DRY EYES.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19241 |
| Status: |
Offline
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Posted: Wed Apr 13th, 2005 16:38 |
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Hi Barney
Thank you for posting regularly.. it is a help to other Members...
Not being able to sleep can also be from the light exposure / the raised 1,25D.. dont forget the Q4H Benicar for before and during as well as after Light..
Take care of Barney, all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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DNStog
Advocate
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Posted: Thu Apr 14th, 2005 02:20 |
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Barney,
Sorry to hear you are feeling so poorly. 
Two years ago I was diagnosed with uveitis. My eyes would burn, hurt and alternate between tearing up and drying up. In addition I could feel pressure behind each eye which varied from day to day. There was a special test that had to be done by my eye doctor to diagnose uveitis which is quite common in Sarc patients.
Right now my eyes feel better, but light exposure sets off the symtoms again. Most days, liquid gel drops used frequently give relief and I keep my Noirs on at all times indoors, except for showing and sleeping. The occular pressure in my eyes has remained on the low side of abnormal so no further action is being taken by my eye doctor. I believe the MP will cure my uveitis as it cures the rest of my body.
Hang in there!
Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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BARNEY
Member in Phase 3
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Posted: Thu Apr 14th, 2005 03:06 |
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DAY 103, 4/13/05, PHASE 2, DAY 8, CYCLE 1, BP 115/70 P 88, BENICAR 20MG Q2HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL
Extremely dizzy most of day, used my cane to make sure I did not lose balance and fall. I felt as tho my whole body was swollen from the sun exposure yesterday. This seems to happen everytime I go out during the daylight hours.
Eyes were very puffy with big bags under them and bad pressure like I used to get before MP. Puffy face, hands swollen, feet swollen (hard to put shoes on),
Took Benicar 20mg Q2hrs and a pain pill and that seemed to help by evening.
Swelling from all parts is now gone and I am feeling a lot better. No more eye pressure.
DNStog thanks for info. I also was advised to use the gel drops and an ointment, which irritated my eyes so bad that I had to lay down and close them. I finally discovered the best thing for me was to go to the sink and just rub my eyes with cold water. That was the only relief I got. I will, however, keep your thoughts in mind. I see my eye doc at least 1 or 2 times a year and he did not detect anything other than the bleeding about 2 years ago.
Got a few things done outside tonite after the sun went down, like hauling off the trash and putting a new pump in my cooler as it is starting to hit the 80's and I need to be prepared to cool the house.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Fri Apr 15th, 2005 01:21 |
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DAY 104, 4/14/05, PHASE 2, DAY 9, CYCLE 1, BP 108/69 P 90, BENICAR 20MG Q2HRS & Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL
FINISHED BENICAR Q2HRS (FOR 12HRS) ABOUT 3PM TODAY. DAY STARTED OUT GOOD, FEELING OKAY UNTIL I ATE BREAKFAST AND SINCE IT HAS BEEN A REALLY BAD DAY, I HAVE SPENT MOST OF IT IN BED.
MY LOWER BACK WAS HURTING ENOUGH TO JUST KEEP ME ON EDGE AND HAD NAUSEA ALL DAY. JUST TRIED SLEEPING ALL OF IT OFF. FINALLY BROKE DOWN AND TOOK A PAIN PILL THIS EVENING. CAN STILL FEEL PAIN BUT IS PRETTY MUCH TOLLERABLE.
DON'T THINK I SHOULD HAVE TAKEN MY 100MG MINO THE SAME DAY AS THE LIGHT EXPOSURE. WILL NOT MAKE THAT MISTAKE AGAIN. BELIEVE IT JUST INCREASED THE ROUGH FEELING FROM LIGHT EXPOSURE.
I DID A LOT OF THINKING THIS AM. ALL THE SWELLING YESTERDAY MADE ME THINK OF WHEN I USED TO FLEA MARKET OUT IN THE SUN FOR MORE THAN 8 HRS A DAY. MY FACE, HANDS AND FEET SWEELED THEN TOO. BEEN THINKING BACK A LOT TO SUN EXPOSURE BEFORE MP. THE LAST DAY I FLEA MARKETED I ENDED UP AT THE DERMOTOLOGIST WITH MY FACE VERY SWOLLEN AND WHAT HE CALLED SUN POISIONING.
AM FEELING A BIT BETTER DESPITE STILL HAVE BACK PAIN THIS PM.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sat Apr 16th, 2005 01:29 |
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DAY 105, 4/15/05, PHASE 2, DAY 10, CYCLE 1, BP 109/64 P85, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, 1 PAIN PILL
GOT UP WITH SEVERE LOWER BACK PAIN. DESPITE THAT (WHICH I TRIED TO IGNORE) HAD TO RUN VACUUM CLEANER BECAUSE OF EXPECTED COMPANY. FINALLY BROKE DOWN AND TOOK A PAIN PILL. DID NOT EFFECT THE PAIN MUCH AT ALL. I HEATED UP THE RICE SOX AND PUT THAT ON MY BACK AND ABOUT AN HOUR LATER, THE BACK PAIN WAS GONE AND STAYED GONE ALL EVENING.
WITHIN AN HOUR OF TAKING 100MG MINO, MY EYES WERE FEELING REAL ITCHY. THEY ALSO SEEM TO WANT TO BLUR. THAT HAPPENED BEFORE MP WHEN I WAS TIRED, SO I THOUGHT I WOULD GO TO BED AS SOON AS I SIGN OFF HERE.
HANG IN THERE, WE WILL MAKE IT!!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sun Apr 17th, 2005 00:05 |
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DAY 106, 4/16/05, PHASE 2, DAY 11, CYCLE 1, BP 108/74, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, 1 ACIDOP, 1 PAIN PILL
HURT ALL OVER, MAYBE FROM THE STORMS THAT STRUCK US THIS AFTERNOON. TOOK PAIN PILL AND IT EASED AWAY. NAPPED A LOT.
NOT A GOOD DAY.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sun Apr 17th, 2005 22:26 |
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DAY 109, 4/17/05, PHASE 2, DAY 1, CYCLE 2, BP 114/69 P 87, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 2ND TIME 2ND ANTIBIOTIC, 2 PAIN PILLS
POSTING A LITTLE EARLY TONIGHT, BUT I HAVE 2 PHONE CALLS I NEED TO MAKE BACK EAST BEFORE IT GETS ANY LATER.
GOT UP AT 4AM. HAD WENT TO BED EARLIER THAN USUAL. WENT OUT FOR A SHORT WALK TO GET THE PAPER BEFORE THE SUN CAME UP. ALSO FILLED MY HUMMINGBIRD FEEDER AND HUNG IT OUT EVEN THO I PROBABLY WILL NOT GET TO SEE THEM THIS YEAR, MAY A CHANCE AT TWILIGHT HOUR. WE'LL SEE. FELT REALLY PROUD AND GOOD TO GET THESE TWO THINGS DONE SINCE I GOT TO BE OUTSIDE. IT IS HARDER NOW THAT THE DAYS ARE LONGER.
WENT BACK TO BED AFTER BREAKFAST AND SLEPT TILL NOON WITH REALLY BAD SHOULDER PAIN. TOOK PAIN PILL AND PUT HOT SOX ON. PAIN FINALLY LEFT, BUT HAS RETURNED THIS EVE. WILL DO THE SAME AGAIN TO GET RID OF IT.
NEVER EVEN MADE IT DRESSED TODAY. TOO MUCH GOING ON PLUS GOING BACK TO BED.
I HAVE DONE A LOT OF THINKING. I DON'T REMEMBER EVER BREATHING SO DEEPLY THAN ON MP. YES, I HAVE A LOT OF PAIN BUT NOT NEAR AS MUCH AS I USED TO HAVE BEFORE MP. I USED TO HAVE A LOT OF MIGRANES, NOT ANY MORE. MY NECK USED TO ACHE CONSTANTLY, NOT ANY MORE. I USED TO SUPPORT MY CHIROPRACTOR, NOT ANY MORE. TODAY ON MP IS BETTER THAN ANY DAY WITH SARC. I AM SO THANKFUL I FOUND SARC INFO AND THEN MP.
I THINK THE REASON I DO SO WELL ON MP IS THAT I DARKENED MY HOUSE BEFORE I STARTED MP, ORDERED MY NOIRS AND STARTED WEARING THEM BEFORE I STARTED BENICAR AND I STAY INDOORS UNLESS IT IS ESSENTIAL THAT I GO OUT. I ALSO AVOID ALL VIT D IN MY FOOD. I BELIEVE, BY FOLLOWING THE RULES OF MP, I AM DOING THIS WELL.
I SINCERELY BELIEVE DR TREVOR MARSHALL KNOWS WHAT HE IS DOING WITH THE MP.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Tue Apr 19th, 2005 00:35 |
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DAY 108, 4/18/05, PHASE 2, DAY 2, CYCLE 2, BP 99/70 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, NO MINO, 1 PAIN PILL
SHOULDER AND NECK ARE HURTING, ARE SOMEWHAT TOLLERABLE BUT SINCE THEY HAVE HURT ALL DAY I AM GOING TO TAKE A PAIN PILL TO EASE THE PAIN TO SLEEP. ARM MUSCLES ARE TIRED ALSO.
VERY TIRED TODAY, TOOK 3 HR NAP.
DID A TAD OF GARDENING AFTER DARK. NEIGHBORS ARE JUST TOTALLY AMAZED AT ME FOR TRYING TO GARDEN AFTER DARK. WE WILL SEE IF THIS WORKS. GOT TO HAVE SOMETHING TO OCCUPY MY TIME AND MIND (WHAT MIND I HAVE LEFT).
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3374 |
| Status: |
Offline
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Posted: Tue Apr 19th, 2005 17:50 |
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BARNEY says, "I BELIEVE, BY FOLLOWING THE RULES OF MP, I AM DOING THIS WELL."
I wholeheartedly agree with you on that, Barney.
As for the nighttime gardening, I do the same. I'll be going out, within the next few nights, to trim my yard and do some light landscaping. I start at dusk and work, slowly, as I can, into the early evening.
I'm amazed that I never thought of doing this pre-MP, since it's much cooler out and easier to do, w/o the sun beating down on me anyway.
As for your light tolerance, you will begin to experience an "easier" time of it, soon, I'm sure. I know it's easier for me now, in the sense that I have less sun flare, although I'm still very careful not to be out much and I take all of the MP precautions, as you do.
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BARNEY
Member in Phase 3
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Posted: Wed Apr 20th, 2005 01:57 |
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DAY109, 4/19/05, PHASE 2, DAY 3 CYCLE 2, BP 119/80 P 77, BENICAR 20MG ALL MESSED UP TODAY, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO,
WELL, THE GARDENING WORE ME OUT AND I HAVE HAD TO REST ALL DAY. ALSO MADE THE MISTAKE OF GOING TO TOWN, SHOULD NOT HAVE DONE THAT (AFTER DARK). READY TO JUST FALL INTO BED.
GOT THE TIMING ON MY PILL SO MESSED UP TODAY, I COULD NOT BELIEVE IT. FINALLY GOT STRAIGHTENED OUT BY 6 PM. EVEN WITH MY CELLPHONE TIMER I MESSED UP. WOW!! NOT JUST BRAIN FOG, JUST NO BRAIN PERIOD.
OKAY OTHERWISE, BUT GOING TO BED.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Thu Apr 21st, 2005 02:20 |
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DAY 110, 4/20/05, PHASE 2, DAY 4, CYCLE 2, BP 100/74 P 80, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINIO, NO 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL
EXTREMELY FATIGUED. DID NOT DO MUCH IN AM. TOOK NAP FROM 3PM-630PM, TALKED WITH FRIEND. SHOULDER PAIN INTENSE AND NECK IS HURTING TONITE NOT LIKE IT USED TO.
PM SET OUT CANTALOUPE SEEDS AND MOVED 2 BUCKETS OF DIRT WITH 2 WHEEL CART, WATERED AND QUIT. TOO FATIGUED TO GO ON. DID GO PICK UP MAIL OUT FRONT AND TAKE TRASH TO DUMPSTER. OTHER THAN THAT, I DID NOT EVEN GET THE DISHWASHER LOADED. SURE WISH THEY MADE ALL DISHES, POTS, PANS, AND SKILLETS IN PAPER.(HAHA)
READY FOR BED, EVEN THO I SLEPT FOR 3 1/2 HRS. I REALLY BELIEVE THE MP MAKES YOU GET THE REST YOU ALWAYS TRIED TO AVOID.
WELL, I GUESS THAT'S ALL. HANG IN THERE, WE WILL MAKE IT!! BARNEY
PS REENIE, I AM STILL AFRAID OF THAT DARN SUN, SO I THINK I WILL WAIT A LITTLE WHILE LONGER BEFORE I TRY TO GO OUT. HOW I WOULD LOVE TO BE AT THE END OF PHASE 3. LOOKING SO FORWARD TO IT.
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Fri Apr 22nd, 2005 00:37 |
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DAY 111, 4/21/05, PHASE 2, DAY 5, CYCLE 2, BP 101/70 P 90, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS
SORT OF BORING DAY. JUST TIRED AND RESTED MOST OF DAY. DID LOAD DISHWASHER, HAD TO, WAS OUT OF CLEAN DISHES.(HAHA) TOOK 2 HR NAP.
WALKED OUT AND GOT NEWSPAPER AND MAIL. THAT'S ABOUT ALL DAY CONSISTED OF.
HANG IN THERE, WE WILL MAKE IT!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sat Apr 23rd, 2005 02:19 |
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DAY 112, 4/22/05, PHASE 2, DAY 6, CYCLE 2, BP 99/59, P 83, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, NO MINO, NO 2ND ANTIB, 1 ACIDOP, 1 PAIN PILL
GOT UP AT 5AM (AGAIN), PAIN WAS ACHY TYPE, TOOK PAIN PILL, FELT BETTER.
EXTREMELY SLEEPY AROUND 3PM AGAIN. (MUST BE THE DR PHIL SHOW), PUTS ME TO SLEEP FOR AT LEAST 2 HRS. GOT UP WITH LEGS TIRED AND MUSCLES 'WORN OUT'. WENT TO SLEEP IN THE RECLINER, THAT'S WHY I AM LATE POSTING.
HAD TO HAVE COMPUTER MODEM CHANGED, IT KEPT DYING ON ME, IS BETTER NOW.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Sun Apr 24th, 2005 02:57 |
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DAY 113, 4/23/05, PHASE 2, DAY 7, CYCLE 2, BP 104/66 P 93, BENICAR 20MG Q3HRS, BENICAR 40MG MIDNIGHT, 1 ACIDOP, 100MG MINO, NO 2ND ANTIB, NO PAIN PILLS.
I HAVE DETERMINED THAT ONE OF THE HERXS THAT IS FINE WITH ME, IS LOTS OF SLEEP AND REST.
I WAS WIDE AWAKE LAST NIGHT UNTIL 3AM AND GOT BACK UP AT 830AM, WENT BACK TO BED AT 11AM AND SLEPT UNTIL 730PM TONIGHT WHEN MY GRANDSON CALLED.
GOT UP, WENT TO STORE AND GOT SOME VEGIES I NEEDED AND BACK HOM WITHIN 2 HOURS (OF COURSE ALL AFTER DARK).
FEEL AS THO I COULD GO BACK TO SLEEP RIGHT NOW BUT AM GOING TO WATCH A LITTLE TV FIRST.
NO REAL SEVERE PAIN, JUST LITTLE STUFF, NO PAIN PILLS REQUIRED.
GOOD DAY FOR SLEEPING, WIND IS WARM FEELING TONIGHT.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY 
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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BARNEY
Member in Phase 3
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Posted: Mon Apr 25th, 2005 01:32 |
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DAY 114, 4/25/05, PHASE 2, DAY 8, CYCLE 2, BP 95/70, P 83, BENICAR 20MG Q3HRS, BENICAR 40MG MICNIGHT, NO MINO, NO 2ND ANTIB, 1 ACIDOP, NO PAIN PILLS
I WAS UP UNTIL 4AM. HAD SLEPT TOO MUCH DURING DAYTIME. SO WENT OUTSIDE AND PLANTED SOME TURNIPS. I HAVE 1 ZUCCHINI AND LOTS OF RADISHES. SOON I WILL BE EATING GREAT VEGIES.
LOADED DISHES AND TURNED ON DISHWASHER. I LOVE DOING DISHES THIS WAY.
SLEPT 4 HRS DURING DAY TODAY.
SPACEE, I HAVE SORE SPOTS ON MY HEAD TOO. WONDER WHAT THAT MEANS. I DON'T REMEMBER EVER BREATHING AS DEEPLY AS I BREATHE SINCE MP. IT IS GREAT.
NOTHING GOING ON TONITE. SORTA TIRED FROM LAST NIGHT.
HANG IN THERE, WE WILL MAKE IT!! BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Meg Mangin R.N.
Research Team
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Posted: Mon Apr 25th, 2005 01:50 |
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Barney,
There are lots of lymph nodes on your head and, if they are inflamed, they could be causing your soreness. There are days that my sunglasses seem too tight behind my ears but most days they are just fine. I believe the soreness is caused by temporary lymph node inflammataion that isn't palpable.
Best,
Meg
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BARNEY
Member in Phase 3
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Posted: Mon Apr 25th, 2005 02:05 |
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Meg,
My computer is acting up again so hope I can answer you.
My head has been sore like this for sometime but did not place it with sarc until just recently.
I was pretty sure there were lots of critters in my head because:
neck pain, migraines, eye pressure, leisons on brain, etc. I'm sure I have a long way to go with just the critters in my head, let alone the rest of my body. I am really dreading when the lungs start healing. I imagine it will be like Trevor told of his bout with his lungs.
Maybe if I could see the top of my head, there might be leisons in my hair. Who knows?
Thanks for the insite!! Barney
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19241 |
| Status: |
Offline
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Posted: Mon Apr 25th, 2005 02:16 |
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Dear Barney
re lungs: The MP is a work in progress. we have the quercetin now to help the Benicar... which Dr M didnt have.. and I think they were taking higher doses of abx than we are... ?
I have lung herxing and while it is still herx, it is "managable" with the meds dosing including the Q4H Benicar and Quercetin to help.. without the Q it would be a lot lot worse for me.. and I am still on low doses of abx.
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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