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anniemac48
Member in Phase 3
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Posted: Fri May 11th, 2007 04:01 |
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Hello,
Just learning the ropes of how to navigate this forum. I can't seem to access the last few pages of the Australian Members forum (pages 5,6 & 7) not sure if it is my computer or the furum.
Also want to see if my signature appears, as when I do a preview it does not show below. It maybe because I made slight change and it has to be approved??? Not sure.
Any advice would be very helpful.
Warm Regards,
Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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IngeD
Moderator
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Posted: Fri May 11th, 2007 19:00 |
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Hi Annie. Good to see you posting! The Australian Members Forum pages have been mixed up. All the information is there but the page numbers are incorrect.
Your signature line will only show after you have pressed the "send" key. You can't see it whilst you are creating a post.
All the best. Inge.
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Rickettsiosis per neurop chron bronch adhesions IBS pre-diabetes HTN 125D51 Ph1Jan07 25D26.4(Dec06) 25D12.8 (Jun07) 25D8.4 (Jun08)25D6.4 (June09) NoIRs limited outings covered lo lux home Ph3
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carol
Moderator
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Posted: Fri May 11th, 2007 21:27 |
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Hi Annie:
It's good to see another person with RA starting the MP. I feel confident that you will respond dramatically, as the rest of us have  .
I presume "M Brown for 14 weeks" in your signature line means you have been on some version of the Dr Thomas McPherson Brown (Road Back) protocol? Exactly what did this involve? Did you experience anything that you felt was a "herx" reaction? (I'm just curious  ).
I'll be glad to help you with the MP in any way I can.
Carol
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rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests: 25-D=32; 1,25-D=65...10/07 entered Phase 5...Xodol daily, Valium and Tramadol occasionally, all for pain...last 25-D=7 (10/09)...Benicar only, no abx
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anniemac48
Member in Phase 3
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Posted: Sat May 12th, 2007 10:29 |
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Hi Inge
Thanks for your message, can't believe I have got my name on the board, but son had to do it for me, I am sure I would have drifted endlessly in the site. I did try so hard with what bit of brain & memory I have left, should have asked for help ages ago any way here now.
warm regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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anniemac48
Member in Phase 3
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Posted: Sat May 12th, 2007 10:45 |
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Hi Carol
Thanks for the reply, yes I had noticed there is not many with R.A. I have read quite a bit of your posts. I did the Thomas Brown Protocol for 14 weeks and stopped because my Dr told me the M.P would be a more gentle option. THe herx was very strong, but on the bright side I no longer have pain in my hips & the pain in my shoulder is much less, the pain in my hips became almost unbearable be fore it got better. Any way glad to be on M.P. I saw someone I know recently, she has had R.A. for 22 years honestly it has eaten her alive, not for me thank you I have always moved on the road less travelled , Hopefully M.P. won't be for long.
Warm Regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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anniemac48
Member in Phase 3
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Posted: Tue May 15th, 2007 21:28 |
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Hi everyone
Not sure if I will do this right or not. Benicar 6h, mino 100 mg 14/5, & pain med,
Hands very swollen and sore, all small joints stiff & painful, couldn't even open the marmalade this morning, going to start 4hourly beni, I have taken extra mino 25mg before seems to work for me, but I think I read that slows the proccess down is that right? Also how important is it to take Beni on time, do I really need a timer?
Sometimes when I go to bed early I take beni maybe a hour before it is due, sometimes I might be 1/2 late or early at other times. I thought I read as long as it is not longer than 8 hours ?
Been trying how to work out how to post progress reports, I read the words but just can't make sense of them. Son can't help O/S at the minute, and I can't print out no printer. I am sure there was something else but fog approaching, no it's here.
Warm regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Offline
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Posted: Wed May 16th, 2007 00:30 |
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Thank you Annie
Your post has been merged with your progress report for continuity.. pressing the reply button at the top Right of this page will enable you to post in this thread.
When you can, please fill further required details into your signature line to help Staff and others reading and replying < see this link for details to include. Your details enable us to assist you. There is a limit of 255 characters, and some information needs to be abbreviated. Thank You ..
We do recommend having a timer for your Benicar..
How does Benicar work? Why is it superior to other ARBs? Should I take it every six or eight hours?
What times should I take my Benicar? What if I forget a dose?
Let us know if adjusting the Benicar and mino is minimising your symptoms to tolerable or if you need to decrease the mino dose level back to 75mg..
As your initial 25-D was above 20ng/ml: It is recommended that you ask Dr to retest your 25D to make sure it is near or below the therapeutic level of 12ng/ml. There is no need to retest the more expensive 1,25-D.. How often should I test D levels? What are the target numbers?
The Importance of Reducing 25-D
see this FAQ Where can I find phase two and three? for information re sending an email for the Questionnaire to fill and return so that you have plenty of time to read and discuss the Information re Modified Phase Two meds and doses with Staff in phase 2/3 forum before going to your Dr.
Thanks, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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anniemac48
Member in Phase 3
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Posted: Thu May 31st, 2007 22:04 |
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Hello everyone
.Had some good news yestarday, my D25 is down to 12. I have been on 100 mino for 18 days now , had a fair bit of Herx, inflammation in feet & knees which made walking hard, bearable now, sinus & hay fever, cleared up, but managed okay with extra benicar. It has been 3 weeks since pain in my elbows, wrist & hands has'nt been my alarm clock, along with swollen wrists and servere pins and needles, looked like I could have been hands advertising a Horror movie, not a good look.
I have very sore tendons in shoulders & front of arms, I have to dress very carefully, or if I stretch for something I am in for searing pain, I've had this for about 2 weeks now it will pass I know that. The thing I most get frustrated and upset about is my poor memory and ability to concentrate. I sure am looking forward to been able to read again and have a conversation without forgetting words & what I am saying, it has affected my self- esteem a lot, I just don't want to mix , I've had a love hate affair with the commputer for the same reason makes me feel so stupid, intellectaully I know it is the R.A. but I forget sometimes. After saying all that I'm HOPEFUL, my gut instinct tells me I am going to get well, I am lucky to find M.P. after only 5 years. It has helped me so much coming to this site reading others have my symptons, its a normal part of the M.P.
Ive just remembered that I can drive now for more than 5 minutes as my fingers don't go numb, drove 20 min the other day and fingers fine. Dry patches of skin 50% improvement, cough & flem 80% better. 10 weeks now since starting Beicar. Warm Regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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AmyEliz
Member in Phase 3
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Posted: Mon Jun 11th, 2007 21:17 |
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Hi Anne,
Just another RA member welcoming you and happy to see another one on the way to recovery!
Welcome to Marshall Protocol! I was diagnosed with RA for 1 year before starting MP. The earlier the better. I now have been with MP for 13 months.
We all have the frustration of "brain fog". It's terrible sometimes; the loss of words, simple daily events and speaking...I hate it too. It will all get better, promise. You will start to get "those good days" and realize how sick you are with RA and then how much you want to get well again. There is a light.
I have recently reencountered the "memory of pain before MP". I am in Phase II and really had not had major herx's. The increase of Z's has reminded my of the pain I had gone through. Below a posting to read.
It’s day seven of my meds. Dang, it’s kicking my butt!
This cycle has caused much havoc in my right shoulder, which happens to be the worst joint before MP. This morning additional symptoms… both shoulders hurt, right more so than left. Fever in the AM but no temp showing, Flu like feeling, stiff neck, headache in AM, Light sensitivity, ears popping, and nerve twitching. It’s not been a fun ride on this cycle. I am exhausted today but surely had to do with the lack of sleep last night, woke about 10 times with great pain.
At least I have a “heads up notice” when I am about to have a major herx. I seemed to notice a pattern of sinus drip and sneezing a couple hours before the flu like symptoms and exhaustion start, usually takes about 4-5 hours before the joints and muscles kick in.
I thought I would lower my meds for one cycle to get the joint pain to move on Wednesday (ten days).
I know about trying to get dressed in the morning, sometimes those joint just don't bend that way.
Good luck and keep in touch with all your new RA friends.
AmyEliz
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RA(3-05) MVP(1981) Age 43. 3/06/06> 1-25D=36 25D=33 08/06/06> 1-25D=35 25D=33 10/12/07> 25D=24.Avoid light & D, NoIRs| Started Beni 4/06. Started Phase two 7-06. Non-PM meds: Loratab #10, 500mg Naprxen,800mg Skelaxin, 10mg Flexeral, 2mg Valu
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anniemac48
Member in Phase 3
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Posted: Mon Jun 11th, 2007 21:42 |
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Hi Barb
I think I am getting close to starting phase 2 , I have the questionaire. As I only see my Dr every 4 weeks I want to ask for a prescription for the next anti-biotic, he is all for M.P but I don't think he knows as much as he thinks, Warm regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Mon Jun 11th, 2007 21:52 |
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Annie
Your post has been merged with your progress report for continuity.. pressing the reply button at the top Right of this page will enable you to post in this thread.
Have you filled and returned your questionnaire as per the post above? - so that you may be advised of how to proceed and to be able to read the detailed Information provided in the Phase 2/3 forum..
Thank you, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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anniemac48
Member in Phase 3
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Posted: Thu Jun 14th, 2007 22:11 |
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Hi AmyEliz Thank you for postimg to me, it helped a lot, I feel like I am lucky having had R.A. for 5 years and finding M.P. I actaully found it through following the Thomas Brown's A.P therapy, thats just the anti-biotics, it was pretty rough as far as Herx goes, but I did see results. So glad my Dr told me about M.P. I think I'm getting close to going on phase 2, I have just filled in the questionaire, so will see if I'm ready .I am a little scared of phase 2 because of the could be mental herx. I moved in with my parents 1 year ago to help them retain their independence, my mother has Dementia, so I hope if I have some mental Herxing it won't affect my attitude dealing with Mum, because it sure can be frustrating. But whatever happens it won't stop me from doing the M.P. I've made a commitment to myself to go through no matter how tough. I like that saying " When the going gets tough, the tough get going"
I am getting results though there is no doubt about that, tha pain in my hands and wrists don't wake me up and I am not so sore and stiff in a morning, and I've had a few days where I don't sleep during the day. I sleep quite well, a real bonus. I am looking forward to being able to stay on the computer for more than half an hour, so I can communicate more with people. I do have so much to look forward to.
Warm Regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
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Posted: Sat Jun 16th, 2007 00:17 |
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Annie
Thank you for filling your questionnaire. You are now able to read the Information in the Phase 2/3 forum.
We encourage you to begin a new progress report there in that forum to discuss the Staff recommendations sent to you in the return letter re your individual situation before you start the meds. Thank you..
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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anniemac48
Member in Phase 3
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Posted: Thu Nov 13th, 2008 07:09 |
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Phase 3 meds
other meds: xeped 50mg, calcium 600mg daily, valium x1,
light: maybe 1 1/2 hours per day, all covered and glasses
symptons: having pain in tendons in lower and upper arms 2/3, L wrist abit sore but not swollen. Decided to put mino up to 50mg started 3 days ago, headaches but not constant, will go away when I have a sleep 3/4. Restless evenings 4/5 a walk helps even though I always get pain in lower lungs, not sure the restlessness is M.P. I think maybe is because I have to stay home.
IMPROVEMENTS: no swelling feet,ankles and knees, can knee down on a cushion, not for long, can almost squat well a 1/3 of the way, R wrist, hands and fingers
quite strong, can neally flatten hands on surfaces, fingers I can clench, open jars even if they haven't been opened yet. Having these improvements is what is going to get me through this 3rd phase.
Mum and Dad going away for the weekand, so I'll have 3 days break, sounds good to me
Warm Regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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anniemac48
Member in Phase 3
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Posted: Sat Dec 13th, 2008 23:30 |
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Phase 3 meds
other meds: xydep 50mg daily, calcium 600mg daily, valium x 4
light: maybe 2/3 hours per day, always covered
symptoms: I've had a far amount of energy this last week or so which has been FANTASTIC. Been able to get so much done around the house, even have the chrissy decorations and tree up, all done in stages,have felt abit chrismasy as well a few years since I felt that. I have just laid down inbetween bursts of energy. L shoulder been sore but a cold pack helps alot 3/4. still abit restless in the evening it varies alot.
ADD:
comments: Had the best Christmas I've had for a few years due to been organised and feeling stronger. Been dreaming of flying around Oz with all these cheap air fares and hiking all over OZ CAN"T WAIT.
warm regards Annie
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RA 125D42 Ph1 Mar07 NoIRs Ph2 Jun07 25D7 Jan08
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