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DianeC
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Posted: Mon Feb 6th, 2006 07:37 |
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Day 27 Benicar 40mg q6h Day 9 Mino 25mg q48h Thanks again, Barb for the food links I will discontinue eating the dried apricots and will continue to eat the peanut butter.
Today was a mino day and about the same as yesterday with no additional herxing. I just feel that very deep muscle involvement in my shoulder and arm area. I am not experiencing the herxing that I thought I would be but then again I am wondering if the mycos are deep within the tissues and it is too early for the mino to have any tissue penetration?
Could the fact that I was on doxy for 3 years with herxing (it took me 4 months before I started to herx) affect the way the mino is working now in that I have alot of resistant bugs to kill? and they are hiding well
Wishing all Happy Herxing
DianeC
Last edited on Mon Feb 6th, 2006 07:43 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Mon Feb 6th, 2006 09:44 |
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Diane
The herxing in MP is often not as difficult as some imagine or have gone thru before in other treatments, and of course will vary between individuals. re some of the factors that may influence..
see
CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL
says in part
There is definitely a variation in the effectiveness of various antibiotics in patients. The factors seem to be:
1. Patient's prior exposure to the antibiotics
2. Strength (or weakness) of the patient's own immune system
3. Species of bacteria present
4. Concomitant health problems - eg kidney failure
5. Concomitant infections - eg fungal, viral
6. Medications being taken by the patient
Phase one is the training ground for gaining experience.. reading other progress reports is helpful also.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Tue Feb 7th, 2006 08:06 |
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Day 28 Benicar 40mg q6h Mino 25mg q48h
Hi Barb,
Thanks again for the info and links The factors you have listed do make alot of sense in that there can be so many variables and I imagine no 2 people are exactly alike in what they experience.
Today I started to feel a little worse Could have stayed in bed all day long but had to get a few things accomplished. Woke at 12:30 PM and took a 3 hour nap at 5 PM
Also more lightheaded mostly when having to bend down to pick something up or from a seated position if the phone rings.
For many years I have not had any underarm odor and now I do so I think my sweat glands are starting to work Your post about the burnt rubber was interesting.
Minor symptoms from the start that are still with me are:
metallic taste in mouth upon rising in AM
scalp and hair had initially thinned some and scalp and hair is sore to the touch
still have the sniffles every day as if trying to get a cold but never happens
raynauds circulation issues are present fingers and sometimes feet
requiring alot of sleep now
(no cramps, icy feet, muscle or hip symptoms today)
I wear the Noirs continually and now the computer screen, tv etc. seem as bright to me as they did before I began the MP Once in a while I will tip the glasses to get an idea of the brightness without them and it is a blinding light
I feel that I am progressing along slowly but that is fine......slow and steady does it
Take care and stay the course!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu Feb 9th, 2006 05:07 |
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Day 30 Benicar 40mg q6h Mino 25mg q48h Had computer problem last night so I was not able to post message.
Stayed up doing paperwork bright eyed until 5AM and slept until 9:30AM, read for 2 hours and back to bed until 4PM
Sleeping so soundly that I never heard the phone right next to the bed.
Symptoms today are basically the same as my last message. Herxing is very mild at this point. Tomorrow I will be going outside so will be sure to apply the K-cream.
Tomorrow is a mino day and I will increase the Beni to every 4 hours. As far as the mino, I have been splitting the capsule and thowing the other half away as it is much easier to do.
Wishing all of you happy and effective herxing!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Mon Feb 13th, 2006 00:28 |
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Hello Barb,
I had lost some of the links to this website as a friend suggested that I delete all internet files and cookies so had a little trouble getting back on.
The reason I am writing is that I am feeling very lightheaded. Every time I stand from the chair I feel very faint and don't want to be far from the chair. I slept all last night and was up briefly today and then slept all day.
I was outdoors this weekend but protected myself fully even in the evening with K-cream as I was exposed to flourescent lighting. I am due to take a Benicar but not sure if I should? Should I only take the Benicar every 8 hours? Will this lightheadedness go away on its own? The light does have a very profound effect on me; even just a little bit.
I am on schedule with both meds.
Thank you!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Mon Feb 13th, 2006 00:37 |
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Diane
To get to your own post each time you log in... go to the my account button up the top. and the link will be there..
see the FAQs
Why am I dizzy and/or fainting? is it a Herx symptom?
Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself. make sure you are adequately hydrated. and do check with your Dr if necessary..
How does Benicar work? Why is it superior to other ARBs? Should I take it every six or eight hours?
When and why should I vary my Benicar schedule?
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
For those like yourself who are very sensitive to bright indoor light the same Benicar suggestion may be helpful.
Let us know if you have further questions. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Mon Feb 13th, 2006 01:12 |
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Thanks Barb!
This information was all very helpful and I have just taken 1/2 dose of Benicar. I will read and re-read it again later as my brain right now is not at its best comprehension I think I will go rest now and come back to the site later
I realize that this is all a good sign that my body is responding to the protocol! I am happy that it is working and that means that the pathogens are being killed! I am up for the fight!
Best to all!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Tue Feb 14th, 2006 08:01 |
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Day 34 Benicar 20mg q6h Mino 25mg q48h Reducing the dose of Benicar did lesson the lightheadedness. I will continue to stay on this schedule as long as there is no chance of losing the inflammatory blockade
Last night after sitting for awhile reading with my feet elevated, suddenly got the worst foot cramp I have ever experienced! If this had happened before MP I would be thinking I was going to die! That's how bad it was
I grabbed the heating pad and put it on high and wrapped my foot in it and just waited for it to subside. Just knowing that it would be over soon and that it was evidence of herx made it so much easier to tolerate
I believe I read somewhere on the site that the herx is the worst near the end of the 48 hours cycle as that is when the ABX decays and makes the bacteria more suseptible. I wasn't sure if that was only initially when starting the protocol or nearing the end of every 48 hour cycle?
I can't believe that now I am actually looking forward to the next one!! I did feel so much better today! Fortunately so far it has only happened at home and not out.
Still sleeping very soundly, that is, once I finally get to bed Still no more limping which I am very happy about
Happy and Tolerable Herxing wishes to all
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Tue Feb 14th, 2006 09:33 |
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Thanks Diane
you may have seen Why do we take minocycline only every other day? Why do I feel worse on the second day?
If you read the progress reports you will find that the herx is very individual to each person.. Phase one is the training ground... a time for gaining experience in the essential aspects and in adjusting your meds to herx tolerably etc.. see also
I'm eager to get well. How can I speed up my progress on the MP?
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Tue Feb 14th, 2006 11:42 |
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Thanks Barb!
I am having alot of trouble sleeping tonight I went to bed a couple of hours ago and rested but just could not get to sleep so decided to get up again. Could it be because I lowered the Benicar to 20m q6h??
My head felt like I could be going through some mild herxing (dull feeling but not quite a headache) neurological herx? So I just had a decaf with a little plain cocoa and half and half and some pita bread and I feel better but not sleepy enough to go back to bed.
I just clicked on the links you provided and read through them. How long does one stay on the 48 hr dosing of mino before considering switching to the 3 day dosing for more herxing?
Well I am going to try to go back to sleep; my head feel like it could be herxing or just lack of sleep
Thanks!
DianeC
Last edited on Tue Feb 14th, 2006 12:02 by DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Tue Feb 14th, 2006 14:02 |
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Diane
If you have an exacerbation of your symptoms while reducing the Benicar you may increase to 40mg Q8H or the recommended dosage of 40mg Q6H and see if you are better or worse.
Some who use the reduced Benicar dosing do use the 40mg at night for better sleep.
see FAQ When and why should I vary my Benicar schedule?
To avoid too many variables at one time, when you have established your Benicar symptoms and dosage, you may like to experiment with extending the mino. If the symptoms look like going past tolerable, that too is rectified by taking your mino dose.
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Tue Feb 14th, 2006 19:53 |
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Thanks Barb!
That all makes so much sense now! Yes, I will try that and most definitely take the Benicar 40mg at bedtime and will vary the mino to adjust the herx symptoms
I did finally get to sleep and slept very soundly until 2PM My head still has that dull headache feel. Does this mean that I am killing bugs or is it more due to the change in dosing or a combination of both? Just good to know if it means that bugs are being killed!
Best!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Tue Feb 14th, 2006 20:43 |
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Diane
Many who have been symptomatic can find it difficult to define herxing from previous symptomatic condition.
As long as you follow the essential aspects of the MP diligently and adjust your meds to tolerable herxing, you should be gaining experience. see HERXHEIMER REACTION.
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Wed Feb 15th, 2006 06:15 |
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Thanks Barb!
Day 35 Benicar 20mg & 40mg q6h and Mino 25 q48h Thanks Barb! Still taking the 20mg Benicar during the day and a 40mg before bed
Felt more fatigued today and will be ready to go to bed soon which is an improvement from the 3 and 4AM time
Started out today with that same dull not quite headache feeling. No other symptoms at present and herxing is tolerable
Best wishes to you and all!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu Feb 16th, 2006 07:15 |
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Day 36 Benicar 20mg daytime & 40mg nighttime q6h Mino q48h
Last night did get to sleep by 2AM...yeah! slept til 10:30AM then went back to bed at 12:30 and slept til 3:30PM
It takes me til mid afternoon to start to get energy and the desire to get things done.
Herxing is still mild. Still have the metallic taste every morning but not quite as bad.
I am wide awake now; wish I was sleepy but I will not force it
Looking forward to more herxing Best wishes to all!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Feb 17th, 2006 07:33 |
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Day 37 Benicar 20 mg daytime & 40mg nighttime q6h Mino 25mg q48h
Everything today is about the same. A little more lightheadedness when raising up from a seated position or from just bending down to pick something up.
Is it possible that most of the bacteria that I have have already gone through many alterations and are therefore not suseptible to mino or is the herxing that I am experiencing right on cue?
Could that explain why I am having a relatively easy time now but will pay later via horrible herxes with the additional ABX are added?
I am still sleeping very soundly and do require more sleep once I get to sleep that is.
I am also wondering if the lighting in my house is too much? No outside light gets in but we do have regular incandescent lighting with low watt bulbs. Occasionally, when preparing food in the kitchen we put the overhead flourescent light on but it is only briefly and I ususally leave the room and let Tom finish.
Should my skin be covered up in the house as well as when venturing out?
Just want to be sure that I am not missing something important
Thanks for all of your concern and support!!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Fri Feb 17th, 2006 08:11 |
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Diane
The self assesser Herx Checker:
Why isn't the Marshall Protocol working? what am I doing wrong?
If you are looking for more herx, you can try extending the schedule to 3 days,
I'm eager to get well. How can I speed up my progress on the MP?
or increase your mino dose to 50mg.
you may choose to try the Q6H 40mg Benicar dosing again either now or sometime later.. to see if it works better.. If it is better you may choose to stay at that dosing, and if you become more symptomatic, it is easy to revert to the reduced dose again..
A lux meter is a sure way to know about your lighting.
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
dimmer switches and / or lower wattage bulbs may be helpful. to achieve less than 30 lux.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sun Feb 19th, 2006 07:58 |
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Day 38 Benicar 40mg q6h Mino q72h
Was not able to post last night; we had a horrendous wind storm which took power over an extended area until this morning
Yesterday we ventured out for a birthday luncheon. I applied K-cream to my face, wore outdoor NOIRS and even had a scarf wrapped around my head (Tom drove)
Came home to find no power so we slept for many hours. Woke at intervals and then back to sleep. Consequently I was thrown for a loop. Today I woke to take care of the mail and then slept until 5PM Even then I did not want to get up
Tom has been watching me and he thinks I am herxing. I guess I was expecting more bip bam boom; more like what I had gone through in the pastwith so much chronic, debilitating pain that I did not know how I could go on type of pain This is a walk in the park in comparison although I do have to say that I am experiencing herx symptoms only they are not dramatic and are more even keeled.
Started the 3 day dosing of mino and starting back on the Beni 40mg q6h Still lightheaded but would rather deal with that and be more sure of herxing
An interesting observation: when we returned to the totally dark house, we lit a candle and had 2 flashlights on while walking around. I was afraid to wear the NOIRS for fear that I would trip on something.
Consequently, later as I lay down to sleep, when I closed my eyes I could see very bright light almost as if my brain remembered the candle and flashlight, even though it was not for a long period of time and I did not directly look into it
Barb, I checked the links you provided and am still concerned regarding the artificial indoor lighting I am going to look for a lux meter
In reference to Mike's post on Cautionary Tale regarding Noirs: From reading Mike's post and Trevor's reply I was not quite sure if I understood if it is advisable to wear the outdoor NOIRS indoors
I wear the indoor NOIRS at all times indoors to the point that I even forget they are on as the brightness of light now is like it was before I started MP without the glasses.
My computer screen is turned down but it still too bright Would it be okay to wear the outdoor NOIRS when on the computer for starters and see how that works out as far as more herxing??
I think with these few minor changes I will experience more herxing
Happy Herxing to all!!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sun Feb 19th, 2006 08:36 |
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Diane
Re Outdoor NoIRs indoors: Safety First always. ie. to make sure you can see what you are doing. There is usually no necessity to go to any great lengths to find herx. moderation and tolerable are the keys.
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sun Feb 19th, 2006 08:52 |
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Hi Barb,
Thanks for your prompt reply! When you say "Safety First Always" I just wanted to be sure that you were referring to the possibility of tripping because of the dark NOIRS and not the fact that the dark NOIRS indoors could be harmful in any other way?? to the eyes themselves, etc.
Of course, if I am using the dark NOIRS while on the computer, there will be no chance of tripping on things
If using both indoor and outdoor NOIRS indoors at different intervals, would that change the perception of light?
Are there any others on the MP that do use the dark NOIRS indoors?
Thanks again!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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