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Alayne
Member in Phase 3
| Joined: | Wed Sep 21st, 2005 |
| Location: | California USA |
| Posts: | 567 |
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Posted: Fri Jan 13th, 2006 21:17 |
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Oh best of luck Sharon! Phase 1 was quite a trip for you and I sure hope Phase 2 treats you "well".  Of course it would be wonderful it you could drop a line here every now and again to let us know how you're doing!
All the best, Alayne
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CFS/ME/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, 10/09-No ABX, NonMP Meds: Calc&Mag/Lysine
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ShrnHml
Guests visiting Phase 1/2/3
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Posted: Mon Jan 16th, 2006 03:47 |
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Hi Alayne..... I have posted an answer to you but don't see it here. Mainly I wanted to say so far so good.
......................................................................................................
I have also just sent a PM to Aunt Diana who asked about taking more mino to decrease a herx. I thought it might help others, so I am copying part of it here.
Hi Diana..........the info on the extra 25mg mino is in the FAQ about "My Herxheimer reaction is too strong. What should I do?"
The first option given is to increase Benicar. I did not want to do this, as this med is expensive and difficult to obtain. The other option is to adjust the mino by keeping it at a higher level....because it is more powerful at the lower levels.
Example: I was feeling very bad at the end of Day 1 but had to go out to do some errands. I took 25mg mino, laid down for a nap, and woke up feeling much better and able to complete my errands.
Even though the information was there in plain sight all the time, my desire to "do it right" caused me to overlook it. Consequently, I spent most of Ph1 feeling incapacited and was even fearful of going into Ph2. But now that I have this information in my head, I know I CAN and WILL control my herxes. It may take me a little longer to get through, but that's okay with me.
In the "Do I have the right stuff?" FAQ, they should say....no masochists need apply.
Best...........Sharon
Last edited on Mon Jan 16th, 2006 07:04 by ShrnHml
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Mon Jan 16th, 2006 04:03 |
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Hi Sharon
Keeping your herx tolerable doesnt make MP take any longer..
Dr Marshall says : " It doesn't matter how long it takes. You have started on a lengthy journey, and the extra pain of speeding beyond a comfortable pace will not yield a comparable reduction in the length of the journey."
It may be hard for many of us to pace ourselves and go slowly. Many of us are used to pushing ourselves to the limit and have learned to be tough and almost obsessive in order to make it in our lives. We have had to overcome punishing levels of symptoms in order to make it under the burden of these illnesses. However, for the Marshall Protocol, remember, discretion is the better part of valor. Don’t treat your body too harshly, the illness has done that too much already.
The fable of the tortoise and the hare really does apply here, the slow and steady ones are better able to make it to the finish line.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
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Posted: Mon Jan 16th, 2006 06:21 |
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Sharon
from your PM. "I have made a couple of posts and sent some PMs this evening, but they did not seem to "go". At least I can't find them or evidence of them.
In one post I was asking for an FAQ on Why do I need to stay out of the sun? I looked at all the FAQs and did not find one specifically on that."
If you click on the ABC in my sig line and look under L for light you will find all the info on Light.. eg. these and more...
AVOIDING SUNLIGHT and BRIGHT LIGHTS
How and why to protect skin and eyes while on the MP
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
Why is my 'herx' more intense after exposure to Light & / or Vitamin D?
THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS ON PERSONS WITH TH1 INFLAMMATORY DISEASE
Incident Radiation Tutorial All light- infrared, visible and ultraviolet
TESTIMONIALS to the Need for Avoiding Light Member's personal experiences
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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ShrnHml
Guests visiting Phase 1/2/3
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Posted: Mon Jan 16th, 2006 06:58 |
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Ahhhh.......I was looking in the ABCs under "Avoid". Still I should have seen the others, as I looked in regular FAQs also.
Sorry to bother you with stuff like this.
Muchos gracias (We're becoming a bilingual country)
Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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ShrnHml
Guests visiting Phase 1/2/3
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Posted: Sun Jun 25th, 2006 21:34 |
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Began MP 4/05. Started 10 week break 3/06. Restarting ModPh2 5/1/06
Sun Jun 25 - Day 56 of restart. Benicar: 20 mg Q6H. Mino: 25mg QOD. C: cycle 5, level 2 . Ready to ramp
Activity/wellness index: 30% (last year in Ph1 it was about 3%)
The only back pain I have heard about from friends and relatives over the years has been lower back pain. Therefore I always thought that back pain = lower back pain. Everything else was insignificant.......even the painful burning sensation on the tips of my shoulder blades.
After unconsciously absorbing various posts on upper back pain, it finally dawned on me that I have had upper back pain for many years. Sometimes the pain would make me stop whatever I was doing and rest. Yet I never considered it significant. As Jillian wrote:
Funny it all becomes so much a part of normal that I forgot to note it all the time.)
Either the pain is stronger or I have a new awareness. But now I realize that this is part of my illness, and will eventually go away.
I would still be unaware of this if several people had not posted a description of where their backs hurt. They said, in general, that the pain was in the upper back, between waist and shoulder blades. Bingo! Another discomfort or oddity that I had integrated into my life as normal now identified as Th1-caused.
Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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