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Ames
Board Staff
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Posted: Wed Mar 21st, 2007 21:49 |
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A few days ago I went to dinner for Grandpa's birthday. The lights at the restaurant were very bright. I decided not to wear my glasses but knew I was getting too much light. Just as expected, later that day I got a small increase in sxs - particularly more pain in my glands, a sore throat, and increased lung pain. These symptoms in particular are always exascerbated by light. I wish I understood more about how/why this happens. That night I hardly slept at all. I had a very wired buzzing feeling in my head. Another thing I am quite certain about is that increased light exposure aggravates my insomnia.
On Monday my Mom gave me a full body massage. I knew that it would cause the release of toxins and was prepared to feel worse during the days that followed. My Mom is trained in massage therapy and rubbed me pretty hard! In any case, a few hours after the massage I felt extremely tired and mentally foggy. My body felt like jello. The next day I had more symptoms...particularly a stuffy head, gland pain, and difficulty breathing. It was all tolerable. Today my sxs are back to normal. Some of you who have known me for a while may marvel that I had the audacity to have a full body massage after the "great massage caper of Dec '06". Why did I do it? Because I know I am not herxing nearly as hard as I was at that time and I was curious to see how I would react to massage over a year later. Also, the massage felt really really good! Furthermore, I love the feeling of ridding my body of toxins. I often feel that ipath causes a backup of toxins in my body. It seems that massage stirs them up and allows them to exit the body more easily. So it appears that after almost two years on the MP I am able to tolerate massage.
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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laura1814
Member in Phase 3
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Posted: Fri Jun 8th, 2007 01:45 |
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Massage definitely mobilizes toxins. It's a challenge to drink enough water to flush them out instead of allowing them to re-settle.
My brother is a massage therapist. It hadn't occurred to me that I might have to give up massages for a while!  but it makes sense.
I am thinking that the MP sounds like the ultimate detox therapy!
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CFS, EBV, PCOS, POF, TMJ, hypoglycemia, hyperlipidemia, MP Ph1 1/08, Ph2 4/08, Ph3 1/09; enzymes, & ranitidine PRN, NoIRs, low lux home, limited outings, covered up, 1,25D=37, 25D=9.
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Ames
Board Staff
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Posted: Mon Aug 20th, 2007 18:01 |
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Hi everyone!
It's so exciting so see all the new members on the site. You are all headed towards amazing health!
What have I been up to? For one thing I moved to New York City. Now I'm settled in. I also started a new phase 3 antibiotic. I noticed a definite change in symptoms after a few days. Many of my symptoms flared. Several new symptoms have appeared which I haven't seen for several years (before the MP). I'm glad they are back..I was wondering where they had gone and know I have to face them before I get better! But after a few months even the new symptoms are becoming more tolerable.
It's clear that each antibiotic really does target different types of bacteria. My head symptoms have always proven to be the biggest challenge I face. But on my new antibiotic they have toned down just a little. I have been able to listen to more music and have long phone conversations without too much pain. It's a big change from pre-MP where sometimes I could hardly talk because of the pain.
I still have plenty of IP but overall feel stronger and more stable than I ever have. I'm thrilled with my progress and feel that right now, thanks to the MP my immune system works incredibly well and is really starting to give the bacteria a very hard time.
Yesterday I went into the city and had lunch with friends. I didn't have to wear my glasses when I was inside and I really enjoyed the meal.
I'd also like to let you guys know that I've started my own website related to the MP. On the site I have articles that explain the MP and related research in simple terms. I also included many pictures with the articles. The site is called "Bacteriality".
Here's the web address: http://www.bacteriality.com
I hope to post a new article on the site about every week. If you email me at amy.proal@gmail.com I can put you on a mailing list where I will alert you when a new article appears on the site.
Keep plugging away everyone!
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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Dr Trevor Marshall
Research Team
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Posted: Mon Aug 20th, 2007 18:08 |
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Excellent work Amy.
I wil start a "Perspective thread later today with links to your site.
I hope that MP folk post any questions they might have here, on the MP board, rather than on the Bacteriality website comments section. The general public does not generally appreciate the level of 'nit picking' that we tend to do with the science, from time to time 
Everybody should feel free to post additional material and supportive comments in the Bacteriality blog comment area, though
Amy, this is great stuff. Thanks again for doing all this work.
..Trevor..
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Adrianne
Member in Phase 3
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Posted: Mon Aug 20th, 2007 18:18 |
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Amy, maybe your head hurts so much at times because you are cranking so much good stuff out of it!
Take care and thank you for all the wonderful things you are doing!
Adrianne
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CFS Ph1Jan07 ModPh2Apr07 Ph2Aug07 Ph3Feb08 L-tryptophan benadryl 25D<7(Mar08) NoIRs limited outings covered
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Restville, Again |
| Posts: | 1709 |
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Posted: Wed Aug 22nd, 2007 03:37 |
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Beautiful work Amy.
The layout compliments the excellence in the content.* I will be referring others!
Joyful
*I also like how the sides of the pages are darker so the overall brightness is less on these light sensitive eyes of mine.
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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Ames
Board Staff
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Posted: Fri Aug 24th, 2007 21:54 |
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Thanks Trevor, Adrianne, Joyful...i'm excited about Bacteriality
I’m working on more articles for the site. Pieces about horizontal DNA transfer, understanding osteoporosis, and an article about how to explain studies that say vitamin D is good for us are all in the works. Plus, I’ve spoken with Trevor about writing an article about the history of medicine, which might help people understand why it’s much more difficult to put forth new ideas these days than it was back in Einstein’s time.
BUT, right now I’ve put up a new piece about a researcher named Gerald Domingue. Domingue is truly a pioneer of the L-form. He’s written 65 papers and authored an entire textbook on the subject. And he’s taken tons of photos of L-form bacteria, some of which are in my article. A few days ago I he actually found my blog and wrote a response to my “History of L-form” piece detailing some of his papers. Since then we have been trading emails.
This guy is an amazing scientist. I can’t believe I’ve actually been corresponding with him in person. You should see the number of awards and presentations he has given (listed in Who’s Who in Science). But he certainly hasn’t been given the credit he deserves. His studies are going to blow up as more and more people learn about the MP.
He’s also an accomplished poet and artist. He has paintings displayed around the world, just had a book published, and a collection of poems will be published next year. Anyway, I feel that everyone should be aware of this man and his work. Check out the piece at http://www.bacteriality.com
Amy
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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
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wytnez
Moderator
| Joined: | Mon Nov 29th, 2004 |
| Location: | Texas USA |
| Posts: | 653 |
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Posted: Sat Aug 25th, 2007 03:21 |
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Wow Amy,
Your site is amazing!!! I can print out what you have written and give it to people who have questions about the MP. Thank you for all you do.
Saj
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sarc lymph nodes. ph1 1/05,125D 33,25D 10,ph2 5/05,ph3 12/05,125D 21, 25D less than 7
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DNStog
Moderator
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Posted: Sat Aug 25th, 2007 08:14 |
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Amy...my congratuations for a job well done and appreciation for your dedication and the laborious work you put into the site. I've already sent it's link to my email buddies around the US.
Again, thanks for super job! --Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Lexapro, eye vits, Milk Thistle, Quercetin, Rx glacier, cover up, 05/09 25D5, 125D11
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migsies
Member in Phase 3
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Posted: Sat Aug 25th, 2007 22:28 |
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Hi Amy,
I have to chime in with all the other folk and express my deep gratitude for your effort in setting up "bacteriality". It is so wonderful to have a well layed out, easy to follow website, with historical and current information on the role of bacteria in chronic illness, to which I can refer friends and skeptics alike.
I couldn't help but chuckle upon reading Adrianne's comment. And I have to say, I couldn't do half the things you are doing now even when I was 99.9% healthy, certainly not without a monumental migraine following close behind. Thanks for putting your talents to such great use while simultaneously tackling Th1 in your personal life. What an inspiration!
And thanks to Paul as well, for providing the nuts and bolts necessary to set up the webpage (I gather?)
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Sarcoidosis FM Lyme babesia 25D>7(Feb07) Ph1Aug05 Ph2Oct05 Ph3 Jun06 Valium Lyrica Ambien NoIRs limited outings covered Phase I 8/05, II 10/05, III 6/06.
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