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Scarab
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Posted: Tue Oct 10th, 2006 00:17 |
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Hello
Began herxing well (mild but distinct) on the 8th just before I took the next mino dose. I have been experiencing some very differenet reactions along with some of those I had throughout the 25mg dosing.
Arthritic pain in my feet, difficulty getiing enough air in my lungs, blood noses and strange throbbing in the area of my thyroid gland that travels up to my left ear. The usual stuff is also present - sinus stuffiness, fatigue, trembling, eye inflamation and my now fairly constant companion insomnia.
I still feel well (better than when I started MP) throughout this herxing.
Thanks to everyone who are so generously assisting me in this process. I owe you all a great deal.
alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Aussie Barb
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Posted: Tue Oct 10th, 2006 00:37 |
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Thank you Alex
Each time you post, please list your MP meds in an index format at the
beginning of your message. Posting an Index of your schedule and dosing, and how long at that dosing, at the top of your post is helpful to Staff for replying and for other Members for reading and understanding .. thank you..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Scarab
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Posted: Thu Oct 12th, 2006 22:43 |
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Benicar 40mg q6h (day 38), mino (day 26) 50mg q48h 6th dose
Took the 6th dose of minoapprox 12 hrs ago.
12 hrs after the 5th dose experienced flu symptoms, throbbing in the area of abdominal scar tissue from an operation I had many years ago. I developed a sore throat and an annoyingcough accompanied by fatigue, full body tingling, pulsing and lights in the visual field. All symptoms resolved with the exception of the cough which remained and was joined with numb fingertips. Insomnia as usual is there.
Everything is well tolerable and I will extend the dosing to 72 hrs just to see.
I wish everyone all success.
With kindness-alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Scarab
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Posted: Fri Oct 13th, 2006 14:36 |
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Benicar 40mg q6h (day 40), mino (day 28) 50mg q48h 6th dose
Hi
I have just done something a bit stupid. In my herxing, fogged out, exhausted state I took a 50mg dose of minocycline with my nidnight dose of beicar. The abx was not due till the next night. I realised about 25 mins later and tried to throw the medication up. I couldn't see any pills but the taste assured me that they had at least partially dissolved. I then realised I would need to replace the benicar so have taken 20mgs and will take another 20mgs in 3 hrs.
Is this ok? I feel a bit of an idiot and the whole thing was pretty awful. I hope I will not loose the benicar blockade nor suffer from too much abx.
Any suggestions?
Thanks- Alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Aussie Barb
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Posted: Fri Oct 13th, 2006 18:40 |
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Alex
All is well.. most have had the experience of mixing up meds at some time..
see this FAQ and the links within What times should I take my Benicar? What if I forget a dose? taking the Benicar 20mg to catch up is fine.. You may wish to keep your meds apart or set out in a dosette to avoid recurrences.
The extra mino dose wont usually be a problem.. if the symptoms were to increase, -can take extra half tablet (20mg) Benicar any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink some find that chewing the Benicar helps with faster absorption.
Phase One is the training ground for getting the feel of the herx /symptoms and gaining personal experience in managing all aspects of MP. ie eg including your meds, and light exposure and D avoidance.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Scarab
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Posted: Fri Oct 13th, 2006 20:38 |
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Benicar 40mg q6h (day 40), mino (day 28) 50mg q48h 6th dose
Thank you Barb. I must say I had an even more sleepless night than usual. I can rest a bit easier now.
alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Scarab
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Posted: Tue Oct 17th, 2006 23:47 |
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Benicar 40mg q6h (day 44), mino (day 32) 50mg q48h 8th dose
Hello
After the fiasco of accidentally taking a mino dose I let my cycle go to 72 hrs – just to make sure. I was experiencing the most severe herx symptoms since I started. Breathing difficulty, coughing and fatigue up to 48hrs. On the third day these symptoms peaked and only abated when I took the 7th mino dose. The relief was short lived as within 12 hrs it was all happening again. A lot earlier than expected but luckily I had a break the next day when I felt really well.
It seems there is no pattern with the herx reactions. Some cycles it is the first day post abx that is gentle and the next it’s the second 24 hrs.
I am coping well though. I just make sure I rest a lot and have become very flexible about my life. I must say the muscle weakness is a bit of a shock as sometimes just lifting a cup to drink is difficult. Insomnia though is easing as I am now sleeping 4 hrs at a time.
It looks as though everything is going good. I will stay on 50mgs till the herx has abated.
Hope everyone else is doing well.
Alex.
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Scarab
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Posted: Sun Oct 29th, 2006 02:32 |
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Benicar 40mg q6h (day 56), mino (day 42) 75mg q48h (day 10)
I have not posted for a bit. I’ve had visitors. It was great to see my sister and even better to discover that other people can live in a cave with me without too much inconvenience.
Life for me on the MP has been going along. I started mino at 75mg on the 20th of Oct. I had little or no herx for the first two cycles but started sleeping really well again. It’s so great to be able to go to bed and sleep for more than a couple of hours at a time. I am still sleeping well – back to the way I was pre MP.
Recognizable herxing started when I extended the 3rd 75mg dose to 72 hrs when by 50 hrs I experienced difficulty breathing, coughing, sinus and runny nose. These symptoms have continued for the next 2 doses at 48hrs with the addition of a nasty long term headache and inflamed sore eyes, particularly the left eye. I am at present typing this and wearing an eye patch to help with the discomfort. It appears that the sight in my left eye is impaired, sort of blurry. This could be the watering but it does feel better with the patch. Apart from the patch I have only needed some medication for the headache once.
I went out during the day (late afternoon) for the first time since I started MP. I covered up used invisible zinc and the antifungal cream. I did not notice any worsening of symptoms although the next day I did have some pretty strong cravings for sugar/carbohydrates. I now feel a little less fearful about leaving the darkness of my house.
Hope all are happy and successful.
alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Scarab
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Posted: Wed Nov 1st, 2006 02:50 |
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Benicar 40mg q6h (day 58), mino (day 46) 75mg q72h (day 13)
Hey Barb. Just a few queries.
Have you heard of anyone developing yellowing palms of their hands and yellowy tinge in their face? Is it just no light? Before I have my doc test my liver I just thought I’d ask.
I have extended this abx cycle go for 72 hrs as the herx is very mild this time around. I am beginning to consider going up to 100mgs and realize that this means I am getting close to phase 2. How do I get info on phase two? My main concern is that I may need to order medication from overseas for phase 2 and this could take me sometime.
I am currently awaiting for the results of my latest 25 hydroxy Vit D test. Otherwise everything is going great. All herxing has gone to mild and I seem unable at this time to squeeze a bit more of a reaction out of the longer cycle.
Thank you I Look forward to your response.
Alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Aussie Barb
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Posted: Wed Nov 1st, 2006 03:21 |
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Alex
Sometimes the skin can look yellow in the lower light.. You can check with your Dr and have any blood tests s/he requires to make sure that it is no more than your immunopathological response.. see the information in this FAQ: you may wish to take the Information to your Dr: What do my lab tests mean?
see this FAQ Where can I find phase two and three? for information re sending an email for the Phase 2 Questionnaire to fill and return.
and you will be given feedback and access to the Phase 2 Information. and ...
We then encourage you to begin a new progress report in the Phase 2 forum to discuss recommendations re the new meds and dosing in preparation for your Dr visit. Thank you. Phase 2 meds are readily available in Australia. except of course your Benicar which is continued same.
Thanks, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Scarab
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Posted: Tue Nov 7th, 2006 02:51 |
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Benicar 40mg q6h (day 65), mino (day 52) 100mg q48h (day 5)
Hi All
Started on 100mg of mino 5 days ago (have taken 2 doses & due another tonight). I only began slight herxing 26 hrs after the 2nd dose. Remarkably I felt really really well for the first few days.
Contrarily since upping the mino to 100mgs I just want to sleep all the time. Perhaps to make up for all the sleep I missed out on during those first months of insomnia. But apart from the sleepiness sinus stuffiness continues to be the main herx.
I did have the worst cramp ever in my calf muscle the other night which continues to be painful days later.
A week ago the lab drew the blood to re-test my 25D levels. It has dropped from 50nmol/L to 21nmol/L. Barb could someone translate that figure into ng/ml for me so I can update my signature line?
Thanks. Will be in touch.
Alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Aussie Barb
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Posted: Tue Nov 7th, 2006 03:17 |
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Thanks Alex
you have done well..
You may convert metric results using this formula:
1,25D (pmol/L) - divide pmol/L by 2.4 to convert to pg/ml
25D (nmol/L) - divide nmol/L by 2.5 to convert to ng/ml
..We encourage you to send your email re Phase 2 so you can prepare ahead of your Dr appointment.
Thanks, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Scarab
Member in Phase 3
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Posted: Tue Nov 14th, 2006 04:21 |
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Benicar 40mg q6h (day 71), mino (day 59) 100mg q48h (day 12)
My latest update
I have been coping physically quite well with 100mgs of mino but I must say that emotionally and metally this has been the most difficult dosing to handle.
Ahh…... I feel depressed and anxious and I am unused to feeling like that. I am not sure how to work with these symptoms as valium (which I used twice for insomnia early on the MP) makes me feel depressed the next day.
I suppose it’s just a matter of saying this will pass.
I am listless, craving chocolate, sleep a lot with some headache and malaise.
I just deal one day at a time.
alex
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Sarc Aug06|CFS June90| Avoid light&D NoIRs Beni40mg q6h Sept06 mino Sept06| Aug06 1,25D-57.5 25D-20 Apr07 25D-5 Apr08 25D-4| Aug 07 2% NoIRs outside only, Average 30mins per day outside K&16% zinc.
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Aussie Barb
Member in Phase 3
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Posted: Tue Nov 14th, 2006 06:14 |
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Alex
We encourage you to begin a new progress report in the Phase 2 forum to discuss your meds in plenty of time..
re mino: dont hesitate to decrease the dose back to 75mg if necessary..
or try 3 day dosing..
see the FAQ My Herxheimer reaction is too strong. What should I do? ..
Any time that your symptoms are going past tolerable: Check the precautions and the options one at a time to assess: do not hesitate to use any of the adjustments suitable to you.
How can I control my anxiety and depression? a smaller dose of Valium may be more helpful perhaps..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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