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jcwat101
Research Professional
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Posted: Fri Apr 25th, 2008 04:51 |
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I was recently on a trip where I was outside or in a car for more than 5 hours each day for several days in a row. Based on what I have learned from recent experiences, I could not have done at all well if I had only used one coat of Kabana on my face and neck (see above post). By wearing my hat and NoIR sunglasses and my gloves a lot of the time and the 4 coats of Kabana on my face, neck and hands, I did fine, however. This may not be true for everyone, as some are a lot more sensitive. People who are sicker should be especially careful.
But anyway, just thought I'd let you all know that I am someone who at this time, with a single coat of zinc oxide or keto cream, could not even have made it for a half a day on this trip without paying heavily afterwards, but with this new strategy, I had a great trip.
I had to wear my hat and glasses all the time, though. I found out Kabana has a zinc oxide containing sunscreen that I will test. I doubt it would allow one to go hat free much, but might allow it for 30 minutes or so without a hat. I'll report in a few weeks when I have tested it. I know one day on my trip, I felt I really could have used a little break from the hat 
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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schesche
Member
| Joined: | Sat Oct 13th, 2007 |
| Location: | Graz, Austria |
| Posts: | 154 |
| Status: |
Offline
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Posted: Tue May 6th, 2008 22:34 |
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hi Joyce
thank you for your report on the sunscreen issue--
i think i will try the double dosing of zink oxide and will try to find a better product...maybe this will really help me get through some of the exposure
although i reall yspend 7 days a week in the house..but there are things i will need to do soon and i am struggliung to find a way to do them--
i just think it is sad to see that even after 4 years you are still so light sensitive,
it seems to me that more people with lyme cfs take longer than the sarc guys?
all the best chris
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CFS, Lyme/neuro,joint pain,brain fog, insomnia,rage 125D56, MP 10/07, Triazep, zolpid, bvi, NoIRs, low lux home, lite exp. r/t work, covered up, 25D16
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jcwat101
Research Professional
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Posted: Tue May 6th, 2008 22:56 |
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It is interesting that I went through a period between in which I was less sun sensitive and then the sensitivity reaction came back in a different, delayed form that was harder to detect at first --as I describe in the Addendum of the Sunscreen Overview (Updated Feb. 24, 2008). But I don't find my sun sensitivity limiting my activity if I use certain precautions as I have described with regard to sunscreen and hat, glasses, long sleeves etc...
I spent many years bedridden and disabled, so it isn't surprising it is taking a while for me (and I have taken a few breaks and gone somewhat slower too, than some people). We don't really have adequate data yet to say that it takes CFS longer than other diagnoses, so I don't really know if that is the case or just the perception some have.
I have posted a bit more about using more than one layer of sunscreen (April 30th post):
SUNSCREEN questions & suggestions - page 3
Joyce Waterhouse
Last edited on Tue May 6th, 2008 23:09 by jcwat101
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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