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murcierashley Guests visiting Phase 1/2/3

| Joined: | Tue Jul 19th, 2005 |
| Location: | Georgia USA |
| Posts: | 93 |
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Posted: Sat Aug 5th, 2006 22:34 |
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Life is Good.
I've come a long way from the woman who was about to undergo bilateral lung transplantation. In July 2005, I was very excited when I "discovered" the MP. I couldn't wait to start. My query for a doctor in the Atlanta area was immediately answered by Donna and Leanne. They referred me to a committed, caring doctor. The Maria prior to the MP felt old, sad, sick, fatigued, hopeless, and weary. Now, I feel young, energetic, happy, and optimistic. I don't dread making the bed, walking up the stairs, cooking, or doing the laundry. All of these things used to completely exhaust me. At rehab, I work out on the elliptical on level 4 for 30 minutes and I walk/or ride a bike for 30 minutes at 3 mph. In addition to lifting my 2 year old, I lift weights at rehab. I'm loving life again. At one point, just walking across the room was like walking through knee deep mud. It's as if a weight has been lifted off of my back. I feel like a whole person, not an invalid. It's painful to say, but that's what I had become.
I can't wait to report my progress to my doctor. I also plan to visit my former pulmonologist. According to him, I was beyond any hope and had one foot in the grave. I don't plan on dying any time soon, at least not from sarcoidosis.
A whole lot of people have been praying for a miracle for me to get well. Well the prayers have been answered. Thanks Dr. Marshall and thanks to your wonderful team and volunteers.
Maria
____________________ Maria: pulm sarc(Dec 2000) 3L-6L O2 24/7; dyspnea (severe) chest pain cough fatigue rash; 8/05 1,25D-43 D25-22; Ben 40mg/q6h 9/12/05) Mod Ph2-2/2/06; Spiriva (q1d),Tramadol(50mg)& Guaifen as needed; NoIRs avd D & sunlight; 8/06 25D-10
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Dr Trevor Marshall Foundation Staff

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Posted: Sat Aug 5th, 2006 23:08 |
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Maria,
Glad things are going along well, and thanks for letting us know
Say "Hi" to your 2yo for me
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norman Member in Phase 3
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Posted: Sun Nov 19th, 2006 02:47 |
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| That's a wonderful story....should give all of us hope. Good luck to you.
____________________ Sarc| Ph3 approx 6/1,Acne/ increase skin lesions, anxiety/depression /High IgG and Iga for C. Pneumoniae,last d= 10
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