| Author | Post |
|---|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Tue Apr 18th, 2006 06:40 |
|
Beni Q6H; 50mg mino QOD
Today was my second dose of 50mg mino QOD (noon). I felt pretty bad all day today starting in the morning however I probably overdid the holiday weekend with sun exposure and food. Monday's are usually worse because the weekend is when I tend to fall off the "MP wagon". I was a pretty good girl mostly, but not as strict as usual because the circumstances make it so much harder. We had a lot of daytime driving. People's houses are too bright. Their food is more unhealthy and of course there is the problem of dessert. I went to a wedding Saturday that was two hours away and that didn't help, I'm sure.
Anyway, I'm in significant amount of joint pain but I'm not sure if it's the 50mg dosage or the rebound from the weekend. I'll see what happens over the next couple days. I'm locked up in my dark house again for a while with more control over my food. The Lodine is sort of helping. It seems to help for a few hours but then as it wears off it makes it worse. I'm going to skip it tonight and reserve it for the morning. I guarantee the bugs are gonna have a party overnight. The mornings are always horrendous.
I'll keep ya posted,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Tue Apr 18th, 2006 22:56 |
|
Benicar Q6H; 50mg mino QOD
Second day of second dose of 50mg QOD. I feel better than yesterday but it's still pretty bad (my joints). It's not intolerable so that's good. I haven't taken Lodine today so I suppose I should count that as success. I am doing laundry today and I am noticing the things I am not able to do anymore....at least for now. I hope I can get back the usefulness in my hands soon. My hands, knees, hips and shoulders all feel worse these days. The last couple nights before bed I've had bouts with major fatigue almost as if I'm going to have flu-like symptoms but it never really transpires. I am taking more pain medication now so maybe that's preventing the fevers and muscle aches. I have laid off the Lodine since I don't feel I absolutely NEED it and I am hoping it allows me to feel herx-like changes more accurately.
Keep ya posted,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
| Status: |
Offline
|
|
Posted: Wed Apr 19th, 2006 00:16 |
|
Thanks Christine
This FAQ explains Why is my 'herx' more intense after exposure to Light & / or Vitamin D?
other help:
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
What precautions do I need to take when I am going out or when traveling away?
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sat Apr 22nd, 2006 02:28 |
|
Benicar Q6H; 50mg Mino QOD
Hi guys,
I took my third dose of 50mg mino on Wednesday at noon. Wednesday was a pretty good day. I was able to attend an appointment without taking any Lodine or Darvocet. I would qualify it as an "above average" day. Yesterday started out fairly poorly so I took a Lodine to see what would happen. I felt really good once the Lodine set in and the second half of yesterday was a nice relief. I even felt fine when I went to bed, but this morning I was absolutely miserable. It may be the "Lodine rebound effect" that I usually get or perhaps it's herx or both. Today would qualify as a "significantly below average day". I have a lot of inflammation in my joints. I did go out for about three hours yesterday but I was very careful with covering up and wearing my dark NoIRs. I took my fourth dose of 50mg mino today at 1pm. As of 7pm I am still feeling pretty lousy. All joint pain and inflammation. I will take it easy the rest of today and hope for a better morning.
Do you think it's possible that my "Lodine rebound effect" could be extra herxes? The Lodine decreases the inflammation and I wonder if that helps my immune system and the mino work more effectively? Maybe wishful thinking? Does anyone else have the issue where an NSAID actually makes you feel WORSE after it wears off? Or does anyone have any explanation for it?
Talk to ya later,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
carol
Moderator
|
Posted: Sat Apr 22nd, 2006 19:46 |
|
Christina wrote: Do you think it's possible that my "Lodine rebound effect" could be extra herxes? The Lodine decreases the inflammation and I wonder if that helps my immune system and the mino work more effectively? Maybe wishful thinking?
Christina:
I have no idea if this is indeed what is happening, but it certainly seems possible, given what we know about what is going on in our bodies.
I want you to know that I read every one of your posts and will always comment if I think I have anything useful to share. This is a long, hard road but it is the only one that can lead to a cure.
Hang in there,
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Wed Apr 26th, 2006 06:32 |
|
Benicar Q4H; Mino 50mg QOD
Hi guys,
Took my sixth 50mg mino dose today at noon. I've been feeling pretty bad the last few days. Yesterday (Monday) morning was one of the worst so far. Sunday morning started out pretty normal but it got pretty bad as the day went on. I did take 50mg mino at noon so that might have been why. I also laid around a lot that day which seems to make me feel progressively worse. I think when I make myself get up and move around it keeps the RA in check somewhat. If I rest too much it seems to get worse.
I didn't really come back to normal from the last dose but I went ahead and took the next one today anyway. I hope tomorrow feels better. My diet hasn't been perfect the last few days either but I was starting to notice I wasn't as sensitive to food as I used to be. Maybe I still am to a degree. I'll be better with the diet and see if that helps. I am sooooo ready to feel better.
Talk to ya later,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Thu Apr 27th, 2006 21:43 |
|
Benicar Q6H; Mino 50mg QOD
Hi everyone,
Felt a little better last night and this morning. The inflammation didn't seem to be as bad and therefore the pain was lessened. I took my seventh dose of 50mg mino today at noon. I don't feel particularly good right now, but then my darvocet has worn off. I am not taking any painkiller or NSAID right now so that's good. I still feel better than I have over the last three or four days. It's all joint pain, nothing weird to report. I'll keep plugging along on the 50mg dosage until I feel better.
Later,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sat Apr 29th, 2006 19:36 |
|
Benicar Q6H; 50mg mino QOD
I feel surprisingly good today. Better than I have in a long time. It's a nice change of pace because the last week has been hell. I was due to take my next 50mg mino today at noon but I decided to skip it to see if my reprieve continues. I'm starting to see somewhat of a pattern that the day after I take the mino I feel the worst and the next morning before my mino dose I seem to feel better. I will see what happens today and tomorrow.
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
| Status: |
Offline
|
|
Posted: Sat Apr 29th, 2006 21:08 |
|
Thanks Christina,
It is good to see you are getting the feel of it, and have had some reprieve.. all good experience building for managing your MP.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sat Apr 29th, 2006 21:33 |
|
Benicar Q6H; 50mg mino QOD
Get this.....I received a call from my doctor today with results from my blood tests. He said my 25D was down to 12 (so that's good) but he said my 1,25D was 28. I was on Benicar for a month and a half when it was taken, and my original non-Benicar reading was also 28. I thought for sure it would be lower. I'm thinking that the first reading wasn't correct. Or is it possible that the Benicar isn't working for me?
Thanks, Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
| Status: |
Offline
|
|
Posted: Sat Apr 29th, 2006 21:36 |
|
Christina
Please do not worry. see the detailed Information in the FAQ
How often should I test D levels? What are the target numbers?
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sun Apr 30th, 2006 19:43 |
|
Benicar Q6H; 50mg mino QOD
I have a question. Yesterday was one of the best days I've had since starting the MP and it was a nice surprise. To prolong the feeling I decided to skip my noon dose of Mino to see if it is the mino that makes me feel bad (like it's supposed to). Unfortunately I am unable to confirm this because last night I started swelling up and hurting in my joints and this morning was back to the same ol' thing....very swollen and painful. So I suppose it's not the mino. HOWEVER one thing I did incorrectly yesterday was instead of taking my normal Benicar at 6pm, I took it at 8pm because I didn't have any with me (I know...my bad). I started feeling the inflammation and pain coming on at about 7:30pm. Do you think that the fact I missed my regular Q6H dose at 6pm and took it at 8pm could make THAT much of a difference in pain and inflammation? I got very little sun exposure if any yesterday and indoor lights were mostly avoided (but not completely). I mean it was a night and day difference in pain and inflammation.
What do you think?
Thank you for your help.
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
| Status: |
Offline
|
|
Posted: Sun Apr 30th, 2006 21:52 |
|
Thanks Christina
Experimenting and feeling the differences in adjusted and sometimes missed doses of your meds all helps to gain experience in identifying the effects of light and/ or the meds on your symptoms, and how to use and adjust your meds to achieve tolerable symptoms.
Dr Marshall says: "All of those symptoms are caused by the disease, not directly by Benicar or the other antibacterial drugs. .... Your organs will be weak, that is caused by the disease. Keep reading and you will be able to isolate the symptoms and understand them more fully as part of the recovery process, not anything you should be unduly concerned with."
Q: Do you think that the fact I missed my regular Q6H dose at 6pm and took it at 8pm could make THAT much of a difference in pain and inflammation?
Yes it is possible, but to test it for yourself, you may like to try extending the time again.
see the Information re What is a therapeutic probe?
and How does Benicar work? Why is it superior to other ARBs? Should I take it every six or eight hours?
What times should I take my Benicar? What if I forget a dose?
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Mon May 1st, 2006 20:23 |
|
Beni Q6H; 50mg mino QOD
I am herxing in my joints pretty effectively today. I took 50mg mino at noon yesterday (Sunday). I am being much more diligent about taking the Beni on time. I hope it makes a difference and I expect to know more about that tomorrow. I'll write back when I have more to report.
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
John McDonald
Foundation Director
|
Posted: Tue May 2nd, 2006 07:21 |
|
Christina,
Buy a pill timer. I would never remember to take my Benicar without mine. Radio shack has a timer with hours and minutes, and with a magnet on the back that you can stick to the fridge.
john
____________________
RA 125D38, MP 9/05 Ph2 12/05 Ph3 09/06, Oct07 2510, NoIRs lite exp r/t work covered up
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Wed May 3rd, 2006 06:32 |
|
Beni Q6H; 50mg mino QOD
I have been in bed for the last 30 hours or so with a 102.5 degree fever. At first I thought I was herxing but my kids were both sick with fevers as well so I think I just caught something. It's unusual for me to catch a virus...I almost always escape them but boy it's hitting hard. Also in the past when I would get sick I usually had a relief in arthritis symptoms but this time it started out as a horrible RA flare up. Maybe I am having a combination herx/sickness.
Does any kind of fever kill pathogens even if it's caused by a virus? Could my flu be helping my body kill some bugs?
When I have more energy I will write back.
Christina
PS. John, I did get a watch with a timer and that is working quite well. I was late with too many doses of Benicar and I think that was prohibiting it from working properly.
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sun May 7th, 2006 00:07 |
|
Benicar - Q6H; 50mg mino QOD
Yesterday and today have been pretty darn good days. I am not wonderful but I don't have any RA flaring, and really haven't had any since my fever. It seems like the last few days have been relatively consistent which is great. I took another 50mg mino dose today at noon. We'll see if it changes my symptoms. I've been much more diligent about the benicar taking it exactly on time. I think that is helping.
Hangin' in there,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sun May 7th, 2006 20:19 |
|
Benicar Q6H; 50mg mino QOD
This morning (my second day of QOD mino) I felt a little more pain than I have in a few days. It makes sense because I usually feel worse on the second day. Even though it is worse it still isn't bad. It seems like my "normal" is a little better.
Another thing I wanted to mention is that my joints that have been affected the longest (hands, wrists, knees) seem to be more sore. The joints that have been more recently affected (hips, shoulders) feel more normal. I thought that was an interesting observation. Another difference is that the inflammation hasn't been bad at all over the last couple weeks. The pain has definitely been there but it hasn't been accompanied by that puffy, swollen feeling. When my RA started back in the beginning, my predominant feeling was puffy and swollen and a little pain. Now it's the opposite....a lot of pain but not much inflammation. I think that's interesting and I'm not really sure what that means....if anything. I'm very ready for the day I can say I have neither pain or swelling. I really believe that day is coming.
Later,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Mon May 8th, 2006 19:44 |
|
Benicar Q6H; 50mg mino QOD
Well, it's back! Good OL RA! I am in much pain this morning which I was hoping wouldn't happen. Over the last four or five days the RA has been more consistent and manageable after my "flu" I had last week. I thought maybe that was a herx that finally got me over the hump and to the end of my 50mg dosage. But here I am again, flaring like crazy. I took my next dose of 50mg today at noon. I still have no pattern.
I have been on 50mg of mino waiting for it to "level off" for over a month. Is this too long to be on 50mg mino? If the flaring never ends, how do I know when to move up to 75mg? Am I being too impatient? I'm just scared I'm going to be on 50mg forever waiting for a pattern or waiting for consistency that is never going to come. How long is too long to wait?
Thanks,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
| Status: |
Offline
|
|
Posted: Mon May 8th, 2006 22:29 |
|
Christina
Your symptoms rising again after a month at the same dose level and a lull - may indicate that it is time to increase the dose..
You can take the 75mg as soon as you need to, to try.... and if it is too much you can take a mino 25mg or 50mg dose which will bring it back to that level again, but usually that is unnecesary.
see these 2 posts, one beneath the other.. for more information: Increasing Tip and symptoms
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Current time is 05:37 | Page:   1 2 3 4 5   |
|
