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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Fri May 4th, 2007 01:30 |
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Thank you Hope
Good that all has settled..
re Family: It is a possibility that your Family's Th1 symptoms may be more obvious because of the light and D avoidance in the household.. a type of therapeutic probe.
see Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
How does Th1 inflammation develop? What is successive infection?
and more links in Personal, Family, Relationship Topics
When you are ready to discuss your Mod Phase Two meds/ doses, please post in phase 2/3 forum before starting. thank you.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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hellohope
inactive member
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Posted: Sat May 5th, 2007 02:41 |
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Thanks Barb !!!!!
Info you sent was helpful, but I guess I am looking for concrete evidence about transmission. It seems odd how many family members seem to be getting cfs and similar illnesses. The medical profession say you can't catch it, but reality is I think they really don't know....According to one doc overseas, it is easily transmitted especially to partners. I guess time will tell, as hubby and son won't go and get tested. Why wait for symptoms to appear?
Hope
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3931 |
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Posted: Sat May 5th, 2007 03:22 |
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Hope,
A recent trip to the doctor with one family member who has been in total denial that they had Th1 revealed some interesting notes on the pathology report that included chronic inflammation markers. The thing they had been complaining about suddenly went into remission (wink). They've already heard it from me so when the doctor said it, they just aren't complaining about it anymore. The problem is still there but they don't want to admit it.
The point is, I'm not all that unique on this board and it does pass around in families.
Nobody wants to admit they are ill. There is a percieved notion all is well and somebody else was weak or unfortunate, but not them. The medical industry doesn't much help. But there are so many people taking supplements or palliative medications of some sort, one has to wonder just how long the emperor can wander around sans-apparel before somebody insists the absurdity has gone too far.
Per family and communicability, it is a bit deceptive due to confused Th1 naming conventions floating about the medical industry and on insurance claim forms. However to name a few in my family, we have a Sarc title (me), RA, heart problems (stents/bypass), diabetes 2, parkinsons, breast cancer, multiple myeloma, uveitis, obesity, depression, ADD/ADHD, autism, asthma, celiac sprue... well, you get the idea. Family.
Here's a good link you might want to run past your family members:
Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
Best to you Hope--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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hellohope
inactive member
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Posted: Mon May 7th, 2007 01:19 |
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Thanks Janet
I know it's a real worry....everyone is in denial about this....I think years down the track, they will realise. I am worried I passed it on to my son at childbirth.
I am trying to convince my hubby and son to go for tests, I will let you know the result if they go.
Take care,
Hope
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Mon May 14th, 2007 02:53 |
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Hi All,
Went out again last night - in phase 2 now can't believe it....We visited friends who said I look completely different !  ? Been washing dishes too, at home, so hubby is very pleased.
Going out hopefully this thursday night for late night shopping !!!!!!
Can't believe how different I feel, been quite dizzy on new antibiotic, but other than that, going along nicely. Should have D result this week.
Bye for now,
Hope
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Mon May 14th, 2007 03:01 |
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HI ALL,
FORGOT LAST POST......................SELLING MY WHEELCHAIR THIS WEEK !!!!!!!!
TAKE CARE ALL,
HOPE
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hrts4me
Guests visiting Phase 1/2/3
| Joined: | Sun Oct 17th, 2004 |
| Location: | Texas USA |
| Posts: | 590 |
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Posted: Mon May 14th, 2007 03:27 |
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> SELLING MY WHEELCHAIR THIS WEEK !!!!!!!!
Hope,
What wonderful news!!!!! I am so very pleased for you!
Big hugs,
hrts
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LYME COPD Arterioscl Seiz FM CFS Hypertens NASH HiChol/ 4.2cmKidneyMass&Stones HyperCaPhUria Angina Arryth SOB RadNeurop BiPolarI| 1/05 25D-14 1,25D-13 2/07 25-D14| Nitro Verapamil Hydrocodone Baclofen Dicyclomine promethazine clonazepam
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon May 14th, 2007 03:34 |
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grazyna
Member in Phase 2
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Posted: Mon May 14th, 2007 05:11 |
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Hello Hope,
Have been following your progress and I am so very happy for you!!!!
CONGRATULATIONS! WELL DONE!
I am taking 25mg Mino for a week and singing in the shower already. It must be contagious.
Grazyna
Last edited on Mon May 14th, 2007 05:18 by grazyna
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14y+fatigue, muscle and joints pains muscle weakness tingling ricketsia panic attacks|3/3/07 1.25D-70,25D-34,12/07/07 1.25D-54,25D-20 12/4/07 Beni Q6H| 7/5/07 Mino| date Mod ph2|
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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
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Posted: Mon May 14th, 2007 06:59 |
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Hope, Wild about selling the wheelchair! Great to see you moving along so well in just 6 months time.
Best, P.B.
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hellohope
inactive member
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Posted: Fri May 18th, 2007 01:20 |
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MONUMENTAL DAY
Hello Everyone !!!!
Herxing along nicely in mod phase 2, nausea yesterday, pain in right hand, stiffness in ankles, sensitive lower legs, funny eyes - seeing black dots/white dots, a few muscle twitches. Planned shopping trip for thursday night and didn't know if I was going to feel like going....however, by 6pm feeling good and herxing had stopped.....had dinner and we set off at 6.30pm.....
Since 2003, I have not been able to walk around a big department store at all. And haven't been in the wheelchair since nearly two years ago, due to be being bedridden.....We arrived and I changed my glasses to 2% and in I went to Big W Department Store.....first section was for ladies gloves....I wanted to get some leather gloves for the mp, as my woolly ones were nearly in holes!!! Found a bargain, genuine leather at $14.88....bought some other things, did lots of walking for about an hour and had no symptoms.....carried own shopping basket too. he he
Then I thought, should I risk it and go to another shop???? Well I did, but a smaller one and arrived home just after 8pm.....felt tired. But awoke this morning feeling fine....will rest today.....it is just over a week now on new antibiotic and expect to start herxing more in the next few days....I am still in shock at what I have just done...
Take care all and lots of love xxxxxxx
Hope
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Fri May 18th, 2007 01:21 |
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P.S.
FORGOT LAST POST, TO THANK EVERYONE, WHO POSTED ALL THEIR WELLWISHES FOR ME SELLING MY WHEELCHAIR.....
HOPE
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Mon May 21st, 2007 00:54 |
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Hi All,
Nearly two weeks on mod phase 2 and new antibiotic kicked in yesterday....After taking it at 11am I felt quite awful by 2pm....very lightheaded, dizziness, head felt detached (like this) buzzy legs, nausea, pains in back and shoulders, fatigue, just didn't feel like doing anything so I didn't.....
This treatment is no picnic, but after my recent shopping trip that is incentive enough.... tolerable at this stage....
Drinking 2 litres of water daily and Blood pressure was 104/50...I know this because I have my own machine !!!!! 
Bye for now,
Hope (getting stronger)
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Mon May 21st, 2007 01:45 |
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Thank you Hope
It isn't necessary to monitor your blood pressure while you are on the Marshall Protocol unless your doctor insists on it.
If you are dizzy: Why am I dizzy?
Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself.
: Lay low, stay in bed, drink adequate fluids, eat salty foods and wait for the symptoms to wane. make sure of adequate rest, relaxation Tools to check:
re adequate fluids:
The Water Myth
Water: How much should you drink every day?
take care... all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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hellohope
inactive member
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Posted: Fri Aug 17th, 2007 11:16 |
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Hi All
Taking a break in phase 2 however going extremely well. Still walking around and now can handle a full day out and about. We took a country drive to my parents new country retreat....car journey an hour and a half there and the same back...at there place all day....so wonderful to be part of life again.
Maintained energy levels in the house. ie. washing dishes daily, washing clothes once a week, making beds etc. Finished writing my book !!!!!! In with publisher and will be published in sept/oct.
My doc who said when I started the mp, my hubby and I were clutching at straws and it wasn't going to work and we were wasting our money...HE IS NOW EATING HIS WORDS!!!!!!!!!!!!!!!!!!!!!!!!
TAKE CARE ALL,
HOPE
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Fri Aug 17th, 2007 11:25 |
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My 7 year old son Jake thinks the marshall protocol is TOPS!!!
In his words he says: "Marshall Prodicol"
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Tue Oct 2nd, 2007 13:13 |
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Still ticking along nicely....my breathlessness has not returned and I actually made it to the supermarket this week for the first time in five years !!!! Not only that, but I did some shopping. Driving now, is absolutely great
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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hellohope
inactive member
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Posted: Wed Jan 16th, 2008 10:23 |
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Hi everyone,
Although still taking a break from the mp, I wanted to let everyone know that I SWAM THIS WEEK !!!!!!!!!!!!!!!!!!!!!!!!!!!
Something I never ever thought I would be able to do ever again. It would not have been possible without Dr. Marshall and his team. SINCERE THANKS.
Keep on and best wishes to all,
Hope
Noted
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Rickettsia/CFS| Sept06 1,25D-45 25D-18 Nov06 25D 12ng/ml| Sept06 Avoid light/D NoIRs| Beni com Sept06| restart 16Jan07 Beni 20mg Q3H mino 25mg|mino 50mg 6/2/2007 75mg 23/4/07 Mod Phase 2 6May07 25D-8ng/ml
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