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DianeC
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Posted: Sat Mar 18th, 2006 04:52 |
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Day 59 Benicar q6h Mino 50mg q72h
Today was not a particularly good day........I lost alot of that great energy but not to the point where I feel lethargic
Stomach herx is still going on....no pain but just uncomfortable whether I eat or not. And still bloated. Could be partly because of lack of exercise which I am afraid to do at this time
I just feel like I want to go to bed but think that I may not sleep as it is so early as my bed time is usually anywhere from 3AM to 5AM .
The 72h mino really works great for me as it allows me to herx on the 2nd day. Is adding an additional day an option to even get more herxing or is that not advisable?? The reason I ask is that I could tolerate another day of this and then take the 50mg mino on the following day. Just curious??? Or is that counter-productive??
Chest area is still overheated and still herxing somewhat through the pores of my skin no pain.....just uncomfortable.
Best wishes and Happy Herxing to all!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sat Mar 18th, 2006 06:15 |
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Diane
You may wish to check out the FAQ I'm eager to get well. How can I speed up my progress on the MP? and decide what suits you best..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sat Mar 18th, 2006 06:27 |
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Thanks Barb as always I will check it out!
Best!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Alayne
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Posted: Sat Mar 18th, 2006 06:46 |
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Diane, in case this helps, I've been on a 72 hr mino schedule pretty much since the beginning. I actually tend to herx on all 3 days. It makes sense to keep to the 3 day dosing, as I'm killing bacteria the entire time. Plus, I feel I might miss some bacteria if I go back to 2 day dosing, because different bacteria are targeted at different mino levels in the blood.
Granted, I've not gotten to Phase II in 3 months, but I've been solidly herxing the entire way. Also, I am only too happy to eradicate as many bugs as possible before adding another abx!
Happy herxing! Alayne
P.S. Plus, every once in a while I get a bit of a reprieve on the 3rd day, which is always very welcome!
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CFS/ME/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, 10/09-No ABX, NonMP Meds: Calc&Mag/Lysine
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DianeC
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Posted: Sat Mar 18th, 2006 07:17 |
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Hello Alayne,
Thanks for your reply! Just so that I have it straight... say if you took 50mg of mino on March 12 as I did, are you saying that you would herx on the 12th, 13th and 14th and then take your next 50 mg mino on the 15th?
If you do miss some bacteria by going back to the 25mg, I am assuming that that means that bacteria will escape being killed because now the 25 mg will not be strong enough?
I think that I will probably be in phase 1 for at least 3 months as well. Do you include when you start taking Benicar as starting Phase 1? What happens to the bugs that do not get killed if you advance to quickly to the next phase?
Happy Herxing to you too!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Alayne
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Posted: Sat Mar 18th, 2006 20:27 |
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Diane, I may have misread your post. Were you asking about adding a 4th day to your schedule? In other words QO4? If so, IMO, QO4 is fine if you’re still herxing well on the 4th day. The whole point is to herx as much as possible on a single dose. If the herxing on the 4th day is very minimal or hardly noticeable, then QO3 would probably be best.
You’ll have to try it to see. I’ve gone 4-5 days when I’ve needed to herx less because I had something to do.
if you took 50mg of mino on March 12 as I did, are you saying that you would herx on the 12th, 13th and 14th and then take your next 50 mg mino on the 15th?
Exactly right!
I’m not sure what you mean by “miss some bacteria by going back to the 25mg.” When some folks herx too strongly, they drop back a dose or two to ease the situation, then ramp back up. Or they take 25mg Q6-24H to alleviate intolerable herxing. Plenty of people have had to reduce their doses at one time or other and have herxed again at those lower doses. Either way, I don’t think you have to worry about missing bacteria. You’ll be killing them for some time to come, in all sorts of combinations.
“Do you include when you start taking Benicar as starting Phase 1?"
Yes, although I separate the Benicar and Mino start dates on my progress report. I feel I started the Full MP with Mino, but that's just a personal preference. Others do it differently.
“What happens to the bugs that do not get killed if you advance to quickly to the next phase?”
From what I understand, they die off either way, but the herxing could quite possibly turn intolerable with too much die-off. That's why "Slow and Steady" gets repeated ALL the time here!
No need to worry though. The wonderful moderators will keep you in line, as long as you keep present here by posting and asking questions, AND following their advice!
Hope this makes some sense! -Alayne
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CFS/ME/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, 10/09-No ABX, NonMP Meds: Calc&Mag/Lysine
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Aussie Barb
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Posted: Sat Mar 18th, 2006 20:37 |
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Diane and Alayne
this FAQ has further information If antibiotics are effective at very low doses, why do we ramp up the dose?
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Alayne
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Posted: Sat Mar 18th, 2006 21:14 |
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| As always, Barb has the perfect link to information! No matter that I've read this particular link, plus so many others, many times over, I can never read them too often. My sieve-like brain requires a great deal of repetition just to hold onto some of the basics! Many thanks!
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CFS/ME/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, 10/09-No ABX, NonMP Meds: Calc&Mag/Lysine
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DianeC
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Posted: Sun Mar 19th, 2006 01:50 |
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Hi Alayne,
Yes, I was asking about adding a 4th day but I wanted to verify that you were doing it the same way that I currently am doing it by giving the dates as an example.
Today I am feeling better than yesterday although this morning I had 2 killer cramps in my feet again though not as bad as before as those lasted several minutes.
My herxing had let up this afternoon so decided to take the 50mg mino. So the schedule that you are on works great for me too You are lucky to be herxing all three days and doing a much better bug killing
I seem to be herxing alot through the pores of my skin and that includes extreme temperature changes. Either hot or cold When I went through peri and menopause I attributed it all to hot flashes but now I am thinking it was the mycoplasma activity producing the intense heat
That is a great suggestion you made of extending the time a day or so if there is something you need to do That is the beauty of the MP.....all at our own pace by adjustment of meds And that slow and steady wins the race!
Thank you so much for all of your kind thoughts and suggestions! Everyone here on this site is so generous and giving of their time and I appreciate it!
Best wishes and Happy Herxing to you!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Sun Mar 19th, 2006 04:04 |
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Hi Barb,
Thanks for sending this link! I have a question regarding the following statement in that link; I am trying to understand it better
And to complicate things, only some antibiotics are capable of killing pathogens without converting some of the survivors to CWD form. That's why antibiotic therapies have failed in the past. They have been taken at high doses for long periods of time, and in so doing, they've just suppressed immune function for long periods of time, and/or created CWD forms to develop.
Pertaining to the paragraph above: Does taking Doxycycline at 100mg or 200 mg per day fall into that category? And if taken for 3 consecutive years daily as an anti-inflammatory rather than anti-bacterial, is it likely that that particular abx is capable of converting the survivors to CWD form or not because it falls in the category of being in the tetracycline class of abx?
The other part of the question is: If there was significant herxing going on via extreme chronic pain during that whole 3 year period, what exactly is happening? It appears that something is being killed or is it the inflammation that is causing the extreme pain??
Thanks again for always being there! You are a treasure
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sun Mar 19th, 2006 05:13 |
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Diane
see further Information here
CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL
Can I use Doxycycline instead of Minocycline?
Why isn't Ceftin or amoxicillin included in the Marshall Protocol?
Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sun Mar 19th, 2006 06:05 |
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Thanks Barb!
There is quite a bit to read! I read as much as I could now but I am getting very tired and when I get this tired I do not comprehend well so will finish it tomorrow
It is all so interesting! Like a good book you do not want to put down!!
Good night for now.......best to you always!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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sunflower
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Posted: Sun Mar 19th, 2006 06:40 |
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DianeC wrote:
I seem to be herxing alot through the pores of my skin and that includes extreme temperature changes. Either hot or cold When I went through peri and menopause I attributed it all to hot flashes but now I am thinking it was the mycoplasma activity producing the intense heat
hi diane,
i have such a problem, also, with temperature regulation.female hormones may have something to do with it (i went through menopause couple yrs ago), but it's mainly the disease we have. i have never been able to tolerate heat, as long as i can remember; it just wipes me out. even with winter temps, one minute i'll be cold and cover up for awhile, and then i'll feel like i'm suffocating and way too hot! that's why i'm dreading summer so much on the MP, cause wearing dark heavy clothing or layers will do me in. like you, i'll just have to stay inside unless absolutely neccessary to go out--just wish it didn't stay light out til 10 pm! take care...sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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DianeC
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Posted: Sun Mar 19th, 2006 17:05 |
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Hi Sun,
I went through the menopause early (mid 1990's) so I know that this is due to the mycoplasma activityboo hoo
I always thought that I was weird because everyone around me would be wearing knits and heavier summer clothing and I would be searching high and low for the lightest of fabrics and couldn't always find them
I will be dreading going out this summer and doubt that I will go out at all during the day as the effect of the winter sun just about did me in fortunately my husband was with me so he could drive.
Fortunately I don't mind being indoors as I always have so much to do that it will make the time fly
Why is it though that we have such temperature changes from hot to cold? What causes the cold sensations?? What is most frustrating is when you are cold and hot at the same time if that makes any sense??
The only good that came out of this when I first started to feel the intense heat was that my raynauds seemed to have gone into remission. I have had raynauds (circulatory problem) most of my life
From trying to piece everything together I now believe that I have had this TH1 illness all of my life and am so happy that one day it will all be resolved I just can't even imagine at this point what that will feel like!
Take care Sun and stay COOL!!!!!
DianeC
Last edited on Sun Mar 19th, 2006 17:31 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Mar 24th, 2006 09:13 |
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Day 64 Benicar q6h Minocycline 50mg q72h
These last few days the bloating stomach seems to be the only herxing symptom other than a couple of foot cramps that started but ended just as soon as they started
I was really concerned about my stomach but today it has gone back down and I think it was the toxins that had accumulated and just held there for a couple days and swish.........it seemed to all just disappear
I am re-evaluating some of the foods in my diet and realize that the plain baking cocoa which I was putting in my decaf has a tendency to be acidic so I am discontinuing using that.
The insomnia and sleep patterns are still out of whack. So I just make the most of getting everything done from early evening and into the early morning hours when it is nice and quiet with no distractions
Looking forward to what tomorrow will bring
Best wishes and happy herxing to all!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Sun Mar 26th, 2006 08:21 |
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Day 65 Benicar q6h Mino 50mg q72h
Took the 50mg mino last night around 7PM Went to bed around 6AM at which time the lower part of the leg near the ankle and foot had a restless feeling so took a little longer to get to sleep and slept most of the day. Upon waking my hands were still asleep and I had to shake them to get feeling back into them.
Very tired most of the day but as evening approached started feeling much more energetic (I am now trying to catch up on laundry, dishes, etc)
Had some herxing a little earlier after eating something in the area between the pancreas and stomach on the left side and some minor herxing in my back but now much better.
I am trying to see if this is a pattern whereby after a few days of herxing the toxins from the bacteria collect in the stomach area causing the bloating until such time as it has worked its way from my system as then my stomach goes back down to a more normal size
Best to all and happy tolerable herxing!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Wed Mar 29th, 2006 05:54 |
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Day 68 Benicar q6h Minocycline 50mg q72h
Today I had to venture outdoors so covered up completely and use K-cream on face. I did NOT have to cover my face with the scarf and did not suffer neurologically & no headache or feeling of malaise as I did a couple of months ago
Early afternoon felt very energetic and decided to give the kitchen a good cleaning. A short time later I developed a strong cramp in the right foot.
Also pain on the left side which traveled to the back on the left side just above the waist. I have had this before but always after haveing eaten something so I truly believe that this was different and that there was some bug killing going on. It lasted a half hour or so.
Still sleeping alot but mostly never when I should be which is during normal sleeping hours. I am just going with the flow and not fighting it. But at the same time I am enjoying the peacefulness of the early morning hours as far as accomplishing different things
My new wraparound 10% Noirs are on their way! Can't Wait!
Best wishes with gentle herxing to all!!
DianeC
Last edited on Wed Mar 29th, 2006 05:55 by DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Wed Mar 29th, 2006 06:19 |
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Diane
Just a note that the energy burst and then later cramp etc may also be a light flare..
either way, take care, all best, Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Fri Mar 31st, 2006 09:08 |
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Thanks Barb!
Today I had to go out again and followed same procedure with covering up, k-cream, etc. and earlier this evening at 8PM I took my 50mg Minocycline.
About half an hour ago I started with that same pain on the left side in the area of the pancreas and it traveled once again to the back. Also stomach involvement. It was kind of a wrenching pain but not as bad or as long in duration as ones in the past.
Does that sound like herxing? I get it very frequently or could it be my pancreas releasing a hormone or something like that? It has not happened at all on the right side of my body.
I am really tolerating the outdoors much better when I do have to go out but as long as I am totally covered up. Did not even have to cover my face with the scarf.
I will not be spending much time at all this spring and summer outdoors and that is okay for I have plenty inside to keep me very busy
Best wishes to you as always!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Fri Mar 31st, 2006 09:21 |
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Thanks Diane
You are really the only one who will know for sure whether the herx has been exacerbated by the light exposure, and with time you will have gained the experience to know. The main thing is to avoid light as well as you possibly can. some info for all reading:
Why is my 'herx' more intense after exposure to Light & / or Vitamin D?
Dr Marshall says, "I used to make sure that I was never more than 4 hours from my last Benicar whenever I had to go outdoors. Then, after the exposure, I needed to keep the 4 hour going for 12 hours after the final exposure. Beyond that I could slip back to normal dosing, as the 1,25-D had dissipated .... << to help keep symptoms minimal..
What precautions do I need to take when I am going out or when traveling away?
all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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