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Foundation Staff
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| Joined: | Sat Jul 10th, 2004 |
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Posted: Tue Oct 18th, 2005 03:29 |
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2bonnie,
Way to go!! Your upbeat post made my day. 
Best,
Meg
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Bonnie2
Member in Phase 2
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Posted: Mon Oct 24th, 2005 00:01 |
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HAPPY HHHAAALLLOOOWWWEEENNNYYYY EVERYONE  havent been posting cuz totally did something I am paying for now,long story short,halloween pumpkin bread...gift...everyyear tradition...forgot eggs.so Ive been gettin over that but the main thing that I am looking forward to now is another tradition this time of year and that is dressing up w/my twin brother and scarin the b-jesus out of all the kids who dare come to my house of horrors on HALLOWEEN OOOOOOOOOOOOOOOOOOOHHHHHHH.anyway,I feel like crap but the thought of scarin the little buggers that live in my neighborhood is SUCH A RUSH WEW remember the house we all loved to hate to even step in the yard cuz you knew in your heart that you were gonna almost pee on yourself cuz you knew that every year that was the COOL house,thats mine,so if your not feelin well think how great it was to get old enough where you were the one doing the scaringmany blessings to you all,much love,and I know these posts are for our health,but if remembering what it was like when we where healthy,ALIVE THEN i'M SORRY FOR THIS POST...........2BONNIE
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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JudyBeauty
Member in Phase 3
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Posted: Mon Oct 24th, 2005 07:12 |
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Hi Bonnie,
Happy Halloween to you.! I love Halloween it has always been my favorite hoilday. I remember trick or treating for hours and hours. My brown paper bag would end up breaking. I have lots of brothers and sisters and we would bring home tons of candy. Then as an adult I'd get dressed up in costume and hit the clubs with my friends. We had so much fun. Now I enjoy handing out candy to the kids and I'm always ready with some plastic bags for the kids who get a hole in theirs. The good old days. They will return.
Happy Haunting
Judy
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CFS viral onset 1986 1-25D-53,25D-12 1/5 Noir's/D avoid July04/ Beni 3/22/05 40mg q6h Stop Benicar 4/23/05 Restart Beni 8/13/05,Valium
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Bonnie2
Member in Phase 2
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Posted: Thu Oct 27th, 2005 21:17 |
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blessings,went to dr. yesterday oxygen is holding steady at 91,hey heybut did have an infection going on,am clearing the med givin w/staff,temperature was 99,never have temp.I am always 97.whatever,feel crappy but one of my favorite holidays is coming up,see last post,then dr.is training a student so she is learning of the mp spreadin the WORD,I actually heard him tell her that it is a protocol becoming popular!!!!!!!!!!!!!!!!!!!!!SO TREVOR IF YOUR WATCHING,DR.S ARE TALKING AND STUDENTS ARE LEARNINGmy dr. is always going to these dr. things and he talks to them about the protocol,then he comes back and tells me that oh this dr.didnt know,well he does now!ah the ego of my dr. gotta love him.anyway am GETTING OFF OXYGEN DURING THE DAYI'M BACK JUST HAD TO DO A LITTLE HAPPY DANCESO many blessings til next progress 2bonnie
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
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Posted: Sat Oct 29th, 2005 05:23 |
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2Bonnie asked me to post for her. Her fever has gotten higher with left ear tympanic up to 100.8 and right ear to max 102.2. She reports no ear or facial pain. Her lungs are clear and she has no shortness of breath. She c/o feeling of "swelling" and tenderness in intestines and constipation. She said urinalysis was clear yesterday. She has just very recently changed her pain med from 120mg of avinza qd to oxycontin 20mg q 12. She said she would take a percocet 5/325 to get tylenol on board. She is now switching to 25mg Mino q6 hr from q12 hr to see if it may help. She reports she will call Sat afternoon and will contact her doc if she gets worse in the meantime. She said she would try smaller amount mag citrate than full bottle tomorrow. Bonnie reported she was worried about ever having another bowel surgery because she almost died last time.
She would like more advice from staff if possible. Best, P.B.
Last edited on Sat Oct 29th, 2005 05:30 by P.Bear R.N.
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Foundation Staff
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| Joined: | Sat Jul 10th, 2004 |
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Posted: Sat Oct 29th, 2005 05:53 |
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Hi Bonnie,
Increasing your mino 25mg from every 12 hours to every six hours in the right thing to do to decrease Herxheimer symptoms. It doesn't sound like you have an acute infection but do stay alert for signs of that, such as colored sputum.
Changing your narcotic may have decreased your bowel motility and caused your gastrointestinal symptoms. You are taking immediate release oxycodone in the Percocet in addition to the slow-release oxycodone in the Oxycontin. I'm not sure why you think you need the Tylenol (acetaminophen) but you could take it separately unless you need the Percocet for breakthrough pain.
Prevention of constipation when taking narcotics is very important. This list of laxatives may help you suggest an alternative to your doctor if the mag citrate doesn't work. I see a lot of doctors ordering Lactulose routinely now. There is no limit to how much laxative you can take. The key is to find what works and then continue its use to manage the narcotic-induced constipation. Be sure to drink adequate fluids too. Do call your doctor if your bowels haven't moved by tomorrow.
I hope you get these symptoms under control soon.
Best,
Meg
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Bonnie2
Member in Phase 2
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Posted: Tue Nov 1st, 2005 05:46 |
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| 1st thanx p.b for the accurate postused lactulose and am having small firm bowel movements,once daily,enough to keep pressure off the scaring from the colostomy in1996.p.b. suggested getting a different thermometer after the ear kind told me it was 105,so am using oral and temp. is normal.am herxing,and having extreme pain from pain med change,and a very close friend died needlessly over the weekend,think I will ask Dr. for a anti-depressent for a while as am also having negative life-situations that cant be changed yet.Am really feeling badly physically,emotionally.........can maybe a staff member help me in which site I should look at to tell my dr.which anti-depressants I can have and please pray for me......will check post tommorrow,and then I think I am going to be off line for about a week,I need space and am going to a place were I can get some peace.P.bear has my # if staff needs to contact me,many blessings to you all bye 2bonnie......p.b just ask steve for my cell phone
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Tue Nov 1st, 2005 05:51 |
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Bonnie
sending Which sleep med, anti-anxiety med, pain med or muscle relaxant can I take?
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Sat Nov 5th, 2005 06:39 |
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THANX BARB,LIFE SITUATION IS UNBEARABLE MAY HAVE TO GO OFF PROTOCOL FOR AS LONG AS 2 YRS IN ORDER TO FIND A HOME THAT i CAN AFFORD.WAITING LISTS ARE TWO YRS EVEN FOR THE HOMELESS
AM VERY DISTRESSED AND HAVENT EATEN,SLEPT IN DAYS.DR HAS GIVEN MEA NEW MEDS SEROQUEL 100MG,FEEL VERY BAD EMOTIONALLY,AND AM UNSURE OF WHERE ,WHAT IS GOING TO HAPPEN TO ME,
CAN PLEASE GET SUPPORT WITH ADVISE FROM MEMBERS?
AM AFRAID TO SLEEP THAT I WONT WAKE UP,STAFF PLEASE LET ME KNOW IF THIS PSYCH MED IS OK MUST SLEEP,PLEASE HELP W/THAT ASAP,
ALSO BOWEL MOVEMENTS HAVE STOPPED,HAVE BULG AT AREA WHERE COLOSTOMY USED TO BE,AM USING EVERYTHING TO GET IT GOING
DR. IS UNAVALABLE FOR WEEKEND,SUPPOSITORIES NOT WORKING IN MOVING BOWEL FROM THE COLON,ADVISE
PLEASE DONT WANT TO LOSE PROTOCOL,AM TRYING TO STAY OUT OF HOSPITAL/MENTAL HEALTH ALSO
2BONNIE PLEASE SEND BLESSINGS ...STAFF HAVE SENT MAIL TO P.BEAR IF NEED MORE INFO ON THE LIFE SITUATION ISSUE,SEEMS IN RURAL AREAS OPTIONS ARE EXTREMELY LIMITED
IF i MUST STOP PROTOCOL ,WILL SEND LAST POST SOONPLEASE PRAY FOR ME,I WANT TO LIVE
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Nov 5th, 2005 06:59 |
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Bonnie
I have contacted PB immediately.. that med appears to be the problem.. side effects of constipation and etccc. PB is contacting you with advice.. drink water..
Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
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Posted: Sat Nov 5th, 2005 07:32 |
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| Bon, have sent you two private posts. Can call me on the morrow if you can. P.B.
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P.Bear R.N.
Inactive Staff
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Posted: Wed Nov 9th, 2005 23:55 |
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2Bonnie asked me to post for her. She has been stressed by life situation, but continues on MP with Mino q 12 and Beni Q6 with tolerable herx level.
best , P.B.
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Bonnie2
Member in Phase 2
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Posted: Thu Nov 17th, 2005 03:37 |
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blessings everyone,as you are aware from the last few posts I have been on a bumpy ridehave my OLDEST sister here for a while so that life-situation is mellowing out,have had great piece and quiet for almost 2 wks,am herxing bad again/nose drainage,aches those things again.am over the mourning of my grlfriend..,so ok their(now just p.o.ed cuz was a senseless loss )but am channeling my energies to doing the things I did before I realized that when you live on this protocol so am trying to re-invent myself once again,my first model 2bonnie was prior to the wheelchair,so i learned about how to help myself and others w/same rivers to cross that I hadnt swamso now living in a bat cave has brought me to my new re-invention.......hence 2bonnie.just food for thought out to those who cant talk about their problems as freely as meself.
Went to Dr. today,discussed the pro's-con's of the pain meds that we had switched that caused an uncontrollable episode/depression/anxiety.W e concluded that will be doing 20mg oxycontin 3xday(no longer 120mg avinza)and for the depression/anxiety,I am trying to due asthma exercizes 3xday/reading/listening to sublimimal music at night,drinking jasmine,fennel,ceylon.....ect .teas to keep calm and doing what I was before had life situation problems.Many blessings to the older sisters of the world p.s my o2 on room air was a woppin 96!,but understand am not herxing alotwill always keep in mind getting close to the 2nd phase can cause depletion,am upping my mino soon,will advise 1st
I remain,as I can no other
2bonnie
staff thanx for heads up on that one med,flushed it once I looked it up on net,blessings
Last edited on Thu Nov 17th, 2005 03:47 by Bonnie2
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Fri Nov 18th, 2005 14:09 |
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went to sleep ,blessings,for about6hrs,deep heavy -good sleep,used no meds to induse sleep,other than cannabis that is recommended in ca.,by physiscian,discovrd lovely organic peanut butter,small amount was all that was needed,so am trying to reduce my chemically unsound medications that I am finding alternatives for that make me feel better and bring more beauty in this world ,so am reducing the ambien to one every other day/substituting the cannabis/tension tamer tea(celestrial brand)untill ambien is no longer needed.also found did not need 6mg of valium w/ambien to get a less restfull sleep,I have found w/peanut butterincorporated w/cannabis.I would also like to note that I also have cut my opiates in a nearly 1/2 to 1/2 ratio w/going from AVINZA-120mg 1day.....to 20mg oxycontin-3times day.AS PATIENTS IN PAIN it is we who have controll,there are alternatves to pills,and I dont Always have peanut butter medicine,but I can find that place away from my pain body,so that I may become a couch potatoe but,I got things I gotta DO,so thats whats goin on today,the herxing is totally in the brain area,although I think I am getting my point across,to dr.'s,and patients.lots anxiety,whats driven me nuts is why cant I face the realization that there is absolutely nothing to fear,yet there the feeling is persisting to dictate
also am having the intestinal inflammation once again,must remember to sit back.eating vegetable breads,no milk or eggs,sugar.no sugar yogurts and am having hemmoroids,treating w/witch hazel,finding great relief,so we're in for another bumpy ride,but as good as I felt coming throughto now,able to get things done was a true blessing,so amm looking forward to my covert operation bio-feedback visualization tackticks....seeing all the bugs inside dying and each and every cell in me starting to shine w/life again,so living in the bat cave that less helps too.oh forgot,have digit pain,hips kneesand of course the lovely nose drainage blessings everyone 2bonnie till I post again
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Fri Nov 18th, 2005 17:37 |
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Thanks Bonnie for your report.. any time that your symptoms begin to increase towards intolerable you can bring the mino and or Benicar back to more frequently as previously used, to gain relief.. and then, when stable extend them out to where you were again..
also info in What kind of probiotics should I use?
let us know if you have any questions.. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Mon Nov 21st, 2005 10:23 |
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blessings all,barb,thanx for the advice,if not feeling better by this coming weekend,will think seriousely about trying the miiddle road/using the mino at 8hrs,instead of the 12hrs.So to re-innerate....am at mino25mg/12hrs and beni40mg/6hrs.
had 2 severe anxiety attacks,bad enough to where I needed to call p.b,seems the more I rationalize,speak to myself that I am over-riding whatever is causing the fear in the 1st place.getting dark early now so took opportunity to shop for envirnmental/meditational tapes for relaxing/anxiety control,and is wonderful tools to wake up to in morning when feeling bad.I also recommend novajo/flute/drum cd's.I have found that in my indevors to get away from the pain pill game to,though am most responsible w/pain meds,always have left overs,that stillness/quiet can be a very good friend,breathing right has alot to do w/it also.one of the things I do when my pain is unbearable,but it is 4-5hrs before I can take that time released pain med,and I dont want to take the "breakthrough"pain meds either,I look at my hands,really look at them...the lines,their "charactor"and I think how blessed I am that they dont hurtbecause I am making the deciscion to see the life in my body and not the pain,at 1st it was hard,very hard.Now Isee my whole body alive,the lights of each cell,once darkened by bug bacteria,shining brightly,so on those nights when you feel beat,just listen close cuz the mp is turning your bug zapper lights back on,one day.....soon...you'll hear...pop..zap.pop,pop,...zapjust the mpworkin
scarring in intestines where colostomy was re-establishedis slowly getting better,am actually noticing weight gain,tho most unwanted.lactulose 10gm/15ml syrup qu473ml....,has been given at 60mlx2 daily when started is now down to 1/2 that.have doubled probiotics,yogurts w/fresh fruits working very well.Noticing stool is moving more comfortably through this very scarred problem area.will try working acidophillos in budget.
What I am finding extremely strange is the fact that I am not using my albuteral/combnivent/nebulizer in these particular episodes of herxing,am wondering is this one of the benefits to getting closer to phase 2?
I am also finding that if I dont tell/talk to others about my dis-ease thatI am not reinforcing it,I only give my symptoms in here,what I do reinforce to others is the fact that I am in a curitive state.I read my 1st fewposts and cant evenimagine feeling that bad,I shall never let that happen again now that i have the mp also have noticed have been using illness to get other people to do things for me that I can do myself,example;getting water for me when I can get up,get it myself,also see that they are actually asking me several times "you sure I can't do that for you?"SO,I started seeing just what I could do w/o help and not putting myself in harms way.It's incredible how much you can do if you change your prespectives.Becoming ILL for me in the 1st place was a blow,even tho I wasn't in the best,I got by.It really is incredible the things people will do when they see a wheelchair AND oxygen combo.Whats more is the things we allow people to do for us,that doing for ourselves is the true win-win situation,AND w/thatI say thank you brain-herx for helping to clear the cobwebs so that I can see clearly my priorities...more,more. 2bonnie
many blessings to us all,that we all may be healed no matter the situation or the maladythanx to staff for work /trevor for his creativity
____________________
Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Mon Nov 21st, 2005 10:23 |
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blessings all,barb,thanx for the advice,if not feeling better by this coming weekend,will think seriousely about trying the miiddle road/using the mino at 8hrs,instead of the 12hrs.So to re-innerate....am at mino25mg/12hrs and beni40mg/6hrs.
had 2 severe anxiety attacks,bad enough to where I needed to call p.b,seems the more I rationalize,speak to myself that I am over-riding whatever is causing the fear in the 1st place.getting dark early now so took opportunity to shop for envirnmental/meditational tapes for relaxing/anxiety control,and is wonderful tools to wake up to in morning when feeling bad.I also recommend novajo/flute/drum cd's.I have found that in my indevors to get away from the pain pill game to,though am most responsible w/pain meds,always have left overs,that stillness/quiet can be a very good friend,breathing right has alot to do w/it also.one of the things I do when my pain is unbearable,but it is 4-5hrs before I can take that time released pain med,and I dont want to take the "breakthrough"pain meds either,I look at my hands,really look at them...the lines,their "charactor"and I think how blessed I am that they dont hurtbecause I am making the deciscion to see the life in my body and not the pain,at 1st it was hard,very hard.Now Isee my whole body alive,the lights of each cell,once darkened by bug bacteria,shining brightly,so on those nights when you feel beat,just listen close cuz the mp is turning your bug zapper lights back on,one day.....soon...you'll hear...pop..zap.pop,pop,...zapjust the mpworkin
scarring in intestines where colostomy was re-establishedis slowly getting better,am actually noticing weight gain,tho most unwanted.lactulose 10gm/15ml syrup qu473ml....,has been given at 60mlx2 daily when started is now down to 1/2 that.have doubled probiotics,yogurts w/fresh fruits working very well.Noticing stool is moving more comfortably through this very scarred problem area.will try working acidophillos in budget.
What I am finding extremely strange is the fact that I am not using my albuteral/combnivent/nebulizer in these particular episodes of herxing,am wondering is this one of the benefits to getting closer to phase 2?
I am also finding that if I dont tell/talk to others about my dis-ease thatI am not reinforcing it,I only give my symptoms in here,what I do reinforce to others is the fact that I am in a curitive state.I read my 1st fewposts and cant evenimagine feeling that bad,I shall never let that happen again now that i have the mp also have noticed have been using illness to get other people to do things for me that I can do myself,example;getting water for me when I can get up,get it myself,also see that they are actually asking me several times "you sure I can't do that for you?"SO,I started seeing just what I could do w/o help and not putting myself in harms way.It's incredible how much you can do if you change your prespectives.Becoming ILL for me in the 1st place was a blow,even tho I wasn't in the best,I got by.It really is incredible the things people will do when they see a wheelchair AND oxygen combo.Whats more is the things we allow people to do for us,that doing for ourselves is the true win-win situation,AND w/thatI say thank you brain-herx for helping to clear the cobwebs so that I can see clearly my priorities...more,more. 2bonnie
many blessings to us all,that we all may be healed no matter the situation or the maladythanx to staff for work /trevor for his creativity
____________________
Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Mon Nov 21st, 2005 14:19 |
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Thank you Bonnie,
it is good to know that you are making progress.. we are happy to hear from you and are happy to assist you in any way we can..
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Sun Nov 27th, 2005 07:37 |
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| well happy belated thanksgivings everyone,guess who cooked,yep I did.I am herxing but am dealing with it well,service to others has always been my turn on so no matter how bad/good I feel,feeding the hungry always brightens my spiritsam still herxing pretty good,change in weather isn't helping,but in order for a tree to grow it needs a little manuream finding it most interesting that in the begining of the first phase for me that the breathing was what had gotten worse,although I do understand that the herxing can hit any part or all parts at different times.I am still perplexed that my mind is getting clearer still.It's almost as if the fog of the past 12yrs of pain/despair of knowing -then that I wouldn't see my granddaughter grow up.I say this because the sarciodosis had come upon me with a vengence in a short time.I lost my middle sister to breast cancer 2yrs after my diagnosis,but was told it would burn itself out and I would be ok,so I forgot about it...........the hypocracy of the whole issue of all diseases.....DIS-EASE has got to stop.I find myself facing the lies of the web m.d facing me again as I am challenging the state of calif.,In Home Supportive Services,because thats the site that they usd to look up my illness.Because of the lies/deceit I was only alloted 1hr daily for help in my home,where others that are on oxygen/in electric chairs/unable to bath are given many more hrs.I am finding myself more /more mad than ill anymore.As I find myself slowly healing I see more clearly than I ever have in my life.Cancer took my sisters dignity,I.....IRefuse to go out like that,If it is my time I shall not go gently into that night,thats why I am here.To those Dr.s out there that use this protocol blessings upon your hands.My herxing is stable,still no joint swelling to report,tho the weather change,but am finding sleep harder to come by,not insomnia per say but the ideals,the LIFE returning,yes even through the herxing,I feel the life,my life returning and to think I am Only just getting close to phase 2....soon... I remain 2bonnie xoxoxoxoxoxoxox
____________________
Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Mon Nov 28th, 2005 10:25 |
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| 2bonnie here,the time draws near when my oldest sister is leaving,got me feeling a little down,she,ll be 2 hrs away,thats a thousand miles seems right now,I will only have her till the 9th.herxing is steady,to recap.....mino25/12hrs....beni40/6hrs.cold is begining to cause great pain in joints,but still no swellingI am afaid will be using the lactulose on constant bases as can't seem to get bowels to move through the scare tissue area from colostomy,surgury out of question period.nose drainage steady all day long,still no use for oxygen during day now,or use of inhalers,even fell asleep today without oxy,not intentional for about 5 hrs,but still understand that that could changeI'm just not letting my body know thatI have found the less my body knows of my dis-ease the more I am returning to old selfmy thighs are starting to rub together again so I suppose I am gaining weight againfood taste like it did before,yet still have a nose like a hound dog smelling anything foul at 5 miles away,wondering if this is also part of healing?my nose runs enough for iyt to be clean to smell I know that.Can't keep to stay warm tho keeping the thermo on 70f,so am bundled up constantly,joints aching,but more from weather I think,or inability to get warm,anyway GO SEE NEW HARRY POTTER...IT'S AWESOME,BEST ONE YET!!!!!!!!!!!!!!!!!!!!!!!!!!!GOING TO BED....2BONNIE
____________________
Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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