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Aussie Barb
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Posted: Sun Feb 19th, 2006 08:07 |
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Diane
Safety is about tripping, and whatever else. ie to make sure you can see what you are doing.
The sensitivity/ requirement usually fluctuates.
Some do wear the outdoor NoIRs on the computer as required..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sun Feb 19th, 2006 08:15 |
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Thanks again Barb! I understand completely now
Best!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Mon Feb 20th, 2006 06:09 |
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Day 39 Benicar 40mg q6h Mino 25mg q72h
I think this dosing amount and schedule is working
Went to bed at 5AM and slept for 11 hours straight waking once to take Benicar
Woke at 4PM had dinner and when I could no longer keep my head in an upright position, decided to go back to bed at 8PM and woke at 11PM for Benicar
I do believe that all of this sleeping is part of the herx. Also had that feeling in my head that is not quite what I would call a headache but more of the feeling that my brain is being compressed.
It is now just after 2AM and I do believe that I may be able to go to sleep again soon
I understand now how the Benicar works in 2 ways: to help the immune system detect the bacteria so that it can kill it and also to interrupt the cytokine cascade which causes all of the nasty inflammatory symptoms
In spite of some of the herx symptoms I have to say that overall I am feeling much better The limping and the pain I had been in for so long on my left side is non-existant now It will be a dream come true if I do not have to go for the hip replacement I was told I will need in a year or so
Best wishes and Happy Herxing to all
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Mon Feb 20th, 2006 14:29 |
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Hello all,
Wow, I am so excited! Since my last post, yes I did get right to bed. Rested well although not as soundly as the day before (I think I was all sleeped out!)
Woke this morning around 9AM! I HAVE A COLD!!! I have not had a cold in years!!! Started with stuffiness in my nose although the nose still has the runny feeling that I have been having for weeks now
Sneezing alot and I have the most awful taste in my mouth yuk! I am wondering if toxins are being excreted through the gums?? I may also be excreting toxins through my skin?? Not sure yet??
I am confident that the Benicar 40mg q6h dosing and the 72 hour mino schedule has kicked in and I am now reaping the rewards!!!
Other than the symptoms I have just mentioned, I feel great othewise!
I guess I will just be sure I have plenty of kleenex, green tea and get the vaporizer out
Thank you and best wishes to all! It is working!
DianeC
Last edited on Mon Feb 20th, 2006 14:29 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Mon Feb 20th, 2006 21:00 |
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Well I am not feeling so good now I slept most of the day and woke to the most awful stomach ache with cramps in the whole abdominal region
It's bordering on intolerable but just wondering if I should just take 20mg Benicar instead of the 40mg
Wednesday I have to venture out and will not be able to cover my face although I will be wearing the K-cream. I have something important going on where I would rather feel good and not displaying intolerable symptoms.
What steps should I take now to insure that? Should I take the mino today which would be 2 day dosing instead of waiting until tomorrow to take it and stay on the 20mg Beni until the symptoms are a little more tolerable for Wednesday?
Thanks a bunch!! I am just happy that things are moving in the right direction!
DianeC
Last edited on Mon Feb 20th, 2006 21:22 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Mon Feb 20th, 2006 21:38 |
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Diane
If you are wanting to dampen the herx or to feel better for any occasion, you use the meds adjustments that suit you best to achieve that.
ie. if the reduced Benicar dosing works best for you. that is what you use.
If taking the mino daily or at any more frequent schedule achieves tolerable / comfort for you, that is what you use. It is all good experience with the meds.
The NoIR glasses go some way to covering some of your face as well as your eyes.
If you are unable to cover your face when you go out, there may not be a dosing that will be enough to save you from increased symptoms. see the info:
Why is my 'herx' more intense after exposure to Light & / or Vitamin D?
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
What precautions do I need to take when I am going out or when traveling away?
How does ketoconazole cream work?
TESTIMONIALS to the Need for Avoiding Light Member's personal experiences
The effect of light on the brain (Amygdala)
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Mon Feb 20th, 2006 21:48 |
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Hi Barb.
Thanks once again for your quick reply
I think I will go back on the 20mg Beni until after Wednesday and start the 25mg mino once a day until after Wed. So I will take both meds now in preparation for that
It is great knowing that this is working and that adjusting the meds gives us the best of both worlds!
You are amazing and I appreciate you to no end!
Sincerely,
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Mon Feb 20th, 2006 22:18 |
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Hi Barb,
I do believe it was a herx as I took the meds (20mg Beni and 25mg mino) with a glass of water and a cup of hot green tea
It seemed to work almost immediately as the stomach cramps stopped as quick as they had started. I will surely stay on this schedule for a while
The Very Best Wishes to you!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu Feb 23rd, 2006 07:07 |
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Day 41 Benicar 40mg at night & 20mg during day q6h and Mino 25mg daily for the last couple of days.
Tuesday I had gastrointestinal symptoms (irritable bowel?) all day long It is a good thing that I was home all day.
Today I did not have a problem with it until earlier this evening. But now I feel very bloated and have more of the intestinal upset This is something new for me. I read something on this site about reducing Benicar......is that correct?
I am confused because it is recommended to increase Benicar to q4h when planning to go out but then I read about reducing the Benicar when gastrointestinal upset occurs?
My concern is that I am wondering if this is just temporary or could it be a permanent condition which will stay with me after I complete the protocol?
Does completing the MP and becoming cured equate with resolution of inflammatory symtoms or could a colitis or irritable bowel persist?
Today I was suppose to do the driving as Tom had an appt with the opthalmologist and had his eyes dilated. We had to travel a distance and I was not able to drive and worried about Tom driving
I was covered completely and had the K-cream on my face, a scarf wrapped around my head and on the way home also put a towel on my head. I am extremely sensitive to the outdoor light and do not think I will be able to drive at all I started to develop a headache so I can just imagine what it would have been like without having my head completely covered
What I have noticed with the outdoor NOIRS is that in the beginning when I wore them the outside environment looked very dark and now when I wear the dark NOIRS outdoors the environment looks like it did before I wore the glasses. What exactly does that mean? Will that change again as the disease issues are resolved?
Any advice as to how to eleviate the gastrointestinal upset or is it part of the herx that is suppose to be endured and then will end at some point?
At this point I am not sure how to proceed with the meds?
Thanks so much!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Thu Feb 23rd, 2006 07:28 |
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Diane
The Herxheimer reaction is proof of the effectiveness of the antibiotics against the bacteria that are driving your Th1 inflammation. This is to be expected and should not be interpreted as a side effect, adverse reaction or intolerance.
You dont have to endure intolerable herx. The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D...
some suggestions:
What kind of probiotics should I use?
and Do not hesitate to use any of the meds adjustments.
My Herxheimer reaction is too strong. What should I do? ..
Check these options one at a time to assess and adjust your own situation. << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
If you need temporary relief of your symptoms such as gastric upset or pain, contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms.
What degree of healing is possible using the Marshall Protocol? Dr Marshall says that we cannot imagine what 'cured' feels like.
The photosensitivity will fluctuate thru the treatment. Dr Marshall wrote in March 26th 2005:
I gave my NoIR glasses away over a year ago. Don't need or use NoIRs. I was wearing my clear glasses everywhere in Chicago, including out-of-doors. I do not wear gloves or any other especial protection when driving. In short, all my solar sensitivity, and light sensitivity, has disappeared.<<
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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sunflower
Guests visiting Phase 1/2/3
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Posted: Thu Feb 23rd, 2006 09:13 |
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diane says:
"What I have noticed with the outdoor NOIRS is that in the beginning when I wore them the outside environment looked very dark and now when I wear the dark NOIRS outdoors the environment looks like it did before I wore the glasses."
hey diane,
i received my new style (#35) noirs awhile back, and when wearing them outside i thought they had sent me the 10%'s instead of the 2%'s cause it seemed so light! i had to put my old ones on and compare, one after the other, to convince myself they were the 2%'s. i remember when i first started MP and put on the 2% noirs to go outdoors, i thought i would never get used to them cause they were sooo dark . funny how things change....sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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DianeC
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Posted: Thu Feb 23rd, 2006 23:26 |
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Hello sun!
Thank you so much for sharing the experience that you had with the change in intensity of the dark NOIRS as you progressed on the MP
It is great to know that what is happening is expected as evidence of what you have already experienced! How are you coming along? I see that you are in Phase 2 I must say that you have a beautiful smile!
It will be wonderful when the day comes when the photosensitivity fully disappears as further evidence of resolution of disease
I am interested in purchasing the new style of NOIRS but the only problem is that I need to wear reading glasses and from what I understand, they will not fit under the new style
It would be an added benefit if the resolution of disease would reverse the need for reading glasses altogether I believe that I read somewhere on this site where that was the case I believe it may have been Meg?
Do you need to wear reading glasses? My husband is fortunate in that he only needs glasses for distance and not reading.
The support of you and all on this site is just tremendous and really gives much reassurance to others especially those like myself who are relatively new that everything is going as is expected
In the beginning I was not sure if the MP was working but all of a sudden it just kicked in and the herxing has started and I couldn't be happier about that!
The very best wishes to you!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu Feb 23rd, 2006 23:49 |
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Day 42 Benicar 40mg at nighttime to help with sleep & 20mg daytime Mino 25mg will be starting back with pulsed dose
Hi Barb!
I was very happy to check out all the links on your last message and realize that yes, this was a herx symptom!
Very happy and reassured that this was in fact a herx symptom!
There were no intense irritable bowel symptoms today!
Still recovering from my outdoor experience yesterday to include the desire for more sleep Yes, the light does have a very profound effect on my brain
Ready for more herx so will start again soon with the 40mg Benicar and 25mg mino pulsed!
Sincerely,
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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sunflower
Guests visiting Phase 1/2/3
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Posted: Fri Feb 24th, 2006 06:48 |
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thanks diane,
i'm not actually in phase 2 yet, but am all set up (filled out questionnaire, access to phase 2 forum, etc.). i'm not quite ready to pull the trigger, as i'm still herxing enough for now on 100 mg mino.
as to your question about reading glasses: yes, i need them ( i'm 55 yrs old). it was so cumbersome trying to wear them under my 200 series noirs, that i opted for these stick-on reading lenses called optx 20/20. they just adhere to the noirs using water. they aren't perfect (they are a bit small) but they are a far cry better than trying to wear 2 pair of glasses at the same time. i just bought them at walgreen's for about $10, i think.
i'm glad you're getting in the swing of things, diane, and am confident you are gonna do great. we couldn't have better moderators, and the support of everyone is wonderful. God bless you...sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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DianeC
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Posted: Fri Feb 24th, 2006 14:04 |
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Hi sun,
I am so happy for you that you are so close to entering phase 2 You are just that much closer to wellness! I am also 55 years old born in Oct of 1950
Thank you for the information regarding the stick on reading lenses! I do wear my NOIRS over my reading glasses. They do fit well but I get a lot of stares
I go to auctions and I went to one recently. They had very bright flourescent lighting there so I never removed my NOIRS that were over my reading glasses
It was okay as long as I was viewing but when I was in the audience a few rows back would not dare to bid on anything I did not view first as everything was a blur and wouldn't know what I might end up taking home
Yes, I agree totally with you that the care and support of the moderators are like nothing I have ever experienced before!! I feel so confident for the first time in my life that I am truly going to get my health back
I would love to hear more about your journey throughout the MP!
The very best of wishes to you sun!!!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Feb 24th, 2006 15:20 |
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Late last evening after I posted my progress I started to get pain in the right pelvic region. It was tolerable at that point until I went to bed and by that time my hip had stiffened up so much that I felt immobile and found it hard to even get into bed
Upon waking it is still present. The pain is not as great as the immobile part of it. Then when I try to walk, that is when it hurts most I thought about taking a hot shower but don't even know if I can step into the shower
The pain has now even radiated to the middle back It also is not excruitiating but don't know if it will get worse before it gets better
For 3 days in a row I had taken the mino 25mg and then did not take any mino yesterday as I want to get back on the regular scheduling again. I am wondering if the 3 days worth of mino are all decaying now to zero and that is why I am herxing more now?
In other words, is it the cumulative dosing of mino that is now decaying and contributing to more of a herx?
I read that taking Benicar 40 mg every 4 hours helps. Is that correct?
Until this herx resolves I think I will sleep in the back saver chair which was my salvation for 2 years back in 2002-03 when I was also in so much foot and leg pain due to severe herxing
Best to all!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Fri Feb 24th, 2006 17:48 |
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Diane
The beauty of the MP is that we can work on the present moment.
If the Q4H Benicar isnt enough to hold the herx to tolerable,
it seems that taking the mino 25mg daily has been holding the herxing to tolerable for you, and you may continue with that shedule while it is doing so..
When you are symptomatic, you can begin to adjust the meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D to achieve and maintain tolerable Herxing (physically, mentally, and emotionally)...
Precautions and options are listed in this FAQ:
Do not hesitate to use any of the meds adjustments.
My Herxheimer reaction is too strong. What should I do? ..
Check these options one at a time to assess and adjust your own situation. << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
other list Tools to check:
If you are concerned do not hesitate to contact your Dr.
Let us know how you are going. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Fri Feb 24th, 2006 18:00 |
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Thanks again Barb!
I am currently taking the Benicar at 40mg q4h and if that does not make a difference then I will include the 25mg mino again on a daily basis until the herx subsides
Best to you!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Sat Feb 25th, 2006 07:02 |
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Day 43 Benicar 40mg q4h and will start back on mino 25mg q72h
I have been taking the Beni 40mg every 4 hours and the herxing is tolerable without having to add the mino I seem to have had some energy today
The pain and stiffness for the most part has left the right pelvic area and middle back and earlier this evening had migrated to the left side below the shoulder blade and around the left side
Just moving slightly and not even turning abrubtly would cause my left side to be in sudden wrenching or gripping pain But it only lasted a moment or so
All of this is tolerable probably because I know that it is a herx and will only be temporary
I find it amazing how the herx seems to start in one area and then move to another I can't imagine what it would feel like if it decided to herx in all of the places at once!
My plan is that I will be starting back on the 25mg mino tomorrow and continue the Beni 40mg q4h until most of the herx symptoms have subsided to a point where I will be ready for more herxing and then will go back to the Beni 40mg q6h
I am really starting to get a feel of how adjusting the meds affect the the herx symptoms Although I am also ready for anything unexpected as well
Thank you Barb and everyone for your support and dedication! I appreciate it!!!
Best Wishes
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Sun Feb 26th, 2006 08:13 |
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Day 44 Benicar 40mg q6h & mino 25mg q72h
Today I started back on the Beni 40mg every 6 hours as I am ready for more herxing and started back on mino 25 mg
It is so strange how my body has been herxing. To recap: It started in the right pelvic area, radiating to the middle back, then upward to just under the left shoulder blade and around the side with sudden wrenching pain.
Then today it moved further to the front (basically it has come full circle) But I also had pain and stiffness in the lower back trunk area. I could not get up from taking a nap on the couch so I had to roll off
Earlier this afternoon after I took the mino, I took a hot shower and it really seemed to loosen things up a bit but I think that after relaxing for a while on the couch just made my back stiffen up again.
My stomach is very bloated and I had a little pain in the left side but other than that I am ready and looking forward to more herxing
The best wishes for all!
DianeC
____________________
chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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