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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Mon Nov 21st, 2005 20:44 |
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JT
Thank you for posting.. You may wish to send in for the Questionnaire if you havent already.. see How do I know if I'm ready for phase two?
Where can I find phase two and three?
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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JT
Member in Phase 3
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Posted: Fri Nov 25th, 2005 03:51 |
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Benicar 40mg Q6H; Minocycline 100 mg, dose 7
Took dose 7 of 100mg mino yesterday. Herxing continues much as it has in the past week, as described above...yesterday and today some symptoms listed previously are slightly worse, though not intolerable (yet): tinnitus was louder than usual, accompanied by pressure in my ears, which I experienced about a month ago. Also, I get very sleepy after my late morning Benicar dose, and my throat continues to feel very swollen and sore...voice is raspy, uncomfortable to talk sometimes. Brain fog gets severe at times.....my body feels very heavy and sluggish.
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/08
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JT
Member in Phase 3
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Posted: Sun Nov 27th, 2005 21:06 |
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Benicar 40mg Q6H; Minocycline 100 mg, dose 9
Herxing continues to be tolerable, with the following symptoms being most prominent: tinnitus, nasal congestion, sore throat, difficulty getting warm, fatigue/weakness, labored breathing, random itching.
I see my doctor a week from tomorrow, and he'll probably approve my moving to Phase 2. I have completed the questionnaire and am continuing to read and study the Phase 2 info.
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/08
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JT
Member in Phase 3
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Posted: Wed Nov 30th, 2005 18:00 |
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Benicar 40mg Q6H; Minocycline 100 mg, dose 10
Took dose 10 of mino 100 mg yesterday. Symptoms continue much as reported in the above two posts, with general fatigue being most prominent, to the extent that I spent the better part of the past two days in bed. It is tolerable (not to be confused, of course, with comfortable). Joints in the fingers of my left hand have been stiff at times, but usually just when I move them. There have been times, though, that I'll have my hand perfectly still, and I get this little mini-exposion of pain in one of the joints of my little finger....makes me laugh because it's just so bizarre.
I have also been amazingly mellow for the past few days. This is in stark contrast to the anxiety and anguish I experienced earlier in the protocol. I wish I could bottle it for future use, in case I need it (which I might in Phase 2).
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/08
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JT
Member in Phase 3
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Posted: Mon Dec 5th, 2005 20:53 |
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Benicar 40mg Q6H, Mino 100 mg Q48H
Conclusion of Phase 1 for me. Symptoms over the past few days continued to be much as described in recent posts above: general fatigue and weakness, overall achiness, mild head cold symptoms, etc....also continue to be very mellow and settled into the routine and requirements of the MP.
Saw my doctor this morning and will be moving to Phase 2 beginning tomorrow. I have completed the questionnaire and read posts at the top of Phase 2 as well as posts by members in Phase 2. Even though I don't yet feel any physical progress (i.e., durable relief from primary symptoms) at this point, I know that being able to move to Phase 2 constitutes progress on the MP, and I know I'll feel better as I progress through Phase 2. Problems in Phase 1 were minimal. I have no doubt that this will work. I will post in Phase 2 forum later in the week.
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/08
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JT
Member in Phase 3
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Posted: Thu Nov 12th, 2009 21:23 |
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MP meds: Benicar 40mg Q6H, Mino 100mg Q2D, two other abx, one at full dose, one at half dose
Palliative non-MP meds: none
Light Exposure: no restrictions, but sunglasses outdoors
Symptoms:
-fatigue 2
-brain fog 1
-lack of motivation to do certain things 2
-tinnitus 4
Comments: The last time I was on this abx combo about a year ago, I had a bad time with it. This time on the combo, I've been able to increase the doses of each of the abx up to current levels (weeks apart) with no adverse effect (so far).
I've been on the MP for almost four and a half years (and ill with CFS for at least 12 years before that), and I've finally been able to string together several months of consistently minimal symptoms. I've been able to exercise and travel with no adverse effects. I've also been able to read novels and technical material quickly and for long periods with good comprehension (which I previously did not experience). I was my doctor's first MP patient, and he now considers me his "poster boy" for the MP. I'm thinking realistically about going back to work and will embark on a job search after I have had a little more time on this combo.
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/08
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BARNEY
Moderator
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Posted: Fri Nov 13th, 2009 01:53 |
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Oh JT,
That is wonderful news..........keep up the good work.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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terrylmcc
Member in Phase 3
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Posted: Fri Nov 13th, 2009 01:58 |
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JT,
That is an awesome post, what an inspirational update for us all to see. Good to see someone who was once disabled actually going back to work. I don't think that happens in the real world of medicine often.
I wish more MP patients would post their success stories as they once did. It really gives us all a boost to see someone doing so well. Congratulations on your hard earned success. I know it was not easy, but what a Pay Day this is for you. I know the next year will bring even more good health and healing.
Best to you!! Your frined --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4.
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Vicki SA
Member in Phase 3
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Posted: Sat Nov 14th, 2009 00:28 |
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Hold on to your hat JT , it just keeps getting better and better as you keep improving and getting more of your life back!
Take some time out for you  and ease back into work slowly if you can.
Cheerio Vicki 
also hugely improved by MP (ME/CFS since 2000)
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 30mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
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