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carol
Advocate
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Posted: Mon Oct 1st, 2007 19:40 |
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Ken, the exercise thing is a major milestone for me. When I got to the point where I knew that moderate exercise was ENHANCING my recovery rather than presenting me with something that I needed to recover FROM, that really got my attention. IMO, it is better to avoid exercise until an MP patient gets to this point.
Marion, it is interesting that you asked that question just now. Yes, the strength is coming back in my hands in a very significant way. Last Wednesday, when Martha and her family were visiting, I automatically asked Lem if he would open the wine we were having with dinner. It has been YEARS since I have even attempted to open a wine bottle. Then last night I found myself home alone with a bottle of Australian Pinot Noir. I really wanted a glass, so decided to try to open it myself. I was SHOCKED how easily I got the cork out of that bottle! I know this issue is of particular importance to you since you are a dentist. I have had RA for 11 years, and I can’t believe that my hands will ever look like, or function like, they did before the RA inflammatory damage started, but I have been amazed at what I have experienced so far. I think you should have high expectations for the degree of recover/repair you may realize in your hands.
What a treat it was to spend some time with Martha’s beautiful little boy.
Carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
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anniemac48
Member in Phase 2
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Posted: Mon Oct 1st, 2007 21:42 |
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Hi Carol
Just been reading you posts, its so wonderful to read how your getting back physical
strengh, I dream about bush walking, and imagining myself going to the gym to build up my strengh again. It is so good for me to read that someone else is over coming R.A, but I especially looking forward to having a conversation without trailing off because I can't remember, I've had a little taste of it. Yes I can really understand the grief you have felt having felt it myself, sometimes it is hard for me to know if I am experiencing self pity or grief, self pity is no good for me where grief has to be expressed. Thank you Carol.
Warm Regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 539 |
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Offline
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Posted: Wed Nov 14th, 2007 00:42 |
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carol wrote: And, for you new kids here, take special note of how long this has taken. My three year anniversary on the MP is just a few weeks away. The MP is the definition of Delayed Gratification.
Carol, I have just spent some time catching up on your Alumni PR. And even though I have been on the MP for nearly a year, I still feel like a "new kid." Also, I could definitely relate to your feelings of grief as I find myself celebrating being able to shower, brush my teeth, and dress all on the same day (and on some days even run an errand); indeed, I am now showering 2 to 3 times a week and am no longer sitting on the shower seat wondering how I'm going to get the energy to get out of the shower. Celebrating a shower and an errand?!!! Thanks for your updates and keep up the good fight; all of us depend on those going before us to demonstrate true grit.
Thanks, Claire
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CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2/08 to 5/25/08
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carol
Advocate
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Posted: Mon Mar 31st, 2008 05:53 |
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Dear Friends:
I have been remiss for not posting for so long. Some of you have contacted me to inquire about my situation. Phil and I have been busy acquiring, outfitting and learning about our new RV (I swear this thing is as complicated as the space shuttle!). Plus, there have been many changes and challenges on my road to recovery in recent months.
Can I just share some headlines?
Latest D test results seem to indicate a nomalization of my body’s vitamin D related processes.
As my immune system continues to recover, my RA-damaged joints, long scarred by fibrotic tissue, appear to be remodeling. I experience this as cycles of pain followed by weakness followed by incremental return of function. This is especially noticeable in my hands. I hypothesis that this may be akin to what sarc sufferers report with their lungs. It has been a difficult process, and I have no idea how much more of it lays ahead.
Sun sensitivity seems to be gone. Herxing patterns continue to evolve. Also evolving is my body’s response to the MP meds.
I have learned that it is critically important to make one change at a time in my MP treatment (easier said than done when in a rough patch and struggling to regain equilibrium) and to wait long enough for symptoms to settle (often MONTHS) before drawing conclusions about cause and effect.
I promise to post details soon. If my experiences can help others see what may be around the next bend on their own road back to health, I sure want to do that.
I’m not well yet, but remain totally committed to the MP and optimistic about the future for all of us.
Carol
Last edited on Mon Mar 31st, 2008 06:23 by carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests (7/11/04): 25-D=32; 1,25-D=65...phase 2 started 12/6/04...phase 3 started 2/26/06...vicodin & valium as needed for pain...last 25-D=9 (5/08)
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wind flower
Member in Phase 1
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Posted: Fri Aug 22nd, 2008 02:18 |
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dear carol, thank you for your details of your trip through the marshall protocol. I am scheduled to begin in the fall so I was going through the other members who have had success treating rheumatoid arthritis.
I have just recently been diagnosed and have been taking minocyclene mwf for about 3 months. Now that I have been accepted into the program I have to admit I'm a bit scared. THank you again for your posts. I'm sure they will continue to be a source of hope. windflower
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Rheumatoid Arthritis/paresthesia/joint pain/depressed spirit/Minocyclene 50mg mwf/starting MP in the fall, hope it will be a new life
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