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ARF's 2006 Conference - LAX on 17/18 June
 Moderated by: Prof Trevor Marshall Page:  First Page Previous Page  ...  6  7  8  9  10  11   
 

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Barney
Support Team


Joined: Mon Dec 20th, 2004
Location: Michie, Tennessee USA
Posts: 3844
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 Posted: Fri Jun 23rd, 2006 05:41

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Okay...I think I have rested enough to type for a few minutes...it is unbelieveable how much traveling takes out of you...

First, I apologize to Michael's family for not letting them know I arrived home safely (thank you for checking on me)...but I do not function very well for about 2 weeks after the conference and this is why....

I usually do not sleep well before I leave (only 2 hrs) before I drove for 2 hrs to the airport realizing that I had forgotten my jacket (to far from home to turn around). Got to the airport before the sun came up...put on a long sleeve shirt for the plane...flew to LA....put on hat/gloves and got on a shuttle to the Hilton (10 minutes). Beautiful hotel which helped to set the feeling of what this conference was going to be like. The elegance of it all. Great buffet...especially for the diabetic in me......which I enjoyed with Carol and her husband, Phil (the RVers)....great company.....then

here came Trevor, Liz and Karen....what a trio...I absolutely adore them...Liz and Karen are such a support for Trevor (of course, he is a great leader). Once again I would love to thank them from the bottom of my heart for all of the very hard work they do to put a Conference together and pull it off...not to mention the elegance they pull it off with.

Now...to mention the MPers that came to the Conference....wow...there was so much love in that room....it was great to get to hug all the necks I could get around too....you are such a family and a treat to me...you help keep me going. I wish there were some way everyone on MP could come.

Dr. Greg Blaney....as soon as they perfect cloning....you are being cloned. What a wealth of information you are. You are so very very funny. It is so great to be able to laugh about things that hurt so bad and the brain fog...you kept us in stiches. You made me cry (tears of joy) when you got down on your knees and checked Michael over for his weakness and the way that Michael just bonded with you was fantastic. I know you have a wife.....but I love you.

Dr. Alan Cantwell, you are one of the sweetest men I have ever met...you are so down to earth and so very willing to listen as well as talk about what you believe so strongly in. Thank you for taking the time to discuss these things with me.

Dr. Eishi...and Jane....it was a great pleasure to also sit and talk with you at great length about sarc...thank you for traveling so far.

Dr. Marshall...first thank you for Marshall Protocol....it is saving many lives. You are so professional but also so much fun to be around. It was great to be with you at another conference and we are all hoping that you willl make this a yearly event....we will help...we promise.

Everyday was an adventure at the Conference....you could hardly wait to get up and get going with other MPers even tho you were dead tired. Breakfast with others...then off to the different panels...and to hear the experiences of brain fog and pain and recovery from the other MPers just put you on a cloud higher than a plane could take you!! The word I found for most of it....no matter what the disease was....was DITTO!!!  It was totally amazing how we herx alike and feel the same ways and the same pains.

LeAnne talked me into joining her and her husband....and several over MPers of getting on a shuttle to Manhattan Beach for dinner...it was still light a little so Donna loaned me a jacket. Thanks Donna...and thanks LeAnne for talking me into it even tho that bed looked real good when we got back and I don't remember my head hitting the pillow.

Jillian....you were a great roommate....so sorry you had so much herx....maybe next time you will get to spend more time out of the room like you wanted to do.

Belinda...not a problem with seeing your friend to the airport...it worked out perfect....sorry they checked her out like a terrorist.

Meg...Belinda....Susan...I am still just revalling in the fact that you look so much younger than the last time I saw you 3 and you look so much thinner. I can't wait till I am there.

Sunday night those of us who were left to Monday flights...joined Trevor/family and helped roll up cords and pack things away....and the very best part.....we just sat around talking and loving one another.......it was very hard to leave all that. The MP is not just a cure....we are a family and I believe we will always be a family.

With this...different look at the Conference...I hope you all felt like you were there.

HANG IN THERE, WE WILL MAKE IT!!!!BARNEY:D

 



____________________
Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Benicar only since 9/2007. 11/11/12 had a heart attack, 1 81mg asprin, diabetes blamed for this. Heart is regenerating new veins. 2nd heart attack because of drug coated stents.
Chris
Support Team


Joined: Mon Sep 13th, 2004
Location: Raritan, New Jersey USA
Posts: 1001
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 Posted: Sun Jun 25th, 2006 14:33

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I want or rather need to thank all at the ARF conference. I've tried for two days now to find the words, but I think I have to give up on anything fancy and just say Thank You.

This group has helped me continue in the MP, sometimes by urging, sometimes just by a shared complaint to let me know I wasn't alone; and often by a good laugh. I'm a bit of a procrastinator about hard jobs, the thought being that in time, I'll think my way through it to a simpler, more elegant solution (confession: I was a math major, and this worked back in school.). Enduring the MP can't be addressed that way. Having almost instant support made the MP possible. I owe you folks a lot.

The biggest payoff of all came when my wife met you, and found out for sure that I was involved in a group of really great people; people who have amazing stories to tell about the MP and are pretty amazing people in their own right. For this introvert, the Sunday night discussion was downright comfortable. I tried to make an effort to be more outgoing that I usually am in groups. Thank you all for making it easy.

I do wish to apologize to JRFoutin, for not recognizing her. JR, your previous avatar really did you no justice. You look much better with the sunny smile I saw in LA.

Thanks again to all involved, and especially Dr Marshall and the ARF staff!



____________________
sarcoid diagnosed 1991, probably started 1983
D25/1,25: Mar04 17/80, Sep04 12/50, Nov04 8/23, Jan05 9/39 May05 6/27; in phase3; fevers, muscle pain, tinnitus, depression, mental-fog, IBS, carpal-tunnel, fatigue, osteopenia, fall 2017 - osteoarthritis
Leesa
inactive member


Joined: Sun Oct 30th, 2005
Location: Kingwood (Houston), Texas USA
Posts: 148
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 Posted: Sun Jun 25th, 2006 17:24

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It seems that I am the only one that has not had a chance to send a reply as to how much I loved going to the conference! It is not that I was sleeping and recovering like some of you :):)! But I have been busy trying to keep up with my three kids and their summer fun!!!!:P:P:P

I am so glad that I attended the conference! Thanks Dr. Marshall for all that you have done for all of us! Although I always thought that I was probably doing the right thing by going on the protocol :shock:, now I know for certain :cool:, 100% that I am doing the right thing!!!! Wow, to feel that way about something that you are doing, it makes it work even better:dude::dude:

What a gift the MP is to me…. it is giving me the gift of getting better, not only for me, but for three little kids that need their mommy. It has been almost 6 months and I am already at the point where I just dropped my eye drops completely (I had terrible uvitus)!! YEAH I cannot imagine where I will be next year when you all see me again!  

I so much enjoyed hearing the success stories that we all shared with each other. Hearing the science behind the protocol was powerful and I LOVED hearing Dr. Blaney speak too.  

Thanks Meg for asking me to go and Reenie for being my roommate and Belinda for asking me to speak and share my story, I hope it helped someone else! 

See you all on your posts and keep getting better!:D:D 

Leesa

Last edited on Sun Jun 25th, 2006 19:45 by Leesa



____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! Have not been on Protocol for several years (Sept 2011)
Mae
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Joined: Thu May 12th, 2005
Location: Utah USA
Posts: 58
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 Posted: Mon Jun 26th, 2006 14:30

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I have just been reading all the enthusiastic letters about the conference and realize what a great experience I have missed.  I am curious to know how many MPers were there?  I am looking forward to getting the DVDs.

Thanks to all who have posted so those of us who couldn't be there could at least experience it vicariously.

Thanks again to Dr. Marshall and the wonderful team who are helping all of us!

Mae



____________________
Sarcoidosis/lungs 125D44 25D60 25D10(May08) Ph1Aug05 Ph3Nov06
LeAnne
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Joined: Wed Apr 20th, 2005
Location: Augusta, Georgia USA
Posts: 815
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 Posted: Thu Jul 27th, 2006 08:00

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Any progress on the LAX Conference Dvd's?

LeAnne



____________________
Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
Prof Trevor Marshall
Foundation Staff


Joined: Fri Jul 9th, 2004
Location: Thousand Oaks, California USA
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 Posted: Thu Jul 27th, 2006 09:18

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Karen has been crunching away with the editing for the past several weeks. It will still be a few weeks before they are finished. There is a lot of editing which has to be done to make the presentations reasonably interesting when they are viewed on a TV set.

Frans
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Joined: Sun Feb 20th, 2005
Location: Near Rotterdam, Netherlands
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 Posted: Thu Jul 27th, 2006 09:33

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Tell Karen we are all very, very greatful!

Even before seeing the results ;).

All het former 'Kaz' productions have been great !

Sincerely, Frans



____________________
Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
bookdad
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Joined: Mon Aug 15th, 2005
Location: Riverdale, Utah USA
Posts: 428
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 Posted: Fri Aug 4th, 2006 10:27

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Yes Please tell her many thanks! We (those of us who couldn't make it) just can't help being a little anxious :D



____________________
Sarcoidosis/lungs RA Ph1Nov05 Ph2Mar06 Ph3Aug06 lite exp r/t to work cover up NoIRs Ph5 Aug 09
Bella
Health Professional


Joined: Sat Aug 27th, 2005
Location: Ask Me, USA
Posts: 2080
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 Posted: Fri Sep 22nd, 2006 20:00

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Just wondering when the DVD's from the conference are going to be out?

Thanks Jeannine:D



____________________
MP Break (5years) | CFS'92 | Fatigue | 25D=7 Dec. '13
Prof Trevor Marshall
Foundation Staff


Joined: Fri Jul 9th, 2004
Location: Thousand Oaks, California USA
Posts: 15727
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 Posted: Fri Sep 22nd, 2006 21:04

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Not finished yet. I hope to have them out by mid-October. There is a lot of work still to be done, although Karen has finished most of the editing. I have just been so busy this year:X


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