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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
| Posts: | 62 |
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Posted: Mon Oct 17th, 2005 08:55 |
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from Benicar La Vita e Bella .. and WEIGHT LOSS..
The beautiful live continues. For some time on Olmec (Benicar) with Mino 25 g and after initially experiencing some herxing especially with Olmec only and a little bit when starting Mino now things are going pretty smooth.
Some of my worst symptoms are getting better and it looks like I am getting some sort of normal life back again now.
I would say that it seems that I start to develop an exercise herx, in a way similar to all the herxes I had before being on the MP.
Does this sounds logical ? And how does it fit in the bigger theoretical picture of how Th1 illnesses work ?
Want to wait for the D and other analysis (25th Ocotber) and next visit to my doctor before increasing Mino.
Some detail about the way things are going.
Olmec (Benicar) only
As said earlier I started Olmec on the 21st of September and because I hadn’t implemented the Benicar stock policy properly I missed one day shortly after.
Both times after starting Olmec I experienced a herx, 2nd time a little more strong than the 1st. After the herx wained I would say I made a step forward. The good news about my herx is that although some symptoms like exhaustion and headache increase, the pain level of especially muscles is definitely lower or almost disappearing from the moment I started with Olmec. Muscle trembling is also less but not zero yet (arms very close to zero). Also a big plus is that recuperation of any activity how small, is like the good old days or at least much faster. I could even go out (completely covered !) cycling and not be wasted for the next couple of days. Not to say I could do some other things after the cycling !!!
To aleviate the herx a little, spreading the Olmec (eg 20 mg 15 minutes before and 20 mg 15 minutes after the ‘official’ time, but still at the 120 mg a day level, helped a great deal.
Mino Start
On the 3rd of October I started with Mino 25 mg every other day. I experienced a herx the first two times with Mino although less profound than the two on Olmec only and also more directly after taking the Mino, sort of instantaneous. Seems like I can clearly distinct between the Olmec herx and the mino herx. It also seems like herx is getting less after each mino dose. However planning to stay on the 25 mg for at least a couple of weeks more.
Herx on exercise
After not expertiencing any herx while on the mino for more than a week I went out cycling (ok buy the newspaper) again and it was also OK the second time. However now I have experience with herxing it becomes obvious to me that I start herxing on exercise ! This is not uncommon to me as I would say that ever since I have been ill since 1993 this took place with any kind of activity how small but I can put the pieces of the puzzle together now and give things a name. As said there is a difference because before I would call it an exhaustion herx now it is more like a sort of ‘normal’ tiredness herx after doing something or maybe my body is just recuperating ! It is also pretty obvious to me that my spline responds in the latter type of herx.
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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Meg Mangin R.N.
Research Team
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Posted: Mon Oct 17th, 2005 10:03 |
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Ushiaad,
Your increased symptoms after exercise could be related to two things-the increase in exposure to sunlight in which case it would properly be called a 'sun flare'. Or the activity could have increased the perfusion of minocycline to the tissues, improving its effectiveness and the increasing the Herx reaction.
Best,
Meg
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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
| Posts: | 62 |
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Posted: Mon Oct 17th, 2005 11:35 |
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Hi Meg,
thanks for the response ! I'll go out pretty well covered ....so i 'feel' more for the second explanation !
Any idea how my herx responses to activity/exercise preMP could be caused (also while staying indoors for long periods) ? Might give more of a clue how ME/CFS (or any Th1 illness for that matter) works.
And as said these last herxes (for me the killing of the CWD) feel a lot more comfortable than the ones before.
Interested to learn your views.
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 18787 |
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Posted: Mon Oct 17th, 2005 15:13 |
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UshiAad
Thank you... There is further information in the FAQs and Topics Are there any Guidelines on Exercise & the Marshall Protocol?
>> EXERCISE
Why is my 'herx' more intense after exposure to Light & / or Vitamin D ?
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
What precautions do I need to take when I am going out or when travelling away?
How does ketoconazole cream work?
Information on Light: THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS ON PERSONS WITH TH1 INFLAMMATORY DISEASE
Incident Radiation Tutorial All light- infrared, visible and ultraviolet
TESTIMONIALS to the Need for Avoiding Light
AVOIDING SUNLIGHT and BRIGHT LIGHTS How and why to protect skin and eyes while on the MP
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| Cut D/exp July04| NoIR Aug04 Comm Beni|Q| Sept05 off Thyroxine| CLICK ABCofMP
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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
| Posts: | 62 |
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Posted: Sat Oct 29th, 2005 18:04 |
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Progress continues ...my normal life is coming back !!!
Have increased mino to 50 mg with hardly noticing any herxing. Sofar the further i get the less herx ....
Not all analysis results yet i guess i forgot the real meaning of the word manana ....
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
| Posts: | 62 |
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Posted: Thu Dec 1st, 2005 18:04 |
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The beautiful live is so beautiful I went on a holiday, so no time to report my progress …..
At the moment I am up to 75 mg and expect to go to 100 mg next week. The increase to 75 and also to 50 did not give any noticeable herx reactions, contrary to the Olmec (Benicar) only and 25 mg Mino dose.
Symptoms are getting less, progress is going in the right direction and energy is coming back. Especially one of my worst symptoms, muscle vibration, is close to being absent while not pushing myself too much. After exercise it is still noticeable but at low levels.
Also absent are the relapses (which were much much worse than the herxing I experienced) after minimal exercise when it feels that your body just forgot how to handle exercise and you feel totally exhausted. I have to say I can do with out the relapses !
It seems I am getting my normal life back. I am already making plans to start doing some work …
Since a month I also have my NoIRs and am using them. Sofar have to say that I don’t notice any impact (as was the case with being outdoors before without NoIRs) but MP in general does such wonders that I will hapily wear them.
Also got my D analysis and a lot of other results back (will report them in the analysis section). Will visit my local Argentine doctor next week.
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
| Posts: | 62 |
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Posted: Mon Dec 12th, 2005 06:54 |
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| The only way is up ! Am on 100 mg Mino for a week now and also no herx wih this increase (only with start of Benicr and 25mg Mino). Energy increases and symptoms slowly get less. Visited my doctor and have his help, understanding and support.
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 18787 |
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Posted: Mon Dec 12th, 2005 13:57 |
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UshiAad
Here are the FAQs for when you are ready to begin preparation How do I know if I'm ready for phase two?
Where can I find phase two and three?
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| Cut D/exp July04| NoIR Aug04 Comm Beni|Q| Sept05 off Thyroxine| CLICK ABCofMP
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alayne
Member in Phase 2
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Posted: Mon Dec 12th, 2005 17:48 |
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Hi UshiAad,
It's great that you're feeling so much better! I noticed that you haven't been herxing much since the Benicar and 25mg Mino. I'm wondering if you ever experimented with extending your Mino doses to every 3 days or so. It seems that some people are herxing more on the 3rd or 4th day. > I'm eager to get well. How can I speed up my progress on the MP?
Just a thought! Good luck! Alayne
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ME/CFS/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x20+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds:Sleep:1-2mgLoraz or OTC q2d/MThistle/Calc&Mag/Lysine
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UshiAad
Member in Phase 3
| Joined: | Wed Jul 20th, 2005 |
| Location: | Ushuaia, Argentina |
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Posted: Fri May 9th, 2008 14:21 |
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Quite some time since last update, which actually is good news. Even did a succesfull ‘’test’’ sofar without medication for more than a month !
PALLIATIVE MEDS:
None
LIGHT EXPOSURE:
‘’Normal’’, sunglasses, bandana and long sleeve clothing. Light exposure hardly has been an issue with me while on the MP. Only a little when i was in phase 1. When I just had ME in 1993/4 , which was the worst period of all, light exposure was an issue.
SYMPTOMS:
Muscle pain rating 1 !, muscle twitching in upper body absent (1 only if i severely overdo things 2 to 3) and very limited in legs (2 to 3 and with overdoing 3 to 4). Muscle twitching in legs seems to be limited further to part under the knees mainly. Especially in the morning while waking up. Headache: 2 . Nothing intolerable
COMMENTS
As said 45 days without medication went smoothly, ie hardly noticeable. Only body weight increased a few kg (which is nothing uncommon have seen increase or decrease before while changing antibiotics cocktail). Yesterday BP was rather low (100/70 still without Benicar) which is a bit surprising as it typically is 120/80 over the last years while on Benicar and other meds.
I had a yellow fever vaccination and body response was nearly non-existent which is quite dfifferent from my last yellow fever vaccination 10 years ago ...
I went on a work trip for 3 weeks with daily work and evening program without problems !!
My energy level is quite good, can even do some sports, to which body responds but more and more in a normal way (exercise still is ‘the’ yardstick to see where I am on my path to recovery), response to alcohol (glass of wine; which has been off-limits for a decade) is another good yardstick and although it is not an on demand test my ‘últimate’ test is to see whether my body can get over a cold (get a fever for the first time in 15 years, sneezing is already nearly normal), it seems that my body is getting there.
PLAN
After about 45 days without medication will start again next week with Phase 3 antibiotics before winter really starts here. Although period without medication went very well i know/feel that i am not yet completely there, symptoms still present albeit at a low level while having good energy level.
previous: UshiAad: things are getting better!! La Vita e Bella - Life is Beautiful.
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Diagnosis ME 1993, D free diet and low light since 7/05, Benicar since 9/05; Benicar/Mino since 10/05; 25D 10/05: 6, 11/06: 17, 7/07: 29, 12/07: 25; 1,25D 10/05: 21 ?, Phase 2 since 12/05; Phase 3 since 6/06|
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