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ARF's 2006 Conference - LAX on 17/18 June
 Moderated by: Prof Trevor Marshall Page:  First Page Previous Page  ...  5  6  7  8  9  10  11  Next Page Last Page  
 

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sue from Indy
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 Posted: Tue Jun 20th, 2006 07:06

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Hi everyone,

We finally made it home last night - 3hours late - due to a storm and a diversion to Chicago. 

The conference was great.  Getting to meet the other MPers that are on line was so much like meeting old friends.  I also got to meet some that are considering or getting ready to start the MP.  They were apprehensive, but after hearing the conference, most were ready to begin now.  It is so important and helpful to others that we who are on the protocol and those who are farther along relate our experiences.  This came out in the panel discussions.  I saw everyone nodding their heads as the panelists gave their stories with their symptoms. 

The science that was presented was unbelievable.  I can't wait for the DVDs so I can hear it again and have it sink in. 

The best part of the conference was getting to meet Dr. Marshall and Liz (very sweet lady).  Although he was very busy with set up, it was great to be able to thank him in person.

Looking forward to next year's conference,

Keeping On, Sue



____________________
Sarcoidosis/skin, lungs, joints, MPh1 7/05, Ph2 11/05, Mod Ph2 8/06, Ph312/06, NoIRs, 25D =8 Oct08, 25D = >4 Mar10
aeda007
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Joined: Thu Apr 6th, 2006
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 Posted: Tue Jun 20th, 2006 07:12

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It's great to hear all the replys from those that attended.  I'm really jazzed to get started.

At the conference their was a very nice lady selling the Noirs.  Can someone send me a personal message on who that was?  I need to contact her.  Thanks.


-Allen



____________________
Dx=Diabetes 2/94 Sarc 12/96,Meds Actos Glyburide Glucophage. D test-4/17/06. 25D=6, 125,D=37, D Test-7/31/06 25D=5, 125,D=52 Wearing noirs. Started MP 6/29/2006 Benicar only. 7/14/2006 Started Mino.
Julia
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 Posted: Tue Jun 20th, 2006 07:48

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Frans wrote
you should buy the DVDs as soon as they are out, which will be in about 2 months
TWO MONTHS!!! :(:(:(:(:(:(:(:(:(:(:(:(

Last edited on Tue Jun 20th, 2006 07:49 by Julia

Julia
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 Posted: Tue Jun 20th, 2006 08:06

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Thanks to all who are posting with their view of the conference, it's really appreciated by us left-behinds.

Could someone very kindly fill us in on a few questions? 
1. How many attended?
2. How many were MPers, and how many were doctors?
3. Did anyone from the media turn up?
4. And who was this mystery celebrity, and why is it such a mystery?

ARF ARF!! 

Prof Trevor Marshall
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 Posted: Tue Jun 20th, 2006 08:33

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Allen,
Reenie was looking after the NoIRs and the sales table. Didn't she do a wonderful job?

Julia,
The celebrity who attended is entitled to the same amount of confidentiality, if not more, as every other attendee. In any case, it was the celebrity's family that was seeking help and information.

There were 120 seats in the main ballroom, and folks were standing at the back, from time to time.

There were fewer physicians present this year, but this is not a reflection of reduced confidence in the MP but of an increased comfort level.

To All:
Thank you for making the conference such a huge success. And yes, the DVDs will be available in about 2 months. There is a lot of work involved in editing and digitizing the presentations. Karen will be very busy keeping to that schedule:)

Last edited on Tue Jun 20th, 2006 08:40 by Prof Trevor Marshall

aeda007
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 Posted: Tue Jun 20th, 2006 08:55

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Dr. Marshall

Reenie did a great job!  Thanks to her and you for all the knowledge that I gained at the conference!

-Allen



____________________
Dx=Diabetes 2/94 Sarc 12/96,Meds Actos Glyburide Glucophage. D test-4/17/06. 25D=6, 125,D=37, D Test-7/31/06 25D=5, 125,D=52 Wearing noirs. Started MP 6/29/2006 Benicar only. 7/14/2006 Started Mino.
jrfoutin
Research Team


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 Posted: Tue Jun 20th, 2006 09:28

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I so agree that the conference was a huge success. For someone who was investigating or didn't understand the science behind the MP, the evidence presented at this conference was incredible.

I'm glad there were many who were ill, newly diagnosed, or researching. They really should have enjoyed the session on what degree of healing is possible. I know I've read many posts for those presenting, but the impact of seeing and hearing people describe their "before" and their response to the MP was really quite compelling.

I hadn't intended to be so hard to recognize, nor did I even think about it really until I talked to Belinda and she didn't recognize me. As the conference progressed, the overwhelming response to my avatar and "now self" was even a shock to me. I guess this certainly must attest to science. I knew getting well could change how people looked but I failed to look at myself to see the gradual changes happening to me, too, even though I was telling people I felt so much better. Silly me! 

Still, I spoke with one person who had lost a daughter to Sarcoidosis. She said her daughter had no outward visible evidence that indicated she was sick in any way. The disease just went to critical internal organs and took her quickly at a very young age. I think that is important to understand as well because sometimes Th1 is hard to see "on the outside" even if one is critically ill.



____________________
Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
jillian
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 Posted: Tue Jun 20th, 2006 09:37

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Hi Everyone,

Altough I was Herxing very heavily during the Conference, it was THE most wonderful and humbling privilege to be amongst such a great group of people. Thank you ALL!

One of the least familiar subjects for me was John's presentation on microscopes (I want one!). I learned so much. The optics and the physics behind them was fascinating... At least now I'll have a clue, and even more awe, for what it takes to 'get' those tiny little buggies in slides and pics for us to see.

In addition to what everyone else stated about the Conference, I must tell you it was wonderful to honestly answer the question 'How are you?' each time it was asked!!!!

'til later,
Jillian



____________________
PulSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-Oct08. P2 Nov08-Apr09. Temporary MP break May09-Dec09.
Reenie
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 Posted: Tue Jun 20th, 2006 10:41

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I want to personally thank all of the volunteers that helped out at the "sales table."  This was a BIG job and I couldn't do it alone. 

I wasn't at all surprised that all of the volunteers did so cheerfully and even while herxing (thanks Jillian) and in between their own presenting on panel discussions. (thanks Freddie and Sue)

I want to say thank you to Sunflower, Sharon and Donna for answering questions and helping out at the table. (I hope I didn't miss anyone!)  Janet had created and donated the laminated Phase 1 and 2/3 instruction sheets that were offered at the table. 

All of the MP items were offered as suggested donations to ARF and people were very generous about giving their donations.  If you feel you'd still like to donate to ARF, it's not too late to do so by going to the ARF website and making a donation thru Paypal.     

And thanks to Patty, for her idea of sharing thick dark cotton gloves to give those struggling to cover up in warmer climates some new ideas too.  As LeAnne mentioned, the conference really helps those of us that are scattered so far apart to feel less isolated and "odd" about our MP compliant attire and lifestyle. 

Julia
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 Posted: Tue Jun 20th, 2006 12:35

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Trevor and those who PMed,

Many thanks.  Ah, so the celebrity wasn't there qua celebrity, but as an interested conference member - thank you for explaining.  I thought you'd got someone along to speak - but couldn't imagine who could be more of an attraction than the speakers you had!

Two months... we Left-behinds (L-forms?:P) will have to be patient :? 

  come home, pup, the party's over

PS  Europe is a very nice place to hold a conference... ;)

The_Seeker
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 Posted: Tue Jun 20th, 2006 13:37

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My wife Debbie and I were able to attend the conference and it was all that I had hoped it would be.  Thanks to everyone who organized, spoke, and volunteered.  Thanks especially to those who shared their before/after stories and listened while we bent your ears with our story.  As a pre-MPer, the conference and the peer-to-peer networking with experienced MP folks was just what was needed to boost our confidence and give us a jumpstart on my wife's road to recovery.  In the coming weeks several of you will definitely be receiving the PM's you graciously invited us to send as we get underway.

The_Seeker



____________________
MP Phase 3 as of 11/01/2008; posting for wife; sarc dx 02/2006; Ph 1 start - 2/23/07. Latest D25: < 4 (1/24/2008). NoIRS when out of home and when on PC. Sun exposure - ~ 1 hr q2wks. Usually in home behind heavy curtains and 15 watt lighting.
jrfoutin
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 Posted: Tue Jun 20th, 2006 13:37

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Reenie, please pardon the confusion. I just wanted to add I really didn't print all those beautiful color copies out or laminate them into such a professional presentation. That, again, was Patty. You know, she and her husband did a lot of behind-the-scenes work and scrambled to make sure we had copies in our packets. That was fantastic.

Also, Zach made and shipped the banners, signs, podium sign, and table drape that really made a difference in the identity during the event. Those signs kept us from getting lost in the maze of halls. I noticed how professional his work was and how really great everything looked because of his work.

I was so impressed with Reenie and those she mentioned who ran tag teams during the conference to make things happen. What a lot of work. Dr Marshall's wife and daughter did a lot of work. I know Meg and other members of the ARF really did a tremendous amount of work and planning before, during, and I'll bet there is a fair share after as well. Thank you all.



____________________
Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
Betsy G
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 Posted: Tue Jun 20th, 2006 17:07

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Just finished reading all the posts here. Thank you, Dr. Marshall, for your persistence in your work! You made all of this happen. Special thanks to your family for their sacrifices in support of your efforts. And so many thanks for all the presenters, volunteers, and MPers that brought this conference to fruition and ensured it's success!! I will wait patiently for the DVDs. Thank you for producing these for those of us who could not attend. With the way my mind has been the last few years, I will have to view the material over, and over, and over:D  Actually, coincidentally, I had a few hours this morning when I had a glimpse of what the future may hold--I was able to think through an issue, keep my train of thought, communicate with a couple of different people over the phone, and actually understand/process/keep up with the flow of conversation. How long has it been????:shock: I could actually feel the clarity of my mind, if that makes any sense. Anyway, the DVDs will be a godsend to me none the less.

Again, thanks and good wishes to all of you MPers,

Betsy

 



____________________
Sarcoidosis by lung biopsy, muscle joint skin 25D-10(Dec07). Nov04 Benicar. Ph1Mar05 Mino,NoIRs, K cream,windows covered. Ph2Jun05. Ph3July06. Wellbutrin Vit E
Linda Lou
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 Posted: Tue Jun 20th, 2006 17:15

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Hi Everyone!

I, too, want to add my voice and thanks for all the hard work that went into the conference. I was one of the "newbies" who sat in on Meg's Phase I tutorial and am planning on embarking on the Protocol this weekend. I am grateful for all the encouragement, information and anticipatory support I received from everyone I spoke with. It was fun to recognize everyone from their names and/or avatars (except for you JR, by the way,I LIKE your new you!)  And, the most fascinating thing...whoever would have known that I would be i nterested in Microbiology...and at my age! Go figure!  But, the information was compelling, fascinating and, for a non-scientist (they don't teach that stuff to social workers) pretty easy to grasp. So again, thank you, thank you, thank you!

Linda Lou



____________________
DM2, HTN, Pulm Sarc/06 lisinopril, atenolol, metformin, Cytomel, citalopram| prn: lasix, albuterol, Prilosec. 02 exercising and at HS| MP11/06 (P3 now) Vit D=11 08/07| NoIRs, avoid sunlight & D. Doing better!
gettingbetter
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 Posted: Tue Jun 20th, 2006 18:44

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Hi fellow recover-ee's,

I'm still processing the infusion of wisdom and energy from the conference. I'm new to the protocol, so while trying to grasp the hard science, it was great to hear firsthand many of your inspiring stories.

It was especially nice to meet in the flesh certain individuals who lit the way for me last year when my pathway appeared very dark. Deepest thanks to each of you.

Living in LA made it easier for me to volunteer for last-minute conference tasks, and it was a pleasure to get to know some of you by working alongside.

In our family we have a favorite saying, "There's no limit to the good that can be done when no one cares who gets the credit." There are a lot of unsung hereos, and I hope you all know who you are.

My mind goes to this: there would be no conference, were it not for a protocol, and no protocol, were it not for Trevor Marshall and his dynamic team. So glad the DVD's will be available so all can share in this important moment for our worldwide community.

I wish I had had a video camera in the hallways and at dinner tables to capture some priceless impromptu conversations, especially with some of our illustrious doctors.

I'm looking forward to seeing the photos that Jacks so generously shot with his professional equipment and skill.

My husband and I also got some good candids, which we will upload when he gets back into town. I'd do it now, but I don't know how. Hey, I know! I could ask Janet (JR Foutin) to do it. She can do anything!

Hopeful healing to all.

Patty



____________________
CAD, Lyme, Kidn.disease,CFS, FM, Arth; cholest:456. Hsh.Thy; Sx:40+ yrs. Rx:Amb.,Querc.,B12, Val.; 7/05: 25D=26; 1,25D=80. 2/06: NoIR, cut light/D; 3/06: Beni; 4/06: M; 5/06: 25D=7; 9/06: add C; 12/06: Stop MP. 3/07: Restart; 25D=4; 11/07: Stop. 25D=9.
Carole
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 Posted: Tue Jun 20th, 2006 20:06

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I returned home this evening with renewed hope for the successful future of the Marshall Protocol.  The impact that this website continues to make, the professional quality of the L.A. and Chicago conferences, and the undeniable SCIENCE presented make us grateful and proud to be involved with such a dynamic crusade. 

It was a privilege to attend the conference and to be a witness of medical history in the making.  Trevor and the other prestigious presenters captured our attention with impressive information.  Meeting and greeting fellow MPers and soon-to-be members will remain close to my heart.  We are quite "a family," and the special bond we create online or at a conference will be lifelong and memorable.  

THANK YOU again to the Marshall family--Trevor, Liz, and Karen-- for your dedication and efforts in helping others around the world to get well!  Meg, Belinda, Dr. Blaney, and Joyce, thank you for sharing your expertise!  Panel members and attendees, thank you for your presence and sharing your time and stories!     

The whole conference experience was remarkable, and I look forward to viewing and sharing the upcoming DVD!

Blessings to all . . . Carole   :) 

 



____________________
PWC 50+yrs|20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |'04,06,11:125D=85,34,44;25D=41,14,13
DNStog
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 Posted: Tue Jun 20th, 2006 20:54

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The whole conference just "blew me away" and I am still reeling from all of the wonderful comraderie and sense of family we all felt. It was truly an amazing weekend. The energies of the ARF staff, speakers, volunteers and MP "clubers" permeated the air. What a marvelous group of people...just wish I could have met everyone who attended and that all of you MPers could have joined us. But alas, there is next year. (Did I hear the ARF staff groan with anticipation? :))

It was also such a treat to meet the "woman" behind the man...Liz Marshall and their adorable daughter, Karen...both charming ladies. Thanks to them for  sharing Trevor with us.

Although I was "dawg tired" by conference end, it was wonderful being able to flit around meeting most of the attendees all the while feeling good...thank you, Dr. Marshall for that opportunity. Meg, Belinda, Dr's Marshall and Blaney, Janet, John, Karen, Liz, Patty, Reenie, Zach, volunteers and panel members "you done good".

Donna

P. S. Apparently my enthusiasm is catching because I now have family members asking me for more "detailed" information on the Marshall Protocol...they all have a friend who needs it.:D 

Last edited on Tue Jun 20th, 2006 22:11 by DNStog



____________________
Sarcoidosis systemic; Raynaud's, uveitis, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Cinnamon, claritine, Milk Thistle, Rx glacier, 05/09 25D5, 125D7
ShrnHml
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 Posted: Wed Jun 21st, 2006 13:41

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Not being able to add anything new, I’ll just join with others in expressing gratitude to Dr. Marshall, the board staff, volunteers, and those who attended. 

Everyone had their personal high points, and one of mine was finally meeting Dr. Marshall. I did blow my first line, though, in meeting him. After wending my way from the heart of the Midwest to the heart of Los Angeles, the introductory conversation could have looked like this:

Sharon: Dr. Marshall, I presume?
Dr. Marshall:
Yes
Sharon:
I thank God, Doctor, I have been permitted to see you.
Dr. Marshall: I feel thankful that I am here to welcome you.

- Henry Morton Stanley and David Livingstone
conversation when
Stanley found Livingstone near Lake Tanganyika, Africa, on Nov. 10, 1871




____________________
Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
oliviat
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Joined: Sun Dec 5th, 2004
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 Posted: Wed Jun 21st, 2006 19:02

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Barney, you are a dear lady and a great motivator. It was wonderful being with you during the conference.



____________________
Aunt to Michael. He was diagnosesed with Sarc of muscles at age of nine probally had it since he was four. 2/06 Hestarted phase two of MP.
keotea
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 Posted: Thu Jun 22nd, 2006 17:04

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Hi everyone,

The conference was great!  Getting to meet everyone was awesome. The other MPers gave me inspiration by sharing the courage and stories.

I really enjoyed meeting and thanking the nurses and doctors ( Dr. Marshall, Liz Meg, Belinda I am sure I met more and I do have brain fog ) that help all of us. AGAIN THANK YOU ALL 

Looking forward to next year's conference,

More Later

Tom



____________________
Dx 2003- Stage II Sarcoidosis with adenopathy and nodular disease of the hemithoraces. no fibrosis is detected, no pneumothoraces. Fatigue. ACE-34; d 1 25 18.5; d-25 23. 2/2/05. phase 3 started 11/16/06.

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