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Maria's Road to Healing
 Moderated by: Dr Trevor Marshall  

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murcierashley
Guests visiting Phase 1/2/3


Joined: Tue Jul 19th, 2005
Location: Georgia USA
Posts: 93
Status:  Offline
 Posted: Sat Aug 5th, 2006 22:34

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Life is Good.

I've come a long way from the woman who was about to undergo bilateral lung transplantation.  In July 2005, I was very excited when I "discovered" the MP.  I couldn't wait to start.  My query for a doctor in the Atlanta area was immediately answered by Donna and Leanne.  They referred me to a committed, caring doctor.  The Maria prior to the MP felt old, sad, sick, fatigued, hopeless, and weary.  Now, I feel young, energetic, happy, and optimistic.  I don't dread making the bed, walking up the stairs, cooking, or doing the laundry.   All of these things used to completely exhaust me.  At rehab, I work out on the elliptical on level 4 for 30 minutes and I walk/or ride a bike for 30 minutes at 3 mph.  In addition to lifting my 2 year old, I lift weights at rehab.  I'm loving life again.  At one point, just walking across the room was like walking through knee deep mud.  It's as if a weight has been lifted off of my back.  I feel like a whole person, not an invalid.  It's painful to say, but that's what I had become.    

I can't wait to report my progress to my doctor.  I also plan to visit my former pulmonologist.  According to him, I was beyond any hope and had one foot in the grave.  I don't plan on dying any time soon, at least not from sarcoidosis.   

A whole lot of people have been praying for a miracle for me to get well.  Well the prayers have been answered.  Thanks Dr. Marshall and thanks to your wonderful team and volunteers.

Maria



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Maria: pulm sarc(Dec 2000) 3L-6L O2 24/7; dyspnea (severe) chest pain cough fatigue rash; 8/05 1,25D-43 D25-22; Ben 40mg/q6h 9/12/05) Mod Ph2-2/2/06; Spiriva (q1d),Tramadol(50mg)& Guaifen as needed; NoIRs avd D & sunlight; 8/06 25D-10
Dr Trevor Marshall
Foundation Staff


Joined: Sat Jul 10th, 2004
Location: Thousand Oaks, California USA
Posts: 8305
Status:  Offline
 Posted: Sat Aug 5th, 2006 23:08

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Maria,
Glad things are going along well, and thanks for letting us know:)
Say "Hi" to your 2yo for me:)

norman
Member in Phase 3
 

Joined: Mon Oct 24th, 2005
Location: Goshen, New York USA
Posts: 392
Status:  Offline
 Posted: Sun Nov 19th, 2006 02:47

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That's a wonderful story....should give all of us hope. Good luck to you.



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Sarc| Ph3 approx 6/1,Acne/ increase skin lesions, anxiety/depression /High IgG and Iga for C. Pneumoniae,last d= 10

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