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RevDennis
Member in Phase 3
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Posted: Thu Jan 12th, 2006 03:34 |
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from Benicar Revdennis
Good Evening,
Day 11 Benicar 40mg q6h Day 1 Mino 25mg q48h
Previous reports at http://www.marshallprotocol.com/forum19/5216.html
I added mino and midnight this morning. It has been a day.
I have had a lot of body pain but the biggest problem today has been that I feel washed out. I can hardly keep my eyes open and then there is the brain fog. This is my last post to this forum and I will repost this to the beni and mino forum. Eveything has been bearable, it just seems to have been a very long day.
One day closer to being well. 
RevDennis
Last edited on Thu Jan 12th, 2006 03:38 by RevDennis
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01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Thu Jan 12th, 2006 03:41 |
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RevDennis
welcome to Mino Forum.. if you need any extra help see the FAQ When and why should I vary my Benicar schedule?
see also PAIN CONTROL
and we are happy to assist at any time.. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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RevDennis
Member in Phase 3
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Posted: Fri Jan 13th, 2006 05:09 |
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Good Evening,
Day 12 Benicar 40mg q6h, Day 2 Mino 25mg q48h
Got up this morning with a stuffy nose. Also I had major night sweating last night. I havn't really had that problem since I was on Prednisone. I have been pretty achey today but not too bad. The fog cleared from my brain and while I was tired, I was no where near as washed out like yesterday. I will go forward with my mino at midnight ... I mean right now.
Nothing else really to report. We will see what tomorrow holds. One day at a time until I'm free of the disease.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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RevDennis
Member in Phase 3
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Posted: Sat Jan 14th, 2006 05:05 |
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Good Evening,
Day 13 Benicar 40q6h Day 3 Mino 25q48h
I took my second dose of mino last night at midnight and then forgot to set my alarm clock. I woke up at 7:05 instead of 6:30 so I had to rush so I wasn't late to work. Fortunately, I only work til noon on Fridays. I was achey all over, especially in my back. My nose is back and forth between dry & stuffy and draining. This is a pain when your connected to oxygen. Also, I had a bit of coughing today and shortness of breath more often. I did not have the brain fog today like Monday. So far I am not having anything I can't handle.
Well, have a great weakend everyone.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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RevDennis
Member in Phase 3
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Posted: Sun Jan 15th, 2006 04:29 |
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Good Evening,
Day 14 Benicar 40q6h Day 4 Mino 25q48h
Woke up this morning with a lot of body pain. The pain is more in my muscles than joints in my legs, back shoulders and neck. My gums were hurting also. The pain let up after about 2 hours and left me with a headache that was just in the background. Then this evening the pain came back. It is mainly in my shoulders and back tonight. Also, starting about 7 PM I can barely keep my eyes open. This is odd for me because I am more of a night person and don't go to bed till after midnight. It will be time for me to take another mino tonight at midnight so that will probably cause the pain to drop. Tomorrow is Sunday so I need to be in good shape but I may let this coming dose go 72 hours to see what happens. Especially since I am herxing tonight 48 hrs after my last dose. The more of these bugs I can kill the better right? Oh yes, I took my Blood preasure for the first time since being on MP. Since my first dose of prednisone back in 2000 my blood preasure went up and stayed. Last time at the dr's it was 143/102. Today ir was 118/78 with a pulse of 91. Just thought I would share that good news.
Well, onward and upward!
RevDennis
Last edited on Sun Jan 15th, 2006 05:04 by RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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RevDennis
Member in Phase 3
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Posted: Mon Jan 16th, 2006 04:43 |
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Good Evening,
Day 15 - Benicar 40q6h Day 5 - mino 25q48h Dose 3
Last night my herxes started getting intense. It was time for me to take my 3rd dose of mino so I did and they lightened up within about 30 minutes. I slept all night and was achey when I got up this morning with a slight headache on the right side. About 11 am the pain in my back started coming back and it felt like a clamp was put around my chest and started sqeezing. It hurt and made me short of breath. I took my binicar at noon and it eased up I layed down around 1:30 and took a nap. I got up at 4pm and was achey with a headache. I took my benicar again at 6 pm and again the pain eased up.It is building again in my back right now but my head is better. I have to leave at 3 am to take my oldest daughter to the airport so she can go back to college. I hope I will feel ok by then. Still, with the pains today, I still have not come close to what I went through on prednisone. I am glad those bugs are dieing.
Have a good eveing.
RevDennis
Last edited on Mon Jan 16th, 2006 04:44 by RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jan 16th, 2006 04:55 |
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RevDennis
Thanks for posting.. you are experiencing the effects of your meds and you will learn to use them by adjusting them as required to achieve tolerable herxing. esp for the times you need it most eg Sundays..
also Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
What precautions do I need to take when I am going out or when traveling away?
all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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RevDennis
Member in Phase 3
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Posted: Tue Jan 17th, 2006 04:44 |
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Good Evening,
Day 16 - Benicar 40q6h Day 6 - Mino 25q48h
I went to bed at 12:15 am last night and got up at 2:15 am in order to take my daughter to the airport to go back to college. There was little traffic on the freeway ( Houston word for Interstate highway) so I didn't have to deal with headlights. It was dark with my NOIRs on.  I got back by 4:45 am so it was befor sunrise. Went back to bed for a couple of hours, then I went to work. I amd still having all of the body aches and my gums and teeth are hurting. They are tolorable and seem to reach their height jst before I have a dose of Benicar to take so I just take them in 6 hr increments right now. Thats not too bad. I thought about waiting 72 hrs before taking my next mino but I think it is too early. I will wait until the herxes aren't as strong on the 48 hrs before I let it run out longer.
Well, Have a great eveing or day depending on where you are at in this world.
RevDennis
Last edited on Tue Jan 17th, 2006 04:45 by RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Jan 17th, 2006 05:03 |
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Thanks RevDennis
By going to the 3 day dosing, some can have a rest from herx, but for some, the herxing can go into intolerable..
notes on tolerable: Don't ever hesitate to make meds adjustments to keep all Herxing at a tolerable level for you. Dont 'push' the Herxing. Dr Marshall wrote: There is no point in pushing your body too hard, and you might do damage to it. You will not be slowing your healing by keeping Herxing tolerable. Tolerable Herxing is essential for Safety and Efficacy of the MP. <<
do take care, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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RevDennis
Member in Phase 3
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Posted: Wed Jan 18th, 2006 04:06 |
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Good Evening,
Day 17 - Benicar 40q6h Day 7 - Mino 25q48h Dose 4 of Mino
I took my mino at midnight this morning and went to bed. I woke up about 1:30 with my sinuses, face, gum and teeth all hurting. I slowly went back to sleep with it feeling a little better when I got up at 6:30. My leg muscles were a little tight and I was short winded even on my O2. I have not had much of an appitite today but I have eaten. This afternoon my feet and legs started feeling heavy, they did that when I was on prednisone. I am still having some problems being short winded. My stomach muscles are hurting tonight and so are the muscles in the middle of my back. I will be taking my normal benicar dose in an hour so I know that will help with these problems. On the bright side I am having herxes. So I am killing those bugs and the more bugs die the better I will feel down the road.
Have a good evening,
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Jan 18th, 2006 04:14 |
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RevDennis
The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D... << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you. As per my post above, please be careful not to push the Herxing.
see My breathing is worse. What should I do?
and Breathing Tips
My Herxheimer reaction is too strong. What should I do? .. Do not hesitate to use any of the meds adjustments.
Check these options one at a time to assess and adjust your own situation.
If these above measures do not work and you feel that you are in an emergency situation, do not hesitate to seek emergency assistance.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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RevDennis
Member in Phase 3
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Posted: Wed Jan 18th, 2006 04:34 |
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Thanks Aussie Barb,
I am on O2 24/7 and at night I use a CPAP with O2 hooked up to it. With my O2 and at total rest my saturation is around 94% when I was at the drs a few weeks ago. If I move around, ie. walk, it drops to the low 80's or even 70's. I just take it slow and don't force it. My shortness of breath I mentioned was just a little more than normal with small amounts of movement. Fortunately I just sit behind a desk and work at a computer in an office by myself with no windows. For the most part now They bring all of the paperwork to me and I don't have to leave my desk. I do all of the bookkeeping and accounting. My problem probably will be knowing when a herx is too strong. I have a pretty high threshold for pain and my stubborness may be a drwaback for me. There, I admitted I might be stubborn sometimes.
Thanks for giving me the added info.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
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| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Jan 18th, 2006 04:41 |
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Thanks RevDennis
For those who have been ill for a long time and / or have had to bear hard disease symptoms, it can be difficult to define the line between tolerable / intolerable when it comes to herxing... and sitting at a desk can be a great masker of symptoms..... till you stand up.. this means that you dont have much leeway for safety with your breathing.
Phase One is the training ground for learning to manage herx, and learning to adjust the meds is all good experience.
see I'm eager to get well. How can I speed up my progress on the MP?
unfortunately there have been Members who have ended up sitting on the sidelines because of toughing it out, so do please take care.. It can be a good idea to ask Family Members or friends to keep an eye out for you in this situation.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Morris W. Milnes
Member
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Posted: Thu Jan 19th, 2006 04:27 |
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I want to encourage you to take care. I'm one of those Aussie Barb was referring to. I set goals for myself, where I would be with what dosage and I pushed hard to get there. I have a high pain tolerance too and since my lungs are the main things I am worried about I could easily ignore pain. In October of 05 I was exactly where I wanted to be. In the middle of October my Herx switched to my breathing and I was so far on antibiotics my herx was runaway and I refused to back off at first. I am now on Oxygen myself as of yesterday. I almost had gotton better to start modified phase 2 and got an infection that has taken me down hard. I am now taking disability and it gives me the oportunity to relax, stay home and try to recover and strictly follow the protocol.
I just want to suggest that when you feel a lot of pain in a herx reaction and think "I can handle more of this" think how well you can handle it if it transfers to breathing difficulty instead of pain. I am currently very frightened but keeping the faith.
Keep on Keeping on.
Morris
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Diag: Sarcoidosis by median stenoscopy 1986. VitD tests 25D=16/ 1,25D=37/ Avoid Vit D 11/04/ Benicar 4QD/ Started Mino QOD 4/6/05 7/06 1,25D=21, 6/07 25D <7 Mag Citrate 1 tsp daily. Calcium 1200mg daily, Vit C 250 mg daily,Synthroid.1mg daily.
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RevDennis
Member in Phase 3
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Posted: Thu Jan 19th, 2006 05:02 |
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Good Evening All,
Day 18 - Benicar 40q6h Day 8 - Mino 25q48h
Thanks Aussi Barb and Morris for the help. I had a very broken up night last night. I kept having strange dreams and mouth pain. My alarm went off at 6:30am as usual but I was so tired. I had my wife call and tell my work I would be late. I was going to sleep a couple of more hours. I woke up three hours later, turned over and woke up another hour later. My nose was all stopped up so I got up and sat by my bed in my bedroom, my cave, for at least another hour so I could wake up. My wife came in and so we just talked for a while. No tv or anything else. I decided not to go to work today and just rest. I did wake up finally and I have had very little body pain today. I have coughed a bit. I laid down and took a nap this afternoon. It has been kind of a lazy day. I did get my personal taxes done and submitted so I did achieve something today. Well I will be taking another mino dose before bed tonight so lets see what happens this time.
Have a good evening.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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RevDennis
Member in Phase 3
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Posted: Fri Jan 20th, 2006 03:43 |
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Good Evening,
Day 19 - Benicar 40q6h Day 5- Mino 25q48h Dose 5
I took my mino dose this morning at midnight. I woke up quite a bit because of a stuffy nose. With a CPAP mask on that problem wakes me up. I got up at my usual time this morning. Awake unlike yesterday and I went in to work. I have felt fairly well today with a little bit of a chesty cough. Tonight my back is hurting a little bit. It just started. We will see what tomorrow holds.
Good night.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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RevDennis
Member in Phase 3
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Posted: Sat Jan 21st, 2006 05:04 |
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Good Evening,
Day 20 - Benicar 40q6h Day 10 - Mino 25q48h
Opps - I made a mistake last night and put "day 5 on Mino and it was really day 9. Sorry.
My back started hurting more just before bed last night so I took my next Benicar dose, it was time for it, and that went away in just a short time. This morning when I got up, 6:30 am, my calves were tight and my feet were tingling. This is a similar thing I had with prednisone. The doctor blamed it on vitamine B deficiency but it may just have been the sarcoid running amuck in a body with no immune system. So now the bugs are getting killed. Good. It hasn't really hurt, just something I notice in the background when I walk. My stomach muscles hurt some too. I have had the chesty cough off and on today also. Nothing too bad but I will continue on the 48hr dosing for now to make sure I don't have any problems before I let it go to 72 hours. My inclination is to want to move to the next step, but I keep telling myself, patience. It took me a number of years to get where I am, I can wait a little before I am better. At least I now know I will be better.
Thanks to all that work and help at MP.cpm and the research center.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Sat Jan 21st, 2006 08:29 |
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Thanks RevDennis,
Not all are able to manage 72H dosing. and it is not necessary to do so.. if it suits, fine, if not, fine too..
Some find the 3 day dosing gives more herx.. dont let it go to intolerable, take your dose at a shorter time if necessary to hold your herx at tolerable.
and some find that the 3 day dosing gives them a free day to have a breather.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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RevDennis
Member in Phase 3
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Posted: Sun Jan 22nd, 2006 04:39 |
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Day 21 - Benicar 40q6h Day 11 - Mino 25q48h Dose 6
Good Evening All,
I slept in this morning with only getting up to take my Benicare dose. I was achey all day in the legs and body. Letting up after I took my Benicar for a little while then coming back. Not real strong but enough to slow me down when I move around. I had just a spot of memory problem today. I couldn't remember the day that it was and wether it was morning or evening. Some of that is because I can't see outside to know day or night, but it is a strange feeling of confussion.
Well, I'm off to bed in a little while. We will see what tomorrow holds.
RevDennis
____________________
01lung biopsy/lung, lymphnode, muscle & joint sarcoid; 2/24/7 @2 lpm,avoiding D & wearing NOIRS, Benicar 40q6h, 01/01/06, Mino 25mg q48h 1/11/06,mino 50mg q48h 1/28/06, mino 75mg q48h 2/14/06, mino 100mg q48h 2/27/06, Ph2, d-25=11, hemoglobin=16.9,11/22/7
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Foundation Staff.
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Posted: Sun Jan 22nd, 2006 05:39 |
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Rev Dennis,
It's not at all unusual to be disoriented as to time when you are Herxing if change your sleeping schedule. It helps to have something like your computer or caller ID nearby so you can quickly get oriented as to time and date. Of course if you live with someone and they don't mind helping you when you are disoriented, that is nice, too.
You may want to read about aids like timers and pill reminder alarms in Helpful Hints.
Belinda
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