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Aussie Barb
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Posted: Wed Oct 27th, 2004 19:32 |
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George,
just letting you know that there is a new, updated version of *How to Start the MP* with much more information.
You may wish to read the updated instructions, and it is a good idea to print and provide a copy for your MP Dr.
from http://www.sarcinfo.com/phase1.pdf ....
There are other new documents as well.
Letting all MPers know to please keep an eye out for all new information posted on the MP site as you keep in touch with us in your Progress Reports, so that we may help you to do MP with the utmost efficacy...
Thank You George, Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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GeorgeinRollaMO
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Posted: Fri Oct 29th, 2004 22:07 |
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Day 57 cont'd, October 27, Day 23 on Mino, Benicar q6h
3:00PM 117/43/67
Reported on the early morning earlier. Kept busy inside of the house, and definitely felt like I was herxing, until early afternoon, then dragged because of sleep deficient. Stayed up until about 11:00PM, when I dropped dead on my pillow.
Day 58, October 28, Day 24 on Mino, Benicar Q6h
1:30PM 104/56/84
Had a lousy night's sleep with many leg spasms starting just at 11:50PM of the 27th, then happening about every hour and a quarter to an hour and a half... max intensity was about 7. Slept until 11:35AM, when telephoned awoke me. Felt like I had that herx feeling until about 1:30PM. Perhaps, the feeling was a 125D rise--my eyes did burn quite a bit. I was exposed to light on October 26, two days ago. Went out socializing (in my Dark Vador uniform--had numerous questions--found another borreliosis victim because of the "costume") for about four hours in the evening and drank a couple cups of coffee which kept me wired somewhat. Went to bed about 1:15AM of the 29th.
Day 59, October 29, Day 25 on Mino, Benicar q6h
8:55AM 86/48/68 6:20PM 98/49/64
Awoke at 7:40AM. Arose at 8:30AM. Felt good! Eyes cool! Had only three sets of leg spasms during the night with most intensity of 5-6, max of one at 7. Had to go upon the house roof with a roofer for 30 to 40 minutes to look for cause of a rain leak. Was very exposed to the sun, without hat and gloves. Really felt the eyes hurting/burning, which affect lasted until about 2:00PM. Took 4.5 mg mino at 4:10PM. By close to 6PM, I took a nap while sitting in my computer chair for perhaps forty-five minutes. When I awoke, I definitely was herxing mildly. Had a somewhat befuddled mind. I did not feel I could do something of a mental gymnastics nature.
Wellness to all! George
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Sun Oct 31st, 2004 09:22 |
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Day 59 cont'd, October 29, Day 25 on Mino, Benicar q6h
Herxed during the rest of the evening.... brain befuddlement, fought desire to go to sleep. Gave in to sleep after midnight Benicar.
Day 60, October 30, Day 26 on Mino, Benicar q6h
12:35PM 105/54/69 10:45PM 116/56/74
Had only three sets of leg spasms during the night. Slept until 10:30AM. Still had mild herxing until around 6PM.... more like a previous 3mg herx, than the 4.5mg mino I had taken for this one. Had to take a nap in the afternoon for perhaps an hour and a half. Eyes did burn some of the time between noon and fourish, but had not done anything to get more 125D made, except some work at the computer, but protected. Went to a halloween party where my Dark Vader "costume" was at home... for once.  Was in bed and asleep by minutes after midnight.
Day 61, October 31, Day 27 on Mino, Benicar q6h
7:15AM 106/52/63
I had about six and a half hours of good sleep last night with no leg spasms. Awoke with the alarm for my morning Benicar. I did get up a couple of times during the night. I was able to stretch my legs while in bed in the morning without triggering leg spasms per usual. Felt energetic in the morning, and cleared headed. Almost sorry that this is the day for another dose of mino.... but look forward to the day when I won't have to do any.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Wed Nov 3rd, 2004 23:17 |
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Day 61 cont'd, October 31, Day 27 on Mino, Benicar q6h
9:15PM 115/55/71
Started to fade in the afternoon. Eyes burned, too. Then realized I had forgotten to take my noon Benicar. Took it at 5:00PM. By 7:00PM, I felt good again. No eye burning. Took 4.5mg Mino at 8:20PM. To bed and asleep about midnight.
Day 62, November 1, Day 28 on Mino, Benicar q6h
10:20AM 105/60/62 11:00PM 132/61/69--Just had a somewhat heated political discussion with brother-in-law... highest systolic since October 6.
Awoke by alarm for morning Benicar at 6:30AM. Laid back in bed after Benicar and fell asleep until 9:30 when awoke to the music system coming on by itself (honest). Got up, fed parrots and self. Felt like mild herxing all morning. Still at noonish, I felt grogginess of a herx, which continued through until about 11:00PM. Took Benicar about 11:30PM and went to sleep.
Day 63, November 2, Day 29 on Mino, Benicar q6h
9:10AM 110/58/67
Decent night's sleep. Leg spasms seem to be coming under control. (Fingers crossed!) Had to drive to Springfield two hours one-way to LLMD for appointment for 18 year old nephew who is now living with us and behind two years at least in high school. The jest of this is that nephew may have been fighting borreliosis/Lyme since he was 3 or 4 years old, without any help, and a procession of bad dx!!!! Had two of ten titers for Lyme on a WB two years ago, one of which was #30, and pediatrician in NJ sent him home without any abx.  He and parents have been clashing about his "selective forgetfulness" and poor school habits. Poor guy! He was really smiling today knowing that finally something is recognized about his condition and help is here!!!  He is now asking about his doing the MP, too!! Two Dark Vaders in the same household???  I now figure that I got this DD to help him!! I got to bed and asleep about midnight.
Day 64, November 3, Day 30 on Mino, Benicar q6h
8:10PM 110/51/70
Miserable leg spasms last night. Bad night's sleep. Awoke and arose at 6:30. Felt tired until about 10:30 or so, then felt good and energetic, and accomplished some good computer work, and a little shopping with nephew in the afternoon. Took 6 mg of mino at 4:30PM. Continued to still feel tired but had energy until about 8:00PM when the herx started. Strong urge to sleep! I think that I will go do that rather than do computer stuff. Night all!
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Fri Nov 5th, 2004 00:31 |
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This is my third time writing this. Excuse me if I am short. The first time was my fault because I hit a wrong key, then I have no idea of what happened the second time.
Day 65, November 4, Day 31 on Mino, Benicar q6h
12:25PM 89/50/90 2:55PM 103/54/76
9:05PM 80/49/81 (Lowest yet, I think, but doing ok)
Awoke at 6:30AM. Arose at around 8ish. Herxed all day. No real hurts, but just felt lousy. Groggy! Felt poisoned. Wanted to sleep, but resisted. Lasted until 7-8ishPM. I can sure feel the difference in a herx from 3 mg to 4.5 mg to 6 mg. I can transverse life at 3 or 4.5 mg of mino, but 6 mg sure slows me down.
First you forget names and then you forget faces. Then, you forget to pull up your zipper, but it's really worse when you forget to pull your zipper down.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Jill
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Posted: Fri Nov 5th, 2004 03:20 |
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Thank you, thank you. That laugh was worth more than 25 benicars! To the zipper gripper from the Moby Grape (aka ski mask)
____________________
CFIDS20yrs, hypothyroid,iritis, neuropathy, hip joints; 9/11/01 25D32, 1,25D74
benicar 9/11/04 @40/6hr; mino start 10/20/04, now@50mg.
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GeorgeinRollaMO
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Posted: Sat Nov 6th, 2004 23:59 |
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Day 66, November 5, Day 32 on mino, Benicar Q6h
1:00PM 98/51/79 4:20PM 100/47/69
Had many leg spasms during the night. Lousy sleep. Went back to sleep off & on until 10:00AMish, then arose. Did not feel good all day. Felt similar to herxing but yet not herxing. Forgot noon Benicar until 2:00PM. Helped!!! Took 6 mg of Mino at 4:10PM. Had good evening, enought to put some new hardware in our second computer. Went to bed/asleep a little before midnight after taking Benicar with a Quercetin.
Day 67, November 6, Day 33 on Mino, Benicar Q6h
7:30PM 90/51/73
Herx today!!! No leg spasms last night. Slept until 10:30AM. Got up and fed self and parrots. DW went having fun with some ladies. I went back to bed/sleep from 1:00PM to almost 5:00PM. I was definitely herxing on the 6 mg that I took yesterday afternoon. Felt groggy, not able to think well, a little dizzy... just feeling lousy. I don't like 6 mg!!!! How can anybody be even starting out at 12.5 mg? much less get up to 100 mg. And I use to take 1500 mg of Flagyl... after some herxing on that, I did not herx any more. What a difference!
No jokes tonight! George
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Mon Nov 8th, 2004 15:21 |
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Day 68, November 7, Day 34 on Mino, Benicar q6h
9:30AM 100/51/66
Awoke at 6:30AM by alarm for Benicar. Felt good. Arose, showered, etc. By noon, I had faded into the herx feeling. Slept for two hours in the afternoon. Awoke feeling fairly good. But then merged into a mild herx feeling all evening. Went to bed/sleep about midnight.
Day 69, November 8, Day 35 on Mino, Benicar q6h
I was asked in a PM... "I have to ask, are you really much worse on 6mg mino compared to just a 'normal' bad day? I'm still trying to figure out what the heck is happening on the super low doses." To which I answered, and someone else might be interested...
Yes, I am definitely much worse when ever I do mino. At the 3.0 mg level, I can just feel the herx. I can still go about my business ok, but I definitely know the herx is there. My herxes give me a "poisoned" feeling and a desire to go to
sleep like I am drugged with a sleeping pill or something -- maybe, a Mickey Finn, though I have never been given such, so cannot really know. I can continue to drive over the 3 mg feeling. When I go to the 4.5 mg level, I definitely feel more herx. It is not easy for me to drive over the feeling. I get some things done, but I do need to take a nap. I just cannot survive without the nap. When I take 6.0 mg, it is to bed for me. I cannot drive over the feeling of needing to go to sleep. My body feels poisoned. I need to sleep! Do not get into my way of going to sleep!! My mind is befuddled. I think, if one can call the process, thinking, through a fog. My entire system does not want to do anything complicated, like putting all of the wires in their proper places in setting up a computer network here at the house (three computers, with a fourth to come soon). I did the 6 mg six times in a row, and got floored like a repeated 1500 mg Flagyl dose did in the past. There seemed to be an accumulative effect with the 6 mg of mino, much like one can imagine filling up a reservoir, and then having an overflow. I did not like the effect, so I went back to the 3 mg level, then did a 4.5 mg level for a couple of times to test my impressions on whether it was a herx reaction. It was! It is subtle, but definitely there. To
test my reaction, I went back to the 6 mg level, and found "him" waiting for me!!! And to further test my reactions, went to a second 6 mg level just two days later on November 5 at 4:10PM. Slept in until 10:30AMish, was up for a couple of hours, then slept about four more hours in the afternoon.
And the herx carried over into yesterday at about the 4.5 mg level, then dissipated towards evening yesterday. I feel "normal" today. I have experimented with taking a Jarrow pure Quercetin, 500 mg, at midnight for the last three (I think three) nights now to see what affect it might have
on my leg muscle spasms at night... with good results. Aussie Barb got me started on this idea. I thank her very much!!! I hope it continues! My day is really improved without the spasms the night before, even if I am herxing. So, in a nutshell, to answer your question... YES!!! I am really worse on 6 mg mino compared to just a 'normal' day.
Trevor is our thinker! He knows sooooo much more than I do! I really believe that he has put together the mechanism of what troubles many of us borreliosis sufferers. It answers best why I have relapsed a number of times, in the face of nuclear amounts of antibiotics. However, I have to believe, that for me, with using his ARB protocol, small doses and taken less often is better. I noticed this for some folks before I started taking mino myself from reading their progress reports. I do not know what is going on really from a technical viewpoint, but I am experiencing the dynamics of it. I do not want a melt down! But patience is needed! In my opinion, the MP is not a two-pills twice a day protocol, that will cure one in two weeks!
Hoping that this thinking does not offend anyone about the MP! I have given up all supplements and hormones, and take Benicar q6h from day one. I want Trevor's MP to work!!! I look to it to save my life, literally, and be hope for others!
Dark Vader........... George
Whether a man winds up with a nest egg, or a goose egg, depends a lot on the kind of chick he marries.
Kate and I celebrated our tenth anniversary yesterday! With me half-herxing. Down from a 6 mg herx to a 4.5 mg herx level.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Aussie Barb
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Posted: Mon Nov 8th, 2004 15:33 |
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Dear George,
Our experiences can be a help to others. I'm pleased the Q is helping you.
I am pleased that you are trusting & reading your body and able to describe it so well for others. thank you.
with the response you are getting, at least you know something IS Happening.
Good for you George, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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GeorgeinRollaMO
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Posted: Tue Nov 9th, 2004 18:09 |
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Day 70, November 9, Day 36 on Mino, Benicar q6h
Just reporting my latest test results drawn on 10/25/04,
125D = 66 (increased from 57, drawn on July 14)
25D = 43 (down from 61, drawn on July 14)
25D is down from not supplementing and watching my D foods.
Is my 125D up because of not dodging light enough?
Or, is because the 25D fed it so well? or both?
Is this high 125D the reason for my herxing so well on 6 mg of mino?
I am not very happy with the results! But they are facts.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Dr Trevor Marshall
Research Team
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Posted: Tue Nov 9th, 2004 18:20 |
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George,
1,25-D varies so much (with a 6 hour half-life) that the two values (57 and 66) are essentially the same, diagnostically. As your 25-D drops there will be more opportunity for the 1,25-D to fall to more normal levels (to the 20s or 30s).
..Trevor..
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GeorgeinRollaMO
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Posted: Tue Nov 9th, 2004 23:34 |
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Thanks, Trevor!!! I was concerned.
George
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Mon Nov 29th, 2004 18:20 |
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Some catching up to do.....
Day 71 on Benicar q6h, Nov 10, Day 37 on Mino
Took 5.0 mg of mino at 11:35PM of previous night. Herxed all day. Herx was not as strong as a 6.0 dose.
Day 72 on Benicar q6h, Nov 11, Day 38 on Mino
Felt good all day. Took 5.5 mg of mino at 4:30PM. Mild herx in late evening.
Day 72 on Benicar q6h, Nov 12, Day 39 on Mino
12:45PM 120/62/63
Mild herxing all day. Have experimented since November 5 with taking Quercetin at midnight with Benicar to see what effect it might help reduce my leg muscle spasms at night -- no effect! Stopped the Quercetin for this purpose.
Day 73 on Benicar q6h, Nov 13, Day 40 on Mino
Felt good all day. Cut the grass on my airplane landing sod strip.
Day 74 on Benicar q6h, Nov 14, Day 41 on Mino
10:50AM 100/56/80
Felt good, even went flying in my little Aeronca L-16 ex-Air Force observation airplane. Took 7.5 mg mino at 10:00PM.
Day 75 on Benicar q6h, Nov 15, Day 42 on Mino
9:10PM 105/48/74
Felt good all day, no feeling of herxing as expected.
Day 76 on Benicar q6h, Nov 16, Day 43 on Mino
8:05PM 120/50/82
Felt good. Got some mildly strenuous work done for about four hours. Ran out of steam by 9:00PM... probably due to sleep deficit. Took 7.5 mg of mino at 10:00PM.
Day 77 on Benicar q6h, Nov 17, Day 44 on Mino
2:35PM 113/56/82
Slept ten and a half hours, but was on a sleep deficit. Felt a bit herxy when first awoke. Then, did ok for the rest of the day. Was tired and sleepy by 8:30PM.
Day 78 on Benicar q6h, Nov 18, Day 45 on Mino
9:30AM 74/53/79 Lowest systolic Bp until this point!
Awoke feeling as though mildly herxing. Off to Kansas City for meeting with Trevor for the 4th EICS Conference. Felt tired throughout the day but did ok. Trevor gave a nice, but unfortunately short because of time restaint imposed upon him, speech at the pre-conference dinner!
Day 79 on Benicar q6h, Nov 19, Day 46 on Mino
7:05AM 87/56/80 10:20PM 104/48/73
EICS Conference day! Busied self with meeting people who might be good for explaining "The Gospel", to, according to Dr. Trevor Marshall, Phd. I feel either of two very good such candidates could be key players for helping to get this excellent information spread in the medical world. Who knows where it will all go? What needed to happen, happened! What needs to happen, shall happen!
Felt like I needed more sleep throughout the day. I slept fairly soundly, considering my leg muscle spasms.
Day 80 on Benicar, Nov 20, Day 47 on Mino
7:40AM 91/47/67
Felt rather good throughout the day. Toured the KC downtown area and Union Station with Trevor. The Union Station is a great restoration project! All should see the railroading splendor of yesteryear! Had many little discussions with Trevor on the side that convinced me of Trevor's desire to help people, and excellance of of his technical knowledge. If only the medical doctors could have just a fraction of his inquisiveness!!!! Took 7.5 mg of mino at 9:00PM.
Day 81 on Benicar, q6h, Nov 21, Day 48 on Mino
Herxed and had hormonal surge all day. Tired, wanted to sleep all day... but didn't.
Day 82 on Benicar, q6h, Nov 22, Day 49 on Mino
Herxed (and had hormonal surge) up until about 4:00PM
Day 83 on Benicar, q6h, Nov 23, Day 50 on Mino
Had a good night sleep last night. Drove 450 miles to Illinois to pick up my Downs Syndrome son from his group home for Thanksgiving. Struggled with staying awake almost all of the drive. Spent the night in a motel.
Day 84 on Benicar, q6h, Nov 24, Day 51 on Mino
Drove the 450 miles return to Rolla, almost half of which was in a moderate snow storm. Fun!!! Traffic crawled at times, but we made it home safety only three hours later than usual. Lots of looking at on coming lights! Couldn't do NoIRs.
Day 85 on Benicar, q6h, Nov 25, Day 52 on Mino
Thanksgiving Day! Slept until 10:30. I dragged around the house like you wouldn't believe. Hormonal surge from the looking at on coming lights!?!?! I had to send my son and wife out to Thanksgiving meal by themselves.  I felt too lousy to want to go out in public. Took 7.5 mg of mino at 7:20PM.
Day 86 on Benicar, q6h, Nov 26, Day 53 on Mino
Herx started around 11:00AM. Moderate herx. Not as much as I had expected.
Day 87 on Benicar, q6h, Nov 27, Day 54 on Mino
1:45PM 106/54/64
Felt good in morning. Took 7.5 mg of mino at 3:50PM. Started to herx at around 5:30 to 6:00PM. Crept up on me rather differently than previous. This seemed to have lots more psychological/psychiatric overtones, rather than physical. Drugged feeling! Hard to concentrate...even talk. Took real effort to do so. Heavy head. Very irritable!!!
Day 88 on Benicar, q6h, Nov 28, Day 55 on Mino
8:15AM 124/54/66
Awoke at 6:00AM by alarm for Benicar. Felt good for an hour or so, but then feeling turned sour. Hard, bad herx!!! It seemed to be a continuance of yesterdays. Glad that I did not take more than 7.5 mg of mino as I was almost inclined to do. Herx started to lift by 8:00PM. This was the hardest herx that I have ever experienced, bar none while on the AP!!!!
Day 89 on Benicar, q6h, Nov 29, Day 56 on Mino
1:15PM 121/53/62
Awoke at 6:30AM by leg spasms. Layed in bed for awhile after taking Benicar. Felt fairly ok up until now at 4:00PM, although I feel slightly "shakey" (physcially nervous -- bodily jumpy). Going to cut back to around 4 or so mg of mino for my next dose, or, just take another day "off" from the mino.
Best to all!!! Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Reenie
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Posted: Mon Nov 29th, 2004 19:25 |
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Hey Dark,
I think you're one of the only ones left still taking the tiny mino doses. I'm sure you've got your reasons for not ramping up, but thought I'd check in and see.
Have you decided to tough out these tiny doses? Maybe your MP Dr prefers it?
Mostly everyone seems to be revisiting the idea of starting at a minimal of 12.5mg and a few that have been struggling w/the tiny doses, that Meg's encouraged to ramp up to 12.5mg and they actually do no worse, if not better.
It's some food for thought, Dark.
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Reenie
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Posted: Tue Nov 30th, 2004 02:45 |
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Hi Dark,
Here's the dosing instructions for increasing your dose of mino and an explanation why this may give you a more comfortable and tolerable herx.
WHY TO START AT A HIGHER MINO DOSE
The research team has been having a lot of discussions about the best starting dose of minocycline. We've concluded that because minocycline works best as the concentration decays down to zero, it is better to start dosing at a minimum of 12.5mg to avoid intolerable Herxheimer reactions. 25mg has been the recommended starting dose and sarcies have done well on that. We have learned that the CFS patients who reported adverse reactions on this starting dose were not avoiding sunlight. We've concluded that their symptoms were not due to a Herxheimer reaction but caused by a flare in 1,25-D due to sun exposure.
Taking tiny doses of minocycline also keeps the concentration down to the level where it works the best and may account for reports of continued difficulties with tiny doses of minocycline. Anecdotal reports indicate that patients who are diligent about avoiding sunlight/bright lights tolerate the waxing and waning of Herx symptoms best at doses of 25 mg and higher.
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GeorgeinRollaMO
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Posted: Wed Dec 1st, 2004 02:43 |
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Reenie,
You may think that I am just trying to be ornery, but I am not! But I do desire to be logical.
You said in your Reply to my PR above... "Taking tiny doses of minocycline also keeps the concentration down to the level where it works the best and may account for reports of continued difficulties with tiny doses of minocycline."
Isn't working the BEST what we really want?
May I suggest that one visualize taking the mino as a bell curve of some shape, with the amount of mino on the vertical leg, and time on the horizontal leg. When one takes the mino, one's level of mino starts up the "bell", and for an amount, as you say, the tiny amount "works the best". Then, there is a period of time in which the additional amount does not work the best. In fact, it may not be working much if at all for some reason. As time goes on, and one finds oneself on the down side of the bell, near the bottom, when the amount approaches the unspecified "tiny" amount, it again "works the best".
This does correspond with what people have reported. A few hours after taking mino, they herx. Then, the following day (or some such time), they herx again, usually with a stronger herx. May I suggest that they herx stronger the second time because some areas of the body have the smaller amounts of mino, and the killing of the bacteria continues, with the cumulative amount of toxin from the died bacteria being greater the second time than the first. There is a period of no mino in between the end of one bell curve and the beginning of the next, so the amount of toxin dissipates, and no herx is felt.
By "working the best", I should think that means it is killing the greatest number of bacteria, which is what I would think we should be wanting to happen for two reasons. One, if we stay near this "works the best" amount, we might kill off the greatest number of bacteria in the smallest chronological time. And, two, we would not be putting as much poison in our bodies. All antiobiotics are POISONs!!! They will cause the organs, particularly the kidney (?), to fail. Our kidneys are already loaded with Benicar, why load them up with more antibiotics than is necessary? I know of one man my age that was killed by his doctor prescribing him NINE drugs.... his kidney failed! Each person's kidneys can tolerate just so much poison. Why take them to that brink when it is not necessary?
I would think that dosing the mino as close as possible to the "best" level, just below as tolerable as possible, to the level as to "where it works the best", (and perhaps keeping it there as much as possible), would be the thing to do.
I agree that this may need some fine tuning and very close attention to what a body is saying to its owner! But is it not possible? At least for some folks who can be taught the trick. Like riding a bike on only its rear wheels, or, catching a wave with a surf board and going forever in the tunnel, or, stretching a glide of an aircraft that weighs 600,000 pounds so that one can reduce the throttle to complete idle at 130 miles from the airport and not have to add power until five hundred feet from the ground (to make the approach legal) by staying at the correct speed all of the way down, minimizing drag.
I agree wholeheartedly with you and Meg that is is extremely important to STAY AWAY FROM ALL LIGHT. Not doing so compounds the bad affects on the body. I realize now just what has been happening by my not "cave-dwelling" as I did in the beginning. Family circumstances brought this upon me, and I have to correct the circumstances, and start "cave-dwelling" with a vengance. There is herxing, and there is hormone flare. When one gets both at once, look out! My worst herx ever reported above was probably just this two-fer affect.
May I suggest that a welders's helmet with a torch-cutting vision plate be the thing to wear while doing a lot of looking at computer monitor screen. While the NoIRs block the light from the eyes, the light is still hitting the facial skin. Many hours could produce much 125D!
Day 90 on Benicar, q6h, Nov 30, Day 57 on Mino
No herx, but hormone flare continued today. Must become more anti-social!!!! I think I will get my welder's helmet out, fashion it with the correct vision plate, just sit in my darkened office, and write a book!
Dark Vader
When a man marries a woman, they become one. The trouble starts when they try to decide which one!
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Paula Carnes
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Posted: Wed Dec 1st, 2004 16:23 |
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George you wrote an amazing summary. I was impressed. You said,
"Isn't working the BEST what we really want?"
I would agree, but within the limits of the pain and misery one can tolerate. The trick is, of course, to get the most die-off we can stand and still be able to continue the protocol which takes many months to years.
I know I am one of those who is not interested in learning to ride a bike on the back wheel. I just keep taking the medicine and ignore the herxing unless it becomes unbearable.
Paula Carnes
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GeorgeinRollaMO
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Posted: Thu Dec 2nd, 2004 02:08 |
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Thank you, Paula, for your nice comment about my "summary". 
Yep, I wholeheartedly agree.... keep just below the point of causing that "bad" or intolerable herx. Keep away from that type of herx as much as possible!
Day 91 on Benicar, q6h, Dec 1, Day 58 on MIno
Had hormone flare most of today. My eyes really burn to let me know. Had to drive two hours one-way to our LLMD for DW. Even though I am covered up good, I still take in way too much light on my face and hands when I go out, I realize now.
Took 6.0 mg of mino at 11:50PM.
Good herxes to all! George
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Reenie
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Posted: Thu Dec 2nd, 2004 16:10 |
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George,
I'm so glad you're getting a clear understanding of what's going on.
Just remember, we don't want to kill the host, just the bugs.  
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GeorgeinRollaMO
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Posted: Fri Dec 17th, 2004 01:38 |
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Day 92 on Benicar, q6h, Dec 2, Day 58 since start of Mino
12:25AM 109/56/57
Herxed and had hormone flare (because of drive yesterday?). Was another "Wow!" one. But not as bad as the previous "Wow" one. Maybe, because of the lessor mino... only 6 mg instead of 7.5 mg?
Day 93 on Benicar, q6h, Dec 3, Day 59 since start of Mino
11:25AM 103/54/66
Had hormone flare all day! Had to work with lights on in house all day...paperwork. Did not feel good and eyes burned all day. Eyes burning is my best clue that what I feel is a hormone flare.
Day 94 on Benicar, q6h, Dec 4, Day 60 since start of Mino
4.0 mg of Mino at 10:05PM
11:15PM 127/59/62
Had hormone flare all day. Eyes burned.
Day 95 on Benicar, q6h, Dec 5, Day 61 since start of Mino
Had hormone flare most of day. Eyes burned.
Day 96 on Benicar, q6h, Dec 6, Day 62 since start of Mino
Still looking down at the grass.... alive!
Day 97 on Benicar, q6h, Dec 7, Day 63 since start of Mino
Drove 14 hours today taking Down's Syndrome son back to group home in Illinois and return. I seemed to do OK all day.
Day 98 on Benicar, q6h, Dec 8, Day 64 since start of Mino
BIG!!!! Hormone flare most of the day! Felt exceptionally lousy!!!
Day 99 on Benicar, q6h, Dec 9, Day 65 since start of Mino
Had to drive two hours to St. Louis and two hours return for some business. Hormone flare! Felt Lousy!
Day 100 on Benicar, q6h, Dec 10, Day 66 since start of Mino
Getting over hormone flare toward evening. Slept until noon.
Day 101 on Benicar, q6h, Dec 11, Day 67 since start of Mino
Slept until noonish. Felt better for about four hours. Felt like I had some hormone flare starting around three-ish. Have not "caved" well enough. Too much going on in life.
Day 102 on Benicar, q6h, Dec 12, Day 68 since start of Mino
Spent four hours out of doors taking care of chores at ranch and home preparing for below freezing weather coming.
Day 103 on Benicar, q6h, Dec 13, Day 69 since start of Mino
Hormone flared all day today, worse in morning. Took nap around supper. Did better job of "cave dwelling" today. Maybe, I can get back to the business of the MP, instead of so many other things, and "cave dwell".
Day 104 on Benicar, q6h, Dec 14, Day 70 since start of Mino
3:25PM 121/60/58 Took 6.25 mg mino at 3:15PM
Felt as though hormone flare had passed. Am turning my attention to "cave dwelling" again.
Day 105 on Benicar, q6h, Dec 15, Day 71 since start of Mino
10:00PM 104/51/75
Slept until 10:30AM. Felt a bit different... like maybe I was mildly herxing in the morning. My herxing is definitely different than my hormone flaring. My hormone flaring besides making me feel lousy, makes me VERY irritable, and my eyes burn. Whereas, herxing will make me feel lousy, but there is a suble difference in the feel, and I do not get irritable like with the flare, but I do want to go to sleep. Had to sit in a dental chair for some time due to a capped tooth that had broken off at the gumline... much overhead bright fluorescent lighting. Then had to go to ranch for some more chores for winter. We keep llamas. Felt punk for the rest of the day, but not real bad as during the previous hormone flares.
Day 106 on Benicar, q6h, Dec 16, Day 72 since start of Mino
5:55PM 107/60/59 Took 6.25 mg mino at 3:40PM
Slept until noon. Had a good day!!! No hormone flare. Kept out of light.
Have come to the decision, as mentioned by others on this BB, that I have to stay in a dark environment. When I do not, my 125D hormone goes bananas.... increases. I really "caved dwelled" from shortly after learning about the MP in June 04 until around the beginning of October when I could no longer control my light exposure as rigidly due to circumstances. I am back on track!!! I hope! Every thing else will be put on hold! I hope no one dies in my family.
I have noticed that when I read my computer monitor for any good length of time, my eyes burn, even wearing NoIRs. When I wear strong NoIRs, I get closer to the screen to be able to read what is said. No matter the strength of my NoIRs, the skin of my face still gets a lot of light. 125D hormone must be being produced in more quantity than I would like. Back on Dec 1, I joked about getting my welding helmet out. I gave that more thought, and decided that might not be such a bad idea. It would protect my eyes AND my facial skin. I did some checking, and came up with Shade #5 (they come #2 through #14) as being the glass face plate that I need. So, folks, you now see me in my "Dark Vader" helmet to do computer monitor reading. I think it works! See my picture. Can't you recognize me?
The past two months have been very trying for me with doing the MP. Controlling the acquisition of light is very important to turn the immune system on against those bacteria! I really believe that Trevor has made the discovery of the century to getting well. And I most definitely want to be "cured" not just feel better for a spell.
The best to all! Dark Vader
Last edited on Fri Dec 17th, 2004 01:44 by GeorgeinRollaMO
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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