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The Marshall Protocol Study Site > PROF. MARSHALL'S PERSPECTIVE > Prof. Marshall's Perspective > Report from AACFS Conference, Madison, WI, 7-9 Oct 2004


Report from AACFS Conference, Madison, WI, 7-9 Oct 2004
 Moderated by: Prof Trevor Marshall
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Prof Trevor Marshall
Foundation Staff


Joined: Fri Jul 9th, 2004
Location: Thousand Oaks, California USA
Posts: 15811
Status:  Offline
 Posted: Mon Oct 11th, 2004 13:03
The AACFS conference was held at the Alliance Energy Center in Madison, Wisconsin, from Friday 8th Oct to Sunday 9th October 2004. On the Thursday before the conference there was a little publicized, but apparently quite good, "Panda" conference, at another venue in Madison. I missed Panda, so hopefully somebody else can report what happened in a subsequent message :)

The conference was an amazing event, and I am sure that it represents a watershed in this this disease. I presented a poster display, where we could explain what the Marshall Protocol was all about, and how it worked. We distributed nearly 300 handouts "What is the Marshall protocol" to the attendees. The strong presence of recovered patients overhung the main medical conference, which, although they were still discussing whether CFS was a psychosomatic disease, nevertheless engaged in vigorous debate (and enquiry) during the breaks and social events. Here is a picture of the main conference hall during the opening presentation:-

(Click on the image for an enlarged view)

There were tables set-up in the area adjacent to the main conference hall which made it easy to have breakout discussions, as well as facilitating mingling, this photo should give you some idea of that area

(Click on the image for an enlarged view)

Although this was taken during a tea-break, this informal area was very busy most of the time. In fact, I probably spent more time talking one-on-one with physicians, researchers and patients at these tables that I spent in the main conference-hall sessions.

Here are some pictures from my scrap-book:-


Paula and Dr Rich Van Konynenburg (Click on the image for an enlarged view)



From left: Me, Dr David Berg, Dr Larry Sharp, Dr Jacob Teitelbaum (Click on the image for an enlarged view or the name for more info)


From Left: Sujay, TX LymeMom, Belinda, me, Meg and Paula. (Click on the image for an enlarged view)


From Left: Meg, Sujay, me, Belinda and Michele. (Click on the image for an enlarged view)


From Left: TexLymeMom, Meg, Belinda and Dr Luther Lindner. (Click on the image for an enlarged view)


The Poster display(Click on the image for an enlarged view)


If anybody else has some different photographs, please email them to me. I will massage into a suitable format and post them here for all to see.

In summary, this was an amazing conference, and I believe history will show it to have been a watershed in the way this disease is perceived and treated.

..Trevor..

ps: The Autoimmunity Research Foundation would appreciate donations to help defray the expense of AACFS, and the other conferences we need to attend. Donations can be made at URL
http://autoimmunityresearch.org/donate.htm

Aussie Barb
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Joined: Wed Jul 21st, 2004
Location: Australia
Posts: 19545
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 Posted: Mon Oct 11th, 2004 13:06
Q: I need document to take to Dr. to show Marshall Protocol is same for CFS and Sarc
 
Reply from Dr Marshall >

The abstract of the poster presentation I made at AACFS is now online at URL
http://autoimmunityresearch.org/aacfs2004/aacfs.pdf

..trevor..



____________________
♥Barb♥: Dx Inflammation - Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04-Aug2010| barbliv @ hotmail.com | ABC of MP| Barb's Story|
Jill
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Joined: Fri Jul 16th, 2004
Location: Idaho USA
Posts: 130
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 Posted: Mon Oct 11th, 2004 16:18
Thanks for the pics, it is fun to have faces to put with the familiar names we all know.  congratulations on so many new contacts at the conference.  I hope the word spreads rapidly.

Good to have you all back, too.

Jill



____________________
CFIDS20yrs, hypothyroid,iritis, neuropathy, hip joints; 9/11/01 25D32, 1,25D74
benicar 9/11/04 @40/6hr; mino start 10/20/04, now@50mg.
Betty G.
inactive guest
 

Joined: Fri Jul 23rd, 2004
Location: CENTRAL IOWA - USA
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 Posted: Tue Oct 12th, 2004 09:02
Great reading about the CFS conference, and seeing the photos of each of you!  Glad you all were able to come back with more, and vice versa.   Betty G., Iowa



____________________
res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
FeatherRiver
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Joined: Mon Jul 26th, 2004
Location: Deer Park, Washington USA
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 Posted: Tue Oct 12th, 2004 11:34
Thank you!  I appreciate the pictures and knowing who is who

Dr M - how did Dr. Teitelbaum and Dr Berg take your information?  Will they considering using it?



____________________
DianaF:CFS,Fibro,RA since childhood, Dysautonomia
VitD 22/33, 7-04,Started Ben.MP 5-04 Ben 40mg q6h + Mino 100mg q48h + Quer as needed, Phase II Started Jan 15, 05 Ben 40mg q4h stopped mino and Z temp 2/22/05
Prof Trevor Marshall
Foundation Staff


Joined: Fri Jul 9th, 2004
Location: Thousand Oaks, California USA
Posts: 15811
Status:  Offline
 Posted: Tue Oct 12th, 2004 17:55

I have added another photograph to the top message, and in this one I almost managed to crack a smile :):)


The Marshall protocol was the elephant in the conference hall. Everybody knew it was overhanging the other topics being discussed, as, if we were real, then most of the talk elsewhere in the conference was of little importance.

How many physicians start using the MP is a question mark, however. But having physicians at the conference informally spreading the word that the MP really works, meant that eveybody there had discussed the MP, even if it was in a corner, under their breath.

..Trevor..

DaveW
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Joined: Fri Jul 16th, 2004
Location:  Moose Jaw, Saskatchewan Canada
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 Posted: Wed Oct 13th, 2004 15:52
Dr M.

Congrats (and thank-you) to all MP reps regarding the successful conference!

Regarding your absence of a smile - Not to worry........although we'd all like to see you happy......it would be totally out of character for an exorcist!   :Þ

- DaveW



____________________
Short List: CFS & Fibro, severe gastroparesis & chronic constipation, poor sleep, depression, anxiety,cognitive focus, memory, epilepsy, osteoporosis.
carol
Support Team


Joined: Mon Jul 12th, 2004
Location: Jackson Hole, Wyoming USA
Posts: 934
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 Posted: Wed Oct 13th, 2004 15:57
DaveW:

The Exorcist!  That sums it up.  I certainly feel like that little girl in the movie who's body was possessed.

Carol 



____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests: 25-D=32; 1,25-D=65...10/07 entered Phase 5...Xodol daily, Celebrex as needed...last 25-D=7 (5/14)...Benicar 40mg/4 hour, no abx
jcwat101
health professional


Joined: Mon Jul 19th, 2004
Location: Pasadena, USA
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 Posted: Thu Oct 14th, 2004 13:19
I am eager to read Paula's report on the conference. In the meantime, is there a web site with abstracts from the Poster sessions. Or, if not, could someone post Trevor's abstract for the poster session on the website?

Great to see the pictures of you all, including my friends, Paula, TX and Rich V.

Joyce



____________________
20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 http://SynergyHN.wordpress.com
ShrnHml
...


Joined: Fri Jul 16th, 2004
Location: St. Louis, Missouri USA
Posts: 814
Status:  Offline
 Posted: Thu Oct 14th, 2004 15:33
WAY TO GO!!!

Sharon H.



____________________
Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
Prof Trevor Marshall
Foundation Staff


Joined: Fri Jul 9th, 2004
Location: Thousand Oaks, California USA
Posts: 15811
Status:  Offline
 Posted: Thu Oct 14th, 2004 19:02

Meg sent me two more photos, which I have added to the message at the top of this thread. Thanks Meg!

..Trevor..

Jessica
inactive member
 

Joined: Thu Jul 15th, 2004
Location: Ohio USA
Posts: 84
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 Posted: Fri Oct 15th, 2004 07:27
Thank you for the update and the photos, it is nice to "see" you all!:)

I'm wondering how the conversations with Dr. Berg and others went? Did you have a chance to sit down and talk about the MP in detail and how it works or not with some of the other CFS research and protocols?

What did you think? Anything surprising?

Wishing us all well,

Jess



____________________
D's: 1,25 44,54,85,39,40 & D 25 76,54,36,40,26 Lymph 6-14% Mercury Tox., CFS, MCI, NCS, NICO, ISAC, Endo.dys.,etc.. Provigil,Armour,Cortef,Xyrem & Dilantin. MP 8/06-9/24/04
Rich Van Konynenburg
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Joined: Fri Oct 15th, 2004
Location:  
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 Posted: Sat Oct 16th, 2004 12:13
Hi, Trevor.  It was fun to meet you and the rest of the gang at the AACFS conference.  I particularly enjoyed meeting Paula, with whom I've communicated on and off the e-mail lists for several years, but had never actually met.  I see that you have documented our meeting for posterity!  

Paula--I'm hopeful that this photo will be worth a lot of money some day, as you become ever more famous and well-known!:) 

Rich Van Konynenburg

Paula Carnes
member


Joined: Tue Jul 13th, 2004
Location: Las Vegas, NV, Nevada USA
Posts: 439
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 Posted: Sun Oct 17th, 2004 07:42
Rich, you are the kindest person I have ever met. Thanks for all your work over the years on behalf of cfs and Lyme patients. I would like to become famous for a couple of books I want to write, if I ever finish the summary of the AACFS conf, that is. LOL But let's just forget that picture - not my best. It was a great picture of you. Perhaps we could crop it and enlarge the other picture of me, well, at least the face. The rest is already too large. 

Paula Carnes

angela.
inactive member


Joined: Mon Sep 20th, 2004
Location: South Carolina USA
Posts: 63
Status:  Offline
 Posted: Thu Oct 28th, 2004 11:20
Hey everybody!  Thank you for the link.  I enjoyed seeing y'all..  Fun.. 

Paula, I'm the girl from SC. :)

Hope everyone is doing well.

~angela


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