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Prof Trevor Marshall
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A new paper in Annals of Family Medicine reports a study finding that 1 in 5 patients in a family practice Doctor's waiting room are likely to be suffering from 'Chemical Intolerance'.

http://annfammed.org/content/10/4/357

This is interesting both from a perspective of quantifying that portion of the population who are suffering from MCS, and that I see this as being a symptom of relatively advanced disease, certainly not common in the early stages of neurologic comorbidity.
 

Seth
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MCS is a weird thing, alright. I never experienced it to a great degree although I have always had a very keen sense of smell.

After around a year on the MP, I have had pretty strong reactions (repulsion) to various things, even ones I had previously liked.

My mother has always had an amazingly sensitive nose, and my father would often get physically sick around certain smells as well.

Paisleykilt
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I've always had a keen sense of smell, too, but it wasn't until a month ago that I actually had to check out of a hotel after half an hour, because I couldn't stand the odour of their cleaning products. (My husband was not affected.)

Weird, I was just over a year in on the MP, too.

wrotek
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never had mcs ...do we know how d metabolism affects it directly? Is it possible that bacteria can infect olfactory cells and the problem is not in the brain?0h ok i have typed in search and found out that olfactory genes are associated with vdre. But still i have friend who works full time and has mcs since at least2000yr.. I always thought mcs is one of the latest symptoms since i never had it. Btw i love smells, especially cedar wood, cologne etc.

Last edited on Thu Jul 12th, 2012 16:28 by wrotek

keithw
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Dale has had this problem for years as a result of too many operations and is one of the main reasons why she joined the site, no changes yet but it's still early days.

:dude:

Cynthia S
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Well, while you are all giving your 2 cents worth, how about me who had zero sense of smell in the last major part of my life, but bad earlier too.  My sense of smell is coming back.  So I have to assume it is not the degree of illness/infection, but where the buggers are, which, and how many of each.

Well, I guess we can assume that waiting rooms are full of pretty sick people, because the sicker you are, the more visits you make to doctors, and skew the percentages of well vs sick people in a waiting room to the sick end of the spectrum.  So I certainly would not assume there is 20% probability of the average person having MCS.

Cynthia

Prof Trevor Marshall
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Cynthia, what proportion of the population are (or have been) "Vitamin D deficient"? That would surely give us a population base to work from, wouldn't it?

If I remember correctly, 50% of American teenagers were 'deficient' by Medicine's standards, and about 25% of them we exhibiting levels I would associate with eventual chronic disease.

So you are correct, it is not 20% of the population, but surely it is not 5%, either? Doesn't even that estimate sound too high to you? One in twenty?
 

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I hate scented products, especially laundry detergents. There are also a couple of people at work that wear aka marinate in perfume in spite of all the signs, and yesterday at the hospital, the phlebotomist just reeked. I figured the boss (who I know!) is away.

I doubt I'd be diagnosed with MCS though. I know other people who are way more sensitive.

Deb

Cynthia S
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Trying to guess what would be reasonable by personal experience is difficult, because when we are young we associate with the young people, and older people associate with older people, but the truly chronically impaired people are too sick to associate with anyone, and often, not even their relatives.  So, our sense of sickness is skewed to a healthier average state.  I think this is why the myth of 'aging gracefully' exists, because the general population just does not see the suffering going on with the really old population, and those moderately old/diseased don't like to show how bad they are, or delude themselves into thinking they are healthy.

I know I was such a person, always researching health and following such knowledge as I found.  How could I have been so ill.  I must  be healthy.  But in fact I was a basket case about ready to go over the edge and couldn't see it until I saw so many things clear up.  I shudder to think where I would have been in the next 10 or 20 years.

Cynthia

eClaire
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I have been absent and am late to this discussion.

Dr. Marshall said, "I see this [MCS] as being a symptom of relatively advanced disease."

According to my mother I was showing evidence of this at a very young age (by age 6). It was debilitating by the time I was in high school (exposure to fresh paint); however, since my mother never let on and I didn't make the connection, I did not find out until I was out on my own and in college and finally put two and two together.

I think if MCS is a sign of relatively advanced disease, then it explains my rather intense reaction to olmesartan when I started the MP in Dec 2006 at age 51 and why my progress is so incredibly slow.

Bobo
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I suffered a lot because of allergy to perfume, smells, even the newspaper every morning I did not like to read due to the disgusting smell.

I always, always had to bring my own tissue paper or else I would be having lots of problems with all the phlegm and mucous produced. I swear, never seen anyone produce as much mucous and phlegm as me. Seriously, I produce A LOT.

My mum had to buy everything perfume free and I could only use cotton clinging to my skin. Pyjamas, t shirts. I was hyper sensitive as a child around 5-6 years old I think.

It actually got a bit better when I grew up. But I dont know if it wasnt all the cortisone creams and once or twice cortisone tablet cure that did that or that my body got better :S I think I may be sicker than I think when of all the uncontrollable rashes I had that needed strong dose of cortisone.

But is it because of infection or environmental issues?

Prof Trevor Marshall
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Bobo wrote: But is it because of infection or environmental issues?

A good question. I would be very interested whether either you or eClaire are sensitive to the 27MHz CWS system. We have a few research units remaining from the initial batch, please follow the instructions in this thread so Joyful can let you know what info she needs to send you one and get you set up on the Schwannsongs.org site.

http://www.marshallprotocol.com/view_topic.php?id=16136&forum_id=43&jump_to=290894#p290894

Sincerely,
Trevor

eClaire
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I forgot to mention that it was clear to me and my family by the time I was in my teens that I could not wear perfume and my mother had to use her hairspray in her bathroom with several doors separating us. She had to wait a while before leaving the rooms and I couldn't get in the car with her for a while after she sprayed her hair. How badly I was effected by cigarette smoke was not discovered until I once again lived with a smoker after college. After that, my family stopped smoking in the house when I was around.

I was also incredibly light sensitive by age 11 and unable to be in the sun without food on my stomach (sounds odd but true) and even then it was iffy.

Last edited on Sat Dec 20th, 2014 00:13 by eClaire

k
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My experience is similar to eClaire and Bobo.  Very sensitive to smells, to chemicals etc etc.  From a young age.

I have a CWS - I just haven't started using yet (my life went a bit berserk busy shortly after I received).  But once I do I will post.

Prof Trevor Marshall
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Thanks, K :) Hope life settles down. It is such a pain when 'stuff happens' :)

be-well
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I loved going shopping with my mum when I was a little girl. But of note, around the age of six or seven onwards, whenever we moved through the bakery, I registered what I will describe as a olfactory revulsion for the smell of wheat and cakes in abundant presence. I was able to eat wheat back then, but was always missing school with flu like symptoms and general malaise. Gloss paint, hairspray, some perfumes, cigarette smoke and domestic cat odours came along in my early 30s.

I always tested negative for celiac. Go home and have some toast and a nice sandwich said the clinical wisdom! For that reason my gastro decided my 'claimed' intolerance of grains and some chemical sensitivity was simply 'false belief syndrome' and had a mention in the 'literature for depressive conditions'. (2006)

Some time ago, an aquaintance of mine with an interest in biomedicine  described how he and his family always kept domestic bleaches, detergents, paints etc in a shed well away from the family house due to fact that sunlight/temperature, electricity could influence their molecular structures, including the toxicity issues of the bottles/ containers, into the living environment, which the human body's more subtle physiology, was incompatible and usually unsuspecting.

Last edited on Sat Dec 20th, 2014 16:28 by be-well

Amelie
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Hi! ! My story is like eclair's also. We figured out in high school that I was" allergic" to fragrances. Although hers as a baby I couldn't wear disposable diapers without breaking out and crying. I always had a difficult time being around household cleaners too, When t finally saw an allergist, he said that I didn't have a perfume allergy. I had Multiple Chemical Sensitivity. It has definitely made life more difficult,

I now have a 27 MHz CWS that I have been using for 6 weeks. I am very sensitive to this device. I started out at just 10 seconds powered on at 15dB and have worked up to one minute fifteen seconds. I feel it in my head and it helps my cognition and motivation. All though I am mostly in bed right now because of 3 trips to the dentist last week, I bet my recovery would take a lot longer without the CWS. I am not sure that my MCS has been effected. I will have to think about it and be on the watch for changes in the future. Now if I can just figure out all of this EMF sensitivity as well.

eClaire
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I've tried to follow up on the 27 MHz CWS with no luck.

Joyful
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Claire did you send me an email requesting one?

eClaire
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I thought so Joyful. I just got an email for the forum, but will have to save that for when my brain is working better so I can make sense of the directions.



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