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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Jan 25th, 2006 10:50 |
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Dear Bonnie
Thank you for posting. I'm sorry for your grief. take care. I notice that you are entering your 6th month on MP, so it is getting close to the time to add a 2nd antibiotic. and you may wish to be making preparations, seeing your Dr for scripts and reading the details.
see Where can I find phase two and three?
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Fri Jan 27th, 2006 06:28 |
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I have to be honest,got to feelin so good am payin for it now,Hell half the time I ain't even usin that chair anymore,had to put some copper bracelets on to get grounded,get back on the perspective path,I'm out there acting a dang fool,lost wt.,bought new clothes,been shoppin to feel better  all the places I used to go are double takin,I'm 43,feel 21,actin 16,nowI just feel life is for livin,I was born a Ramblin Woman(allman bro's)and next fri.am doin a private political party,boy can't wait to see everyones faCES WHEN I come in the door and get up outa that diggity-dang chair,hanging out filled with love on a street called Haight on a warm san francisco night,death has followed me long enough,hasta la juego I say,June I was pikin out my buryin clothes,w/84 po2,now the po2 is 96,trevor,you are the God figure on my altar,you my love are the epitimy of higher conciousness,cuz I'm in heaven,and if anyone trys to pinch me to wake me up,woe be unto them,cuz I won't be fooled again(the who)I'm just everyday people(sly&the family stone)trying to stand(sly)Yeah I sent my voteto the green party today,they,we(I'm a green)are filing a complaint against big brother/and Bush's decision to allow now IRAN to have nuclear power,my grandson will be in that vietnam 10 years from now,People wake UP,HELLO Iran is a desert,what about SOLAR ENERGY or MAYBE the WIND,it constantly blows there,all of us that are being healed,are being healed to WAKE UP,LOOK UP,or we will be meeting the new boss,same as the old Boss.VOTE,get the commies outa office.thanx for lettin me vent many blessings upon this mp&pm,2bonnie outta here and almost onto phase 2honey child,crimson and clover over&over time woooooohooooooo,I've been told 6times now that I glow,must be the bright moonbeamsfor I surely am back,but not in Black,but rainbows..........later
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Dr Trevor Marshall
Foundation Staff
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Posted: Fri Jan 27th, 2006 06:48 |
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2Bonnie,
As me ol' mate Bon would say - now is the time to "Let there be Rock" (scroll to the bottom of the page for the video...)
"I think his antics 'preaching the sermon' in "Let there be Rock" from the AC/DC video best describe the Bon Scott I knew: an impish humor combined with a willingness to fearlessly challenge what he saw as even the most stuffy of society's institutions."
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Bonnie2
Member in Phase 2
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Posted: Fri Jan 27th, 2006 07:22 |
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trevor u r so................aaaahhhhhhhhhhhh,dirty deeds done dirt cheap was a favorite of mine,ours,we 7 girls in jr. high all wore blue jean jackets w/p.con the back for pantser chicks.whenever a new boy hit school one of us,well me,would knock on the door then I'd ask him to come 'round the house wit'me,yeah then the other six would do the dirty deed of takin his pants(and knickers )then run off laughing like heavenhahahahahhhahahaah,listenin to led zepplin -It's been a long time been a long timebeen along lonely lonely lonelylonely lonely time,yeah I personally am a stoner from way back(rolling stones)and right now I can't get no satisfaction,want it all, can you here me knockin(stones)in my younger years I got backstage in oakland cuz thats where mick&keith are every Halloween,got a special guest seal poster and e'rythang2bonnie out life is for livin,and I'm in a love the one your with kinda mood,trev.,u b the MAN!!!!!!!!!!!!!!!!!!!!!
tell the truth it will set u freeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
bon bon out,got stevie ray vaughn on and I'm gettin up,hey look at little sister,dancin in the back yard,what the neighbors gonna think,who cares!!!
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Fri Jan 27th, 2006 08:14 |
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well got a knew poem for jimbbb
Now that I know your secret
Ihave no more fear,tho'death was near
your pockets of darkness have no hold over me,I'm now free,I have no shame
thats why I'm the Shameless agitator,my guilt has allllllllll been released' yeah when livin you will all be finally deceaced
then It's my generationand in my new found dualitywithin me,yeah I'll surely be free,and dead is what your kind will be
so Bush if your in touch with god,and it's your friendyou claim to hear his voice,honey you better beg now a'fore you ain't got no choice
and a n*** for a pope,but mother theresa said there's with love hope
so i'm goin for what I know and honey thats for broke
this is dedicated to you,who CHOOSE to step forward couragesely into the unknown,making visible,the invisablenow sow the seeds needed sown
for I am one of the early onesweary of body,deep aching of soul,easy to recognize,I'm the one with a goal
What a secret sadness do we all carry,the profound well of sorry,wondering will I be here tommorrow?
Now the very fabric of our souls have been immersedin a treasureto deep to possibly measure
life is not our penance,this endless earthly span,now seeming short cuz hey we can
now we walk our final miles,upon this planet earth,better wake up,cuz its time for..............................................................REBIRTH
YOU ROCK MY WORLD EVRYONE<BUT IT'S TREVOR THAT ROCKS MY HEAVENS......2bonnie out beyond the beyond slip kid,slip kid I was a soldier at 13,yeah I'm off to the civil war,no easy way to be free
Last edited on Fri Jan 27th, 2006 08:23 by Bonnie2
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Sat Jan 28th, 2006 06:18 |
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well its me herxing,acting a fool again woke up good then danced all day,boy are the hips a'achin,knees,knees a'knockin,almost fell again,Ineed HELP,S.O.S,I don't wanna give up my music now that I can dance! I feel like I have these dance tickets all saved up,now I can shake that thang cuz I'm feelin better,someone tell me how to slow down!!!!!!!!!!!!!!!!!!!!! I don't have hypo-thyroid now but it sure feels like HYPER!!!!!!!!So PLEASE if anyone can tell me how to slow down please do am doin 20/beni/4hrs 25/mino/every other day Barb mentioned movin to phase 2,but I am still only tolerating mino every other day AND NOT 100mgs,so should I try going uP to 50 EVERY OTHER DAY?????
2bonnie out and sleepin
Last edited on Sat Jan 28th, 2006 06:29 by Bonnie2
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Sat Jan 28th, 2006 06:37 |
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Bonnie
to slow down the herx you can take the mino 25mg as frequently as every 6 hours if necessary..and you can take the Benicar 20mg as frequently as every 2 hours if necessary..
Phase 2 : you dont have to have the mino at 100mg to go to phase 2. where you are at is where you are at..
One thing at a time.. get this herx damped down and then we talk about phase 2 later..
have you had light exposure?
let us know if you have any questions. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Sat Jan 28th, 2006 07:22 |
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| yes had major light exposure,I am an american indian shaman and did a yubas burial ceremony about 4-5 days ago and must finish wednes-thurs,so am sittin in the dark,but still can move with music,it makes the pain go away cuz I get in a zoneespecially the classic rock 60's-70's,can't help it,I am 1/2 latin 1/4 indianand well the U.K rocks my soul.
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Sat Jan 28th, 2006 07:26 |
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Bonnie
see What precautions do I need to take when I am going out or when traveling away?
and Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar (using 40mg) whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
and some good information in PAIN CONTROL
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Sun Feb 5th, 2006 22:23 |
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high there
got asked to run for board of supervisors against the rep. that would make our co.demo,but at heart I'm a mean green machinetalked to dr.on mon,says he will look up 2O.K,so I'VE been checkin it outI am so excited,was asked to the country golf course to run against this guy and STEVE WESTLEY was there he is the guy who is givin ARNIE(gov.ca)run for his money,he is ourcontroller,so he has been askin Arnie where,why the money isn't goin to the kids,took a headstart teacher w/me,then was asked to run here,guess I was born to get the nails outta the hands,down off the cross,put the nails in the wood from the cross...............................build a bridgeAND GET OVER IT HAHAHAHAHAHAHAHAH LIFE,what is life if you ain't here to make it better,like ole GEORGE CARLIN SAYS,might as well shoot'em in the head and stop the cycle,will look nthrough tapes to get the particular concert,think it's ON CAMPUS TOUR,feelin...............mgical,powerful,NO FEAR.............TREVOR U B THE MN...ohoh ppppppppppppppppppppppppppppppp.ssssssssssssssss<look down
oh PPPPPP........SSSSSSSS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!oxygen was 1000000000000000000000000hhahahahahahahahahahahahahahahahahahahahhahah
2bonnie outoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxxoxoxoxohahahahahahhaah
P.SS am doin d tests will go back to dr. 2/22,now ya all 2bonnie turns 8 yrs old on th 25 this month(44-actually,had a 20 ytear old ask me out,almost went.......but the braces threw me off.........,he calls me ALL THE TIME,if u have had similiar circumstances HHHHHEEEELLLLPPPPPP!!!!!!!!,he is 6'9",and it's been along time since I've been uh......MOUNTAIN CLIMBING)life is the absolute......................................................m.p,p.m
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Mon Feb 13th, 2006 00:54 |
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hello high how ya doin,well I'm movin,the demo's picked me to run over another person(a man)yeah men know we get stuff done,thats their best qualityam tryin to do the 50mg/mino w/20-beni every 6 hrsevery other day,breathing got congested,but thanx to BARNEY'S lung exercises,am gettin lots phlegm upso hangin in the dark,wearin a moon stoneaaaaaaoooooooooooaaaaaaaaawwooooooohooooooooooooobut am gettin out at nighthey I heard that bein in your 40's in the U.S,was like bein in your 30's with the young men,I'm definetly finding out that going out at nightwhen you've been on a death bed,had to tell a family member "if every time u come to my house,u r gonna weep,then stay home and I haven't decided what color I want to be partied over,so "don't bring me down----on a warm san francisco night,cuz.....I'll be feelin love on a streeet caalllleeeddd hhhaaaiiigggghhhttt,It's My Life And I'll Do what IIIIIIIIIIIIII wwwwaaaaannntttt,and that ain't dyin just yet(The Animals)....let me know if tryin the up on the mino sounds good or........thanx 2bonnie
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Mon Feb 13th, 2006 07:53 |
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Bonnie
You may send the Questionnaire in when you are ready.. doing the Mod Phase 2 would still allow you your lifestyle.
take care. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Bonnie2
Member in Phase 2
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Posted: Thu Mar 2nd, 2006 07:21 |
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2bonnie here,well everyone I know I have been missing in action,but am doin actions so thats a definite gooooood thang.anyhoooooolivin the lifela roca,but am feelin so much better am stickin to the diet,meds ect.but have and are attracting men (boys actually-wantin to b men)ladies what do I do?6years is a very looooooonnnnng lonely lonely.................time yes it HAS.I feel invincible,found my wonder woman pez dispencer,been tryin not to dispencebut........doin mino25-12/beni40-6,slow steady,got tests done on 28th-feb. for d's,will know in wk or so,but my oxygen is holding steady at 100000000 Trevor u b the greenman,god the man,the light,the mysteries,the universe all in one AND a bag of chips my friend,yes you are alllllllllllll thaaaaaaaaaaat gggooooood buddddddddyyyyy.Will discuss more w/phase 2 w/ Dr. after HE looks into it,got him kinda astounded I think,actually hardly ever use the chair anymore,no oxy @ night(that my dears is it is a steady 100 ahhahaha)so I am doin whatever,whereever,whenever however.....get the point!!!??????It life is worth livin to you then just DO IT diggity dang dog it,put it in your head,MAKE IT HAPPEN,life grows regardless,it the resistence within that sheds no light,so light it up!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!2bonnie out(but never to b down again,believe that allllll the way to the bank. p.s how do u get rid of younger men?Not ALL of them just ahhhh some???????????????
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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Bonnie2
Member in Phase 2
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Posted: Thu Mar 2nd, 2006 09:55 |
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The Man whispered,"Goddess speak to me."
and a meadowlarksang,but the man did not hear.
SO,the Man YELLED,"Goddess Speak to Me!" And Thunder Rolled across the sky.
But the Man did not listen,the Man LOOKED around and said,"GODDESS let me see you!" And a star shone brightly,but the Man did not notice.and the Man said,"Goddess show me a MIRACLE" ANEW life was Born,but the Man did not know,so the Man Cried out in despair,TOUCH ME GODDESS and let me know that you are here-
Whereupon the GODDESS reached down and Touched the Man,BUT the Man........Brushed the Dragonfly away..........and moved on
*MORAL*
DON'T MISS OUT ON A BLESSING BECAUSE IT ISN'T PACKEDGED THE WAY YOU WANT OR EXPECT.2BONNIE
Dx:Sarcoid97/diabetic anxiety wtloss bad pain/ O2 2L sleep
beni40mgQ6H June05 /NoIR/avoid light&D/
avinza percoset quinine magnes ambien/ 1,25d-133.3/25-16.9/tested aug16/05 orig.#25-33.7/1,25-49.5/taken3/05/fibromayalgiacardiac herx
Nov07 2bonnie resuming MP below
Nov08 back, better replay
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Sarcoid97 diabetic anxiety wtloss bad pain| O2 2L sleep beni40mgQ6H June05| NoIR avoid light&D| avinza percoset quinine magnes ambien| 1,25d-133.3/25D-16.9/tested aug16/05 orig #25-33.7 1,25-49.5/ taken3/05/ fibromayalgia cardiac herx
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
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Posted: Tue May 15th, 2007 07:23 |
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Just to let everyone know. Bonnie has moved to Redding, further north in California and is currently trying to persuade a local doc into restarting the MP with her. She is attempting to get a free web based e-mail so she will be to log on to the site with her 2bonnie at the local library. ( She can't remember her verify code, and the old E-mail is defunct). In the time she was on the MP she was able to get off the oxygen and out of the wheelchair, but the past year has been hard on her health (off the MP due to her circumstances) and she is looking forward to getting back on track.
best, P.B.
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2bonnie2
Member
| Joined: | Thu Oct 11th, 2007 |
| Location: | California USA |
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Posted: Mon Nov 19th, 2007 08:06 |
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2bonnie's posts
hello 2bonnie here,
although it may seem that I am new as a member,i am not.my original handle is 2bonnie,now 2bonnie2.It feels good to b back.I had lost the dr. I had and was franticly looking for another.I am now living in redding,ca. and am most happy to report their is a very awesome pulminary dr.here who will b monitoring me.It has been very scary 4 me but I am now getting ready to make that committment to recovery.I was truly a wonder as how well I progressed before.the dr. treating me now was amazed to see results from my test before to now.before starting in 2005.I had done only 8 months of the protocol and it brought me from being on oxygen and 3rd stage sarcoid,wheelchair ridden to now walking about w/out assistance from wheelchair or oxygen,and in a remission.my xrays were faboIt is all so surreal to b able to breath,and xmas shop.my funtions are low,my d level is 66 but my hopes r high,its good to b back,keep your heads up,its allllllll good from here.I am asking also for any donations of old glasses ect. from any who no longer needs theres
happy holidays all,theirs so much to b thankfull for
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2bonnie2
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Nov 19th, 2007 08:12 |
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Good to have you back, 2bonnie.
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
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Posted: Mon Nov 19th, 2007 11:14 |
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Strong work finding your new doc!
Good luck, P.B.
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Foundation Staff
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Posted: Tue Nov 20th, 2007 22:19 |
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Hi Bonnie,
Welcome back. We're glad you posted. Before your next post, please add the required signature line. In your next message, please add the pertinent details required so we can better assist you. Thank you.
You will need to begin at the beginning so I'm posting you our basic info for new members.
Before you begin the MP, you must read and thoroughly understand the Phase One Guideline (print it out so you can refer to it often) and review the items on this checklist. The second and third phase guidelines are available to study participants upon request at completion of phase one.Your physician has access to all guidelines in the Private Section for Health Professionals.
Our study site is the only source that is certain to have reliable information about the MP. Do not assume that your doctor knows all about the MP because s/he has other patients on it or is willing to study it. You must educate yourself, using the study site, to ensure the MP is followed correctly. Please note:
-It is the patient's responsibility to see that the prescribing doctor is following the MP correctly.
-It is the patient's responsibility to see that the prescribing doctor understands the effectiveness of the MP and the dangers inherent in deviation from the guidelines.
-Combining other protocols with the MP will not work and can lead to dangerous immunopathology. Components of other protocols or alternative treatments such as (but not limited to) supplements, vitamins, glyconutrients, rife machine, infrared sauna, SAD light, chelation, etc are all contraindicated.
Many medications must be avoided on the MP. Be sure to inform study site Staff of all medications and supplements (both Rx and OTC) you are taking.
You said your "d level is 66" so I'm assuming that is the 1,25-D.
Because vitamin D is immunosuppressive, it's important that you assess your 25-D also.
You will need to avoid vitamin D supplements (multivitamins, any kind of fish oil, Omega-3 capsules) and all foods naturally high in vitamin D to bring 25-D down to a therapeutic level of 12ng/ml or less.
You may post a request for sunglasses in Used Sunglasses From Other Members. Ordering information is in Protecting Your Eyes.
Avoiding sunlight exposure is usually necessary to some degree. Before you begin to do that, please read Should I avoid sun exposure and vitamin D while I'm waiting to start the MP?
Your health care provider can communicate with other medical professionals using the MP by posting in the Private Section for Health Professionals. S/he will be interested in the Papers for Physicians, the Letter of introduction for your MP supportive doctor and the science DVDs. You may encourage him/her to call or email Dr. Marshall if needed (contact information is on all his professional papers).
Presentations by experts, tutorials about the MP and testimonials by recovering members were videotaped at our 2005 and 2006 International Conferences. Click here to obtain these informative DVDs.
Everything you need to know about the Marshall Protocol is in these two forums: Essential Info About the MP and Marshall Protocol FAQs. Please refer to them often.
Folks who chose not to become an active participant on the study site are not officially on the Marshall Protocol because it is still in the clinical study stage and there are no physicians yet certified in the practice of the MP.
MarshallProtocol.com is a huge study site, containing over 130,000 items. New visitors can only view a small fraction of the site because over 2/3 of our membership report in the Phases Two and Three Forum which is hidden from public view. Anyone in phase 2 or 3 who has not requested access to this forum by completing the MP questionnaire, is missing a wealth of information and support.
The Marshall Protocol is a serious and lengthy commitment which should not attempted without fully understanding it. Should you decide to pursue treatment with the MP and wish our assistance, let us know if you agree with the Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol which are required for participation in our study and counseling on this study site.
Your supervising doctor is responsible for your welfare. This study site acts in an advisory capacity only. All guidance given on this study site is based on the understanding your doctor supports participation in our clinical study and has given permission to follow our recommendations. Please keep your doctor informed of your progress with regular reports and do not hesitate to contact him/her with any concerns.
The MP has an excellent safety record but it is still an experimental treatment plan. Many folks who are very symptomatic or who have been ill for a long time are doing well on the MP. But you should know that if symptoms are extremely debilitating or vital organs are severely compromised, it may be very difficult or even impossible to tolerate the immunopathology involved in the healing process. Patients should be aware there is a rare possibility that immunopathology will provoke a serious adverse event, especially if the disease process is well advanced.
To ensure your safety and provide study data, we expect members (even those who think they are doing well independantly), to post a brief progress report weekly (more often only if not doing well) so Staff can catch any problems early and have details of past responses to provide effective assistance. It is important that you report all pertinent details, even those that might seem embarrassing. Be sure to notify staff before you take any action that is unfamiliar to you. Staff usually respond within a few hours but we ask members to give us more than a day to answer time sensitive questions.
In phase one, you will be expected to learn to recognize immunopathology and how to manage your immune system response with medication management techniques. Knowing how to manage the MP independently on a day-to-day basis will serve you well should an urgent situation occur.
As long as you are on the protocol, it is essential that you continue reading the study site regularly because important new information is frequently posted.
Because the increasing volume of requests for assistance is threatening to overwhelm our small staff of volunteers, before you post a question, we ask that you type key words into the search feature of this site or an Internet search engine. This is an important skill to learn so that you can continue to help yourself as you progress on the protocol.
Be sure to click on all the links in our responses to you.
We look forward to following your progress on the MP. 
Best, Meg
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Posted: Mon Feb 25th, 2008 06:44 |
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I hope everyone will respond to the following message from our survey team and participate in the survey/study.
Thanks,
…Belinda
“You have been selected to participate in a very important study on the response of "Autoimmune" conditions to treatment with the Marshall Protocol that we hope to have published in a peer reviewed journal this year. The data will also be extremely important to have for the ARF sponsored Vitamin D session at the International Conference on Autoimmunity in Portugal in September.
Joyce Waterhouse, PhD, is leading a team of volunteers who are analyzing the data. The team also includes myself, Paul Albert and Tom Perez. It is important that we have as high a response rate as possible, so everyone who has one of the selected Autoimmune conditions is needed. Your identity will be kept anonymous when the results are published or presented and will not be shared beyond those people on the research team who need to see it. You can read more about it here:
IMPORTANT - Survey Deadline Approaching - Dr. Marshall's Perspective. But if you don't have time to read all that, you don't need to.
If you have a previous version of the survey, don't answer that one, since we would rather have you obtain a newer version of the survey, in which a few refinements/corrections of wording and instructions have been made. Instead, email me and I will send you the new version. If you already returned the survey, let me know, since it might have been lost in transit or misfiled.
We have decided that for those people, who don't have the time/energy etc.., to read and fill out the survey right now, we will give them the opportunity to do it by phone. And if you only have very little time, we can keep it as short as a 10 minute conversation and cover just the most essential questions. Email me and we can arrange for me to call you (or if you'd rather call me, that is O.K. too). We need your responses by March 9th. Thanks very much for your cooperation.
Dr. Marshall says: "This survey/study is extremely important and I hope you will do your best to help with this."
So, please email me and we can arrange your written or phone survey. Even if you are not planning to participate, we would still much appreciate a brief email from you so we know if you are still on the MP and that you read this message.
Amy Proal
amy.proal@gmail.com”
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