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European Autoimmunity Research Charity is formed
 Moderated by: Prof Trevor Marshall Page:    1  2  3  Next Page Last Page  
 

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Prof Trevor Marshall
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 Posted: Mon Oct 11th, 2010 12:08

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On Saturday 9th October, I was honored to attend a meeting in Heidelberg where the "Unabhängige Gesellschaft zur Erforschung von Autoimmunerkrankungen" (Society for independent research of Autoimmune disease) was formed.

I was amazed that the meeting was held at the Heidelberg Print Media Academy. As many of you know I spent many years in the print-media industry, making numerous trips to Heidelberg to visit Linotype AG, now part of Heidelberg AG, the huge printing press company (whose head office is directly behind the stylish academy building). 




The incorporation (business) meeting was well attended, by German physicians as well as patients.





And here is the elected executive (Ron, Alex, Verena)






I will leave it to you members to annotate who is in the photos, etc, as I am in Oslo prepapring for tomorrow's meetings and presentations (and I am busy).
:) :)

My personal thanks go out to all who have made this huge step in the history of the MP, our first formal step into Europe...



ps: an interesting point for discussion is how IngeD was indirectly (at least partly) responsible for all of this happening..

Last edited on Tue Oct 12th, 2010 00:28 by Prof Trevor Marshall

Prof Trevor Marshall
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 Posted: Mon Oct 11th, 2010 12:24

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I flew into Stockholm (via New York) on Wednesday morning. We were 75 minutes late getting out of New York, as a lady with peanut allergy had to be forcibly removed form the plane, and her bags removed too. Sigh.. I had a tight connection to the train north to Lottis at Sundsvall, and resigned myself to missing it... We arrived only 30 minutes late, giving me 30 minutes to clear immigration, and customs, and run the length of the terminal to reach the underground railway station. I could hardly believe it when I finally got to the platform, with time to spare, and with the signs clearly telling me that the correct train was on its way:



The journey was quick, just 3 hours, as the X2000 'tilting train' averages 90mph over the whole journey. Lottis picked me up from the station in Sundsvall. I met with a very engaging physician at Lottis' apartment, and with a group of members from the Sundsvall area. Not all of them got into this photo :)




Back in Stockholm on Thursday, Susanne had put together a large group of professionals and patients (on and not-yet-on the MP) at the Immanuelskyrkan for a meeting and presentation. Thanks to everybody who made this event so memorable for me.


Last edited on Wed Jun 15th, 2011 15:33 by Prof Trevor Marshall

Prof Trevor Marshall
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 Posted: Mon Oct 11th, 2010 12:32

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On Sunday morning I flew to Bergen, and met with Geir Flatabo and Andreas later that evening. Today we had a lengthy meeting at the Bergen Pediatric Hospital with both physicians (including one who flew down from Trondheim), members and visitors. Bane was visiting his friend in Oslo, so he was able to travel to Bergen to be with us too :)

Here is only a small portion of the group, those of us who were still chatting 5 hours later, when Geir took me to the airport :)

Now I am in Oslo, meeting some members tomorrow morning and 4-Kliniken in the evening.





No chronicle of Bergen is complete without the obligatory photo of the World Heritage buildings on the old wharf:


Alejandro
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 Posted: Mon Oct 11th, 2010 23:37

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I would like to thank you, Trevor, for your support during this remarkable day. For the new society it is an honour that you are also member of the scientific advisory board.

The cooperation with the ARF is explicitely mentioned in the founders acta. We are looking forward to a productive cooperation in order to help future studies in this field and also provide orientation and guidance for MP patients in Europe.

Here a brief summary from my side of this day:

We started exactly on 11.00 as planned. We have been positively suprised to have more members as expected, we have significantly more then the legally required number of 7. We counted also with the support our Dutch colleagues, who travelled specially for that event (many thanks to all of you! we had great time together)

We have been in the lucky position to have Verena leading the founding event. Her expertise in legal matters and her moderation of the event was decisive to go over all (some times complicated) legal and formal stuff exactly on time. She has been the "soul" of this day and I would like to thank her for her initiative and support of this endeavour from the idea till the foundation event.

First topic for discussion was the name of the new society. On the one side we agreed that being independent is a crucial goal of the new society. On the other side we would like to have an international orientation. Thus we removed any national reference of the society´s name, which is now



Unabhängige Gesellschaft zur Erforschung von Autoimmunerkrankungen

(Society for independent research of Autoimmune disease)


The other details could be discussed and agreed on time. We have been ready exactly at 13:00 as scheduled.


The second part of the event was Ron and Trevors Presentation.

We counted with MP-Patients coming from all corners of Germany, MP Doctors and interested people who took this unique opportunity to have Trevor in Germany.

The first presentation of the date was given by Ron, who gave an excellent overview of the new Chapter of the book "Metagenomics of the Human Body". Very interesting summary and very well illustrated. The 2nd part was Trevors Presentation, which was a real "Highlight" of the complete day. Everybody was quite excited to have Dr. Marshalls "live" in Germany.

The talk has been very interesting (I hope we will have it on Video soon ). Additionally, Verena had prepared a translation of Trevors presentation into German as a handout. We also distributed a report from Titta (thank you!) about her positive experiences with the MP.

After the talk we spent about 2 hours just with question and answers to Trevor, where we went to very interesting aspects of research and treatment. The audience has been very active and interested and asked tons of questions.

We closed the public part at 17:00 and went to the evening event on a nice Bar very close to the print media where interesting conversations continued till late on the night with nice food, german beer and wine :)

Alex

Last edited on Tue Oct 12th, 2010 04:25 by Alejandro



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Joyful
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 Posted: Tue Oct 12th, 2010 00:06

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Thank you for the excellent description of this event Alex... may your success continue!



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titta
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 Posted: Tue Oct 12th, 2010 03:54

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 Thank you all for your efforts and time!

Titta



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Lottis
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 Posted: Tue Oct 12th, 2010 22:12

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Yes, I say the same! :) I am very grateful.

Last edited on Tue Oct 12th, 2010 22:15 by Lottis



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Ron
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 Posted: Wed Oct 13th, 2010 10:33

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Thanks to all those positive people who attended last Saturday's incorporation of the new European Society and made this a big success.

Special thanks to Verena who not only instigated this but also did a superb job in organizing everything!

Thank you Alex for the excellent summary!

It was great to see so many people including several physicians attending already in the morning, even more in the afternoon. We now already have three MD's and a very clever biomedical researcher in the Scientific Advisory Committee. :D



Here are Dr. Unmüssig, Prof. Dr. Marshall and Dr. Jansen-Rosseck in the picture. The third physician that joined the committee is Dr. Götze-Pelka. She could not be there with us in Heidelberg.

It was a great weekend in a lovely German town. And that story about IngeD's involvement... very special indeed! :cool:

Ron

Verena
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 Posted: Wed Oct 13th, 2010 10:38

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I am grateful as well. I have never before moderated a meeting, where the groupmembers worked so disciplined and concentrated.

I think, we managed to create a good team; although the members of the board are living in the Netherlands, Westgermany and Southgermany, we managed to have our first board-meeting this evening, using skype.

Thanks to all, who made the meeting possible,

Verena




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Limburg
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 Posted: Wed Oct 13th, 2010 13:31

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It was a very well organised and interesting meeting in Heidelberg, I'm impressed when I follow Dr. Marshalls efforts travelling trough all this countries,meeting all this people and telling the story again and again....

Alex, Verena and Ron: You did and will do a great job!  I wish you and all of us lots of succes with the new foundation!

For all the MD's that joined and make themselves usable for the foundation: Chapeau!

We'll meet again........:D

Last edited on Wed Oct 13th, 2010 13:37 by Limburg



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titta
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 Posted: Wed Oct 13th, 2010 13:38

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and now, please tell about the story of this foundation and IngeD !

Titta



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Verena
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 Posted: Thu Oct 14th, 2010 03:06

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I'll put it in my thread in phase 2 :-)



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titta
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 Posted: Tue Oct 19th, 2010 08:41

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I hope you all have recreated by now.
So, I dare to ask:
Will we be able to watch videos about Ron's presentation about the book 'Metagenomics of the Human Body'
and of course Dr. Marshall's : Contiunal Evolution ot the MP into a Mainstream Therapy.

Thank you,
Titta



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Prof Trevor Marshall
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 Posted: Tue Oct 19th, 2010 09:37

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I am working on the video of my Heidelberg presentation whenever I get a spare moment. Which isn't very often, unfortunately. But it will be finished this week, I think.
 

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 Posted: Wed Oct 20th, 2010 13:32

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Wunderbar! This is fantastic news. Congratulations!



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marion villa
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 Posted: Thu Oct 21st, 2010 13:11

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congratulations, Dr M!!!!

come here in the future too!



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Prof Trevor Marshall
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 Posted: Fri Oct 22nd, 2010 00:50

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The video of my presentation in Oslo at 4M-Klinikken is now online at:

http://www.youtube.com/watch?v=MRx8eHBufHQ
 
 

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 Posted: Fri Oct 22nd, 2010 22:42

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Thanks for all you do Trevor! I'd love to be able to watch more Q&A. Great video as always.



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Marysue
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 Posted: Fri Oct 22nd, 2010 23:15

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Thanks, Dr. Marshall, for another great presentation!

I just finished watching it. I especially appreciate that you had more time to present with this group, so we were able to get a little more details on each slide.

Cheers to you for continuing to share your research and understanding. I can hardly wait to see what new discoveries about the microbiome and all their tiny, little activities (with huge ramifications) will unfold in the coming months and years.
:cool:
Marysue



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Prof Trevor Marshall
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 Posted: Sat Oct 23rd, 2010 11:26

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cbay wrote: Thanks for all you do Trevor! I'd love to be able to watch more Q&A
It is often hard to put in more Q&A with physician-groups, as the questions often drift towards discussion of patients and patient-policy, which would breach confidence if they were put on YouTube. The second question in Oslo fell into this category. Sorry about that.
 


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