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Amy Proal's "Bacteriality.com"
 Moderated by: Prof Trevor Marshall Page:  First Page Previous Page  ...  5  6  7  8  9  10  11  12  13  Next Page Last Page  
 

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Ames
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Location: New York, New York USA
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 Posted: Fri May 23rd, 2008 10:59

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Hi!

First off, thanks SO much to everyone who has voluteered to burn or distribute DVDs of my MP video.  Paul and I just got back from vacation yesterday, so we will be contacting you soon and setting up an official plan for distribution.  We just need a day or two to make sure the video is in good condition (no errors!) before officially making it a DVD.

I also want to let you know that I just put up a new patient interview on Bacteriality.  I spoke with Peter de Jager who is doing very well after suffering from severe CFS and chemical sensitivities (IBS and depression too).

Here's the link:

http://bacteriality.com/2008/05/23/interview20/

Best,

Amy



____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Vicki SA
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 Posted: Sat May 24th, 2008 02:31

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Thanks Amy for the article on Peter and his improvements with CFS, MCS.

In the article though, it says that he has been on MP for 5 years. It is actually less than 3 years.

http://www.marshallprotocol.com/forum19/4063.html

I started taking 40mg Benicar 8 hourly (0630, 1430 and 2230 hrs) on August 27, 2005.

Cheerio Vicki



____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 15mg, May 2012 25D - 9.6, Jan 2014 25D - 14
Ames
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 Posted: Sat May 24th, 2008 09:38

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Hi Vickie,

Thanks so much for the correction.  I wrote the introductory blurb during vacation when I didn't have the rest of the interview with me and though I remembered accurately how long he'd been on the MP.  Actually though, I was thinking of another person that I interviewed a few days after him.

Thanks again!

Amy



____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Knochen
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 Posted: Sat May 24th, 2008 11:04

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I was still getting a lot of a boost even with the 5 year figure!  If he's that improved at 3 years, there is hope for me yet.  It's been a rough couple of months coming up on my 2 year anniversary. I do often wonder when the good times will arrive.  Hoping for soon.

Great article, Amy, and so much sounds so familiar.  Except for employer being so sympathetic.  I get no sympathy and sometimes outright disdain for my illness from my management at work. It's a good thing Benicar is good for blood pressure. ;)

Keep those articles coming.



____________________
Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D <4 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
Ames
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 Posted: Wed May 28th, 2008 20:20

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Hi Knochen,

I was still feeling pretty shabby around 2 yrs.  Now, three years into the MP it's definitely easier.  Of course it can definitely still get even easier!  Sorry to hear about your work environment.  It sounds like one of those places where you look forward to the day when you can tell your co-workers "I told you so!"

Anyway, I have finally written an article about biofilm bacteria and just put it up on Bacteriality.  I am truly intrigued by bioilms and in a sense, research on biofilms has just started to warm up.  So I expect we will hear much more about biofilms in the years to come, particularly when the mainstream begins to understand that most of the bacteria causing chronic disease are likely in a biofilm-like state.

Here's the link:

http://bacteriality.com/2008/05/26/biofilm/

Amy



____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Cass A
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 Posted: Thu May 29th, 2008 00:58

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Dear Amy,

I just finished reading your article on biofilms!

OUTSTANDING!!

Best,

Cass A



____________________
Res/Pre MP; dx Lyme, tinnitus, hearing loss, low body temp.; I take many vits, minerals, herbs, enzymes; D tests May 07: 1,25D=33 & 25D=16; avoiding light & D; NoIRs in use
Joyful
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 Posted: Thu May 29th, 2008 02:02

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I agree.

OUTSTANDING WORK AMY!!!

:):):)



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Video • Be Kind, We Are All Fragile • Forums
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kelly well
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 Posted: Tue Jun 3rd, 2008 11:44

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Amy, If it isn't too late to comment on the charge of the video CDs.  I'd charge $10-$15.  Since going on MP we have saved so much in entertainment expenses and going out to eat. Add that to the fact of not having to do near the medical diagnostic tests and we can afford that money for your video.

I use to be on the staff of a well respected Christian non profit organization. We never did anything that did not make money, our large church charges nominal fees for everything it does except for newcomers, but would never keep someone from participating (they would descreetly pay their way).

For thoses who can't afford the CD start a "partnership" thing for those buying the CD (ie buy yours for 10 - 15 Dollars and "partner" someone who needs the help for another 10-15 dollars).

Yes in the beginning the MP costs a fair amount with NOIR"S benicar etc., but I've avoided ER visists, expensive Diagnostic exams etc. and I've truly gained a WEALTH of help and information from the site. This organization deserves so much $$$$ for all it is doing. Let's start with CD's and go from there.

 Sincerely, Kelly well

 



____________________
Sarcoidosis bronchiectisis atrial septal defect atrial fib hypothyroid dysphagia CHF gout COPD skin lesions 125D66 25D52 Ph1 Feb08 ToprolXL estradiol Synthroid Seroquil lortab valium protonix lasix prn 25D34 (May08),Ph 2 7/08 25D29(7/08),10/08 25D28
carol
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 Posted: Tue Jun 3rd, 2008 20:14

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Kelly:

That's an excellent point regarding the cost effectiveness of the MP in the long run.

Don't overlook how easy it is to donate to ARF.  Just click "PayPal Donate" on the top of this page :).

Carol 



____________________
rheumatoid arthritis dx '96...started MP 8/11/04...initial D tests: 25-D=32; 1,25-D=65...10/07 entered Phase 5...Xodol daily, Celebrex as needed...last 25-D=7 (5/14)...Benicar 40mg/4 hour, no abx
Ames
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 Posted: Tue Jun 3rd, 2008 21:19

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Thank you so much Cass and Joyful, glad you liked the biofilm piece.

Kelly, thanks for offering a valuable suggestion about the price for a DVD.  I believe they are being burned at the current moment.  I'm in a bit of a rush now, but once they have been officially created I will sit down and decide on a price.  Your feedback will be very helpful.

Carol, you're right - everyone take note of the donate button!

I'm writing to let you know I just put another interview up on Bacteriality.  I interviewed Roy P who is known as Bookdad on this site.  He's been making it through the MP and been taking care of 7 kids in the process.  Not bad!

Here the link:

http://bacteriality.com/2008/06/03/interview21/

Best,

Amy



____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Ames
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 Posted: Wed Jun 11th, 2008 15:13

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Hi,

Just letting you guys know I put up a new piece today about probiotics.

While the hypothesis put forth is controversial and not yet proven to be true, it's caught my attention.  Palliation is no longer necessarily equated with wellness, so IMO it's worth taking a new look at how the probiotics may affect the innate immune response in the gut.

Here you go:

http://bacteriality.com/2008/06/11/probiotics/

Best,

Amy



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CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Knochen
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 Posted: Fri Jun 13th, 2008 11:06

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Amy,

Good article. 

It looks like somebody posted it on Digg.com to get you some exposure, but sadly, the comments by the unwashed masses only serve to point up their lack of reading and critical thinking skills.  It's pretty sad to look at.

It makes me realize what an uphill battle the MP will have. It seems that unless you have something at stake, like your own health, you can just go on drinking the kool-aide of mainstream medicine and Madison Avenue.  So for those who cannot or will not make the leap, I will waste no more pity. As Charles Dickens so aptly put it:
``Many can't go there; and many would rather die.''
``If they would rather die,'' said Scrooge, ``they had better do it, and decrease the surplus population. . . "

(OK, so it's a little out of context):cool:



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Prof Trevor Marshall
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 Posted: Fri Jun 13th, 2008 11:33

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Those who have their own health at stake are most in denial. That is what is sad.

Here is a person dying from Pancreatic cancer talking about "achieving your childhood dreams" and praising his doctors as the best in the world. Isn't it strange how the human mind often cannot bear to contemplate the stark truth, and prefers a candy coating.

http://www.youtube.com/watch?v=ji5_MqicxSo
 
 

Ames
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 Posted: Fri Jun 13th, 2008 11:45

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Knochen, Trevor,

As stated by one of the main characters in American Beauty, "never underestimate the power of denial."

Get this.  My probiotics article somehow appeared on Digg thanks to a marketing specialist from BLISS probiotics.  I mention the company in the piece as one that seems to be going a little overboard in their probiotic production.  The marketing guy apparently assumed that my article about probiotics must have been lauditory.  Clearly he didn't read it.  Anway, he thanked me for spreading work about the company.

No wonder the comments after the piece as so pathetic.  Few people even understand that it's possible to look at probiotics from a different angle.

Amy



____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen
Aunt Diana
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 Posted: Fri Jun 13th, 2008 12:14

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Ames,
Not only are you brilliant....you have the patience of a saint!!



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sunflower
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 Posted: Fri Jun 13th, 2008 12:50

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hi ames,

i was on the fence about continuing to take probiotics....not any more;). your wonderful article so clearly elucidated the case against them, that i'm going to stop wasting my money.  thanks again for all your hard work and dedication in spreading dr. marshall's research to the masses :cool:...you are too much!    sun



____________________
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paulalbert
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 Posted: Fri Jun 13th, 2008 16:03

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Hi All,

Getting bookmarked by one of the social bookmarking services made me think, hey, why aren't I doing that? To that end, I've included a bit of code on bacteriality ("ShareThis") that allows you to add it to any of the social bookmarking sites out there. In a nutshell, social bookmarking allows you to share your bookmarks online with other users. The type of people that belong to a given service varies, so sometimes it makes sense to bookmark to multiple services.

About social bookmarking: some people think it's a waste of time, but I'm not sure it is. I realize that traffic (here's a public view of Bacteriality's) should never be its own end, but if we can better reach out to certain key groups such as researchers and would-be funders, I think it would be time well-spent.

I was thinking that I might start promoting via social bookmarking services all of Amy's future articles and certain ones from the archives-- i.e. "Intro to the MP", "Getting it right", etc. (More upon request.)

I'm hesitant to ask anyone to spend any time but if this is your baileywick, maybe you would want to help out. Two ways you might want to lend a hand.

1. Bookmark pages in Bacteriality using your social bookmarking service of choice. This requires setting up an account (links below...).

2. I've very tentatively targeted a list of services that I suspect have the kind of demographic we're after. Here's that list:
Citeulike (these first two are more scholarly)
Connotea
Technorati
Delicious
Digg
Stumbleupon
Reddit

What do you think about this list? Any additions or subtractions you might make?

thanks,
Paul

p.s. A little bit of humor to end this long post. This quote comes from a blog that linked to Amy's article on obesity:

This article is interesting...although long and boring and way over my head!



____________________
Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
NickBowler
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 Posted: Mon Jun 16th, 2008 05:28

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Has anyone checked this site out before?

http://www.cfs-allicin.com/index.php?option=com_content&view=article&id=3&Itemid=9




____________________
Sarcoirodis CIDP, MP start 11/07, NoIRs, 02/08 25D-8, Ph3 since 07/08|
Martha
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 Posted: Mon Jun 16th, 2008 21:36

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Intersting Amy!! I've noticed probiotics in the pill form do not to help palliate any of my symptoms. I have noticed however that yogurt and fermented milk products do. Maybe the relief I feel when I eat yogurt or kefir has more to do with the calcium and not so much to do with the probiotics.....

On the whole probiotic topic, I read an article from the "Therabreath" site talking of studies they had done in Europe with children and sore throats/bad breath. They found that a very small percentage of children never had sore throats or bad breath. When they cultured these children's mouths, they found that they naturally had a high percentage of the bacteria called streptococcus salivarium. They now make not only breath products with this bacteria but also a lozenge for sore throats.

Thanks for all your great work:D

Martha 

Last edited on Mon Jun 16th, 2008 21:43 by Martha

Ames
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 Posted: Thu Jun 19th, 2008 22:05

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Hi Nick,

I can't get your link to work!...and I'm sure it's about something interesting.

Martha - thanks for sharing.  It would be interesting to hear more direct reports about how effectively products made from streptococcus salivarium have been found to work. 

Also, I just put a new interview up on Bacteriality.

I interviewed Chris Eastlund, a long-time MPer who has now essentially recovered from diabetes, sarcoidosis, and irritable bowel syndrome thanks to the MP.  

http://bacteriality.com/2008/06/19/interview22/

Best,

Amy




____________________
CFS/FMS/osteopenia/severe insomnia Non -MP meds: Gabitril (16 mg),Trazodone (150 mg),Tramadol (20 mg) for pain. Light: Noirs (outside and bright lights), thick layers, sunscreen

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