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Big John
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Posted: Sun Oct 3rd, 2004 05:37 |
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from Benicar @ Big Johns Progress
October 2, 2004, Day #10. Day #1 Mino.
Time 0730 BP 133/86. Pulse 78. Back to sleep.
Time 1500 BP 143/88. Pulse 93. Started Mino at noon. No changes except pulse rate increase.
Time: 2300 BP 145/83. Pulse 96. Felt kinda peculiar this evening. Although I understand that hexs happen after 12-18 hrs, I have been aware of a chilling, tingling over my body. Also I had a bad itching sensation on the top of my right foot. Lasted about 20 minutes, then subsided. Also have some feelings of dizziness, or spacial distortion maybe. My pulse increase continues pretty much in the 92-98 area all evening. Also my lips feel kinda numb, or prickly? Go figure.. Pain level in neck and shoulders is about the same as usual. Stayed out of the hot tub today . It was suggested that it might increase any hex so I was good  , I hate being good! 
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Mon Oct 4th, 2004 20:21 |
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October 3, 2004, Day #11. Day #2 Mino.
Time 0730 BP 153/93. Pulse 80. Back to sleep.
Time 1500 BP 146/89. Pulse 87. No hex in 24 hours, added another 12.5mg. Mino at noon today. Within 1 hour I felt unfocused, with dizziness and out of sync feeling. I also felt a warm tingling sensation that climbed up my shoulders into the neck and face. Hot sensations in my face and neck ensued. Entire experience lasted about an hour, then returned to normal.
Time: 2300 BP 145/83. Pulse 96. This evening I have noticed some sensation in the prostate area, reminiscent of when I originally had an infection and when I first got this disease. Phenomena lasted about 1 hour. Went into the hot tub this evening about 10 minutes, was careful not to stay in too long. BP remained stable with a small (94) increase in pulse rate I did not notice any adverse reactions. Continued probiotic with meals and Predforte every 2 hours. My plan is to continue 12.5 mg every day for 1 week provided I do not hex in the next 24 hours and see what happens.
Lately I have read a few posts concerning inability to concentrate while on Benicar. Since my experience has been that I have constantly been plagued with focus and concentration problems I had not noticed any change. Dealing with this for so long I have found that exercising my focus ability helps me to have less "brain fog." Specifically I find that games that require focus and totally immerse my mind help me to get through the day. Otherwise, I would not be able to communicate or post at all. Specifically I play "free Cell" which I find challenging. There are days when I can’t focus at all, but I consider that part of the challenge, to win.. Just one game... If I don’t, I know tomorrow I will!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Mon Oct 4th, 2004 20:33 |
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Big John says, "Felt kinda peculiar this evening. Although I understand that hexs happen after 12-18 hrs, I have been aware of a chilling, tingling over my body. Also I had a bad itching sensation on the top of my right foot. Lasted about 20 minutes, then subsided. Also have some feelings of dizziness, or spacial distortion maybe."
I just want to clarify... I did say to you that most ppl herx 16-18 hrs past mino dose, but you can herx at ANYTIME. 
John, you say you're not herxing??? This sounds like it could be herx to me.
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Aussie Barb
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Posted: Mon Oct 4th, 2004 20:49 |
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Big John says >"My plan is to continue 12.5 mg every day for 1 week provided I do not hex in the next 24 hours and see what happens."<<
not every day?? surely?? every Other day, yes.. John?
best wishes, Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Big John
Guests visiting Phase 1/2/3
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Posted: Tue Oct 5th, 2004 02:08 |
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Hello Friends,
Thanks for all the posts. Yes, Barb.. You sound like a mother . You were right! after taking 12.5 mg. 2 days in a row I got a hex. Couldn't get out of bed until afternoon. I'll elaborate in this days report, thanks for being there!
Reenie, you were right too I was hexing on just Benicar. The results of my second dosage the following 24 hours confirms it. My tingling, and itching, pressure in the head especially behind my eyes, the nasal drainage, and a new one a rash on my left thigh. (No I am not going to take pictures.) as well as the tired feelings. All have increased considerably. Thanks again for your posts!
John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Tue Oct 5th, 2004 06:24 |
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October 4, 2004, Day #12. Day #3 Mino.
Time 0730 BP 138/88. Pulse 75. Back to sleep.
Time 1500 BP 148/91. Pulse 98. An interesting day. Didn’t want to get out of bed. Increased pain in knees and hips, headache was way bad.. Tingling sensation was quite miserable. Sinus would not drain and felt like they were going to explode.. Woke up with a rash on my left thigh, itchy and red. Also noticed my feet were quite itchy, had a lot of problems with rashes on my feet about 9 months ago, now it is reminding me of it. Dizziness continues and may be a bit worse. Also added some Citruscell to my diet, seem to be a bit plugged.
Time 2300 157/100. Pulse 81. Blood pressure was a bit elevated, no explanation. Symptoms of the day continue, some relief from the sinus, they are draining again, new plan is to dose 12.5mg. Mino every other day for a week or so, since I am hexing.
Last edited on Tue Oct 5th, 2004 06:29 by Big John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Tue Oct 5th, 2004 19:41 |
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Big John says, "Reenie, you were right too I was hexing on just Benicar. The results of my second dosage the following 24 hours confirms it. My tingling, and itching, pressure in the head especially behind my eyes, the nasal drainage, and a new one a rash on my left thigh. (No I am not going to take pictures.) as well as the tired feelings. All have increased considerably."
Oh no John!!! Maybe you've misinterpreted Barb's and my posts to you!
What you are describing is most likely the second day herx from the mino, or if you're continuing to take every 24 hrs, I'm not sure what's happening, but you are NOT pulsing your mino!
From what you are saying, taking mino every 24 hrs, is NOT the correct way to dose your mino. The MP instructions are every 48 hrs, John.
This is what Barb was trying to get across to you.
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Big John
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Posted: Wed Oct 6th, 2004 01:28 |
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Hi Reenie!
Thanks for the concern! I understand that I will be taking 12.5mg. every 48 hours. When I started on mino and took the first 12.5 I had no more of a reaction than I was getting on just the Benicar. So Instead of controlling my urge I went ahead and took a second 12.5 24 hours later.. Thats when all the symptoms that I reported on Benicar tingling nerves, head ache, eye pressure, nasal drainage, etc increased several fold. also this strange rash on my left thigh.. Kinda like shingles.. Its swelling up, itchy tingly, hot to the touch and hurts just to wear pants.. Anyway I am back on 12.5mg. mino every 48 hours. Thanks to everyone for your post and emails!
John!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Wed Oct 6th, 2004 01:41 |
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Hi John,
As you "bop along," you may only get sx on the second day, (the day you don't take mino) which would be a typical herx for many. IMO, you may not have needed to add any mino on that second day to have had herx sx.
I just wanted to be sure this was how you understood the pulsing of mino to work.
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Big John
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Posted: Wed Oct 6th, 2004 06:22 |
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October 5, 2004, Day #13. Day #4 Mino.
Time 0730 BP 157/95. Pulse 78. Back to sleep.
Time 1530 BP 147/89. Pulse 87. Had a good morning! Felt energetic, focused and ready to take on the world.. Took my 12.5mg. Mino at noon. About 2 hours later noticed an increase in symptoms.. Tingling up back of neck increased considerably. Itchy sensations all over my body, the rash on my thigh is driving me nuts.. It itches a lot. Also increased spacial distortion kinda feels like I am out of sync.. OK, not technical but best I can explain it.
Time 2300 BP 160/98. Pulse 75. This evening has proven to be a challenge. Feelings of anxiety have been present most of the evening. Rash on thigh is still itching. Tingling is now moving up the neck into the scalp. Jaws are stiff and teeth feel pressure. Sinus continue to drain, no eye pressure today, however they are itchy. Shoulder stiffness has abated some, haven’t taken Tylenol in 2 days. Feeling bloated still, took probiotic at dinner. Hard to focus all day.
Last edited on Wed Oct 6th, 2004 06:24 by Big John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Thu Oct 7th, 2004 05:44 |
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October 6, 2004, Day #14. Day #5 Mino.
Time 0730 BP147/95. Pulse 71. Back to sleep.
Time 1500 BP 156/94 Pulse 85. Today was a good day. Tingling over the body continued pretty much on and off all day, pain in hips & knee remain the same as pre MP. Neck stiffness & Shoulder tightness has abated a bit, still tolerable. No sinus issues today. Dizziness & focus about average, not great but OK. Most other issues were not present or have lessened. Mino off day.
Time 2300 BP 150/96. Pulse 87. Rash on left thigh has begun to clear. Changed topical med from Hydrocortisone cream to Benadryl cream and it has mostly cleared within 1 day. Benadryl definitely works better for me in this case. Belly is still bloated, using probiotic. Most everything else remains the same this evening, nice to have "A GOOD DAY."
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Fri Oct 8th, 2004 05:34 |
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October 7, 2004, Day #15. Day #6 Mino.
Time 0730 BP 143/94. Pulse 73. Back to sleep.
Time 1500 BP 145/85. Pulse 93. Went out in the daylight today for MP Dr. visit. Tired after travel, but felt good. Took 12.5mg. Mino at noon, cleaned the house and baked brownies in the afternoon. Figured I would get caught up while I felt descent. Pretty much an uneventful day, had some tummy gas, took probiotic, Rash on left thigh is clearing nicely. Dr. and I are both wondering why my BP is still so high... Prior to Benicar I was on Zestril & HCLTHZ and was stable in the 130/76 area.
Time 2300 BP 160/96 Pulse 72. This evening has been a repeat of the day, pretty much uneventful. Had a couple of short bouts with anxiety, however they passed quickly. Neck stiffness is tolerable, knee and hip pain is about normal. All in all ANOTHER GOOD DAY!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Aussie Barb
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Posted: Fri Oct 8th, 2004 08:14 |
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Hi John  glad to see all going well...
you may or may not have symptoms from the Dr visit.. but if you do, you will know why and what ... Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Big John
Guests visiting Phase 1/2/3
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Posted: Fri Oct 8th, 2004 22:19 |
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Hiya Barb!
Just read your post. what happemd to the NOIRs? I dropped my 10% and they shattered.. They certainly are fragile.. I learned to always have them in their case except when I am wearing them, I think that would have protected them.. Sorry you are feeling poorly, but glad the bugs are dieing! BTW guess I did a pretty good job covering up yestrday, no problems today. Keep Smiling!
John
Last edited on Fri Oct 8th, 2004 22:20 by Big John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
Guests visiting Phase 1/2/3
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Posted: Sat Oct 9th, 2004 05:36 |
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October 8, 2004, Day #16. Day #7 Mino.
Time 0730 BP 145/92. Pulse 66. Back to sleep.
Time 1500 BP 144/90. Pulse 103. Well I dropped my Celebrex today, I have tried to do without it before but by the end of the third day I was back on them.. For me it has worked. Its just with all the uproar with the Cox 2 inhibitors I thought I would try doing without them again. Neck stiffness is back with a vengeance. Tylenol are taking the edge off. Everything else is about the same as the last 3 days. No reaction today from my outing to the MP Dr. yesterday, guess I bundled pretty good. Today was a Mino off day.
Time 2300 BP 147/87. Pulse 89. Pretty much an uneventful evening, maybe a little more pain from the knees and hips, but just the slightest. Notice my eyes are backsliding a bit since I decreased the Predforte. A bit more blurry. Can’t wait to get off that stuff. I would rate today as a GOOD DAY.
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Sun Oct 10th, 2004 20:11 |
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October 9, 2004, Day #17. Day #8 Mino.
Time 0730 BP 147/87. Pulse 85. Back to sleep.
Time 1500 BP 136/85. Pulse 79. Noticed a lot of stiffness today, in joints that not given my trouble in months. I will attribute it to dropping the Celebrex. I will probably restart Celebrex tomorrow since it is obvious that Celebrex is relieving some pain. Took 12.5mg Mino and have no reaction so far.
Time 2300 BP140/86. Pulse 109. Increased pain in knees and hips this evening. Does not appear to be any hex symptoms from Mino. Plan is to start Celebrex again tomorrow and increase Mino to 25mg. On Monday. Time to kick some more bug butt!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Big John
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Posted: Mon Oct 11th, 2004 05:29 |
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October 10, 2004, Day #18. Day #9 Mino.
Time 0730 BP 140/86. Pulse 109. Back to sleep.
Time 1500 BP 145/99. Pulse 78. Pain this morning was rough, hips and knees were excruciating. Went back on Celebrex and by early afternoon I was mobile. For me Celebrex works well. Today was a Mino off day. Tomorrow I will increase Mino to 25mg.
Time 2300 BP 145/88. Pulse 91. Rash on left thigh has cleared up, still having gassy belly probiotic helps. Citruscell is helping with the plugging. Although the day started off poorly, the afternoon and evening were good. I think it was a GOOD DAY!
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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Reenie
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Posted: Mon Oct 11th, 2004 18:08 |
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Big John says, "Does not appear to be any hex symptoms from Mino."
Fatigue, pain, and GI changes can all be herx sx. Obviously, you live in your body and would have to assess if these are "normal" for you, but try to assess these sx to pre-mino, NOT pre-MP.
In other words, go back and see how you were feeling before the mino, since you were feeling a bit better after lowering D and sun exposure, and from Benicar.
As Carol and I have said from a previous post,
carol says, "Sure seems like a herx symptom to me (or hyper vit-D, which to my way of thinking, if we're doing the MP is one-and-the-same.)"
Reenie says, "Yessss. When I get sx now, I refer back to the Hypervitaminosis D list to remind myself of what to expect for herx sx. Of course, if you get too much sun exposure, you can also raise D and have these sx."
Hypervitaminosis D symptoms list
http://www.marshallprotocol.com/view_topic.php?id=956&forum_id=11&jump_to=7181#p7181
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Big John
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Posted: Tue Oct 12th, 2004 00:58 |
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Hi Reenie!
You are always so helpful Thanks! I went to the link you supplied and frankly the list is quite extensive. Unfortunately IMO a perfectly healthy person would possess many of these indicators. You are right, I need to remember my symptoms Pre MP to judge where I am at, for bringing that to my attention!
John
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Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
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carol
Moderator
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Posted: Tue Oct 12th, 2004 02:50 |
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Big John:
Did you get D metabolite testing done? Even tho you have a different "flavor" of arthritis than I do, I am following your progress with special interest.
How long have you been sick?
You're right, this herx stuff can be pretty difficult to sort out when you are in the midst of it.
I liked you "kick some bug butt" comment.
Last edited on Tue Oct 12th, 2004 02:52 by carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests: 25-D=32; 1,25-D=65...10/07 entered Phase 5...Xodol daily, Valium and Tramadol occasionally, all for pain...last 25-D=7 (10/09)...Benicar only, no abx
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