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Joy
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| Joined: | Sun Jul 31st, 2005 |
| Location: | USA |
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Posted: Wed Mar 28th, 2007 07:58 |
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Have not had a bone scan, but my chronic high blood pressure was the first and most dramatic thing for me to get healed on the MP.
Pre MP I had a 13-year history of high blood pressure which no meds would bring down (mainly because I could not tolerate most of them at anything other than a half dose). Highest reading ever was 180/120, and average was 160/105.
BP immediately came down into normal range after commencing Benicar q6h, and even went a bit low for a week or two after starting mod Ph 2 (95/65 was lowest). It is now back up to around 115/80. Thank you Benicar!!!
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CFS, FM, MCS, RA, low thyroid.
Began Ph 1 9/06, Phase 2 1/07. Stopped abx 11/07; stopped Benicar 5/09. 25D: 32,17,5,4,4
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Prof Trevor Marshall
Foundation Staff
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Posted: Wed Mar 28th, 2007 08:16 |
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Those of you posting DEXA scan data, can you please indicate whether you were taking any calcium supplement, and what form of calcium that was (citrate, etc)? The brand name would be helpful. Also, if you were taking other supplements, eg magnesium or phosphorus, please make sure you let us know (by PM, if necessary).
Also let us know what your other major calcium sources are and either the amount of the food (eg. a cup of yogurt a day) or, even better, if you can, an estimate of the average amount of calcium from them based on the label or other information (eg., see amounts of calcium in food at: http://www.marshallprotocol.com/forum32/1083.html )
Once again, this detail is only necessary from members who have the DEXA data.
Last edited on Wed Mar 28th, 2007 09:49 by Prof Trevor Marshall
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lucindarose
Health Professional
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Posted: Wed Mar 28th, 2007 09:46 |
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I had a DEXA scan last March (2006). Does it matter that all the measurements could not be obtained? I do remember them saying that it was above average for someone of my age and on corticosteroids, however, they could not obtain all measurements as the scanner could not differentiate between bone and kidneys in some places due to my severe nephrocalcinosis. I will gladly post these results as soon as I can get hold of them if only a few measurements will help?
Regarding blood pressure:- pre MP it was around 100/60 (on 10mg/day Benicar) and since commencing Benicar 40mg Q6H it is usually around 85/45. I don't feel I have any major symptoms associated with this blood pressure, only occasional transient dizziness associated with changes in posture. I have had occasions where it has been more 'normal' on Benicar at MP levels at around 110/70 but only on a few occasions.
Anna 
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Sarcoidosis hypercalcemia nephrocalcinosis/frank hematuria LVH pituitary stalk lesion 125D128 MP 01/07 ModPh2 05/07 Dec 08 25D 29 nmol NoIRs Full-time work
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P.R.N.
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| Joined: | Thu Dec 2nd, 2004 |
| Location: | USA |
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Posted: Wed Mar 28th, 2007 10:25 |
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| My blood pressure would drop at times in beginning to low of 78/48 with stronger herx. Now it is stable at 110/65 on 40mg of Benicar q6 after 25 months on MP. Never had a dexa-scan. No letter from manufacture. best, P.B.
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edj2001
inactive member
| Joined: | Mon Oct 17th, 2005 |
| Location: | Allen, Texas USA |
| Posts: | 361 |
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Posted: Wed Mar 28th, 2007 12:38 |
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1. BONE DENSITY:
Region BMD g/cm^2 T-score Z-score
L1-L4 Vertebral bodies
Scan date Jan 21, 05 1.116 0.2 0.9
Scan date Feb 27, 07 1.015 0.0 0.1
Left Forearm
Scan date Jan 21, 05 0.699 0.4 1.2
Left Femoral neck
Scan date Feb 27, 07 0.754 -1.3 -0.2
Notes:
Tests were conducted on different machines
No calcium supplements (diet only), milk pre MP, yogurt & cheese on MP
Ended prednisone April, 2005 after several years at 20 mg/day
Started MP Dec 2005
2. BLOOD PRESSURE:
Before MP: 120/80
Currently during MP: varies considerably 112/60 to 76/45
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph| Benicar Propafenone Synthroid Proscar | 1,25D=50 10/05| 25D=7 4/08| =9 2012 | avd l&D|
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jrfoutin
Research Team
| Joined: | Mon Aug 8th, 2005 |
| Location: | Utah USA |
| Posts: | 4872 |
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Posted: Wed Mar 28th, 2007 13:05 |
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JRF|BP
No Benicar:
AUG/09/05 _ 160 / 96
4 days MP-Benicar only:
AUG/13/05 _ 136 / 82 _ Ph1
OCT/04/05 _ 134 / 76 _ ModPh2
NOV/30/05 _ 130 / 90 _ ModPh2
JAN/11/06 _ 132 / 88 _ Ph2
MAR/08/06 _ 128 / 88 _ Ph2
JUN/28/06 _ 118 / 80 _ Ph2
AUG/24/06 _ 120 / 82 _ Ph3
OCT/19/06 _ 108 / 78 _ Ph3
DEC/18/06 _ 114 / 84 _ Ph3
FEB/28/07 _ 128 / 95 _ Ph3
(acute E. coli kidney infection day)
Note: These are all taken at Dr's office and on file as my medical record.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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zackone
inactive member
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Posted: Wed Mar 28th, 2007 13:19 |
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Trevor,
I went through my notes since I began the MP, and the average BP I had during my initial couple of months was 115/66. Previous to the benicar, it was 126/77. Now, it is commonly 125ish/70ish. I found very few notes of BPs under 100/60.
Regards, Fred
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Sarcoidosis/lungs (2004); Ph1Mar05 Ph3Feb06; no breaks; Lungs, sinuses, skin, eye irritation, suspect kidneys; 25D=18 (Jul15) 1,25D=35 (Jul15)
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Carole
Support Team
| Joined: | Mon Jul 19th, 2004 |
| Location: | Florida USA |
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Posted: Wed Mar 28th, 2007 13:29 |
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I have detailed results from two DXA scans on 9/08/03 (pre-MP) and from 3/21/05 (early phase 2 MP) that I will scan and attach to an e-mail. My ob/gyn wanted another one done this spring because of the increased fracture risk, so ironically it is scheduled for tomorrow. I will send those details ASAP.
Besides a multi-vitamin (with D, calcium, and magnesium, etc.) and additional C (1000-3000 mg.), E (400 iu), glucosamine (1500 mg) and chondroitin (1200 mg) with C (60 mg) and manganese sulfate (2 mg), I was also receiving additional--
(June 2002-? late summer/2003) Coral Calcium Daily, distributed by Today's Health, Beverly, MA --A (3000 iu), C (80 mg), D3 (820 iu), E (60 iu), calcium 530 mg (from 1475 mg of coral calcium), magnesium 265 mg (from 1475 mg coral calcium & magnesium oxide), zinc oxide (15 mg), copper oxide (3 mg), and in a proprietary base: Coral Calcium (1475 mg).
(? late summer/2003-Jan. 2004) Coral Calcium by Nature's Bounty, Bohemia, NY--C (5 mg), D (400 iu), calcium (370 mg from 1,000 Coral Calcium), and magnesium (56 mg as magnesium oxide and magnesium citrate).
I definitely took this well before Coral Calcium, but I'm thinking that I may have also added this tablet as well-- calcium carbonate (333 mg), magnesium oxide (133 mg), and zinc sulfate (5 mg).
I also had years of stomach upsets, so I took several Calcium Antacid Tablets on most days (calcium carbonate 500 mg).
Since I was diagnosed with osteoporosis from the first DXA scan (9/03), each meal contained several servings of some sort of calcium and vitamin D (fish, eggs, cheese/milk products, yogurt, cereal, etc.).
With all of this supplementation, my D-levels were very slow in falling--
1/2004 (41)
7/2004 (33.48)
1/2005 (22.56)
7/2005 (20.48)
1/2006 (14.4)
7/2006 (14)
1/2007 (9)
I have more blood tests from last week to post pending the results.
Thanks so much to all! . . . Carole 
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PWC 50+yrs|20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |'04,06,11:125D=85,34,44;25D=41,14,13
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ShrnHml
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Posted: Wed Mar 28th, 2007 14:18 |
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| Trevor...........I am due for a bone scan, as it has been two years since my last one. By what date do you need this informtion? With much appreciation for your work. ............Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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GeorgeinRollaMO
inactive member
| Joined: | Mon Aug 9th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 538 |
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Posted: Wed Mar 28th, 2007 14:38 |
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Trevor,
I had two DEXA scans preMP and one a few months after starting the MP, and had supplemented LOTS with calcium for about nineteen years pre-MP. Paperwork is not filed for easy access. Also, had granulomatous disease in the chest area, "as evidence by the depositing of calcium in the soft tissue" by xray.
I will get back by tomorrow with figures.
DV...aka, George
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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JT
inactive member
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Posted: Wed Mar 28th, 2007 15:53 |
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Before starting Benicar: BP consistently on low side of normal.
After starting Benicar Q8H: BP still consistently on low side of normal.
After switching to Q6H dosing: one low reading of 90/50, then readings returned to low side of normal and have remained there since.
All readings taken monthly in MD's office.
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CFS Ph1:6/05, Ph2:12/05, Ph3:7/06; 1,25D=34 6/05; 25D=8 6/08; 25D=26 7/09
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I love trees
inactive member
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Posted: Wed Mar 28th, 2007 16:29 |
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I had lowish BP for many years pre MP, usually in the 90/65 range. I have not had one BP reading that low since starting MP. In fact, most of the time it's about 112/72. My doctor was worried that my lowish BP would go too low on Benicar, but that has not been the case at all. In fact, once, about 2 months into Benicar, it was 138/80. (I had been stressed just before BP was taken.)
Carol
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Lyme/MS/Osteoporosis/IBS/WPW/Chronic hives - probios,mag.,silymarin. Oct06:125D=60,25D=26 /NoIRs /11-2-06 Benicar / avoiding light, D /using zinc oxide cream.
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B R H
member
| Joined: | Mon Oct 16th, 2006 |
| Location: | Reno, Nevada USA |
| Posts: | 272 |
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Posted: Wed Mar 28th, 2007 17:29 |
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I have BP data taken almost weekly going back about 3 years, daily for about the last month or so.
AVG MIN MAX STD DEV TREND
PRE-MP: 118/69 100/54 140/86 7/6 flat
MP: 99/61 83/49 124/69 8/5 slightly downLast edited on Wed Mar 28th, 2007 19:15 by B R H
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Lyme, babesiosis, hypothyroidism, asplenia, incomplete quadriplegia (discontinued MP in May 2008)
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sunflower
inactive member
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Posted: Wed Mar 28th, 2007 17:34 |
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dr. marshall,
i'm one who has reported my bone scans, so here's info on my calcium intake: i had been taking calcium/magnesium supplements for many years (usually 1000 mg cal/500 mg magnesium per day). at the time of my first bone density test--feb 2004--i started taking tums at 1500 mg per day along with a magnesium supplement at 400 mg per day.
when i started the MP in nov 2005, i stopped the calcium but continued the magnesium (for bowel regularity). i'm not certain how much calcium i get in my diet (or did in the past), because i never drank milk or ate yogurt on a regular basis. i've always eaten cheese and some ice cream, though. hope this helps a bit.....sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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Grace
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| Joined: | Mon Sep 13th, 2004 |
| Location: | Australia |
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Posted: Wed Mar 28th, 2007 18:42 |
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Dec 2002 {CFS 3yrs} 40 yrs old female
Hip BMD =1.199, Hip T-score=1.86, Spine BMD=1.306, Spine T-score=1.39
Supplements- Co Q10, colostrum, brewers yeast, ultra muscleze- magnesium, no other calcuim or multivitamin or supplement.
Diet- full strength milk{no D} less than 250 ml daily, 3-5 serves of cheese / yoghurt PRE WEEK. Had been AVOIDING all fish for 6mths. Not avoiding eggs and sunlight.
.....June 2002 is when I work out that eating fish made my pain worse. My good confuse Doc  ordered fish allergy test-negative,I think I had D25 blood test-low {can get this if you want}, Order DEXA tests.... before 'getting it' MP and meeting Dr Marshall
June 2006 {MP 18 mths} 44yrs old female
Hip BMD =1.198, Hip T-score=2.11, Spine BMD=1.332, Spine T-score=1.75.
Supplement-None including calcium avoiding all D.
Diet- light milk{no D} less than 250 ml daily, less than 3 serves of light cheese PRE WEEK.{Trying to get and keep d25 down}
Q Do you still want BP results or any other relative information that my Doc can give.I don't want to bug him too much or often.So I will wait until I know exactly what you want
Husband's BP was always very low 80-70/50-40 or ,so pre MP he took hydralazine 100mg to IMPROVE his BP.I can get his BP history also if you need it.Last edited on Wed Mar 28th, 2007 19:21 by Grace
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CFS, oct04 Ds=26/48, 4/07=7/24 MP PHI 2/05, PhII 6/05, PhIII 6/06, beni Q6H, Noirs rarely inside no nature light low watt, outside 40%10%, Hat, all covered, no gloves, paracetamol
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Christina
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| Joined: | Tue Dec 6th, 2005 |
| Location: | St. Louis, MO, USA |
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Posted: Wed Mar 28th, 2007 19:46 |
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In 2003, I had a bone scan showing osteopenia. As a result, took Actonel for a year and tons of vitamin D, mag, and calcium (in the form of coral calcium) for years after and engaged in weight bearing exercise 4-5 days a week. I had another bone scan about six months prior to starting the MP (Oct. 2005) showing no improvement. Unfortunately I haven't had one since. So, you probably can't use that for your purposes, but I think it's really interesting that using a bisphosphonate, tons of D, calcium and exercise showed no improvement. I was only on 2.5mg daily of prednisone during that time.
My "normal" blood pressure pre-MP was always low averaging 90-100/60-70. For the first two months of the MP it dropped lower averaging 70s/50s but then went back up to my "normal" and remains there. Monday, at the doc's office, my BP was 92/65. Occasionally it will read over 100-110/75-80 but very rarely.
I've seen no letter from Sankyo.
I hope this helps you.
Christina
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Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
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Jigsaw
Research Team
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| Location: | Australia |
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Posted: Wed Mar 28th, 2007 21:02 |
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Pre-MP my BP averaged about 135/80 with a range 130-160/70-90.
Three months pre-MP, I went on 150mg/day Avapro (irbersartan)which lowered it to about 126/65 with a very small range. Since starting olmesartan medomixil (Benicar), at 40mg Q6hr for 1 month, then 40mg Q8hr for the next month, my BP has averaged 114/58 with a range 97-134/49-68 for 26 readings. There was no obvious difference between Q6hr and Q8hr. One reading with my cardiologist was 160/90: but that was after he had asked how long I going to continue with this experiment.
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MP Feb,'07. Arthritis'78. CKD'07. Last 25D=7ng/ml Feb'13.
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Prof Trevor Marshall
Foundation Staff
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Posted: Wed Mar 28th, 2007 22:26 |
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LOLOL 'experiment' - I love it...
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jcwat101
health professional
| Joined: | Mon Jul 19th, 2004 |
| Location: | Pasadena, USA |
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Posted: Thu Mar 29th, 2007 13:27 |
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Sun,
You mentioned eating cheese and ice cream. How much per week would you estimate?
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.wordpress.com
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scooker48
Member*
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Posted: Thu Mar 29th, 2007 14:39 |
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The following blood pressure readings come from my medical records at my MP doctor's office.
2/15/05 120/70
2/23/05 100/60
3/9/05 100/70
4/8/05 98/60
5/5/05 100/60
6/8/05 100/60
6/14/05 90/60
7/9/05 120/60
8/15/05 100/60
9/23/05 100/60
10/17/05 90/60
11/11/05 110/60
12/14/05 120/70
2/14/06 120/80
4/11/06 100/60
6/14/06 110/60
8/14/06 100/60
10/17/06 120/80
12/18/06 120/70
Pre-MP, my blood pressure history was always on the low side. I thought it would help me live longer; what a mistaken notion!
Sherry
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D25, Total: 12 measured 11/3/15 Started MP=01/04/05 Diagnosis: Sarc 12/04; "cat scratch disease" or necrotizing graunulomas 10/88; Raynaud's (diagnosed 1980?)
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