 |
| Author | Post |
|---|
carol
Member Advocate
|
Posted: Sun Mar 20th, 2005 23:00 |
|
also a post re Disturbing Eye Problem
Dear Friends:
March 14, the Monday after the conference, I saw my MP doctor. I can report the following test results:
Editing now. My table formatting got totally screwed up.
July 04 Sept 04 Dec 04 March 05
(pre-MP)
1,25 D 65 31 64 37
25-D 32 35 34 27
I’m glad that my 25 D is starting to come down AT LAST, after more than seven months of diligent effort. I know that the 1,25 D bounces around during treatment. I guess the rest of the numbers (These got lost when my table got jumbled. I won't take the time to reenter them now.) just to serve to reinforce what I already know—that I’m herxing big time.
Any comments appreciated.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
| Status: |
Offline
|
|
Posted: Mon Mar 21st, 2005 00:48 |
|
Hi Carol,
GOOD for you! Do you notice anything in the way you're feeling from the reduced D? I know it's difficult to tell at times, due to herx, but I was just curious.
Did you make any dietary changes or just plodding along the same?
|
carol
Member Advocate
|
Posted: Mon Mar 21st, 2005 23:39 |
|
Hi Reenie:
The week before I had the blood drawn for this set of tests I had that unfortunate episode with the oysters, which I have reported on previously. Brief summary: I ate a significant quantity of oysters on two separate occasions several days apart and had hyper-D symptoms both times. I’ve never had an obvious response to high D foods before, or if I did, I was not aware of what was happening.
So what did I do to get the 25-D to finally head south? I just think it took a long time. I was taking gobs of vitamin D for two years. I stopped the supplementation and started watching my diet almost 8 months ago. Even now, the drop is not that dramatic.
I periodically read about people on the MP “fessing up” to continuing with supplements that they don’t think contain vitamin D or they don’t feel will hinder progress on the MP. I am not one of them. I was SO aggravated when I realized that during the two years that I took all that vitamin D (at the direction of my doc) I just got sicker and sicker that I stopped all OTC supplements cold turkey.
Best wishes,
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
carol
Member Advocate
|
Posted: Sat Apr 16th, 2005 04:01 |
|
Dear Friends:
As someone who had never had any problem with their eyes, I’ve recovered from the shock of the disturbing eye problem that I developed a couple of months ago. The “trachoma-like conjunctivitis” is largely resolved. I am very comfortable just using lubricating drops a couple of times a day. With my magnifying mirror I can look up under my left eyelid a little and see that the persistent “raw” spot is dramatically reduced in size. The few eyelashes on the inner corner of that eye that were rubbing against my cornea when this problem was at its worst (and that the doc removed) grew back and they looked like to me they could cause the same problem, so I plucked them out myself. This may be a residual issue that will need a minor surgical correction due to scarring. Then again, it may get better with more time.
I have been out west for the last few weeks. The longer days, higher elevations and clear skies have really made me aware of my sun sensitivity. Travel days are not so bad. RV travel is dramatically different from auto travel as long as one is not the driver. I can sit back from the front window with shades down and NoIRs on and stay protected. However, when I venture out on occasion to see the sights, usually at twilight, I have been astounded at how quickly and predictably I feel the effects of the sun. Even using all the tools at my disposal (proper clothing, NoIRs, and keto cream) I feel lightheaded within 20 minutes and then I get that familiar metallic taste in my mouth and develop significant fatigue a few hours later. The good news is that these effects are relatively short-lived.
These last two Phase 2 cycles have not produced the level of herx of the previous ones. The detox-type symptoms (dull headache, low back pain, etc) are mostly gone. Fatigue and emotional lability are my major challenges. Obvious RA joint inflammation is still improving, slowly but surely. My only really painful joints lately are the small joints of my hands.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sat Apr 16th, 2005 04:17 |
|
Hi Carol
Thank you as always for posting.. interesting re your eyes and all..
re "Even using all the tools at my disposal (proper clothing, NoIRs, and keto cream) I feel lightheaded within 20 minutes and then I get that familiar metallic taste in my mouth and develop significant fatigue a few hours later. "
You didn't mention Benicar as 1 of your tools.... I wondered if you also remembered that you could take your Benicar 40mg before the outing, Q4H during and for 12H after...
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
carol
Member Advocate
|
Posted: Sun Apr 17th, 2005 01:32 |
|
Barb:
I think the reason I have resisted increasing Benicar is that I have been successful in getting insurance coverage for the 4 tablets/day and was not sure the best way to get the additional tablets without calling the insurance coverage into question. I seem to recall some ideas on how to handle this somewhere on the site. Can you link me to this info?
Thanks for all you do.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sun Apr 17th, 2005 02:17 |
|
Carol
Thank you..
perhaps this.... HOW TO OBTAIN INSURANCE BENEFIT FOR FULL DOSE OF BENICAR Letter of medical necessity & Consent to Treatment form & letter to insurance company
let us know.. Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
carol
Member Advocate
|
Posted: Sun Apr 17th, 2005 03:47 |
|
Dear Friends:
Several folks have asked me via private message and email about the extent of my traveling while on the MP. I thought it might be worthwhile to share some of the how and why of this here with my progress reports.
My husband and I bought a very nice 40 foot recreational vehicle about a year ago with the idea that we would sell our home and most of its contents and live and travel full time in the RV for a few years. Just about this time, my RA started to worsen. I was worried about going ahead with our plans. Then I began the MP and started herxing big time. While I now had renewed hope that I could conquer this disease, things were going from bad to worse with respect to how I was feeling. After talking it over with Hubby, we agreed that we were both committed to me doing the MP and would do whatever it took to combine our new lifestyle with the requirements of the protocol.
On the positive side, the RV is very well equipped. and with satellite TV, cell phone and wireless internet access I don’t feel too isolated. I spend a lot of time in the queen size bed with the 1000 thread count sheets that I splurged on. It’s hard to be in beautiful places and not be able to get out and enjoy them, but doing the MP means giving up lots of things for all of us.
Travel days are tiring but doable only because I can sit in back away from the big front window--very different from a car. We’ve just arrived at a spectacular national park where we are volunteering as campground hosts (really, that’s “host” singular since my husband is doing all the work). This means we’ll be staying in one place for the next three months. The sunsets and the night sky are beautiful. The air smells great. I hope that before we leave here the worst of the herxing will be behind me and I’ll be able to venture out on some of the more accessible trails.
Happy Trails to All,
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
Offline
|
|
Posted: Sat Jan 14th, 2006 03:24 |
|
Q: is it conceivable that the massage has released Vit D from either fat of muscle tissue into the blood stream, causing the elevated 25D reading ?
Carol Reply: I don't know if massage would release vitamin D from my tissues, but I DO know it makes me feel bad. Pre-MP, I routinely got massages with no problems. Then, after starting the MP, I had occasion for a massage therapist to VERY GENTLY massage my hands and forearms for about 15 minutes. I was there for some "energy work" (that's a whole 'nother story!). But anyway, after that I was in so much pain I could hardly use my hands for several days. It was terrible! I can only imagine what it would have been like if I had gotten a 2 hour massage as you did. Even now, when I treat myself to a manicure and pedicure I say "no thank you" to the hand and foot massage. <<
____________________
Carol: Rheumatoid arthritis dx '96, started MP 8/11/04 Initial D tests (7/11/04): 25-D 32; 1,25-D 65 Topical E1E2E3/P, Vicodin, Celebrex
Phase 2 started 12/6/04; It took a year to get my 25D down in the teens!
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
sue from Indy
Member in Phase 3
| Joined: | Tue Jun 21st, 2005 |
| Location: | Indiana USA |
| Posts: | 535 |
| Status: |
Offline
|
|
Posted: Tue Jan 17th, 2006 14:38 |
|
Carol,
That sounds like so much fun (RVing). Even having to stay indoors during the day,you have new and exciting places to go in the evening if you're up to it. Someday you will be able to ride "up front" with hubby.
You must be somewhere warm - congrats on that.
Keep MPing while you're RVing! Keeping on, Sue
____________________
Sarcoidosis/skin, lungs, joints, MPh1 7/05, Ph2 11/05, Mod Ph2 8/06, Ph312/06, NoIRs, 1.25D =8 Oct08
|
carol
Member Advocate
|
Posted: Fri Jun 9th, 2006 01:25 |
|
Dear Friends:
I started Phase 2 in December 04 and have not posted much in this forum since then. I decided to review my Phase 2 progress reports and put together a summary. It was helpful to me to think about my experiences in retrospect and perhaps it will be of interest to others.
Prior to the MP, I took frequent, high dose antibiotics for many years to treat RA. Perhaps I killed some bacteria along the way, but now I think the reduction in symptoms I experienced was largely due to the immunomodulating effect that minocycline can produce. This explains why stopping conventional AP therapy and starting the MP launched me into a dramatic downward spiral of symptoms, symptoms I had never had before and did not associate with RA. These symptoms included the following:
- Nausea, abdominal pain and rectal bleeding
- Episodes of low back pain, dark urine and feverishness
- One mouth sore, only one, but it was a doozy. My dentist was very concerned and really wanted a biopsy. I resisted long enough for it to clear, but it left a scar which I can still feel on the roof of my mouth.
- Vivid and disturbing dreams. I woke up crying on several occasions.
- Tinnitus
- Profuse sweating brought on by modest physical activity
- Anxiety
- Shortness of breath
- Paralyzing fatigue (I would lay down and literally not be able to move)
- Gagging/coughing that woke me at night
- Deep tissue itching, especially over my joints
- Escalating eye dryness and discomfort, eventually diagnosed as cicatricial (scarring) conjunctivitis and trichiasis (a condition in which the eyelashes turn down upon the eyeball and produce irritation)
Some of these symptoms lasted just a few weeks, others much longer. The most serious was the eye problem which persisted for many months and left me with eyelid deformity that required surgery to correct. All these symptoms have resolved now except for the fatigue and the tinnitus, but both of these are lessening in intensity.
My light sensitivity continued to escalate well into Phase 2. At its peak, 20 minutes in the car would result in dizziness, weakness and sweating. Now, in Phase 3, light sensitivity has dramatically lessened.
Since starting the MP, I have recovered from “hormone imbalances” brought about by the disease and complicated by supplementation. I stopped taking cortef and Armour Thyroid in Phase 1 and, very gradually, weaned from bio-identical hormone replacement therapy (estrogens, progesterone and testosterone) in Phase 2.
I have overcome the effects of “vitamin D poisoning”. I started the MP with a 25-D in the 30s and it took me a year to get this value down into the teens. My last three test results were 16 (Aug ’05), 19 (Oct ’05) and 12 (Apr ’06)
So how am I doing? At the end of phase 2, after 12 months, I took a few weeks to catch my breath. For the first time I was able to decrease pain medication because my joints hurt less and I could enjoy walking in the evenings and doing some gentle yoga. Phase 3 has plunged me back into the thick of things. None of the systemic symptoms have returned. My joints are the source of herxing these days.
I am 22 months into the MP, and a long way from “well”. This is a hard road. But my responses have been consistent with the MP model every step of the way and this has given me the will to persevere. I need to rid my body of this infection to regain my health and I am closer to achieving this objective today then when I started the MP.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
carol
Member Advocate
|
Posted: Tue Jun 13th, 2006 01:55 |
|
Dear Friends:
I worried that some would find my June 8 progress report troubling, but decided to post it anyway. A fellow MPer shared in private correspondence that it was disconcerting to know someone is still struggling so much after almost 2 years. Well, honesty is the best policy. I know too many who have stopped too soon because they though they should be seeing the light at the end of the tunnel before they did. It cannot be said often enough that this is a long journey and one that will likely take you some places you did not expect to go.
It gives me great pleasure to report that yesterday I awoke with a feeling of wellbeing that I had not experienced since WELL BEFORE starting the MP. I called my daughter and asked her if she had time to take a walk with me. Any walking I had done for so long was with grit and determination, not a genuine desire. With so much of the pain gone in my joints I could appreciate how weak my muscles are after all this time. We strolled the oceanfront park in Camden Maine and watched the water from the Megunticook River cascade over the rocks and into the harbor where the old schooners are docked. It was a picture perfect scene. I became quite emotional. For the first time, really, I was able to acknowledge to myself how disabled I have been during my treatment on the MP. Regaining my health would mean such a dramatic shift in how I live day to day. Most of the time, I don’t dare to think about it.
Today was not as good as yesterday, but pretty fair, just the same. Here’s to more good days for us all,
Carol
reported August 26th 2006:
Yes, getting well sneaks up on you. I have to remind myself that I am off nsaids for the first time in years, and I'm regularly doing things with my hands (lifting, opening jars, etc) that were not possible just a few weeks ago. I put my daily alottment of vicodin in my little medicine box each morning and lately there's one left over at bedtime which I just carry over to the next day....another good sign.
Add Sept06: I have been on the MP for RA for 2 years. I am now in Phase 3 and responding dramatically.
This treatment is serious medicine that requires total committment on the part of the patient.
October 06:
A few days ago we overnighted at a beautiful spot in the Mojave National Preserve. A dirt road took us to a small campground high above the desert floor. There were large Joshua trees all around. Once the sun set (glorious!) the air was sharply cold and the stars filled the sky. I still cannot comfortably walk the trails in a place like that, but a year ago my physical and mental states were such that I would not have been able to enjoy being there. Everything was such an ordeal.
I believe those days are behind me.
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
sunflower
Guest
|
Posted: Wed Jun 14th, 2006 05:39 |
|
hi carol,
i just wanted to tell you that i was very touched by your recent post and got a bit teary-eyed. thank you so much for sharing your experiences with us, and i agree that honesty is definately the best policy--here as well as anywhere in life. my heartfelt wishes for continued improvement and total wellness are yours.......sun
____________________
lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Wed Jun 14th, 2006 13:27 |
|
| Oh Carol, I don't know who is happier, you or ME! I am so thrilled to hear this. I'm so glad that you've finally experienced a turning-point day in which you can judge your recovery so markedly. Perhaps this is finally happening for you and I'm sure that feeling will become more and more frequent until finally the bad days will be fewer and farther between. Like you said, it's a sloooowww process and you've been so tenacious. You really deserve a pat on the back for sticking through this because I understand how hard it's been. I am so happy it is paying off for you. I can't wait to experience the same, and if it takes two years to happen, then so be it. It's better than the immunosuppressant alternative which is completely losing your way of life and dying a slow painful death. I'm excited that this is not the future for either of us. Thank God for Trevor Marshall!
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
carol
Member Advocate
|
Posted: Tue Oct 24th, 2006 04:08 |
|
For five years (pre-MP) I traveled from Ohio to see a west coast rheumatologist, one of the few who treated almost all his RA patients with antibiotics. He took x-rays every visit and was proud of the quality of the images produced by rare earth films. Much time was spent during my visits with him comparing current films with past films, looking at the size and opacity of erosions in my wrists and the joint spacings in my knees, etc.
Over these years during which my doctor was looking at miniscule qualitative changes on these x-rays, my toe joints were totally destroyed. The toes on my right foot over-lapped and wearing anything other than Birkenstocks was painful. I had reconstruction surgery which was successful, but it did not involve any joint replacement. Basically, the joints were removed and the toes are just floppy…but straight. I remember thinking “too bad that won’t work on my hands” because I was certain my fingers were going the way of my toes.
Since starting the MP over two years ago, I have not seen evidence that the damage in my hands has progressed, in fact I see the opposite. I know I have more strength and dexterity in my hands. I am able to type in a more normal fashion and it is definitely easier for me to open cans and bottles and squeeze the lime into my tequila . Some finger joints and both wrists seem less thick. I honestly don’t know if this is due to a reduction in swelling or a resorption of some kind. I admit I would be curious to see how my hand x-rays today compare to pre-MP but I no longer see the west coast doctor and I don’t think they would be comparable unless he did them.
I acknowledge that this is not a report of quantifiable data from objective testing. But I am certain that my hands work significantly better now, and I would not tell you this if it were not true  .
I wish I understood more what happens when RA or PA destroys these joints and they get thick, deformed and inflexible. Is it loss of collagen? Is it collagen deposition? Is it scar tissue? What is scar tissue?
In any case, I think the joints in my hands work acceptably well and I’m hopeful that their functioning may improve even more. My big joints (knees, hips, etc) seem pretty good when I am not herxing at those sites. I am thankful that I don’t have to contemplate joint replacement. Given what I have learned about Th1 inflammation and how it impacts bone I just could not bear the thought of having anything implanted.
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
carol
Member Advocate
|
Posted: Fri Nov 10th, 2006 03:17 |
|
Dear Friends:
I met with my AP doctor last Monday. It is clear to me that my progress is picking up stream.
At my previous visit (April 2006), I was plodding along, a few months into Phase 3. I had one significant accomplishment to report at that visit.
- I had weaned off of bio-identical hormone replacement therapy, a topical cream compounded with testosterone, progesterone and estrogens. This was a tough process and took about six months.
During these last seven months I have seen four significant and encouraging developments, which I reported to my doctor on Monday:
- I have much more strength and less pain in my hands and upper body. I feel like there is less “thickness” in my wrists, knuckles and ankles.
- I weaned off 400mg/day Celebrex. This is the first time I have not taken an anti-inflammatory regularly for many years.
- I am no longer light sensitive!
- My mood is improved. I’m generally happier and enjoying life more.
So what still needs fixing?
I still require daily Vicodin for joint pain which can be intense, especially at sites of past trauma (right knee, right ankle, and right big toe). Adding Valium helps when pain is especially severe and “crampy”. Sleep disturbances are an issue. I’ve improved a lot but I’m still a long way from well.
A word about my doctor…
My doctor is starting to get genuinely interested in the MP. In addition to seeing my progress, he has treated a sarc patient who has had much success with the MP. She does not post at MP.com but I have met her and we are in regular correspondence. Our doctor told me that he considers her cured! She is extremely pleased with her progress but feels there is still some more work to be done.
I feel confident that if someone contacts this doctor and says “I’m interested in doing the MP as written” he would understand this and be receptive. I believe he is on the doctor list for Michigan. His office is in a suburb of Detroit. If anyone would like more information on this doctor, please feel free to contact me.
Carol
January 2007:
According to my most recent lab test, the DHEA has almost returned to “normal”:
I found Dr Marshall's comments helpful:
--Verification that dehydroepiandrosterone (DHEA) is a hormonal steroid, and its expression is affected by the Th1 disease process.
--Confirmation that hormonal rebalancing (by your body) is an essential part of the process leading to recovery.
I think the normalization of my DHEA blood test over my time on the MP is consistent with this second point and further evidence of my progress.
Thanks for everything  ,
and:
The first five days of this cycle were extremely ecouraging. I would say this was the best I have felt in 5 years. Herxing is modest at this point in the cycle, so will increase the zithromax to 3/8 next time it's due.
Getting well sneaks up on you....getting my life back....I've read these words so many times and now it's happening to me  .
Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
ShrnHml
Guest
|
Posted: Fri Nov 10th, 2006 17:54 |
|
| Carol......reading your post made me happy. Thanks for sharing. ........Sharon
____________________
Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
|
carol
Member Advocate
|
Posted: Tue Jan 30th, 2007 03:51 |
|
Dear Friends,
I had a bone density test done this past November. The results were OK! Only one T-score was below -1.5, which is the point at which doctors start to push treatment.
My only other DEXA test was in February 1998, two years after being diagnosed with RA. I wanted to compare the results of the two tests. I thought it made sense to look at the actual bone mineral density (BMD) numbers, since I was not sure if different assumptions were used to calculate the Z and T values.
The first number is the 2/98 result, followed by the 11/06 result, in g/cm2.
Lumbar spine: 0.995….1.099
Femoral neck: 0.700….0.821
Greater trochanter: 0.659….0.640
Total hip: 0.771….0.774
So three of the four measurements indicate numerically greater bone density .
During the entire 8.5 years between these two tests I have been on various antibiotic treatments for RA. I took a variety of supplements up to the time I started the MP in August 2004. This included a two year period of intense vitamin D supplementation. Of course I have strictly avoided vitamin D since starting the MP. I have not been able to exercise vigorously for about four years.
It would have been nice if I would have had a DEXA test at the start of the MP, to see if the RA inflammation, the vitamin D and the sedentary lifestyle had caused additional bone loss. Without this data I am hesitant to say that my recovery on the MP has included an increase in bone density. However, I am confident that I don’t have to worry about osteoporosis at this point.
......Carol
____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
|
BARNEY
Member in Phase 3
|
Posted: Tue Jan 30th, 2007 14:32 |
|
Carol,
So very glad to hear your good news on your bone density test.
HANG IN THERE, WE WILL MAKE IT!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Wed Jan 31st, 2007 12:14 |
|
Carol,
That is wonderful news! I had a bone density test done about six months before starting the MP still showing osteopenia. I will get another one after the completion of Phase 3. I know it takes years to recover bone however I figure the numbers should at least improve. I have been pretty sedentary myself due to the RA. I exercized bearing weight five days a week prior to starting regular AP (when Remicade/pred worked about 2.5 years ago) taking tons of calcium and Vit D. It didn't help at all. I am really curious to see what happens on the MP.
I'm so glad all your test numbers are improving!
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Current time is 11:16 | Page:   1 2 3 4 5 6   |
|
|
|
|
