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The Marshall Protocol Study Site > PROF. MARSHALL'S PERSPECTIVE > Prof. Marshall's Perspective > IOM renames CFS/ME to SEID, whether you like it or not


IOM renames CFS/ME to SEID, whether you like it or not
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Joyful
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 Posted: Tue Feb 17th, 2015 12:48

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The ability of acute viral episodes to drag us back down seems to be a commonality. :(

But as Chris points out, the neuro-immune dysfunction is what makes the disease so disabling. Why hasn't a name with this key part been able to "take" with the medical community? Dr. Bell brought this forward a very long time ago.

BTW, I'm remembering that research into causes of death for ME/CFS patients. Cancer, heart failure, and, for the younger ones, taking their life. If I recall correctly Claire, you were having some serious cardiac symptoms when you started the MP? We can hope that there's been some healing for you on that front.




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Prof Trevor Marshall
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 Posted: Tue Feb 17th, 2015 15:17

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eClaire, Last year, when I met Kevin Tracey, I realized that the brain was the missing link in proper functioning of the immune system. Later, in May, after I had listed to French physicians in Lyon explaining what they had been achieving by treating patients with Scalar Waves, my suspicions were confirmed. But sadly, there is so much quackery on the issue of 'electromagnetic pollution' or 'EMF' or whatever tag one wants to use in their (quack) marketing that it turns away the rational amongst us from opening this door.

I have spent the last year working 24/7, trying to merge my background of 50 years working on radio frequencies, with our current understanding of Biology. I was, and remain, convinced that those who have failed to recover with Olmesartan have primarily been hindered from doing so by their Microwave environment.

I read your post with interest, as attributing each crash to something you were aware of. This is something I myself have been doing all my life. I usually attributed a crash to bad food, hidden Vit D, and in one instance, bad water. Yet it was not that, it was the radio waves I could not see, yet which accost us all from time to time. By the time we feel their effects, 4-6 hours, we have moved from that environment, and are unable to be made aware of their presence. Those radio waves interfere with our brain function, and thus interfere with our immune system, as well as our psyche.

But there are solutions to be discovered beyond the ineffective junk sold by most of the quacks. Excuse me, but I just read an atrocious website, promising to help patients, charging them an arm and a leg, yet giving nothing, and I am still in a state of shock that anybody would visit such quackery on their fellow man :X

We are well on the way to figuring it all out, and several members have improved significantly as Joyful's summary describes:

http://www.marshallprotocol.com/view_topic.php?id=16290&forum_id=48&jump_to=293247#p293247

Now we have to find solutions which can help you, and everybody else who remains suffering. I understand what is happening now, I have outlined the science, and now I am working on remediation which works, and which doesn't cost an arm and a leg. I just need a couple more months to bring the initial solutions to fruition :) :) :)
 
Keep smiling,
Trevor

mvanwink5
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 Posted: Tue Feb 17th, 2015 15:54

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Dr. Marshall,
One personal anecdote connecting infection to CWS signal strength sensitivity (which would indicate also, to my mind at least, EMF sensitivity) is that flea bites for me have a dramatic effect on the CWS power level that I can tolerate. For instance, last November when I had a barrage of flea bites (hatched out of the potting soil I used on some house plants), the tolerable level and duration of CWS exposure was dramatically reduced. Only recently has the previous sensitivity returned, but then I repotted some recently purchased plants (I thought surely flea eggs would not have survived the cold) and 10 days later... flea bites on my arms.

The point is that once again the CWS signal power that I can tolerate dramatically dropped back again. However, I have a hard time believing this reflects demyelination from the bite infection or bite toxin, but it took at least 2 months to recover from the November bites, so there must have been either damage or the infection took time to clear ( if infection was the issue then toxin wouldn't be the issue?)

Anyway, to my mind this is a clear case of a common everyday occurrence (insect bites) that worsens EMF sensitivity (bad news), and then reverses in time (good news).

Best regards,
Mike



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Prof Trevor Marshall
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 Posted: Tue Feb 17th, 2015 15:57

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Mike, Yes, it is all interwoven. One big, complex. system called 'the human body'.
I really appreciate all the help you have given me trying to unwind the puzzle pieces :)

..Trevor..

Dogster
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 Posted: Wed Feb 18th, 2015 09:54

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Claire, sorry the media stuff you saw was so bad.  What i saw on tV and read was pretty decent, actually.They noted it was a physical disease (which wasnt really the focus of the articles, but always welcome).  Docs need to be informed how to diagnose and how to help (with, at least, pain control and sleep control).  It's still way too hard for a family with a cfs kid or adolescent or adult to find any help AT ALL.. . And, yes, the PEM studies clearly differentiated between cfs and ms and lupus, etc.  And i think it was Peckerman (long time ago) who showed heart damage.  Perhaps there is some damage cant be reversed after long and severe illness??????  I notice most cfs folks here (except perhaps a few young ones) still cant do any aerobic exercise at all . . . or even mild to medium exertion. . . .

Joyful, they do have brain scans that show damage.  Yes, we all know the neuro is involved, they could have gone back to ME and added "disease" at the end=MED.  Ha!  Or use ME and add E for exertion = MEED--???



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CFS lyme RSD: pain migraine| tylenol fioricet flexeril tramadol temazepam| acidoph guaif/cold| Q| Cut D/exp Feb05| NoIR Mar05| June05 Comm Beni Q8H| July05 mino| Jan06 PH2| Aug06 1,25D=29 25D=17|
Joyful
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 Posted: Wed Feb 18th, 2015 13:58

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Dogster, I hear you. When I read Osler's web quite a few years ago now, a lot of the pieces came together. Peckman's work, the observation of punctate lesions in the brain, the note that those who recovered within 2 years seemed to fare better than those whose symptoms persisted beyond that.

Dr. Bell's observations hold the most weight with me as he has offered a thoughtful perspective without having sick patients as his income source.



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Dogster
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 Posted: Sat Feb 21st, 2015 09:48

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Joyful,
long before you were on the scene, there were lots of docs (who maybe had cfs themselves or family member) who basically went bankrupt trying to treat cfs/lyme/environmental patients, who were basically uninsured or underinsured.  Plus, because of various regulations and non-recognition of the illness by the medical system, the docs couldnt get reimbursed.  And some were ruined by the regulators.  And some just had to stop treating such patients so they could support their own families. . . .



____________________
CFS lyme RSD: pain migraine| tylenol fioricet flexeril tramadol temazepam| acidoph guaif/cold| Q| Cut D/exp Feb05| NoIR Mar05| June05 Comm Beni Q8H| July05 mino| Jan06 PH2| Aug06 1,25D=29 25D=17|

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