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Please take a look at Amy's new blog
 Moderated by: Prof Trevor Marshall Page:    1  2  Next Page Last Page  
 

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Prof Trevor Marshall
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 Posted: Fri Nov 6th, 2015 10:01

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Amy has started a wonderful new blog, 'Microbe Minded'

http://microbeminded.com/

She is again showing her amazing ability to explain Science in terms we all can understand. She has just put up a new discussion on "Microbial Signalling Molecules Drive Cancer Development,"  and already you will also find these other issues explained there:and she will be expanding these topic week by week.

Thanks, Amy, for all you are doing to help us,
Trevor

paulalbert
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 Posted: Fri Nov 6th, 2015 14:21

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Hi Trevor,

Thanks so much for the announcement! This is Amy but I accidentally logged in as Paul.

I'm very excited to write upcoming posts. In the coming weeks I'll be talking about microbes in the brain, the impact of microbes on the immune response, and the microbiome in obesity and diabetes, among other topics.

Just so people know, if you click on the "recent posts" section, you can sign up to be alerted each time I publish a new article.

Best,

Amy



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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
k
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 Posted: Sat Nov 7th, 2015 00:06

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Great!  Have had a quick look but will have a more thorough look later.

May are ask Amy, are you still taking Benicar?

If not, when did you stop?

You appear to have returned to a very full life.  Do you think you have any continuing restrictions?

(I came to the MP for my CFS. I have had a lot of improvement on the MP.  But after 8 years on the MP I still don't seem to be able to exercise, and also have A LOT of food sensitivities, and ongoing anxiety and depression issues).

regards
K



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 Posted: Sat Nov 7th, 2015 08:51

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Great blog Amy:cool::cool::cool:



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Ames
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 Posted: Thu Nov 12th, 2015 19:11

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Nyima - thank you! I look forward to writing many more articles

k - I stopped Benicar after almost ten years, largely to see how I would feel off it. I am going to continue the break for a while. I did improve on the MP, but I still have symptoms. I started the MP when I was bedridden and am much more functional now - but not functional to a point where I can work outside the house every day. I look forward to seeing how Trevor's new insights about electrosmog and EMF might eventually help me adapt my lifestyle in a manner that could help me heal even more.

I also put a new post up on Microbe Minded today: The newly discovered lymphatic system in the brain, and a possible brain microbiome"

http://microbeminded.com/2015/11/11/the-newly-discovered-lymphatic-system-in-the-brain-and-evidence-of-a-brain-microbiome/

I recorded a short audio file at the end of the post with extra insights on the topic.

Best,
Amy



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Kas
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 Posted: Fri Nov 13th, 2015 01:48

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Thanks for all your work here, Amy.



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k
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 Posted: Sat Nov 14th, 2015 04:34

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Thank you Amy for providing a detailed update.  Much appreciated.  I'm sorry to hear you're not able to work outside the house every day yet.

I also hope the EMF discoveries enable us to heal further.

Thanks.

Regards
K



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 Posted: Sat Nov 28th, 2015 10:47

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Amy's latest post (Disease-induced solitary confinement and the gut microbiome) really hit home with me. Prior to the MP, I could see myself slowly spiraling downward and likely ending up like George Bell - so sad. It's amazing how much of our behavior (probably both good and bad) is influenced by our microbiome.

Great blog Amy!


Admin edit to add link to Amy's post. :)



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MP Oct'10 (Break: June '16 - Aug '16) | CFS '87| Brain-fog, IBS, depression, inflammation, nerve pain| last 25D= 4 ng/ml Jan '16. Progress Thread
k
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 Posted: Sat Nov 28th, 2015 22:56

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Yup me too.

My psychologist recently said that although she thought CFS was caused by a virus, CFS seemed to mostly effect people who are 'Type A' people who don't rest when they're sick. And articles still get published in the media here doubting the existence of CFS.

Wrt mental illness, Cognitive Behavioural Therapy seems to rely on once you have been shown the "errors" in your thinking, you will be on your way to a cure. I've done heaps of CBT. I know the errors in my thinking - I can recite them to anyone. But it doesn't help because knowing them doesn't enable my brain/mind to BELIEVE that 'alternative' 'rational' thought over the error laden thought in my head.

I don't know if CBT is only used for anxiety and depression of if it's used for things like schizophrenia as well. But i increasingly feel depression and anxiety is more like some of the other mental illness, not something that can be 'corrected' by CBT. You simply have an alternate reality which no amount of 'reasoning' can penetrate.

k



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 Posted: Sun Nov 29th, 2015 03:36

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Hi K,

I too am a fan of CBT. I have read and studied all of David Burns' books (one of the best CBT authors IMHO). But I think the thing that therapists miss, and the thing that philosophers miss, is that the biological state of the mind plays a far more important role in cognition than ones ability to form rational thoughts. You can be very rational and still exhibit antisocial behavior. You can be very rational and still exhibit self-destructive behavior. Like you said, when the mind is operating in an 'alternative reality' of a microbiome affected mind, the output can often be some very disturbing behavior. When I feel like getting really depressed:?, I turn on the news and and take a glimpse at the state of our culture. With all the irrational and messed up people out there doing harm to themselves and others, I often wonder what role the microbiome has on the state of our society. I think it's far more than anyone realizes.

Last edited on Sun Nov 29th, 2015 03:55 by davidmac



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Joyful
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 Posted: Tue Jul 19th, 2016 18:42

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Very well written addition to Amy's blog here:
   The power of patient reported feedback :)



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 Posted: Thu Aug 4th, 2016 12:39

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Amy, I am sure that many of us on the MP have had a similar process wherein we are nonfunctional to one degree or another and the MP removes the barriers and we become more functional albeit not completely free.
I have thought of taking a break as well from the Benicar, and some doctors even suggest it, especially since some symptoms seem to wane and then get worse sometimes, however I have found that these things seem to be cyclical as we eradicate the disease on different levels in our complex physiology. More importantly, I've discovered that like any other malady, when we start feeling better, we tend not to be as strict in our treatment and we incur more damage thus creating more symptoms, leading to the cyclical nature of the pathology.
I have decided that I will need to stay on Benicar until this disease is no longer part of me. Part of this is because I am so active and where I work is constant intense light as well as frequent RF. Benicar is the only internal light blocking measure I have and I wouldn't doubt that it also helps block some RF effects.
I have gotten somewhat worse as far as IP shows where I have a lot more granulomas and lymph swelling than a year ago. No doubt, this is due to the increased light exposure in spite of measures I have taken and what the company has done. It's still a lot more light than I had before when I was progressing better.
Its a personal decision of course but I would not lightly (little joke there) toss away the only internal light blocking item you have in your disease fighting tool box. Hoping we all get healthy again.
Roy



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Prof Trevor Marshall
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 Posted: Thu Aug 4th, 2016 14:33

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Roy, looks like you have things under control, except for the RF. Have you asked for a Sniffer yet? Every member needs to get one, IMO, to help you distinguish between 'sunlight' symptoms and 'microwave' symptoms, as they are hard to distinguish unless you have data from the sniffer on your microwave environment :) You might find light is less of a problem than you thought :)

I found in my own case that my lungs didn't start to improve until I got control of my RF environment..

bookdad
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 Posted: Wed Aug 10th, 2016 19:13

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Dr Marshall,
Yes I did get the sniffer and the hat. I used them extensively on the trip overseas a couple weeks back and found very little RF where I was staying. it only spiked a couple of times and stayed green the rest of the time. This may be due to the EU new rules on electrosmog or maybe because the Europeans are not as dependent on RF devices as we are.

At home I've found that the RF is bad around the microwave (whoda guessed), the TV, the IPad when sending info, the cell also when sending, and especially around my wireless router.

As an electronics engineer you know about how amplitude drops per the inverse square law with distance. The router being in another room doesn't cause the sniffer to spike while measuring in the bedroom (YAY!).

So here are the measures I'm taking with regard to RF exposure: moving my cell and I pad to another room for charging overnight instead of my night stand. Before bed I am turning off and unplugging the tv, the TV tuner box, the wireless sound bar and sub woofer, the computers, printer and router. Did I miss anything? My sweetheart thinks it's to save money which it does, and that's okay :)



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bookdad
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 Posted: Wed Aug 10th, 2016 19:14

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by the way, thank you so much for both of those items!!!!:dude:



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Prof Trevor Marshall
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 Posted: Wed Aug 10th, 2016 20:19

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I wear a sniffer around my neck while travelling and shopping. I turn it on momentarily if I am interested in any particular environment. Airport security has never questioned it, especially as they are more interested in why their scanners show my body as totally reflective :) But I have never had to take any shielding clothing off after they look at it during a pat-down.

Bookdad, I am a little concerned that you might think the lights on a Sniffer are important. The lights are not important. The green light merely shows the power is on. The RED light indicates "Evacuate" and, if it ever illuminates, it means the signal is so strong you need to get out of that environment at once.

Just like a Geiger counter, the ticking sound emitted by the sniffer is the key. For there to be little danger the sniffer needs to be totally silent. Once it starts ticking there is RF around you.

On the LOW sensitivity range it should be totally silent as you go about your work, on the high sensitivity it should be totally silent during sleep. Some of us get benefit from our sleeping environments being even quieter, by some 30dB for the most sensitive members. This can only be achieved with special clothing, a 'sleeping tent', or some other type of Faraday cage.

The ticking does increase as the RF fields become stronger, and each person will have his/her own limits of tolerance, but once it starts making a noise on LOW you need to become concerned.


note: This is a FYI duplicate of a post I made in Bookdad's progress report.

bookdad
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 Posted: Wed Aug 10th, 2016 20:38

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yes. I figured that out but thought the low intervals of ticking were okay, and I started looking at the lights (they distract me for some reason- the light sensitivity maybe hahaha) I stand corrected. will review the environment again.
I wonder how my employers will react when I bring it to work? As you are probably aware I work in a microwave rich environment and I am curious to see the results, but personal RF devices are prohibited where I work.. Ill keep you posted.



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 Posted: Wed Jan 17th, 2018 17:37

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I really appreciated the January 2018 post, and shared the link on social media site my family posts on.

We might all share these info links on social media to help bridge medical consumer and provider dialogs to immune competence "next level" ideas over time.

Thank you Amy.



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 Posted: Wed Jan 24th, 2018 01:09

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Reposting link to Amy's blog: http://microbeminded.com/



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 Posted: Wed Jan 24th, 2018 14:06

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I am one of her biggest fans!!!!!!!!!!!!!!!!

Minski2



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